Guest guest Posted September 24, 2007 Report Share Posted September 24, 2007 Read this before seeing your neurologist: How To Talk to Your Doctor about LDN http://www.gazorpa.com/PatientGuide.html If he says no, come back here asap, we have other ways/ideas to get you on LDN. Good luck. -Art > > Hello Everyone: > > About 5 years ago I was diagnosed with MS. Before that it was Lupus. > Upon seeing the MS Specialist he made a final diagnosis of MS, based > on MRI findings. His course of treatment was the ABC drugs ( Avonex, > Rebif). I was in denial and so decided not to proceed with his > recommendations. I also stopped going to him as I found him to be > very arrogant and a uncompasionate Dr. I have since seen 2 other > Neurologists plus have had another MRI , this last was showed disease > progression, but the neurologist I went to seemed to think because I > showed no visible signs of disability, there was no reason to treat > me, it would be a let's wait and see what happens. Well, in last last > 3 months I have had 2 Flares, the 2nd one was a major one, and the > residual effects have been difficult, MY feet are always numb, and > spastic the tightness is also unbearable, I have also experience > numbness in my legs and waist that extends to my torso. This has been > very frightening. 2 weeks ago as I was getting ready to go sawy for a > few days, I got out of my car to take the shuttle bus to the AIrport > and I could not stand my legs felt like jello. I am very scared that > this disease has taken hold of my body and I am only going to get > worse over time. I have since learnt about Naltrexone and have > mentioned it to my family doctor, because this is a drug that hasn't > been approved by the MS society or recognized by them or by the > medical communtiy nobody seems to want to get involved. Now I am > seeing my Neuroligist again tomorrow in the hope that he will > consider putting me on the drug. > > I would appreciated any feedback that you would care to offer me on > this subject. > > I look forward to hearing from those who have shared similiar > experiences. Or have suggestions on how I can get myself on this drug > if my doctor refuses to offer it to me. > > Thanks, > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 25, 2007 Report Share Posted September 25, 2007 Hello Art: A Million Thank-yous. How Wonderful that you have provided me with this information before my appointment today. I am now prepared to present my Doctor with all the information you have kindly made available to me. I only hope that he agrees and writes the prescription for Naltrexone. I will let you know the outcome later. Thanks for all your help. --- Art Hansen <rtee54@...> wrote: > > Read this before seeing your neurologist: > > How To Talk to Your Doctor about LDN > > http://www.gazorpa.com/PatientGuide.html > > If he says no, come back here asap, we have other > ways/ideas to > get you on LDN. > > Good luck. > > -Art > > > > > > Hello Everyone: > > > > About 5 years ago I was diagnosed with MS. Before > that it was > Lupus. > > Upon seeing the MS Specialist he made a final > diagnosis of MS, > based > > on MRI findings. His course of treatment was the > ABC drugs ( > Avonex, > > Rebif). I was in denial and so decided not to > proceed with his > > recommendations. I also stopped going to him as I > found him to be > > very arrogant and a uncompasionate Dr. I have > since seen 2 other > > Neurologists plus have had another MRI , this last > was showed > disease > > progression, but the neurologist I went to seemed > to think because > I > > showed no visible signs of disability, there was > no reason to treat > > me, it would be a let's wait and see what happens. > Well, in last > last > > 3 months I have had 2 Flares, the 2nd one was a > major one, and the > > residual effects have been difficult, MY feet are > always numb, and > > spastic the tightness is also unbearable, I have > also experience > > numbness in my legs and waist that extends to my > torso. This has > been > > very frightening. 2 weeks ago as I was getting > ready to go sawy for > a > > few days, I got out of my car to take the shuttle > bus to the > AIrport > > and I could not stand my legs felt like jello. I > am very scared > that > > this disease has taken hold of my body and I am > only going to get > > worse over time. I have since learnt about > Naltrexone and have > > mentioned it to my family doctor, because this is > a drug that > hasn't > > been approved by the MS society or recognized by > them or by the > > medical communtiy nobody seems to want to get > involved. Now I am > > seeing my Neuroligist again tomorrow in the hope > that he will > > consider putting me on the drug. > > > > I would appreciated any feedback that you would > care to offer me on > > this subject. > > > > I look forward to hearing from those who have > shared similiar > > experiences. Or have suggestions on how I can get > myself on this > drug > > if my doctor refuses to offer it to me. > > > > Thanks, > > > > > > > > > ________________________________________________________________________________\ ____ Check out the hottest 2008 models today at Autos. http://autos./new_cars.html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 27, 2007 Report Share Posted September 27, 2007 Hello Again: Well I am back to squsre one. I presented my Neurologist with all the information you suggested I take with to my apppointment, he casually looked at it, and said to me he was aware of the drug, but claims there are not many using it. Please keep in mind I live in Canada, I don't know if this is true,or not as I know there are alot of people here in this group using LDN but am unsure where they are located. I think he was giving me an excuse not to prescribe. He asked me if I would be interested in entering a clinical Trial I told him yes, so now it is " I willget back to you and let you know " situation, and in the interim I am getting worse. I am at the point where standing on my feet for any length of time is a problem. I want to go on the Naltrexone immediately, I just p\ut in a call to my family doctor and I am hoping with some persistence she will agree to put me on this drug. I have also put in a call to a friend of mine who happens to be a pharmacist to see if maybe he can help me. I am really at my wits end with this. I want to act now. If you have any suggestions I would certainly very much appreciate hearing back from you. Thanks. --- Art Hansen <rtee54@...> wrote: > > Read this before seeing your neurologist: > > How To Talk to Your Doctor about LDN > > http://www.gazorpa.com/PatientGuide.html > > If he says no, come back here asap, we have other > ways/ideas to > get you on LDN. > > Good luck. > > -Art > > > > > > Hello Everyone: > > > > About 5 years ago I was diagnosed with MS. Before > that it was > Lupus. > > Upon seeing the MS Specialist he made a final > diagnosis of MS, > based > > on MRI findings. His course of treatment was the > ABC drugs ( > Avonex, > > Rebif). I was in denial and so decided not to > proceed with his > > recommendations. I also stopped going to him as I > found him to be > > very arrogant and a uncompasionate Dr. I have > since seen 2 other > > Neurologists plus have had another MRI , this last > was showed > disease > > progression, but the neurologist I went to seemed > to think because > I > > showed no visible signs of disability, there was > no reason to treat > > me, it would be a let's wait and see what happens. > Well, in last > last > > 3 months I have had 2 Flares, the 2nd one was a > major one, and the > > residual effects have been difficult, MY feet are > always numb, and > > spastic the tightness is also unbearable, I have > also experience > > numbness in my legs and waist that extends to my > torso. This has > been > > very frightening. 2 weeks ago as I was getting > ready to go sawy for > a > > few days, I got out of my car to take the shuttle > bus to the > AIrport > > and I could not stand my legs felt like jello. I > am very scared > that > > this disease has taken hold of my body and I am > only going to get > > worse over time. I have since learnt about > Naltrexone and have > > mentioned it to my family doctor, because this is > a drug that > hasn't > > been approved by the MS society or recognized by > them or by the > > medical communtiy nobody seems to want to get > involved. Now I am > > seeing my Neuroligist again tomorrow in the hope > that he will > > consider putting me on the drug. > > > > I would appreciated any feedback that you would > care to offer me on > > this subject. > > > > I look forward to hearing from those who have > shared similiar > > experiences. Or have suggestions on how I can get > myself on this > drug > > if my doctor refuses to offer it to me. > > > > Thanks, > > > > > > > > > ________________________________________________________________________________\ ____ Check out the hottest 2008 models today at Autos. http://autos./new_cars.html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 27, 2007 Report Share Posted September 27, 2007 Not sure if he will help you due to you living outside the USA, but this doctor does telephone consulations and prescribes LDN: G. Ayre, M.D. Contemporary Medicine 322 Burr Ridge Parkway Burr Ridge, IL 60527 630.321.9010 http://www.contemporarymedicine.net/index.htm If he's of no help, you can purchase Naltrexone online: https://www.riverpharmacy.com/ and make your own homemade LDN: Liquid LDN (Easiest): Acquire some ml measuring equipment from the baby section of a Drug Store and a small bottle with a screw-on cap. Put 50ml of water (distilled is best) and one 50mg " ReVia " Naltrexone tablet in the small bottle and let it dissolve with a little time and shaking. Now each ml of water in that small bottle contains 1 mg of Naltrexone. At bedtime shake the