Guest guest Posted January 7, 2008 Report Share Posted January 7, 2008 Rick, I have 3 kids (all boys)with my middle one being with DS. I was wondering how it is with sibs when they get older and the others move on to college, get married, have kids and such. There is a 6 year difference between my first and middle one. My oldest came to me and ask about what happens when he goes to college. He is only 10 but its nice that he thinks of it. I just told him that he will do his thing just like will do his own. He said that he wanted to make sure he is with him on every holiday and do things. I just can't help but think how much his future wife will just love that. I don't want to burst his bubble as they are very close. A little insight into what yours are doing would be helpful. Thanks B --- Rick Dill <rdill@...> wrote: > OK, I'll sign in. I'm Rick, dad to Jan who is > almost 35. I've been > around since this list began and even before that. > I'm dealing with > adult outcomes and with passing some of my > experiences to those not so > far along. > > All of our kids are individuals and mine is no > different. At 35, she > has her own apartment where she lives on her own > with a little ILS and > parent help. She has two different day activities. > Two days a week she > is in a " workshop " which I regard a social with > peers like herself and > where she gets classes and sometimes a little work > when their jobs. > Three days a week she works as a volunteer with > another day program > dealing with people more handicapped than herself. > As a volunteer she > is able to work one one one with individuals, > something that the paid > staffing levels don't allow. In a little less than > a year, she has > established a very positive relationship, > particularly with one of the > more difficult clients. Both the agency and the > young man's parents > have indicated real appreciation for what she does. > > Today, we are together in Utah with friends, > including the kids next > door that she grew up with. She is skiing again for > the first time > since her recovery from AML via a bone marrow > transport. It was cold > and snowy, but the skiing is coming back. She and I > went out with her > brother (bone marrow donor) and his wife this > morning. We came in cold > and tired for lunch, but she was the one who wanted > to go back out after > lunch, so she and I did. Again it was cold and very > windy, and most of > the morning's crowd had gone home. Skiing is coming > back. We will be > on higher level trails tomorrow if the weather is > better. > > Jan is financially independent. Her quality of life > is high, as just > surveyed by the state in a QC initiative. She has > social security, > medicare, medicaid, and HUD section 8 support for > her housing. She has > transportation for $3 a ride to get to her workshop > and her volunteer > job is (long) walking distance. > > Our forward focus is now on getting things > stabilized as she ages and if > she loses her parent support team. Our current > focus is on a bunch of > issues, many of them related to healthy living. She > buys in, but it is > difficult as it is for many people in this country. > > In my posts, you will find me often questioning the > standard view and > outcome (inclusion is always best and a paid job is > the primary aim). > These are often right, but our kids are individuals > and not some > standard item just because they have ds. We need to > try to look at > their needs as best as we can through their eyes and > not through our > preceptions of success for them. > > I also report on Jan, both her successes and issues. > > I am married to for nearly 40 years and have > two sons, one older > and one younger than Jan. > > Rick > > > > > Click reply to all for messages to go to the list. > Just hit reply for messages to go to the sender of > the message. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2008 Report Share Posted January 7, 2008 Yes that is so true! I just hope my youngest likes Sydnie better when she gets older. lol Haha that is just Saylor's nature...hateful little thing....she loves her sister dearly unless it interferes with something that belongs to her or she thinks belongs to her LOL May God Bless You As He Has Us ~Angie~ ~~DREAM BIG~~ An extra little chromosome, that's all it is, you see. Where all of you were born with two, She was blessed with three. Re: ROLL CALL - Rick Rick, I have 3 kids (all boys)with my middle one being with DS. I was wondering how it is with sibs when they get older and the others move on to college, get married, have kids and such. There is a 6 year difference between my first and middle one. My oldest came to me and ask about what happens when he goes to college. He is only 10 but its nice that he thinks of it. I just told him that he will do his thing just like will do his own. He said that he wanted to make sure he is with him on every holiday and do things. I just can't help but think how much his future wife will just love that. I don't want to burst his bubble as they are very close. A little insight into what yours are doing would be helpful. Thanks B --- Rick Dill <rdill@...> wrote: > OK, I'll sign in. I'm Rick, dad to Jan who is > almost 35. I've been > around since this list began and even before that. > I'm dealing with > adult outcomes and with passing some of my > experiences to those not so > far along. > > All of our kids are individuals and mine is no > different. At 35, she > has her own apartment where she lives on her own > with a little ILS and > parent help. She has two different day activities. > Two days a week she > is in a " workshop " which I regard a social with > peers like herself and > where she gets classes and sometimes a little work > when their jobs. > Three days a week she works as a volunteer with > another day program > dealing with people more handicapped than herself. > As a volunteer she > is able to work one one one with individuals, > something that the paid > staffing levels don't allow. In a little less than > a year, she has > established a very positive relationship, > particularly with one of the > more difficult clients. Both the agency and the > young man's parents > have indicated real appreciation for what she does. > > Today, we are together in Utah with friends, > including the kids next > door that she grew up with. She is skiing again for > the first time > since her recovery from AML via a bone marrow > transport. It was cold > and snowy, but the skiing is coming back. She and I > went out with her > brother (bone marrow donor) and his wife this > morning. We came in cold > and tired for lunch, but she was the one who wanted > to go back out after > lunch, so she and I did. Again it was cold and very > windy, and most of > the morning's crowd had gone home. Skiing is coming > back. We will be > on higher level trails tomorrow if the weather is > better. > > Jan is financially independent. Her quality of life > is high, as just > surveyed by the state in a QC initiative. She has > social security, > medicare, medicaid, and HUD section 8 support for > her housing. She has > transportation for $3 a ride to get to her workshop > and her volunteer > job is (long) walking distance. > > Our forward focus is now on getting things > stabilized as she ages and if > she loses her parent support team. Our current > focus is on a bunch of > issues, many of them related to healthy living. She > buys in, but it is > difficult as it is for many people in this country. > > In my posts, you will find me often questioning the > standard view and > outcome (inclusion is always best and a paid job is > the primary aim). > These are often right, but our kids are individuals > and not some > standard item just because they have ds. We need to > try to look at > their needs as best as we can through their eyes and > not through our > preceptions of success for them. > > I also report on Jan, both her successes and issues. > > I am married to for nearly 40 years and have > two sons, one older > and one younger than Jan. > > Rick > > > > > Click reply to all for messages to go to the list. > Just hit reply for messages to go to the sender of > the message. > Quote Link to comment Share on other sites More sharing options...
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