POLL

[Guest guest]

gillian, i tried todo that poll but i am not too good at maneuvering on this

computer i couldnt get the website and i kept getting kicked off...well thats

my story and im sticking to it!

cathy from mass

[Guest guest]

give us that are lazy an autolink in blue, and you may get more response.

betty in va

[Guest guest]

With the risk of sounding stupid, where do I find this poll.

Jill

[Guest guest]

Sorry Gillian...I don't know what the poll is...is it regarding location? Or

is there something I missed before I started here a few weeks ago? Thanks!

[Guest guest]

First you have to remember your password. I didn't. Had to request it.

Got the authorization to change it instead. Did that. Finally ready to go.

Next time you set up a poll, please have all the questions on one page!

Having to go back and forth and start again for each question may have put a

lot of people off. I have a very slow computer and this thing too

for-ev-er! But the questions were great.

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[Guest guest]

Am sorry to repeat myself, but why not just hilight it and let us click on it

to bring it up and respond to the poll. The response would be much better, I

think. Betty in VA

Moderator: I just sent an email with a link. We'll see if it works. If it

doesn't, I think a copying and pasting lesson might be in order. Honestly, it

would take all of 15 seconds to just cut and paste the URL into your browser,

and that's with taking a short nap between cutting AND pasting! :-)

PHDRWD@...

[Guest guest]

Hi Gillian,

Thanks to Pat B (thank you) I found the poll and you can consider me as

officially completed. Thanks for all your efforts getting it put together.

Hope we learn something useful-- strength in numbers!!!!

in Wisconsin

[Guest guest]

go to the web page...look down the list for polls...I think that's how I did it. donna

Puddinpanda@... wrote:

With the risk of sounding stupid, where do I find this poll.Jill-------------------------- eGroups Sponsor -------------------------~-~>GET A NEXTCARD VISA, in 30 seconds! Get ratesof 2.9% Intro or 9.9% Ongoing APR* and no annual fee!Apply NOW!>Please'>1/7872/4/_/494167/_/967494017/-------------------------------------------------------------------->Please visit our new web page at:http://www.wpunj.edu/icip/paWe are currently discussing new chat times. moderates a chat on arthritis atwww.about.com on Thursday evenings, so check thatout in the meantime! E mail at RA@... for details.

[Guest guest]

Carlson wrote:

> First you have to remember your password.

When I signed up there was a box to check that

remembers all that for you. With my faulty memory,

I immediately checked *that* box! It sure came

in handy when I did the poll.

Patty B in the Pineywoods of East Texas

[Guest guest]

I suspect that maybe nobody envisioned, or maybe would have allowed this, but

there is at least one good reason to have the poll questions set up as they

are, each on an individual page. The members of the group can log in, and set

up their own polls as individual questions this way.

I have added one question to the list. I did so independently, without

permission. I think that this is a good thing. Others may not, and I can

certainly see that it might be abused. But that's how it stands right now,

anyway. I suppose that sooner or later somebody may abuse the privilege.

happy trails - Rob Glover

[Guest guest]

Ok - I'm a lazy AOL internet user too - but instead of a link, you can always

highlight a web address, right click on it, click copy, go to your web

address line and click paste (it's not so hard!)

Then you don't have to worry about whether it's blue or purple

[Guest guest]

How do I get to the poll? I tried & failed. Can you re-send it, or send a

link?

Sharon in MA

go to www. and sign in and look down the left side of our page for

the word POLL

[Guest guest]

Lyn:

My son is 6 years old. He weighs 70 lbs.

I am doing every 4 hours - 70mg DMSA only.

Doing night doses using DMSO as a carrier for transdermal application.

Schedule 3 on / 4 off

No negative side-effects.

Many positives reported from school by 4th round including increased speech, clearer speech, awareness of others, etc. At home, we are noticing increased awareness and interaction with family.

Now on 5th round.

Using minerals (Citramin II - 1X day), zinc and Vit C.

No monitoring tests ordered yet.

[Guest guest]

Dear Listmates,

As many of you know, Dr. Rimland is holding a small meeting to discuss the safest and most effective treatment for mercury poisoning in autistic children. Dr. McGinnis has asked me to poll the list concerning what protocols and methods of treatment the parents have felt were most effective. I have put together a few questions below. Please feel free to add in any additional information that you think would be beneficial. You can send your responses to my email address

autism treatment@...

I will put all the information together and re-post the report to the list. Please try to get this to me in the next 2 weeks. I will also post a report after the meeting concerning the response.