bottle, take a desired dose (no more than 4.5ml), chase it down with some water and store the small bottle in the refrigerator. Some people have reported splitting the tablet in half and dissolving it in 25ml of water to assure freshness every week. http://goodshape.net/HomemadeLDN.html Art -- > > Hello Again: > > Well I am back to squsre one. I presented my > Neurologist with all the information you suggested I > take with to my apppointment, he casually looked at > it, and said to me he was aware of the drug, but > claims there are not many using it. Please keep in > mind I live in Canada, I don't know if this is true,or > not as I know there are alot of people here in this > group using LDN but am unsure where they are located. > I think he was giving me an excuse not to prescribe. > He asked me if I would be interested in entering a > clinical Trial I told him yes, so now it is " I > willget back to you and let you know " situation, and > in the interim I am getting worse. I am at the point > where standing on my feet for any length of time is a > problem. I want to go on the Naltrexone immediately, I > just p\ut in a call to my family doctor and I am > hoping with some persistence she will agree to put me > on this drug. I have also put in a call to a friend of > mine who happens to be a pharmacist to see if maybe he > can help me. I am really at my wits end with this. I > want to act now. If you have any suggestions I would > certainly very much appreciate hearing back from you. > > Thanks. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 27, 2007 Report Share Posted September 27, 2007 , Leave your neuro, he doesn't care about your suffering. He casually looked at what you brought in. That's your first clue and he bargained with you to maybe go into a trial. You need it now. There are doctors that will give you a phone appointment and fax the subscription to a compounding pharmacy. I was hanging by a thread and after trying 3 doctors went the phone appointment route. I pay only $20 a month for 3.0 mg of low dose naltrexone. How can he make a statement that not many people are taking it. I don't know the numbers but I'm sure someone on this group does. You are not a lab rat, you are a human being that deserves to get ldn now. Be Strong...... email me privately if you need more info From: low dose naltrexone [mailto:low dose naltrexone ] On Behalf Of Suzzie BSent: Thursday, September 27, 2007 12:58 PMlow dose naltrexone Subject: Re: [low dose naltrexone] Re: Diagnosed with MS Hello Again:Well I am back to squsre one. I presented myNeurologist with all the information you suggested Itake with to my apppointment, he casually looked atit, and said to me he was aware of the drug, butclaims there are not many using it. Please keep inmind I live in Canada, I don't know if this is true,ornot as I know there are alot of people here in thisgroup using LDN but am unsure where they are located.I think he was giving me an excuse not to prescribe.He asked me if I would be interested in entering aclinical Trial I told him yes, so now it is " Iwillget back to you and let you know " situation, andin the interim I am getting worse. I am at the pointwhere standing on my feet for any length of time is aproblem. I want to go on the Naltrexone immediately, Ijust p\ut in a call to my family doctor and I amhoping with some persistence she will agree to put meon this drug. I have also put in a call to a friend ofmine who happens to be a pharmacist to see if maybe hecan help me. I am really at my wits end with this. Iwant to act now. If you have any suggestions I wouldcertainly very much appreciate hearing back from you.Thanks.--- Art Hansen <rtee54 > wrote:> > Read this before seeing your neurologist:> > How To Talk to Your Doctor about LDN> > http://www.gazorpa.com/PatientGuide.html> > If he says no, come back here asap, we have other> ways/ideas to > get you on LDN.> > Good luck.> > -Art> > > >> > Hello Everyone:> > > > About 5 years ago I was diagnosed with MS. Before> that it was > Lupus. > > Upon seeing the MS Specialist he made a final> diagnosis of MS, > based > > on MRI findings. His course of treatment was the> ABC drugs ( > Avonex, > > Rebif). I was in denial and so decided not to> proceed with his > > recommendations. I also stopped going to him as I> found him to be > > very arrogant and a uncompasionate Dr. I have> since seen 2 other > > Neurologists plus have had another MRI , this last> was showed > disease > > progression, but the neurologist I went to seemed> to think because > I > > showed no visible signs of disability, there was> no reason to treat > > me, it would be a let's wait and see what happens.> Well, in last > last > > 3 months I have had 2 Flares, the 2nd one was a> major one, and the > > residual effects have been difficult, MY feet are> always numb, and > > spastic the tightness is also unbearable, I have> also experience > > numbness in my legs and waist that extends to my> torso. This has > been > > very frightening. 2 weeks ago as I was getting> ready to go sawy for > a > > few days, I got out of my car to take the shuttle> bus to the > AIrport > > and I could not stand my legs felt like jello. I> am very scared > that > > this disease has taken hold of my body and I am> only going to get > > worse over time. I have since learnt about> Naltrexone and have > > mentioned it to my family doctor, because this is> a drug that > hasn't > > been approved by the MS society or recognized by> them or by the > > medical communtiy nobody seems to want to get> involved. Now I am > > seeing my Neuroligist again tomorrow in the hope> that he will > > consider putting me on the drug. > > > > I would appreciated any feedback that you would> care to offer me on > > this subject.> > > > I look forward to hearing from those who have> shared similiar > > experiences. Or have suggestions on how I can get> myself on this > drug > > if my doctor refuses to offer it to me.> > > > Thanks,> > > > > >> > > __________________________________________________________Check out the hottest 2008 models today at Autos.http://autos./new_cars.html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 28, 2007 Report Share Posted September 28, 2007 Hi , I am also from Canada, recently diagnosised with MS, not on drup therapy yet, but very interested in LDN as well. I have an appointment with my family doctor next week - going to ask for a prescription of LDN, if no go I am waiting for an appointment with the Calgary MS clinic - will then ask them. Hopefully either will work - although I am still looking for a pharmacy that dispences it. If you have some success before that, please let me know. thanks Kristie P.S. Or if anyone else on this site knows of a DR. that prescribes in AB, or an AB pharmacy that dispenses, please let me know. thanks Re: [low dose naltrexone] Re: Diagnosed with MS Hello Again:Well I am back to squsre one. I presented myNeurologist with all the information you suggested Itake with to my apppointment, he casually looked atit, and said to me he was aware of the drug, butclaims there are not many using it. Please keep inmind I live in Canada, I don't know if this is true,ornot as I know there are alot of people here in thisgroup using LDN but am unsure where they are located.I think he was giving me an excuse not to prescribe.He asked me if I would be interested in entering aclinical Trial I told him yes, so now it is " Iwillget back to you and let you know " situation, andin the interim I am getting worse. I am at the pointwhere standing on my feet for any length of time is aproblem. I want to go on the Naltrexone immediately, Ijust p\ut in a call to my family doctor and I amhoping with some persistence she will agree to put meon this drug. I have also put in a call to a friend ofmine who happens to be a pharmacist to see if maybe hecan help me. I am really at my wits end with this. Iwant to act now. If you have any suggestions I wouldcertainly very much appreciate hearing back from you.Thanks.--- Art Hansen <rtee54 > wrote:> > Read this before seeing your neurologist:> > How To Talk to Your Doctor about LDN> > http://www.gazorpa.com/PatientGuide.html> > If he says no, come back here asap, we have other> ways/ideas to > get you on LDN.> > Good luck.> > -Art> > > >> > Hello Everyone:> > > > About 5 years ago I was diagnosed with MS. Before> that it was > Lupus. > > Upon seeing the MS Specialist he made a final> diagnosis of MS, > based > > on MRI findings. His course of treatment was the> ABC drugs ( > Avonex, > > Rebif). I was in denial and so decided not to> proceed with his > > recommendations. I also stopped going to him as I> found him to be > > very arrogant and a uncompasionate Dr. I have> since seen 2 other > > Neurologists plus have had another MRI , this last> was showed > disease > > progression, but the neurologist I went to seemed> to think because > I > > showed no visible signs of disability, there was> no reason to treat > > me, it would be a let's wait and see what happens.> Well, in last > last > > 3 months I have had 2 Flares, the 2nd one was a> major one, and the > > residual effects have been difficult, MY feet are> always numb, and > > spastic the tightness is also unbearable, I have> also experience > > numbness in my legs and waist that extends to my> torso. This has > been > > very frightening. 2 weeks ago as I was getting> ready to go sawy for > a > > few days, I got out of my car to take the shuttle> bus to the > AIrport > > and I could not stand my legs felt like jello. I> am very scared > that > > this disease has taken hold of my body and I am> only going to get > > worse over time. I have since learnt about> Naltrexone and have > > mentioned it to my family doctor, because this is> a drug that > hasn't > > been approved by the MS society or recognized by> them or by the > > medical communtiy nobody seems to want to get> involved. Now I am > > seeing my Neuroligist again tomorrow in the hope> that he will > > consider putting me on the drug. > > > > I would appreciated any feedback that you would> care to offer me on > > this subject.