Guest guest Posted November 25, 2010 Report Share Posted November 25, 2010 Robin all this is just so confusing, at times it hard to tell what Im reacting to. The gym that I've been going to if you walk in a certain area there's a very strong musty smell which is coincidentally below one of the air vents but these air vents run throughout the entire gym why the smell is so strong in that specific area is beyond me. One things for sure is I cant take any chances and keep working out there now I have either pay more for a newer gym that's closer to where I live or stay with the same club but at a different location. My sugar intake consists of two apples a day except for like I said earlier last night I had two twinkies and I paid for it today. I can tolerate CSM 4x's a day but my insurance will no longer pay for it and I cant afford to pay the $85/month for the medication. I dont know if its me or if actually because Im no longer taking CSM but I definitely feel much worst now that Im not taking it. I called PAR the generic manufacturer of CSM and beings its the generic form of CSM they said they dont offer any kind of patient assistance program. If anyone can provide the name of the company that produces CSM I'd really appreciate it. Are you taking anything else to help keep your regular? Hope you get all this figured out Robin, Tug > > Well Tug.. > > I did have some candy on halloween several times for sure. I limit my sugar otherwise but am not 100% sugar free. I would say between 20-30 grams and few carbs. > > I agree diet is very important. I was on the GAPS diet for 4 months and am considering going back on something similar. > > Its good to see you focusing on your internal environment. I hope that is helpful for you and me as well because besides basic common sense " mold avoidance " , thats all I can do. > > Regarding CSM: If you cant tolerate it 4 times a day you cant. If you can twice a day and that works for you, I guess you go with that. I have delayed gastric emptying that is related most likely to dysautonomia not my diet. > > I have been grasping at straws with all the " hits " (esp when they involved brain inflammation which leads to harsh symptoms) and whether they are internally caused or externally caused.. or > > Glutathione is very powerful. If you need it, it works for you. If you are deficit you may need more and if you are sensitive to detox you can be affected adversely by it very easily with a harsh detox. Ive had to watch it with glut. > > All sprays I have used, glut or antifungal so far produce a very strong and scary detox. > > > Robin > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 25, 2010 Report Share Posted November 25, 2010 If you have heavy metals to pull out, I'd join an autism group. They are really up on that. I did that and did it successfully, according to test results but can't tell you how now as it was probably five years ago or more and used more than one approach. I don't think CSM pulls metals. I believe metals more likely to hide in bone than in liver from what I remember, replacing calcium. Re: your gut feeling like there is something in it. Both a friend of mine and me had that feeling while on antibiotics so felt it was bloating due to candida or perhaps just irritated stomach from antiB's. > > I am grasping at straws at my symptoms. > > I am having more brain inflammation here. I think the csm is helping with pain but I stop and start over and over .. 2 times a day. three. gut feels overloaded.. not sure how to deal with that.. what to do. > > Taking 6000 grams of vitamin C and close to 1000 of magnesium. I am moving stools well. Still gut feels hard and like food is backing up. > > Additionally, the brain inflammation is making me wonder beyoind a CIRS deal.. if this is detox of metals and pesticides??? > > I have a history of heavy pesticide exposure as a child.. carpets literally drenched with it for fleas many times. Summer in the south. > > When I was using nasal glutathione.. same kind of brain inflammation. Last time I used IV, same.. though possibly not so mucb sinus inflammatio n with it. > > I have an infrared coming from heavenly heat saunas. > > I am also wondering about how to combine metal binders with csm and wondering if csm is a metal binder and might actually even PULL metals in some sort of way by pulling bile if the metals would be in the bile.. if I am releaseing them more.. are they in the bile and if they re then does removing bile itself cause a flushing out of fat soluable toxins (to include metals and then possibly pesticides.. are they fat soluable)???? > > If csm does not bind metals I am wondering how to add some chlorella, enough to bind or some low dose edta to mop up.. not sure how to combine with or take while taking csm