Again, thanks so much to everyone who participates on this list and gives so freely of their time and knowledge to help other parents. You guys are great!!!

Lyn

What are you currently using as a chelating agent? Chemet, DMSA, (compounded , long acting or with ALA) Captomer, DMPS, IV Vita C, Alpha Lipoic Acid, nutritional products, supplements, foods.

What chelating schedule are you following (ie Hours between doses and days between chelating)?

What dose of chelators are you giving your child and is it based on their weight?

What has been your childs response to chelation; good, bad or indifferent?

Have you been following chelation treatment with urine, stool or hair analysis for metals.

If so, are you seeing metals being excreted?

What have you found to be the most beneficial chelator or schedule for chelation, if you have tried more than one?

Any additional information that you think may be helpful.

We are also wanting to put together a list of physicians who we can refer parents to for the evaluation and treatment of metal toxicity. Would you recommend your physician? If so, please check with them to see if it is ok to include their name and address.

Thanks again,

Lyn Redwood

[Guest guest]

Lyn

This is a great poll. Will this information be available once it is

completed?

A Jeffs mom

[ ] Fw: Poll

Dear Listmates,

As many of you know, Dr. Rimland is holding a small meeting to discuss the

safest and most effective treatment for mercury poisoning in autistic

children. Dr. McGinnis has asked me to poll the list concerning what

protocols and methods of treatment the parents have felt were most

effective. I have put together a few questions below. Please feel free to

add in any additional information that you think would be beneficial. You

can send your responses to my email address

autism treatment@... <mailto:autism treatment@...>

I will put all the information together and re-post the report to the list.

Please try to get this to me in the next 2 weeks. I will also post a report

after the meeting concerning the response.

Again, thanks so much to everyone who participates on this list and gives so

freely of their time and knowledge to help other parents. You guys are

great!!!

Lyn

What are you currently using as a chelating agent? Chemet, DMSA, (compounded

, long acting or with ALA) Captomer, DMPS, IV Vita C, Alpha Lipoic Acid,

nutritional products, supplements, foods.

What chelating schedule are you following (ie Hours between doses and days

between chelating)?

What dose of chelators are you giving your child and is it based on their

weight?

What has been your childs response to chelation; good, bad or indifferent?

Have you been following chelation treatment with urine, stool or hair

analysis for metals.

If so, are you seeing metals being excreted?

What have you found to be the most beneficial chelator or schedule for

chelation, if you have tried more than one?

Any additional information that you think may be helpful.

We are also wanting to put together a list of physicians who we can refer

parents to for the evaluation and treatment of metal toxicity. Would you

recommend your physician? If so, please check with them to see if it is ok

to include their name and address.

Thanks again,

Lyn Redwood

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[Guest guest]

Dear Listmates,

If you have not yet had time to respond to the chelation poll and would still like to do so, please try to get it in this weekend. (See below). Also, I've had a number of parents mail me that they are having trouble with their account since has taken over egroups. Please let me know if you are having a problem.

Thanks again,

Lyn Redwood

As many of you know, Dr. Rimland is holding a small meeting to discuss the safest and most effective treatment for mercury poisoning in autistic children. Dr. McGinnis has asked me to poll the list concerning what protocols and methods of treatment the parents have felt were most effective. I have put together a few questions below. Please feel free to add in any additional information that you think would be beneficial. You can send your responses to my email address

autism treatment@...

I will put all the information together and re-post the report to the list. Please try to get this to me in the next 2 weeks. I will also post a report after the meeting concerning the response.

Again, thanks so much to everyone who participates on this list and gives so freely of their time and knowledge to help other parents. You guys are great!!!

Lyn

What are you currently using as a chelating agent? Chemet, DMSA, (compounded , long acting or with ALA) Captomer, DMPS, IV Vita C, Alpha Lipoic Acid, nutritional products, supplements, foods.

What chelating schedule are you following (ie Hours between doses and days between chelating)?

What dose of chelators are you giving your child and is it based on their weight?

What has been your childs response to chelation; good, bad or indifferent?

Have you been following chelation treatment with urine, stool or hair analysis for metals.

If so, are you seeing metals being excreted?

What have you found to be the most beneficial chelator or schedule for chelation, if you have tried more than one?

Any additional information that you think may be helpful.

We are also wanting to put together a list of physicians who we can refer parents to for the evaluation and treatment of metal toxicity. Would you recommend your physician? If so, please check with them to see if it is ok to include their name and address.