> > > > I look forward to hearing from those who have> shared similiar > > experiences. Or have suggestions on how I can get> myself on this > drug > > if my doctor refuses to offer it to me.> > > > Thanks,> > > > > >> > > __________________________________________________________Check out the hottest 2008 models today at Autos.http://autos./new_cars.html Internal Virus Database is out-of-date.Checked by AVG.Version: 7.5.430 / Virus Database: 268.14.6/536 - Release Date: 11/16/2006 3:51 PM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 28, 2007 Report Share Posted September 28, 2007 Hi Caroline, A gal named Crystal maintains a list by location of physicians who prescribe LDN and of pharmacies that compound it. You can contact her at crystalangel6771@... If that doesn't work out, you can buy 50 mg Naltrexone without a prescription tablets here: http://tinyurl.com/2vfdw5 and convert them to LDN using the instructions here: http://tinyurl.com/3alm3y For more information about LDN, visit http://tinyurl.com/2boot2 With best wishes, Dudley Delany dudley_delany Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 28, 2007 Report Share Posted September 28, 2007 Hi Caroline: Not sure why you email didn't come through. Should not of been a problem. I am at a road block right now, nobody wants to prescrible this drug for me. If you wouldn't mind sending that information once again I would appreciate it. I hope your doctor listens and prescribes what you need. I in the interim am seeing another Neuroligist in November, so we'll see, my family doctor told me if I should find a patient who is on this drug and would be prepared to give me their doctors name then she would be willing to speak to their doctor and go from there. Anyways, good luck and all the best. --- Caroline Remax <remaxcaroline@...> wrote: > Hi , > I am also from Canada, recently diagnosised with > MS, not on drup therapy yet, but very interested in > LDN as well. I have an appointment with my family > doctor next week - going to ask for a prescription > of LDN, if no go I am waiting for an appointment > with the Calgary MS clinic - will then ask them. > Hopefully either will work - although I am still > looking for a pharmacy that dispences it. If you > have some success before that, please let me know. > thanks Kristie > P.S. Or if anyone else on this site knows of a > DR. that prescribes in AB, or an AB pharmacy that > dispenses, please let me know. thanks > Re: [low dose naltrexone] Re: Diagnosed > with MS > > > Hello Again: > > Well I am back to squsre one. I presented my > Neurologist with all the information you suggested > I > take with to my apppointment, he casually looked > at > it, and said to me he was aware of the drug, but > claims there are not many using it. Please keep in > mind I live in Canada, I don't know if this is > true,or > not as I know there are alot of people here in > this > group using LDN but am unsure where they are > located. > I think he was giving me an excuse not to > prescribe. > He asked me if I would be interested in entering a > clinical Trial I told him yes, so now it is " I > willget back to you and let you know " situation, > and > in the interim I am getting worse. I am at the > point > where standing on my feet for any length of time > is a > problem. I want to go on the Naltrexone > immediately, I > just p\ut in a call to my family doctor and I am > hoping with some persistence she will agree to put > me > on this drug. I have also put in a call to a > friend of > mine who happens to be a pharmacist to see if > maybe he > can help me. I am really at my wits end with this. > I > want to act now. If you have any suggestions I > would > certainly very much appreciate hearing back from > you. > > Thanks. > > > --- Art Hansen <rtee54@...> wrote: > > > > > Read this before seeing your neurologist: > > > > How To Talk to Your Doctor about LDN > > > > http://www.gazorpa.com/PatientGuide.html > > > > If he says no, come back here asap, we have > other > > ways/ideas to > > get you on LDN. > > > > Good luck. > > > > -Art > > > > > > > > > > Hello Everyone: > > > > > > About 5 years ago I was diagnosed with MS. > Before > > that it was > > Lupus. > > > Upon seeing the MS Specialist he made a final > > diagnosis of MS, > > based > > > on MRI findings. His course of treatment was > the > > ABC drugs ( > > Avonex, > > > Rebif). I was in denial and so decided not to > > proceed with his > > > recommendations. I also stopped going to him > as I > > found him to be > > > very arrogant and a uncompasionate Dr. I have > > since seen 2 other > > > Neurologists plus have had another MRI , this > last > > was showed > > disease > > > progression, but the neurologist I went to > seemed > > to think because > > I > > > showed no visible signs of disability, there > was > > no reason to treat > > > me, it would be a let's wait and see what > happens. > > Well, in last > > last > > > 3 months I have had 2 Flares, the 2nd one was > a > > major one, and the > > > residual effects have been difficult, MY feet > are > > always numb, and > > > spastic the tightness is also unbearable, I > have > > also experience > > > numbness in my legs and waist that extends to > my > > torso. This has > > been > > > very frightening. 2 weeks ago as I was getting > > ready to go sawy for > > a > > > few days, I got out of my car to take the > shuttle > > bus to the > > AIrport > > > and I could not stand my legs felt like jello. > I > > am very scared > > that > > > this disease has taken hold of my body and I > am > > only going to get > > > worse over time. I have since learnt about > > Naltrexone and have > > > mentioned it to my family doctor, because this > is > > a drug that > > hasn't > > > been approved by the MS society or recognized > by > > them or by the > > > medical communtiy nobody seems to want to get > > involved. Now I am > > > seeing my Neuroligist again tomorrow in the > hope > > that he will > > > consider putting me on the drug. > > > > > > I would appreciated any feedback that you > would > > care to offer me on > > > this subject. > > > > > > I look forward to hearing from those who have > > shared similiar > > > experiences. Or have suggestions on how I can > get > > myself on this > > drug > > > if my doctor refuses to offer it to me. > > > > > > Thanks, > > > > > > > > > > > > > > > > > > __________________________________________________________ > Check out the hottest 2008 models today at > Autos. > http://autos./new_cars.html > > > > > > ------------------------------------------------------------------------------ > > > Internal Virus Database is out-of-date. > Checked by AVG. > Version: 7.5.430 / Virus Database: 268.14.6/536 - > Release === message truncated === ________________________________________________________________________________\ ____ Fussy? Opinionated? Impossible to please? Perfect. Join 's user panel and lay it on us. http://surveylink./gmrs/_panel_invite.asp?a=7 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 28, 2007 Report Share Posted September 28, 2007 Hi , Here is my direct address remaxcaroline@... where I work.. You can e-mail me there.. I will let you know how my appointment goes. Where do you live? I take it you have tried numerous doctors in your area and have had no luck. Kristie Re: [low dose naltrexone] Re: Diagnosed> with MS> > > Hello Again:> > Well I am back to squsre one. I presented my> Neurologist with all the information you suggested> I> take with to my apppointment, he casually looked> at> it, and said to me he was aware of the drug, but> claims there are not many using it. Please keep in> mind I live in Canada, I don't know if this is> true,or> not as I know there are alot of people here in> this> group using LDN but am unsure where they are> located.> I think he was giving me an excuse not to> prescribe.> He asked me if I would be interested in entering a> clinical Trial I told him yes, so now it is " I> willget back to you and let you know " situation,> and> in the interim I am getting worse. I am at the> point> where standing on my feet for any length of time> is a> problem. I want to go on the Naltrexone> immediately, I> just p\ut in a call to my family doctor and I am> hoping with some persistence she will agree to put> me> on this drug. I have also put in a call to a> friend of> mine who happens to be a pharmacist to see if> maybe he> can help me. I am really at my wits end with this.> I> want to act now. If you have any suggestions I> would> certainly very much appreciate hearing back from> you.> > Thanks.> > > --- Art Hansen <rtee54 > wrote:> > > > > Read this before seeing your neurologist:> > > > How To Talk to Your Doctor about LDN> > > > http://www.gazorpa.com/PatientGuide.html> > > > If he says no, come back here asap, we have> other> > ways/ideas to > > get you on LDN.> > > > Good luck.> > > > -Art> > > > > > >> > > Hello Everyone:> > > > > > About 5 years ago I was diagnosed with MS.> Before> > that it was > > Lupus. > > > Upon seeing the MS Specialist he made a final> > diagnosis of MS, > > based > > > on MRI findings. His course of treatment was> the> > ABC drugs ( > > Avonex, > > > Rebif). I was in denial and so decided not to> > proceed with his > > > recommendations. I also stopped going to him> as I> > found him to be > > > very arrogant and a uncompasionate Dr. I have> > since seen 2 other > > > Neurologists plus have had another MRI , this> last> > was showed > > disease > > > progression, but the neurologist I went to> seemed> > to think because > > I > > > showed no visible signs of disability, there> was> > no reason to treat > > > me, it would be a let's wait and see what> happens.