and still keep up with supps and meds. > > Has anyone rotated CSM with other detox agents? Maybe I might be better off switching to clay, psyllium and add in charcoal from time to time. > > Anyone using any of the above and how are you dosing? psyllium husks or another form? > > How to handle multiple detoxes????? > > > Thanks for any insights.. > > Robin > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 25, 2010 Report Share Posted November 25, 2010 Right now I am taking a compounded form from hopkington pharmacy that costs I think about the same as yours without insurance. It is expensive. I do fine with no constipation. I take 6000mg of vitamin C and close to 1000mg of magnesium malate and glycinate. My problem is my food does not seem to be leaving my stomach fast enough (delayed emptying) to keep up with the doses.. if I take before bed, then I cant tolerate well an early morning dose, which leaves me with 3 a day. Sometimes that is too much. Have you tried clay, psyllium and charcoal? I know a good source for clay.. not cheap but cheaper than the CSM. It is confusing and Ive been thinking about the sugar-fungal angle, the heavy metal angle, etc. I am beginning to think taking a general approach, common sense mold avoidance, diet, detox, antifungals.. in my case possibly giving my body a chance to do what it needs to do to detox. I need to look at my methylation supps and make sure I am not pushing the methylation cycle as well.. this will cause too fast a detox. I am laying off the dairy (yogurt.. dont care much for other dairy products) to make sure this is not a cause of my breathlessnes episodes as well as continuing to air out this house... chemicals. What reactions are you having? I am having sinus and brain inflammation more than at mold house, breathlessness seemingly more lately (but also eating more yogurt.. ), pain I think is better with csm, fatigue as well. Its hard to tell esp when I am also running into quite a few water damaged buildings here. Each time something is triggered physically, I can link it to several potential causes. Weeding out the diet will most likely help clear some of this up. taking note of potential metal detox as well. I was eliminating into yellow zone on urine toxic element and hair tests before I left the mold house but after the remediation doing the methylation protocol and taking moderate levels of chlorella and some edta chelator complex (2 caps max). So I know this is an issue for me as well. I also have lyme, babesia and xmrv as potential players. Robin > > > Robin all this is just so confusing, at times it hard to tell what Im reacting to. The gym that I've been going to if you walk in a certain area there's a very strong musty smell which is coincidentally below one of the air vents but these air vents run throughout the entire gym why the smell is so strong in that specific area is beyond me. One things for sure is I cant take any chances and keep working out there now I have either pay more for a newer gym that's closer to where I live or stay with the same club but at a different location. My sugar intake consists of two apples a day except for like I said earlier last night I had two twinkies and I paid for it today. I can tolerate CSM 4x's a day but my insurance will no longer pay for it and I cant afford to pay the $85/month for the medication. I dont know if its me or if actually because Im no longer taking CSM but I definitely feel much worst now that Im not taking it. I called PAR the generic manufacturer of CSM and beings its the generic form of CSM they said they dont offer any kind of patient assistance program. If anyone can provide the name of the company that produces CSM I'd really appreciate it. Are you taking anything else to help keep your regular? > > Hope you get all this figured out Robin, > > Tug Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 26, 2010 Report Share Posted November 26, 2010 Robin you seem to be very knowledgable. I have been sick for six years and dont understand all you say. Janet In a message dated 11/26/2010 8:13:43 A.M. Eastern Standard Time, listspub@... writes: Right now I am taking a compounded form from hopkington pharmacy that costs I think about the same as yours without insurance. It is expensive. I do fine with no constipation. I take 6000mg of vitamin C and close to 1000mg of magnesium malate and glycinate. My problem is my food does not seem to be leaving my stomach fast enough (delayed emptying) to keep up with the doses.. if I take before bed, then I cant tolerate well an early morning dose, which leaves me with 3 a day. Sometimes that is too much. Have you tried clay, psyllium and charcoal? I know a good source for clay.. not cheap but cheaper than the CSM. It is confusing and Ive been thinking