Re: Back In School on Thursday

March 8, 2008

Yippeee!!!!! I'm so happy resolution was found and that both kids will get the

help they need. I do not know what a Playman/Robo chair is, but you may want to

see if a service organization in your area can help you out. I once worked with

a girl whose son did not have ds, but the behaviors the boys had were about the

same. She advocated and advocated for a communication device for her son with

the school system. Her son's teacher led her to a service organization who was

more than happy to purchase the device. Another coworker had a severely

disabled child and the local Moose had a fundraiser for the family. My dad is a

member of his local Lion's Club and they keep durable medical equipment from

donors to give to others in need.

Keep us updated on the chair!

--

cindysue@...

Back In School on Thursday

Dear all,

The attorney lit a fire under their butts!!! It was evident in

all that came out in droves for the big " POWWOW " on Thursday. [have

to use POWWOW b/c we live in the land of Native America!HA!] Our

attorney was present via conference call. The Principal did not know

how to make the phone conference in since it was a cordless phone. I

quickly changed that and showed her how to turn up the volume and

make it where everyone could hear. There were 8 school personel

there and two of them were new to us. We had no idea who they were.

They came out of the woodwork!! The attorney had written a 2

page letter with 4 pages of additional attachments and faxed it to

the Superintendant's office and also the State dept. of Sped. On it

was a description of the incident in her lingo and also a bulleted

list of items for the resolution to the problem. They had done all

but one thing on the list. The attorney felt it was safe to allow

her to return to class based on the school's progress thus far. So,

we allowed her to return. We are still awaiting the school's

investigation of the " Playman/Robo " electric chair for to

utilize in the classroom. I'm betting they won't buy it and we'll

have to have another fight on our hands. Since has Cerebral

Palsy and Down syndrome, she has limited means of mobility and

independance. This was the reason for suggesting a loaner/rent/buy

of the Playman/Robo by Permobil. We'll see. and the little

boy who attacked her will be getting an assistive tech eval out of

the deal and the school has contacted Dr. Riffel

(www.behaviordoctor.org). Dr. Riffel will be doing a consult with

the school about how to handle this little boy's behavior. HOORAY!

We are pleased that the suffereing brought about change. This was

our prayer. Thanks for all who have followed, thought and prayed

about our and our family.

Rebekah

Oklahoma

, (8) DS/CP, Gtube, hearing impaired, bilateral derotation

osteotomies with heel cord releases, feeding disorder, esotropia,

AFOs, WC for mobility

Jo, (2 3/4) and SO SO SO TYPICALLY TERRIBLE at her age!

March 8, 2008

I am so happy that everything seems to be resolved... though part of me wishes

that it would not always seem to need the intervention of a lawyer before the

school would do what it should have to begin with..

I am really glad that the little boy will also get the help he needs

-------------- Original message --------------

From: " fourgivenfish " <fourgivenfish@...>