> > Well, in last > > last > > > 3 months I have had 2 Flares, the 2nd one was> a> > major one, and the > > > residual effects have been difficult, MY feet> are> > always numb, and > > > spastic the tightness is also unbearable, I> have> > also experience > > > numbness in my legs and waist that extends to> my> > torso. This has > > been > > > very frightening. 2 weeks ago as I was getting> > ready to go sawy for > > a > > > few days, I got out of my car to take the> shuttle> > bus to the > > AIrport > > > and I could not stand my legs felt like jello.> I> > am very scared > > that > > > this disease has taken hold of my body and I> am> > only going to get > > > worse over time. I have since learnt about> > Naltrexone and have > > > mentioned it to my family doctor, because this> is> > a drug that > > hasn't > > > been approved by the MS society or recognized> by> > them or by the > > > medical communtiy nobody seems to want to get> > involved. Now I am > > > seeing my Neuroligist again tomorrow in the> hope> > that he will > > > consider putting me on the drug. > > > > > > I would appreciated any feedback that you> would> > care to offer me on > > > this subject.> > > > > > I look forward to hearing from those who have> > shared similiar > > > experiences. Or have suggestions on how I can> get> > myself on this > > drug > > > if my doctor refuses to offer it to me.> > > > > > Thanks,> > > > > > > > >> > > > > > > > >__________________________________________________________> Check out the hottest 2008 models today at > Autos.> http://autos./new_cars.html> > > > > >----------------------------------------------------------> > > Internal Virus Database is out-of-date.> Checked by AVG.> Version: 7.5.430 / Virus Database: 268.14.6/536 -> Release === message truncated ===__________________________________________________________Fussy? Opinionated? Impossible to please? Perfect. Join 's user panel and lay it on us. http://surveylink./gmrs/_panel_invite.asp?a=7 Internal Virus Database is out-of-date.Checked by AVG.Version: 7.5.430 / Virus Database: 268.14.6/536 - Release Date: 11/16/2006 3:51 PM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 28, 2007 Report Share Posted September 28, 2007 Hi Caroline: I am in Toronto. That's what I seem to be dealing with. That is pretty bad and you don't even live here. I am feeling as though nobody cares in the medical community. At least though my family doctor is willing to speak to another doctor that has prescribed the drug. Have you had any experience with Kawalla. I am thinking of trying that as well. Take care. --- Caroline Remax <remaxcaroline@...> wrote: > Hi , > Here is my direct address > remaxcaroline@... where I work.. You can > e-mail me there.. I will let you know how my > appointment goes. Where do you live? I take it you > have tried numerous doctors in your area and have > had no luck. Kristie > Re: [low dose naltrexone] Re: Diagnosed > > with MS > > > > > > Hello Again: > > > > Well I am back to squsre one. I presented my > > Neurologist with all the information you > suggested > > I > > take with to my apppointment, he casually looked > > at > > it, and said to me he was aware of the drug, but > > claims there are not many using it. Please keep > in > > mind I live in Canada, I don't know if this is > > true,or > > not as I know there are alot of people here in > > this > > group using LDN but am unsure where they are > > located. > > I think he was giving me an excuse not to > > prescribe. > > He asked me if I would be interested in entering > a > > clinical Trial I told him yes, so now it is " I > > willget back to you and let you know " > situation, > > and > > in the interim I am getting worse. I am at the > > point > > where standing on my feet for any length of time > > is a > > problem. I want to go on the Naltrexone > > immediately, I > > just p\ut in a call to my family doctor and I am > > hoping with some persistence she will agree to > put > > me > > on this drug. I have also put in a call to a > > friend of > > mine who happens to be a pharmacist to see if > > maybe he > > can help me. I am really at my wits end with > this. > > I > > want to act now. If you have any suggestions I > > would > > certainly very much appreciate hearing back from > > you. > > > > Thanks. > > > > > > --- Art Hansen <rtee54@...> wrote: > > > > > > > > Read this before seeing your neurologist: > > > > > > How To Talk to Your Doctor about LDN > > > > > > http://www.gazorpa.com/PatientGuide.html > > > > > > If he says no, come back here asap, we have > > other > > > ways/ideas to > > > get you on LDN. > > > > > > Good luck. > > > > > > -Art > > > > > > > > > > > > > > Hello Everyone: > > > > > > > > About 5 years ago I was diagnosed with MS. > > Before > > > that it was > > > Lupus. > > > > Upon seeing the MS Specialist he made a > final > > > diagnosis of MS, > > > based > > > > on MRI findings. His course of treatment was > > the > > > ABC drugs ( > > > Avonex, > > > > Rebif). I was in denial and so decided not > to > > > proceed with his > > > > recommendations. I also stopped going to him > > as I > > > found him to be > > > > very arrogant and a uncompasionate Dr. I > have > > > since seen 2 other > > > > Neurologists plus have had another MRI , > this > > last > > > was showed > > > disease > > > > progression, but the neurologist I went to > > seemed > > > to think because > > > I > > > > showed no visible signs of disability, there > > was > > > no reason to treat > > > > me, it would be a let's wait and see what > > happens. > > > Well, in last > > > last > > > > 3 months I have had 2 Flares, the 2nd one > was > > a > > > major one, and the > > > > residual effects have been difficult, MY > feet > > are > > > always numb, and > > > > spastic the tightness is also unbearable, I > > have > > > also experience > > > > numbness in my legs and waist that extends > to > > my > > > torso. This has > > > been > > > > very frightening. 2 weeks ago as I was > getting > > > ready to go sawy for > > > a > > > > few days, I got out of my car to take the > > shuttle > === message truncated === ________________________________________________________________________________\ ____ Need a vacation? Get great deals to amazing places on Travel. http://travel./ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 28, 2007 Report Share Posted September 28, 2007 Hi Caroline: I am in Toronto. That's what I seem to be dealing with. That is pretty bad and you don't even live here. I am feeling as though nobody cares in the medical community. At least though my family doctor is willing to speak to another doctor that has prescribed the drug. Have you had any experience with Kawalla. I am thinking of trying that as well. Take care. --- Caroline Remax <remaxcaroline@...> wrote: > Hi , > Here is my direct address > remaxcaroline@... where I work.. You can > e-mail me there.. I will let you know how my > appointment goes. Where do you live? I take it you > have tried numerous doctors in your area and have > had no luck. Kristie > Re: [low dose naltrexone] Re: Diagnosed > > with MS > > > > > > Hello Again: > > > > Well I am back to squsre one. I presented my > > Neurologist with all the information you > suggested > > I > > take with to my apppointment, he casually looked > > at > > it, and said to me he was aware of the drug, but > > claims there are not many using it. Please keep > in > > mind I live in Canada, I don't know if this is > > true,or > > not as I know there are alot of people here in > > this > > group using LDN but am unsure where they are > > located. > > I think he was giving me an excuse not to > > prescribe. > > He asked me if I would be interested in entering > a > > clinical Trial I told him yes, so now it is " I > > willget back to you and let you know " > situation, > > and > > in the interim I am getting worse. I am at the > > point > > where standing on my feet for any length of time > > is a > > problem. I want to go on the Naltrexone > > immediately, I > > just p\ut in a call to my family doctor and I am > > hoping with some persistence she will agree to > put > > me > > on this drug. I have also put in a call to a > > friend of > > mine who happens to be a pharmacist to see if > > maybe he > > can help me. I am really at my wits end with > this. > > I > > want to act now. If you have any suggestions I > > would > > certainly very much appreciate hearing back from > > you. > > > > Thanks. > > > > > > --- Art Hansen <rtee54@...> wrote: > > > > > > > > Read this before seeing your neurologist: > > > > > > How To Talk to Your Doctor about LDN > > > > > > http://www.gazorpa.com/PatientGuide.html > > > > > > If he says no, come back here asap, we have > > other > > > ways/ideas to > > > get you on LDN. > > > > > > Good luck. > > > > > > -Art > > > > > > > > > > > > > > Hello Everyone: > > > > > > > > About 5 years ago I was diagnosed with MS. > > Before > > > that it was > > > Lupus. > > > > Upon seeing the MS Specialist he made a > final > > > diagnosis of MS, > > > based > > > > on MRI findings. His course of treatment was > > the > > > ABC drugs ( > > > Avonex, > > > > Rebif). I was in denial and so decided not > to > > > proceed with his > > > > recommendations. I also stopped going to him > > as I > > > found him to be > > > > very arrogant and a uncompasionate Dr. I > have > > > since seen 2 other > > > > Neurologists plus have had another MRI , > this > > last > > > was showed > > > disease > > > > progression, but the neurologist I went to > > seemed > > > to think because > > > I > > > > showed no visible signs of disability, there > > was > > > no reason to treat > > > > me, it would be a let's wait and see what > > happens. > > > Well, in last > > > last > > > > 3 months I have had 2 Flares, the 2nd one > was > > a > > > major one, and the > > > > residual effects have been difficult, MY > feet > > are > > > always numb, and > > > > spastic the tightness is also unbearable, I > > have > > > also experience > > > > numbness in my legs and waist that extends > to > > my > > > torso. This has > > > been > > > > very frightening. 