about the sugar-fungal angle, the heavy metal angle, etc. I am beginning to think taking a general approach, common sense mold avoidance, diet, detox, antifungals.. in my case possibly giving my body a chance to do what it needs to do to detox. I need to look at my methylation supps and make sure I am not pushing the methylation cycle as well.. this will cause too fast a detox. I am laying off the dairy (yogurt.. dont care much for other dairy products) to make sure this is not a cause of my breathlessnes episodes as well as continuing to air out this house... chemicals. What reactions are you having? I am having sinus and brain inflammation more than at mold house, breathlessness seemingly more lately (but also eating more yogurt.. ), pain I think is better with csm, fatigue as well. Its hard to tell esp when I am also running into quite a few water damaged buildings here. Each time something is triggered physically, I can link it to several potential causes. Weeding out the diet will most likely help clear some of this up. taking note of potential metal detox as well. I was eliminating into yellow zone on urine toxic element and hair tests before I left the mold house but after the remediation doing the methylation protocol and taking moderate levels of chlorella and some edta chelator complex (2 caps max). So I know this is an issue for me as well. I also have lyme, babesia and xmrv as potential players. Robin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 26, 2010 Report Share Posted November 26, 2010 I agree with Janet, Robin you have definitely done your homework and are very well read. Im by by no means the sharpest tool in the shed and with the brain fog it just makes my ability to retain information worst. I just look at this as a mold exposure and practice avoidance. If I had the extra money I'd definitely go see Dr Shoemaker and find out exactly whats wrong with me and hopefully get on the medications that are going to help me the most. > > Robin you seem to be very knowledgable. I have been sick for six years and dont understand all you say. > Janet Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 26, 2010 Report Share Posted November 26, 2010 There are 2 forms of detoxing. I am not an expert, waiting on financial issues. Dr. Amy Yasko, Holistic Health uses a combinaton of sups. based on your genetics. She has sups based on genetics to correct your methylation pathway error(s)so you can naturally detox w/o traditional chelators. http://www.holisticheal.com/books-and-dvds Buy the book the Getting to the Heart of Autism, the sup DVD, then tests.  Andy Cutler's which uses ALA only for chelating, w DMSA or DMPS depending on what you can tolerate. Many have recovered using both. http://www.noamalgam.com/ I would not take chorella, cilantro or sprilina unless you know what your doing. Some advise no seaweed due to toxins.  I understand Yasko uses edta among others to bind.  Cilantro is dangerous, can move mercury & end up in an organ or the brain, wreak havoc. We all have mercury even if you no longer vaccinate or had fillings removed. It's in the air from manufacturing & improper mercury disposal exposures. Just trying to hep before anyone starts. Kathy >> From: listspub <listspub@...> Subject: [] Re: Detoxing I am also wondering about how to combine metal binders with csm and wondering if csm is a metal binder and might actually even PULL metals in some sort of way by pulling bile if the metals would be in the bile.. if I am releaseing them more.. are they in the bile and if they re then does removing bile itself cause a flushing out of fat soluable toxins (to include metals and then possibly pesticides.. are they fat soluable)???? Robin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 26, 2010 Report Share Posted November 26, 2010 Happy Thanksgiving to you, too. :-) Its good to have a place to go, learn and process all of this isnt it? Robin > > Happy Thanksgiving to you!!! As a member of this group, I've felt great sympathy for those suffering and great appreciation for those helping. As a fellow sufferer, I know how it feels to be misunderstood so I thank you for the sharing and learning from you. I give thanks for your sharing, our learning, honesty and willingness to help one another. Happy and Healthy Thanksgiving...and thank you all. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 26, 2010 Report Share Posted November 26, 2010 I have Cutlers books in my mold home. I was very much hung up on the controversy for a while as I was the Vit D controversy (Marshall Protocol).. it was too much to try to figure out, so I gave up. My MD who is very well studied does not agree with Cutler.... and I dont know what to think. There are many very smart MDs like Dr Klinghardt who believe chlorella is very safe. He has used it for years with thousands of clients. That said, Ive heard the stories... I have used chlorella for years and have not noticed redistribution of metals. But who knows? This one really bothered me for a while and I had to let it go. The Cutler protocol is a hard one to follow, every 4 hours. I have also heard it has been very successful for some people. Im not sure how many people are able to keep it up. My kids have been in ALA-Max, a slow release form of ALA and have been fine... I hope. I decided to trust my MD on this one. Cutler uses ALA and DMSA orally every 4 hours around the clock. You cna do this protocol with just ALA which Cutler claims pulls metals from the brain. He uses very low dose because he wants to gently over time and consistantly pull the metals.. 50 mg every 4 hours. Cilantro does pull from the brain (across the board consensus on this one at least) and I stay away from it except as an herb in food. Dr K uses it but he decides when and with what other binders. I am on Yasko's protocol at full dose with several of her supports. I have run urine toxic elements tests over time and you can see the progression of metals releasing, last ones beginning to go into yellow zone. My kids are on a version of this as well since they have polymorphisms as well. MTHRF labs can be drawn at labcorp or quest. This is a good one to know. If you have a polymorphism here, you probably need the methylated form of folic acid. If I had this poly, I would assume I also needed active forms of b12 as well. I have the MTR homozygeous poly which means I gas guzzle B12. Your body needs to methylated in order to repair dna, kick out metals and toxins, kick out viruses, repair nerves, deal with cancers, the list goes on and one. If methylation if off, then glutathione may be depleted. Glutathione depletion (from toxic or pathogen assault) may trigger the methylation cycle to go off. You can be doing fine with one gene in the MTHFR pair being defective, but when glut is pulled out of the cycle, the potential for a problem exacerbated with the MTHFR polymorphism.. I hope I have this right.:-) Another protocol that will cause metals to release is the pyrroluria (KPU/HPU) protocol. It address cofactors in the methyaltion cycle that are pulled out with malformed ? heme as a result of a condition called pyrroluria. Dr K found that many of his chronically ill patients have this condition. The co factors are zinc and B6. I think I have this right: heme pulls out B6 which in turn pulls out zinc. Other nutrients can be pulled as well in this process and are addressed in the protocol, but these are the main two. Omega 6 deficiency is often found and supplemented as well. When replacing the zinc, metals start to release. And some have needed heavy duty support with EDTA, DMSA, etc. We tested positive for this condition as well. Robin > > There are 2 forms of detoxing. I am not an expert, waiting on financial issues. > > Dr. Amy Yasko, Holistic Health uses a combinaton of sups. based on your genetics. She has sups based on genetics to correct your methylation pathway error(s)so you can naturally detox w/o traditional chelators. http://www.holisticheal.com/books-and-dvds > Buy the book the Getting to the Heart of Autism, the sup DVD, then tests. > >  Andy Cutler's which uses ALA only for chelating, w DMSA or DMPS depending on what you can tolerate. Many have recovered using both. http://www.noamalgam.com/ > > I would not take chorella, cilantro or sprilina unless you know what your doing. Some advise no seaweed due to toxins.  I understand Yasko uses edta among others to bind. > >  Cilantro is dangerous, can move mercury & end up in an organ or the brain, wreak havoc. We all have mercury even if you no longer vaccinate or had fillings removed. It's > in the air from manufacturing & improper mercury disposal exposures. Just trying to hep before anyone starts. > > Kathy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 26, 2010 Report Share Posted November 26, 2010 The autism lists are great. I posted on the one I am one as well. I dont know if they know much about csm though. I did get some good info on alternatives to csm. You are probably right.. the csm if it does attact metals will only do so in the gut, which would beneficial. Im not concerned about pulling out as much as binding what is being released naturally with the methylation protocol and being in an environment that hopefully will allow my body to naturally release more metals. My concern is how to take metal binding agents with csm without the csm absorbing them and at the same time keep up with supps and meds. I am thinking the easiest way may be edta suppository. Could take EDTA with supps but I am concerned it will bind with the minerals. I