Thanks again,

Lyn Redwood

[Guest guest]

In a message dated 4/15/01 3:52:42 AM Pacific Daylight Time, picbond@...

writes:

<< If I lay on my back for more than 10 minutes, I have excruciating

pain in my lower spine, and quite honestly, it feels as though my

back is broken.

>>

Mike

I'm with you on this one. I can't lay on my back or side and forget the

stomach and you will probably think I'm nuts but I have slept in a recliner

for about ten years. It's the only place I can go and get relief from the

pain. I've tried pillows and I even invested in an electric bed and nothing

worked and without sleep one cannot get anything under control and nobody

would want to be around me either. :>)

Good luck on lyour poll.

Nanny

[Guest guest]

In a message dated 17/04/01 18:32:02 GMT Daylight Time, kenlav@... writes:

I sleep on my stomach or either side.

Hi Allayne,

Stomach is just as bad as the back !! excruciating !! I start on my right hand side, but obviously, some time during the night, I end up on my left side!

What would be really nice, is if I got a 'FULL' nights sleep :-) lol

As I am sure most of us would love!!

Mike (from the UK)

[Guest guest]

In a message dated 17/04/01 18:38:27 GMT Daylight Time, nanny1547@... writes:

and you will probably think I'm nuts but I have slept in a recliner for about ten years.

Nanny,

No, I do not think you are nuts ! Quite understandable, we each have to deal with this in our own way. I feel for you.

At least I am thankful that I can lie down. As I said in a previous post, I just wish I could get a 'FULL' nights sleep!! I have probably not had one since I was in 'nappies!!!' (diapers, I think you call them !!) lol

Mike (from the UK)

[Guest guest]

I sleep in any position you can name - back, either side, stomach - even

sitting up in a chair - luckily, sleep is never a problem for me, which makes

me really abnormal for this group - it's sort of my way of dealing with pain.

If I'm asleep, I don't feel the pain -

Now can someone tell me a way to stay AWAKE???

ZZZZZZZZZZZZZZ,

[Guest guest]

In a message dated 18/04/01 17:34:51 GMT Daylight Time, TADEL630@... writes:

Now can someone tell me a way to stay AWAKE???

ZZZZZZZZZZZZZZ,

,

You could try walking on hot coals !!!! <BG>

Mike (from the UK)

[Guest guest]

In a message dated 04/19/2001 3:28:25 AM Eastern Daylight Time,

picbond@... writes:

<< You could try walking on hot coals !!!! <BG>

>>

Gee Mike - I think I'll stick to coffee!!

[Guest guest]

Lucky you , I work night shift from Mon to Thur nights and can only

get a good solid 4 hours sleep at the most during the day then Im tossing

and turning trying to get comfortable or just get fed up and get out of

bed. On my nights off I wake about 3am for the toilet and then do the same

thing toss and turn till I get up. Ive learnt to survive on not much sleep!

Im stiff for a while after getting up until I move around for a while and

loosen up. I wake up with the dry eyes thing too which is another

problem....ha you should see me trying to get to the toilet in the middle

of the night with my eyes shut!

Oh well!

Dianne

At 08:25 18/04/2001 EDT, you wrote:

>I sleep in any position you can name - back, either side, stomach - even

>sitting up in a chair - luckily, sleep is never a problem for me, which

makes

>me really abnormal for this group - it's sort of my way of dealing with

pain.

> If I'm asleep, I don't feel the pain -

>Now can someone tell me a way to stay AWAKE???

>

>ZZZZZZZZZZZZZZ,

>

>

>

>

>

[Guest guest]

Halcian is wonderful to get the sleep you need. I have taken it for twenty

years... only last eight hours...and you go into your deep sleep.

I thank GOD for a good rhumey who has seen me and been good to me for over

twenty years.

[Guest guest]

Janet,

I'm not going to argue with 20 years of successful usage, and in fact

I've taken Halcion myself - it seemed perfectly Ok to me, but I've

since switched to Ambien. There was quite a bit of controversy over

Halcion a few years ago and the FDA went ahead and kept it on the

approved list as you can see from the article at:

http://www.fda.gov/bbs/topics/ANSWERS/ANS00410.html

Nevertheless, you might also want to read this one of the possible

dangers, at:

http://www.injustice.org/nemo/newsfile/nk910819.html

Regards,

-- Ron

>

> Halcian is wonderful to get the sleep you need. I have taken it

for twenty

> years... only last eight hours...and you go into your deep sleep.

>

> I thank GOD for a good rhumey who has seen me and been good to me

for over

> twenty years.