2 weeks ago as I was > getting > > > ready to go sawy for > > > a > > > > few days, I got out of my car to take the > > shuttle > === message truncated === ________________________________________________________________________________\ ____ Building a website is a piece of cake. Small Business gives you all the tools to get online. http://smallbusiness./webhosting Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 28, 2007 Report Share Posted September 28, 2007 Hi , No I have no experience with Kawalla but it does sound interesting. I have found a lady thru www.joolysjoint.com with the handle miz.mel - she is from Toronto as well & she is on LDN. Perhaps you can go to that site, go in the chatroom & talk to her. Kristie Re: [low dose naltrexone] Re: Diagnosed> > with MS> > > > > > Hello Again:> > > > Well I am back to squsre one. I presented my> > Neurologist with all the information you> suggested> > I> > take with to my apppointment, he casually looked> > at> > it, and said to me he was aware of the drug, but> > claims there are not many using it. Please keep> in> > mind I live in Canada, I don't know if this is> > true,or> > not as I know there are alot of people here in> > this> > group using LDN but am unsure where they are> > located.> > I think he was giving me an excuse not to> > prescribe.> > He asked me if I would be interested in entering> a> > clinical Trial I told him yes, so now it is " I> > willget back to you and let you know "> situation,> > and> > in the interim I am getting worse. I am at the> > point> > where standing on my feet for any length of time> > is a> > problem. I want to go on the Naltrexone> > immediately, I> > just p\ut in a call to my family doctor and I am> > hoping with some persistence she will agree to> put> > me> > on this drug. I have also put in a call to a> > friend of> > mine who happens to be a pharmacist to see if> > maybe he> > can help me. I am really at my wits end with> this.> > I> > want to act now. If you have any suggestions I> > would> > certainly very much appreciate hearing back from> > you.> > > > Thanks.> > > > > > --- Art Hansen <rtee54 > wrote:> > > > > > > > Read this before seeing your neurologist:> > > > > > How To Talk to Your Doctor about LDN> > > > > > http://www.gazorpa.com/PatientGuide.html> > > > > > If he says no, come back here asap, we have> > other> > > ways/ideas to > > > get you on LDN.> > > > > > Good luck.> > > > > > -Art> > > > > > > > > >> > > > Hello Everyone:> > > > > > > > About 5 years ago I was diagnosed with MS.> > Before> > > that it was > > > Lupus. > > > > Upon seeing the MS Specialist he made a> final> > > diagnosis of MS, > > > based > > > > on MRI findings. His course of treatment was> > the> > > ABC drugs ( > > > Avonex, > > > > Rebif). I was in denial and so decided not> to> > > proceed with his > > > > recommendations. I also stopped going to him> > as I> > > found him to be > > > > very arrogant and a uncompasionate Dr. I> have> > > since seen 2 other > > > > Neurologists plus have had another MRI ,> this> > last> > > was showed > > > disease > > > > progression, but the neurologist I went to> > seemed> > > to think because > > > I > > > > showed no visible signs of disability, there> > was> > > no reason to treat > > > > me, it would be a let's wait and see what> > happens.> > > Well, in last > > > last > > > > 3 months I have had 2 Flares, the 2nd one> was> > a> > > major one, and the > > > > residual effects have been difficult, MY> feet> > are> > > always numb, and > > > > spastic the tightness is also unbearable, I> > have> > > also experience > > > > numbness in my legs and waist that extends> to> > my> > > torso. This has > > > been > > > > very frightening. 2 weeks ago as I was> getting> > > ready to go sawy for > > > a > > > > few days, I got out of my car to take the> > shuttle> === message truncated ===__________________________________________________________Need a vacation? Get great dealsto amazing places on Travel.http://travel./ Internal Virus Database is out-of-date.Checked by AVG.Version: 7.5.430 / Virus Database: 268.14.6/536 - Release Date: 11/16/2006 3:51 PM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 29, 2007 Report Share Posted September 29, 2007 Hi Krisie: I went to joolysjoint and did met miz.mel she was very helpful for me, and so I thank-you for informing me about the chat room I will continue to use it. Thanks, --- Caroline Remax <remaxcaroline@...> wrote: > Hi , No I have no experience with Kawalla but > it does sound interesting. I have found a lady thru > www.joolysjoint.com with the handle miz.mel - she > is from Toronto as well & she is on LDN. Perhaps > you can go to that site, go in the chatroom & talk > to her. Kristie > Re: [low dose naltrexone] Re: Diagnosed > > > with MS > > > > > > > > > Hello Again: > > > > > > Well I am back to squsre one. I presented my > > > Neurologist with all the information you > > suggested > > > I > > > take with to my apppointment, he casually > looked > > > at > > > it, and said to me he was aware of the drug, > but > > > claims there are not many using it. Please > keep > > in > > > mind I live in Canada, I don't know if this is > > > true,or > > > not as I know there are alot of people here in > > > this > > > group using LDN but am unsure where they are > > > located. > > > I think he was giving me an excuse not to > > > prescribe. > > > He asked me if I would be interested in > entering > > a > > > clinical Trial I told him yes, so now it is " > I > > > willget back to you and let you know " > > situation, > > > and > > > in the interim I am getting worse. I am at the > > > point > > > where standing on my feet for any length of > time > > > is a > > > problem. I want to go on the Naltrexone > > > immediately, I > > > just p\ut in a call to my family doctor and I > am > > > hoping with some persistence she will agree to > > put > > > me > > > on this drug. I have also put in a call to a > > > friend of > > > mine who happens to be a pharmacist to see if > > > maybe he > > > can help me. I am really at my wits end with > > this. > > > I > > > want to act now. If you have any suggestions I > > > would > > > certainly very much appreciate hearing back > from > > > you. > > > > > > Thanks. > > > > > > > > > --- Art Hansen <rtee54@...> wrote: > > > > > > > > > > > Read this before seeing your neurologist: > > > > > > > > How To Talk to Your Doctor about LDN > > > > > > > > http://www.gazorpa.com/PatientGuide.html > > > > > > > > If he says no, come back here asap, we have > > > other > > > > ways/ideas to > > > > get you on LDN. > > > > > > > > Good luck. > > > > > > > > -Art > > > > > > > > > > > > > > > > > > Hello Everyone: > > > > > > > > > > About 5 years ago I was diagnosed with MS. > > > Before > > > > that it was > > > > Lupus. > === message truncated === ________________________________________________________________________________\ ____ Tonight's top picks. What will you watch tonight? Preview the hottest shows on TV. http://tv./ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 5, 2007 Report Share Posted October 5, 2007 Hi , Were you able to get your doctor to prescribe LDN? I had an excellent experience with my appointment yesterday. Had a bunch of info, but she did not need convincing. Already has another ms patient of LDN. I am getting my LDN today will start taking it tonight. I hope you are having better results than before. Kristie Re: [low dose naltrexone] Re: Diagnosed> > with MS> > > > > > Hello Again:> > > > Well I am back to squsre one. I presented my> > Neurologist with all the information you> suggested> > I> > take with to my apppointment, he casually looked> > at> > it, and said to me he was aware of the drug, but> > claims there are not many using it. Please keep> in> > mind I live in Canada, I don't know if this is> > true,or> > not as I know there are alot of people here in> > this> > group using LDN but am unsure where they are> > located.> > I think he was giving me an excuse not to> > prescribe.> > He asked me if I would be interested in entering> a> > clinical Trial I told him yes, so now it is " I> > willget back to you and let you know "> situation,> > and> > in the interim I am getting worse. I am at the> > point> > where standing on my feet for any length of time> > is a> > problem. I want to go on the Naltrexone> > immediately, I> > just p\ut in a call to my family doctor and I am> > hoping with some persistence she will agree to> put> > me> > on this drug. I have also put in a call to a> > friend of> > mine who happens to be a pharmacist to see if> > maybe he> > can help me. I am really at my wits end with> this.> > I> > want to act now. If you have any suggestions I> > would> > certainly very much appreciate hearing back from> > you.> > > > Thanks.> > > > > > --- Art Hansen <rtee54 > wrote:> > > > > > > > Read this before seeing your neurologist:> > > > > > How To Talk to Your Doctor about LDN> > > > > > http://www.gazorpa.com/PatientGuide.html> > > > > > If he says no, come back here asap, we have> > other> > > ways/ideas to > > > get you on LDN.> > > > > > Good luck.> > > > > > -Art> > > > > > > > > >> > > > Hello Everyone:> > > > > > > > About 5 years ago I was diagnosed with MS.