am already spacing out supps throughout the day. I take alot and have needed alot to keep going up until this point. Hopefully that will start to change. Robin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 26, 2010 Report Share Posted November 26, 2010 I am fringe knowlegable.. I know enough to make myself more insane and confuse others most likely. I've researched alot over the last 3 years. I agree with Barb that the austism lists are the best, esp when they include the lyme angle because lyme venues cover so much since people with lyme (as a group) have just about every infection and condition under the sun. Treating lyme is like treating CFS/ME. You have to consider every angle including mold. Robin > > Robin you seem to be very knowledgable. I have been sick for six years > and dont understand all you say. > Janet > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 26, 2010 Report Share Posted November 26, 2010 I've been in lyme circles for three years.. once you enter there, you are exposed to just about everything concept known to humankind regarding health. In lymeland, you are not just treating lyme. Even the more traditional LLMDs are getting that. Many people seek out alternative MDs, NDs, practioners who add to the knowledge base. Its a lot to take in and over time, you absorb it enough to have an idea. It ca drive you insane though, esp when you have diff camps on diff topics. I was diagnosied with biotoxin illness by a clinic that had just gotten into the concept of biotoxin illness. They told me I had the " dreaded " and with a look of " I am so sorry " handed me a script of CSM.. nothing else.. no advisement to check for biotoxins exposure.. nothing. Also did not run all the labs they should have. They didnt even run c3a or c4a. If they had, I would have taken them seriously. I didnt know to ask for this.. just that they were not doing this right in a general sense. Same month, I was diagnosed with lyme and babesia. I had researched enough to know that the clinic was not properly following the Shoemaker protocol and was convinced by my lyme MD to ignore Shoemaker.. and use chlorella for detox (this was all he knew) and treat the lyme and babesia. I let the biotoxin angle go.. I was too sick and did not trust the clinic. Later learned much more about the biotoxin angle in lyme circles and had my house tested. It tested fine! So I let it go again.. Later over time I learned more.. had my house tested again.. this inspector used a moisture meter and found a problem.. So it took me 3 good years to get back to the beginning. This time I knew what tests to ask my newest and best MD Ive ever found to order for me. In the meantime during those 3 years.. it was an education in lymeland.. this site will show you what I mean: www.betterhealthguy.com This is a great site! In lymeland, you will run into people who have been sick for so long with a " cure unknown " that people start to question the idea that one thing can make them so sick. They get into terrain theory, and beyond that into quantum biology, which is facinating. Lots into diff forms of homeopathy as well as quantum oriented healing like using photons with homeopathy, electro medicine (I know people who have truly recovered using these diff techniques.. everone in lyme land evntually includes detox a focus and also focuses on multiple areas). Its truly fascinating. The LLMDs also eventually move this way to diff degrees.. from addressing detox angles to venturing into herbals, and beyond pulling in from the environmental MDs, the biotoxin angle (my more traditional LLMD precribes csm), candida protocols, autism protocols, and so on. Robin > > > > Robin you seem to be very knowledgable. I have been sick for six years and dont understand all you say. > > Janet > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 26, 2010 Report Share Posted November 26, 2010 Robin, I didn't mean to say anything wrong. I wanted others to know your background. You had the genetic testing & others to guide you. Some of us like me, know great doc's but don't have the funds. I " m tired of mainstream. I have a nice doc. that's trying, but dont' know if the'll run the tests & know how to help. If they're not covered by insurance, as most, I'm out of luck. I can't handle most Rx's. any longer. You're very blessed to be able to afford it. It's true healing. I have doubts about Cutler, only b/c he believes in steroid tapers for adrenal stress caused by chelation. Some have to use a very low dose of ALA verses the normal dose. Many don't tolerate DMSA. So far I don't test w Lyme, but wouldn't be surprised w the right labs I would. I'm sure Lyme is involved to heal. We enjoy reading all you know & have done. Kathy <listspub@ wrote: [] Re: Detoxing I've been in lyme circles for three years.. once you enter there, you are exposed to just about everything concept known to humankind regarding health. In lymeland, you are not just treating lyme. Even the more traditional LLMDs are getting that. Many people seek out alternative MDs, NDs, practioners who add to the knowledge base. Its a lot to take in and over time, you absorb it enough to have an idea. It ca drive you insane though, esp when you have diff camps on diff topics. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 26, 2010 Report Share Posted November 26, 2010 Robin, note they don't really know significance of xmrv positive yet, there are healthy people in addition to sick people who test positive. sue v. >I also have lyme, babesia and xmrv as potential players. > >Robin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 26, 2010 Report Share Posted November 26, 2010 Robin, do you test your metal level by hair analysis? > > I have Cutlers books in my mold home. I was very much hung up on the controversy for a while as I was the Vit D controversy (Marshall Protocol).. it was too much to try to figure out, so I gave up. > > My MD who is very well studied does not agree with Cutler.... and I dont know what to think. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 26, 2010 Report Share Posted November 26, 2010 Kathy, You in no way did and I hope I didnt! I was trying to say that its been an intense education the past three years .. and there is no way I have mastered it at all. I feel like I am grasping at the coat tails of many people who are much smarter than I am. The genetic testing is expensive, but the follow up tests add up more and I rarely do them. I think the most valuable info you can get from a labcorp or quest test of the MTHFr gene so you know whether or not to take the methyalted form of folic acid. Then really,, I dont think it hurts to take it anyway, starting very very slowly with very small amounts. People have gone this route with Rich VanK's simplified 5 protocol. The B12 I think many of us need no matter in the bioactive forms, hydroxo, methyl, adenosyl. Sublingual is her recommendation.. Perque brand hydroxo. I am COMT++.. I cannot tolerate caffeine. I think that is probably a clue if one is COMT+. COMT + folks should watch the methly groups and yasko prefers COMT + folks to take methylated folic acid but not take methyl b12.. she uses hydroxo form with us. She recommends staying away form other methyl groups as much as possible and use sparingly and wisely. COMT + people tend to have more methly groups available and they trigger adrenaline. COMT-- people need methyl groups.. these are in my mind, most likely poeple who tolerate caffiene well.. maybe too simplistic but makes sense to me. If you dont know your CBS status.. then watch b6 intake and see how you feel when you up it or lower it.. CBS upregulation can cause the methylation pathway to drain the nutrients that keep it going. Its like a trap door at the bottom of the cycle. I think thats the most important things I learned from my testing. And I still have to go by how I feel rather than follow up testing to determine what to take.. Thanks for the insight on Cutler.. this one has really bothered me.. because he is so restrictive and the warnings are scary. I am at a loss as to what with and how to treat lyme and if to.. its like the more you know, the more confusing it gets. Diving into a pile of info that no one really knows what to do with. Dr Amy is very precise with her info and yet I know people (moms of autistic kids) who are very smart who smartly deviate from her and others like Cutler.. they experiement and watch for signs and tweak using Yasko, Cutler etc as information to test out. One mom whose son has a CBS upregulation has learned when and not to up the B6 for example.. he has KPU so that requires B6 .. so she has to balance that info and go my symptoms. I am the same way with the b6. If my head burns I stop it.. that *I think* is a sign of too much ammonia for me (a by product of the pathway draining the nutrients). If I am not dreaming, I up it.. a sign of low b6. I hope this is not more confusing than helpful. Robin > > Robin, > > I didn't mean to say anything wrong. I wanted others to know your background. You had the genetic testing & others to guide you. > > > Some of us like me, know great doc's but don't have the funds. I " m tired of mainstream. I have a nice doc. that's trying, but dont' know if the'll run the tests & know how to help. > If they're not covered by insurance, as most, I'm out of luck. I can't handle most Rx's. any longer. > > You're very blessed to be able to afford it. It's true healing. > > I have doubts about Cutler, only b/c he believes in steroid tapers for adrenal stress caused by