> > Before> > > that it was > > > Lupus. > > > > Upon seeing the MS Specialist he made a> final> > > diagnosis of MS, > > > based > > > > on MRI findings. His course of treatment was> > the> > > ABC drugs ( > > > Avonex, > > > > Rebif). I was in denial and so decided not> to> > > proceed with his > > > > recommendations. I also stopped going to him> > as I> > > found him to be > > > > very arrogant and a uncompasionate Dr. I> have> > > since seen 2 other > > > > Neurologists plus have had another MRI ,> this> > last> > > was showed > > > disease > > > > progression, but the neurologist I went to> > seemed> > > to think because > > > I > > > > showed no visible signs of disability, there> > was> > > no reason to treat > > > > me, it would be a let's wait and see what> > happens.> > > Well, in last > > > last > > > > 3 months I have had 2 Flares, the 2nd one> was> > a> > > major one, and the > > > > residual effects have been difficult, MY> feet> > are> > > always numb, and > > > > spastic the tightness is also unbearable, I> > have> > > also experience > > > > numbness in my legs and waist that extends> to> > my> > > torso. This has > > > been > > > > very frightening. 2 weeks ago as I was> getting> > > ready to go sawy for > > > a > > > > few days, I got out of my car to take the> > shuttle> === message truncated ===__________________________________________________________Need a vacation? Get great dealsto amazing places on Travel.http://travel./ Internal Virus Database is out-of-date.Checked by AVG.Version: 7.5.430 / Virus Database: 268.14.6/536 - Release Date: 11/16/2006 3:51 PM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 6, 2007 Report Share Posted October 6, 2007 Hi Kristie: I just keep hitting road blocks. I asked my family doctor to prescribe, the excuse was she is not a MS Dr. and could lose her license. BS is what I say. My Neurologist took a serious look at the literature that was written about the drug and wants me to go back and discuss it with the MS Specialist who is head of Neurology and the MS clinic here in toronto. So at this point I am back to square one. I haven't given up though and am more determined then ever now to find someone to prescribe it for me, someone in joolysjoint suggested I go for a colonoscopy and speak to the doctor there and ask them to prescribe. they thought it might be an easier method. Wonderful news for you, you must be so pleased.Let me know how your feeling now that your on the drug. Are you also dealing with MS and are you symptomatic? Please keep in touch. All the very best. --- Caroline Remax <remaxcaroline@...> wrote: > Hi , > Were you able to get your doctor to prescribe > LDN? I had an excellent experience with my > appointment yesterday. Had a bunch of info, but she > did not need convincing. Already has another ms > patient of LDN. I am getting my LDN today will > start taking it tonight. I hope you are having > better results than before. Kristie > Re: [low dose naltrexone] Re: Diagnosed > > > with MS > > > > > > > > > Hello Again: > > > > > > Well I am back to squsre one. I presented my > > > Neurologist with all the information you > > suggested > > > I > > > take with to my apppointment, he casually > looked > > > at > > > it, and said to me he was aware of the drug, > but > > > claims there are not many using it. Please > keep > > in > > > mind I live in Canada, I don't know if this is > > > true,or > > > not as I know there are alot of people here in > > > this > > > group using LDN but am unsure where they are > > > located. > > > I think he was giving me an excuse not to > > > prescribe. > > > He asked me if I would be interested in > entering > > a > > > clinical Trial I told him yes, so now it is " > I > > > willget back to you and let you know " > > situation, > > > and > > > in the interim I am getting worse. I am at the > > > point > > > where standing on my feet for any length of > time > > > is a > > > problem. I want to go on the Naltrexone > > > immediately, I > > > just p\ut in a call to my family doctor and I > am > > > hoping with some persistence she will agree to > > put > > > me > > > on this drug. I have also put in a call to a > > > friend of > > > mine who happens to be a pharmacist to see if > > > maybe he > > > can help me. I am really at my wits end with > > this. > > > I > > > want to act now. If you have any suggestions I > > > would > > > certainly very much appreciate hearing back > from > > > you. > > > > > > Thanks. > > > > > > > > > --- Art Hansen <rtee54@...> wrote: > > > > > > > > > > > Read this before seeing your neurologist: > > > > > > > > How To Talk to Your Doctor about LDN > > > > > > > > http://www.gazorpa.com/PatientGuide.html > > > > > > > > If he says no, come back here asap, we have > > > other > > > > ways/ideas to > > > > get you on LDN. > > > > > > > > Good luck. > > > > > > > > -Art > > > > > > > > > > > > > > > > > > Hello Everyone: > > > > > > > > > > About 5 years ago I was diagnosed with MS. > > > Before > === message truncated === ________________________________________________________________________________\ ____ Moody friends. Drama queens. Your life? Nope! - their life, your story. Play Sims Stories at Games. http://sims./ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 6, 2007 Report Share Posted October 6, 2007 Dearest , Listed below are the names of doctors that have in the past been reported to prescribe LDN. We save these names and numbers in order to help those that are having a difficult time finding doctors in their area that know about LDN. I cannot guarantee that these doctors will prescribe or what their overall feelings about LDN are. I only know that at least once they have prescribed it to someone. We don't necessarily have permission from these doctors to share their names and information, so please tread lightly. I would not share these numbers with anyone unless you have asked the doctors if they are OK with telling others. At least it is a start and they have at one time known about and prescribed LDN. Please let me know how it goes. All my best, Aletha (see below for list of doctors in Canada) a Canada Markham Dr. Gannage (905) 294-2335 300 Main Street a Canada Markham Dr. Ko ???? ** www.musclepainrelief.ca a Canada Edmondton Alberta Dr. Tris Trethart -Holistic doctor who takes LDN himself (780) 433-7401 10303 65th avenue a Canada Toronto Dr. Jaconelle (416) 463-2911 a Canada Toronto Dr. Burton/ Dr. Connor St. Mikes a Canada Toronto (con't) Dr's based at St. 's (416) 864-5830 a Canada Ottawa e-mail at whisper@... Re: [low dose naltrexone] Re: Diagnosed> > > with MS> > > > > > > > > Hello Again:> > > > > > Well I am back to squsre one. I presented my> > > Neurologist with all the information you> > suggested> > > I> > > take with to my apppointment, he casually> looked> > > at> > > it, and said to me he was aware of the drug,> but> > > claims there are not many using it. Please> keep> > in> > > mind I live in Canada, I don't know if this is> > > true,or> > > not as I know there are alot of people here in> > > this> > > group using LDN but am unsure where they are> > > located.> > > I think he was giving me an excuse not to> > > prescribe.> > > He asked me if I would be interested in> entering> > a> > > clinical Trial I told him yes, so now it is "> I> > > willget back to you and let you know "> > situation,> > > and> > > in the interim I am getting worse. I am at the> > > point> > > where standing on my feet for any length of> time> > > is a> > > problem. I want to go on the Naltrexone> > > immediately, I> > > just p\ut in a call to my family doctor and I> am> > > hoping with some persistence she will agree to> > put> > > me> > > on this drug. I have also put in a call to a> > > friend of> > > mine who happens to be a pharmacist to see if> > > maybe he> > > can help me. I am really at my wits end with> > this.> > > I> > > want to act now. If you have any suggestions I> > > would> > > certainly very much appreciate hearing back> from> > > you.> > > > > > Thanks.> > > > > > > > > --- Art Hansen <rtee54 > wrote:> > > > > > > > > > > Read this before seeing your neurologist:> > > > > > > > How To Talk to Your Doctor about LDN> > > > > > > > http://www.gazorpa.com/PatientGuide.html> > > > > > > > If he says no, come back here asap, we have> > > other> > > > ways/ideas to > > > > get you on LDN.> > > > > > > > Good luck.> > > > > > > > -Art> > > > > > > > > > > > >> > > > > Hello Everyone:> > > > > > > > > > About 5 years ago I was diagnosed with MS.> > > Before> === message truncated ===__________________________________________________________Moody friends. Drama queens. Your life? Nope! - their life, your story. Play Sims Stories at Games.http://sims./ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 6, 2007 Report Share Posted October 6, 2007 Opps, sorry everyone that last e-mail was supposed to go to 's e-mail, not to go out to the whole group. Please disregard it. Aletha Re: [low dose naltrexone] Re: Diagnosed> > > with MS> > > > > > > > > Hello Again:> > > > > > Well I am back to squsre one. I presented my> > > Neurologist with all the information you> > suggested> > > I> > > take with to my apppointment, he casually> looked> > > at> > > it, and said to me he was aware of the drug,> but> > > claims there are not many using it. Please> keep> > in> > > mind I live in Canada, I don't know if this is> > > true,or> > > not as I know there are alot of people here in> > > this> > > group using LDN but am unsure where they are> > > located.> > > I think he was giving me an excuse not to> > > prescribe.> > > He asked me if I would be interested in> entering> > a> > > clinical Trial I told him yes, so now it is "> I> > > willget back to you and let you know "> > situation,> > > and> > > in the interim I am getting worse. I am at the> > > point> > > where standing on my feet for any length of> time> > > is a> > > problem. I want to go on the Naltrexone> > > immediately, I> > > just p\ut in a call to my family doctor and I> am> > > hoping with some persistence she will agree to> > put> > > me> > > on this drug. I have also put in a call to a> > > friend of> > > mine who happens to be a pharmacist to see if> > > maybe he> > > can help me. I am really at my wits end with> > this.> > > I> > > want to act now. If you have any suggestions I> > > would> > > certainly very much appreciate hearing back> from> > > you.> > > > > > Thanks.> > > > > > > > > --- Art Hansen <rtee54 > wrote:> > > > > > > > > > > Read this before seeing your neurologist:> > > > > > > > How To Talk to Your Doctor about LDN> > > > > > > > http://www.gazorpa.com/PatientGuide.html> > > > > > > > If he says no, come back here asap, we have> > > other> > > > ways/ideas to > > > > get you on LDN.> > > > > > > > Good luck.> > > > > > > > -Art> > > > > > > > > > > > >> > > > > Hello Everyone:> > > > > > > > > > About 5 years ago I was diagnosed with MS.> > > Before> === message truncated ===__________________________________________________________Moody friends. Drama queens. Your life? Nope! - their life, your story. Play Sims Stories at Games.http://sims./ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 6, 2007 Report Share Posted October 6, 2007 , Have you tried the Doctors on the LDN website?.That is where I found mine. I hear that some you can call and they will prescribe the LDN for a consulation fee. I saw a doctor that lived four hours Massachusetts. He lives in New Jersey where I used to live. In fact, if he was not so far I would love to have him for a Nuero.My name is also so I will sign off B. Best of luck, B from Cape Cod Re: [low dose naltrexone] Re: Diagnosed> > > with MS> > > > > > > > > Hello Again:> > > > > > Well I am back to squsre one. I presented my> > > Neurologist with all the information you> > suggested> > > I> > > take with to my apppointment, he casually> looked> > > at> > > it, and said to me he was aware of the drug,> but> > > claims there are not many using it. Please> keep> > in> > > mind I live in Canada, I don't know if this is> > > true,or> > > not as I know there are alot of people here in> > > this> > > group using LDN but am unsure where they are> > > located.> > > I think he was giving me an excuse not to> > > prescribe.> > > He asked me if I would be interested in> entering> > a> > > clinical Trial I told him yes, so now it is "> I> > > willget back to you and let you know "> > situation,> > > and> > > in the interim I am getting worse. I am at the> > > point> > > where standing on my feet for any length of> time> > > is a> > > problem. I want to go on the Naltrexone> > > immediately, I> > > just p\ut in a call to my family doctor and I> am> > > hoping with some persistence she will agree to> > put> > > me> > > on this drug. I have also put in a call to a> > > friend of> > > mine who happens to be a pharmacist to see if> > > maybe he> > > can help me. I am really at my wits end with> > this.> > > I> > > want to act now. If you have any suggestions I> > > would> > > certainly very much appreciate hearing back> from> > > you.> > > > > > Thanks.> > > > > > > > > --- Art Hansen <rtee54 > wrote:> > > > > > > > > > > Read this before seeing your neurologist:> > > > > > > > How To Talk to Your Doctor about LDN> > > > > > > > http://www.gazorpa.com/PatientGuide.html> > > > > > > > If he says no, come back here asap, we have> > > other> > > > ways/ideas to > > > > get you on LDN.> > > > > > > > Good luck.> > > > > > > > -Art> > > > > > > > > > > > >> > > > > Hello Everyone:> > > > > > > > > > About 5 years ago I was diagnosed with MS.> > > Before> === message truncated ===__________________________________________________________Moody friends. Drama queens. Your life? Nope! - their life, your story. Play Sims Stories at Games.http://sims./ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 9, 2007 Report Share Posted October 9, 2007 Hi , Ya, that excuse that your doctor can't prescribe because not an ms doctor is BS - my family dr prescribed for me. Try a different dr. I have been diagnosised with MS approx 3 wks ago. Only been on LDN now for 4 days - not noticing any immediate change. First got symptoms on July 29 but they disappeared 5 days later only to appear again 2 wks later. But this time they subsided but haven't gone away.. I have vision issues - my left eye is only about 50% vision, right eye 100% - but that makes it hard to see right. Also have balance problems - not too bad & pins & needles all over. The pins & needles bothered me the most to start with but its my vision that I wish would straighten up. How about you, how long have you had ms? Kristie Re: [low dose naltrexone] Re: Diagnosed> > > with MS> > > > > > > > > Hello Again:> > > > > > Well I am back to squsre one. I presented my> > > Neurologist with all the information you> > suggested> > > I> > > take with to my apppointment, he casually> looked> > > at> > > it, and said to me he was aware of the drug,> but> > > claims there are not many using it. Please> keep> > in> > > mind I live in Canada, I don't know if this is> > > true,or> > > not as I know there are alot of people here in> > > this> > > group using LDN but am unsure where they are> > > located.> > > I think he was giving me an excuse not to> > > prescribe.> > > He asked me if I would be interested in> entering> > a> > > clinical Trial I told him yes, so now it is "> I> > > willget back to you and let you know "> > situation,> > > and> > > in the interim I am getting worse. I am at the> > > point> > > where standing on my feet for any length of> time> > > is a> > > problem. I want to go on the Naltrexone> > > immediately, I> > > just p\ut in a call to my family doctor and I> am> > > hoping with some persistence she will agree to> > put> > > me> > > on this drug. I have also put in a call to a> > > friend of> > > mine who happens to be a pharmacist to see if> > > maybe he> > > can help me. I am really at my wits end with> > this.> > > I> > > want to act now. If you have any suggestions I> > > would> > > certainly very much appreciate hearing back> from> > > you.> > > > > > Thanks.> > > > > > > > > --- Art Hansen <rtee54 > wrote:> > > > > > > > > > > Read this before seeing your neurologist:> > > > > > > > How To Talk to Your Doctor about LDN> > > > > > > > http://www.gazorpa.com/PatientGuide.html> > > > > > > > If he says no, come back here asap, we have> > > other> > > > ways/ideas to > > > > get you on LDN.> > > > > > > > Good luck.> > > > > > > > -Art> > > > > > > > > > > > >> > > > > Hello Everyone:> > > > > > > > > > About 5 years ago I was diagnosed with MS.> > > Before> === message truncated ===__________________________________________________________Moody friends. Drama queens. Your life? Nope! - their life, your story. Play Sims Stories at Games.http://sims./ Internal Virus Database is out-of-date.Checked by AVG.Version: 7.5.430 / Virus Database: 268.14.6/536 - Release Date: 11/16/2006 3:51 PM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 9, 2007 Report Share Posted October 9, 2007 Hi Caroline, I live in California, so I'm unfamiliar with Canada laws. My doctor does to phone consults and appointments, and he's WONDERFUL and open to lots of different things....he prescribed LDN for me. He works at Whitaker Wellness Center, which you can research on the internet. I just called them, and the first visit needs to be in person, and then all other visits can be via phone. Any chance of coming here to arrange that and take a vacation at the same time....maybe Disneyland?! He also works with a compounding pharmacy, out of NY, but I called them, and they only ship within the US. I'm sure he has contacts in Canada, though....people come from ALL OVER to visit this place. If you want to call and leave a message for his nurse, here's the # (949) 851-1550. Let me know what you find out, and good luck! I just started LDN, myself, so no change yet. Take care, Caroline Remax <remaxcaroline@...> wrote: Hi , Ya, that excuse that your doctor can't prescribe because not an ms doctor is BS - my family dr prescribed for me. Try a different dr. I have been diagnosised with MS approx 3 wks ago. Only been on LDN now for 4 days - not noticing any immediate change. First got symptoms on July 29 but they disappeared 5 days later only to appear again 2 wks later. But this time they subsided but haven't gone away.. I have vision issues - my left eye is only about 50% vision, right eye 100% - but that makes it hard to see right. Also have balance problems - not too bad & pins & needles all over. The pins & needles bothered me the most to start with but its my vision that I wish would straighten up. How about you, how long have you had ms? Kristie Re: [low dose naltrexone] Re: Diagnosed> > > with MS> > > > > > > > > Hello Again:> > > > > > Well I am back to squsre one. I presented my> > > Neurologist with all the information you> > suggested> > > I> > > take with to my apppointment, he casually> looked> > > at> > > it, and said to me he was aware of the drug,> but> > > claims there are not many using it. Please> keep> > in> > > mind I live in Canada, I don't know if this is> > > true,or> > > not as I know there are alot of people here in> > > this> > > group using LDN but am unsure where they are> > > located.> > > I think he was giving me an excuse not to> > > prescribe.> > > He asked me if I would be interested in> entering> > a> > > clinical Trial I told him yes, so now it is "> I> > > willget back to you and let you know "> > situation,> > > and> > > in the interim I am getting worse. I am at the> > > point> > > where standing on my feet for any length of> time> > > is a> > > problem. I want to go on the Naltrexone> > > immediately, I> > > just p\ut in a call to my family doctor and I> am> > > hoping with some persistence she will agree to> > put> > > me> > > on this drug. I have also put in a call to a> > > friend of> > > mine who happens to be a pharmacist to see if> > > maybe he> > > can help me. I am really at my wits end with> > this.