chelation. Some have to use a very low dose of ALA verses the normal dose. Many don't tolerate DMSA. > > So far I don't test w Lyme, but wouldn't be surprised w the right labs I would. I'm sure Lyme is involved to heal. We enjoy reading all you know & have done. > > Kathy > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 26, 2010 Report Share Posted November 26, 2010 I test every so often with yasko with follow up tests. The moms of autistic kids test monthly and biweekly depending.. I test maybe every 3 months.. UTE/UEE. She sent me a hair test because she found people with MTR+ mutations, I am MTR++, are losing lithium I think as they start to dump metals.. I did not follow up on her board to get the full explanation. Sure enough, I was dumping lithium. MTR folks use a lot of b12. Gas guzzle it. her board is amazingly expansive and overwhelming... It took me months of intense " study " to begin to get it .. The test was not used to analyze HM status as Cutler uses it. I know I am loaded by all the Urinary Toxic Elements tests over the last year or so.. Ive had 3 or 4 and each time they show progresive metal release. Genova has a test called Nutreval which many insurances cover.. it has almost all of the tests yasko uses plus some.. UAA, UEE/UTE (though more limited in scope of metals), MAP, and additionally lipids/cellular membrane, oxidative stress, glutathione and nutrient levels in red blood cells.. this is a huge bang for the buck of your insurance will cover. Robin > > Robin, do you test your metal level by hair analysis? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 26, 2010 Report Share Posted November 26, 2010 Thank you, Sue.. I try to keep that in mind. I think I have family members with this and if so there are varying degrees of illness (or wellness..) with this. What is a little frightening is the new evidence coming out connecting it to cancers.. 25%of breast cancer according to one researcher.. then the thought is that cfs is a way to compensate preventing the cancer..?? Robin > > Robin, > > note they don't really know significance of xmrv positive yet, there are > healthy people in addition to sick people who test positive. > > > sue v. > > > >I also have lyme, babesia and xmrv as potential players. > > > >Robin > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 28, 2010 Report Share Posted November 28, 2010 Robin, whats your good source for clay? > > Right now I am taking a compounded form from hopkington pharmacy that costs I think about the same as yours without insurance. It is expensive. > > I do fine with no constipation. I take 6000mg of vitamin C and close to 1000mg of magnesium malate and glycinate. My problem is my food does not seem to be leaving my stomach fast enough (delayed emptying) to keep up with the doses.. if I take before bed, then I cant tolerate well an early morning dose, which leaves me with 3 a day. Sometimes that is too much. > > Have you tried clay, psyllium and charcoal? I know a good source for clay.. not cheap but cheaper than the CSM. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 29, 2010 Report Share Posted November 29, 2010 For now, this one: http://www.livingclayco.com/ Robin > > Robin, whats your good source for clay? > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 30, 2010 Report Share Posted November 30, 2010 I've never heard of detoxing with clay-can you tell me what you do? Thanks, Surella > > > > Robin, whats your good source for clay? > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 17, 2010 Report Share Posted December 17, 2010 good posts Robin edta suppositories are supposdly pretty good. Are they included in cutler's protocol? I thought DMPS had a very low bioavailibility. Reducing mercury is on my to do list. Wether or not chelators and CSM interfere with each other is a very good question. Maybe Shoemaker would know? Beside cholerella, modified apple pectin might be worh a try. Does chloeralla binds in CSM? I'm also a fan of sweating. I think the body can use that to get rid of toxins can are hard to excrete by the liver or kidney. I also have lyme, and will start IV abx in a month. All of that has been a steep learning curve - a year ago I knew next to nothing regarding health (and thought mainstream medecine was doing a good job). In the last 2-3 weeks I have started to realize that this biotoxins theory makes a lot of sense with my symptoms. Yet detox is an area i need to deepen my knowledge. I didnt know cilantro was that potentially efficient at pulling heavy metal? What do you guys think is the most scientifically-minded autism forum to learn more about detoxification of heavy metals/chemicals? Quote Link to comment Share on other sites More sharing options...
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