> > > I> > > want to act now. If you have any suggestions I> > > would> > > certainly very much appreciate hearing back> from> > > you.> > > > > > Thanks.> > > > > > > > > --- Art Hansen <rtee54 > wrote:> > > > > > > > > > > Read this before seeing your neurologist:> > > > > > > > How To Talk to Your Doctor about LDN> > > > > > > > http://www.gazorpa.com/PatientGuide.html> > > > > > > > If he says no, come back here asap, we have> > > other> > > > ways/ideas to > > > > get you on LDN.> > > > > > > > Good luck.> > > > > > > > -Art> > > > > > > > > > > > >> > > > > Hello Everyone:> > > > > > > > > > About 5 years ago I was diagnosed with MS.> > > Before> === message truncated ===__________________________________________________________Moody friends. Drama queens. Your life? Nope! - their life, your story. Play Sims Stories at Games.http://sims./ Internal Virus Database is out-of-date.Checked by AVG.Version: 7.5.430 / Virus Database: 268.14.6/536 - Release Date: 11/16/2006 3:51 PM Tonight's top picks. What will you watch tonight? Preview the hottest shows on TV. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 9, 2007 Report Share Posted October 9, 2007 Hi Caroline, I forgot to give you my doctor's name......Dr. Farrier. Just tell him you were referred by me - .Caroline Remax <remaxcaroline@...> wrote: Hi , Ya, that excuse that your doctor can't prescribe because not an ms doctor is BS - my family dr prescribed for me. Try a different dr. I have been diagnosised with MS approx 3 wks ago. Only been on LDN now for 4 days - not noticing any immediate change. First got symptoms on July 29 but they disappeared 5 days later only to appear again 2 wks later. But this time they subsided but haven't gone away.. I have vision issues - my left eye is only about 50% vision, right eye 100% - but that makes it hard to see right. Also have balance problems - not too bad & pins & needles all over. The pins & needles bothered me the most to start with but its my vision that I wish would straighten up. How about you, how long have you had ms? Kristie Re: [low dose naltrexone] Re: Diagnosed> > > with MS> > > > > > > > > Hello Again:> > > > > > Well I am back to squsre one. I presented my> > > Neurologist with all the information you> > suggested> > > I> > > take with to my apppointment, he casually> looked> > > at> > > it, and said to me he was aware of the drug,> but> > > claims there are not many using it. Please> keep> > in> > > mind I live in Canada, I don't know if this is> > > true,or> > > not as I know there are alot of people here in> > > this> > > group using LDN but am unsure where they are> > > located.> > > I think he was giving me an excuse not to> > > prescribe.> > > He asked me if I would be interested in> entering> > a> > > clinical Trial I told him yes, so now it is "> I> > > willget back to you and let you know "> > situation,> > > and> > > in the interim I am getting worse. I am at the> > > point> > > where standing on my feet for any length of> time> > > is a> > > problem. I want to go on the Naltrexone> > > immediately, I> > > just p\ut in a call to my family doctor and I> am> > > hoping with some persistence she will agree to> > put> > > me> > > on this drug. I have also put in a call to a> > > friend of> > > mine who happens to be a pharmacist to see if> > > maybe he> > > can help me. I am really at my wits end with> > this.> > > I> > > want to act now. If you have any suggestions I> > > would> > > certainly very much appreciate hearing back> from> > > you.> > > > > > Thanks.> > > > > > > > > --- Art Hansen <rtee54 > wrote:> > > > > > > > > > > Read this before seeing your neurologist:> > > > > > > > How To Talk to Your Doctor about LDN> > > > > > > > http://www.gazorpa.com/PatientGuide.html> > > > > > > > If he says no, come back here asap, we have> > > other> > > > ways/ideas to > > > > get you on LDN.> > > > > > > > Good luck.> > > > > > > > -Art> > > > > > > > > > > > >> > > > > Hello Everyone:> > > > > > > > > > About 5 years ago I was diagnosed with MS.> > > Before> === message truncated ===__________________________________________________________Moody friends. Drama queens. Your life? Nope! - their life, your story. Play Sims Stories at Games.http://sims./ Internal Virus Database is out-of-date.Checked by AVG.Version: 7.5.430 / Virus Database: 268.14.6/536 - Release Date: 11/16/2006 3:51 PM Take the Internet to Go: Go puts the Internet in your pocket: mail, news, photos more. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 10, 2007 Report Share Posted October 10, 2007 Hi : Is this doctor in Toronto? if so could you please tell me where and what his phone number is so that I can call him. Is he a Neurologist or a MD. Thanks, --- Missie - <melissa4tse@...> wrote: > Hi Caroline, > > I forgot to give you my doctor's name......Dr. > Farrier. Just tell him you were referred by > me - . > > Caroline Remax <remaxcaroline@...> wrote: > Hi , > Ya, that excuse that your doctor can't > prescribe because not an ms doctor is BS - my family > dr prescribed for me. Try a different dr. I have > been diagnosised with MS approx 3 wks ago. Only > been on LDN now for 4 days - not noticing any > immediate change. First got symptoms on July 29 but > they disappeared 5 days later only to appear again 2 > wks later. But this time they subsided but haven't > gone away.. I have vision issues - my left eye is > only about 50% vision, right eye 100% - but that > makes it hard to see right. Also have balance > problems - not too bad & pins & needles all over. > The pins & needles bothered me the most to start > with but its my vision that I wish would straighten > up. > How about you, how long have you had ms? > Kristie > Re: [low dose naltrexone] Re: Diagnosed > > > > with MS > > > > > > > > > > > > Hello Again: > > > > > > > > Well I am back to squsre one. I presented my > > > > Neurologist with all the information you > > > suggested > > > > I > > > > take with to my apppointment, he casually > > looked > > > > at > > > > it, and said to me he was aware of the drug, > > but > > > > claims there are not many using it. Please > > keep > > > in > > > > mind I live in Canada, I don't know if this is > === message truncated === ________________________________________________________________________________\ ____ Be a better Heartthrob. Get better relationship answers from someone who knows. Answers - Check it out. http://answers./dir/?link=list & sid=396545433 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 10, 2007 Report Share Posted October 10, 2007 I understand that www.skipspharmacy.com ship LDN just about anywhere in the world. mjh He also works with a compounding pharmacy, out of NY, but I called them, and they only ship within the US. I'm sure he has contacts in Canada, though....people come from ALL OVER to visit this place.See what's new at AOL.com and Make AOL Your Homepage. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 10, 2007 Report Share Posted October 10, 2007 Hi , is from California - so I don't think her dr can help you. Did miz.mel from Toronto not help you out with the name & # of her dr that prescribed LDN or did she get it off the internet? You can order it without a prescription - you just have to dilute it because they send you 50 mg. Have you tried the list that Crystal has of dr's that prescribe? Kristie Re: [low dose naltrexone] Re: Diagnosed> > > > with MS> > > > > > > > > > > > Hello Again:> > > > > > > > Well I am back to squsre one. I presented my> > > > Neurologist with all the information you> > > suggested> > > > I> > > > take with to my apppointment, he casually> > looked> > > > at> > > > it, and said to me he was aware of the drug,> > but> > > > claims there are not many using it. Please> > keep> > > in> > > > mind I live in Canada, I don't know if this is> === message truncated ===__________________________________________________________Be a better Heartthrob. Get better relationship answers from someone who knows. Answers - Check it out. http://answers./dir/?link=list & sid=396545433 Internal Virus Database is out-of-date.Checked by AVG.Version: 7.5.430 / Virus Database: 268.14.6/536 - Release Date: 11/16/2006 3:51 PM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 27, 2008 Report Share Posted July 27, 2008 Hi Barb, I am new to this group and I hope everthing works out for you. I thought I would pass along some information to you that I found in Heinerman's Encyclopedia of Healing Juices, p46. Black and Red Currant berrys produce GLA, and prostaglandin PGE-1. Which is essential for muscle locamotion and nerve transmission, in diseases such as multiple sclerosis is of considerable benefit. Good Luck, Craig > > while ususally just a lurker, I feel like i know so many of you > personslly after all these years. > > The middle of June I started to have weird symtoms. My balance and my > handwriting. I made a doc's appt. but since I was a new patient they > would not see me until July 23rd (havent been to a doc in years). The > end of June my symtoms were a lot worse. My husband begged me to go > to the er which I finally did July 1. At first they thought it was a > stroke (which I didnt believe since I'm only 41 and eat healthy and > Im fairly active and a nonsmoker)only to be diagnosed with MS. They > did a CAT scan, blood tests, 2 ultra sounds, 3 MRI's (the last one > lasting 90 minutes) and a spinal tap. > > I lost a lot on my right side (this was actally after I was adnmitted > and they were giving me steroids) now walking with a walker and very > limited use of my arm and hand (I am getting occupasional and > physical therapy). in fact typing this is very slow with only my left > hand. > > I will be seeing a specialist on Tues expecting to get on meds. > > Any advice or experience would be appreciated. > > Barb > Quote Link to comment Share on other sites More sharing options...
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