21-3 Int DS Day

[Guest guest]

Joining efforts, we managed to put together an extensive programme in

18 cities

in Brazil up to now (that we know of) to celabrate 21/3. The

programme (a first

version in English, present one in portuguese and link to download

and freely

use the video in portuguese, spanish or english) is on Down Syndrome

International web page:

http://www.worlddownsyndromeday.org/events.htm

On National TV:

13/3 – 8:15 pm

TV Globo – Jornal Nacional – News story about World Down Syndrome Day

19/3 – 4ª feira - 14:30 h TV Bandeirantes - Entrevista – Fernanda

Honorato, repórter do Programa Especial da TVE e Helena Werneck,

Instituto Meta Social – Ser Diferente Normal

On National Radio:

19/3 - 9:14 am

Radio Senado – Reporter Nacional – News Story about World Down

Syndrome Day

1)Brasília-DF 14/3 – 7 pm Opening DFDOWN – Launch Down21 Brazil Web

Site

19/3 - 2:30 pm Talk – Down Syndrome – For teachers, parents and all

interested – Education Secretary

21/3 - 9 h Walk It`s Normal to be Different City Park

2)Rio de Janeiro-RJ 16/3 - 10 h Inclusive Walk - RJDOWN Ipanema to

Leblon waterfront

3)São o – SP

15 to 20/3 – 1st Down Syndrome Week – Course - Hospital Darcy Vargas –

15/3 - 9 am to 5:15 pm " Knowledge of genetics and Learning in

DS " , " Cardiologic Aspects in DS " , " Audiology in DS " , " Complementary

or Alternative Communication " , " Eye Evaluation in DS " , " Neurological

Aspects of DS " .

16/3 - 8:30 am to 13:30 pm " Early

Intervention " , " Physiotherapy " , " Occupational Therapy " , " Speech

Therapy " , " Hydrotherapy " , " Psycho pedagogy " .

17/3 – 9 am " Oncology and Down Syndrome "

18/3 - 9 am " Heart Beat – the heart and Down Syndrome "

19/3 - 9 am " The Down Family "

20/03 - 9 am " Urology an Down Syndrome " Invited Teachers: Dr. Andréa

Man de Carvalho, Prof. Dr. Camila Dedivitis Tiossi Wild, Prof. Dr.

Roizenblatt, Dr. a o, Dr. o Breinis, Prof.

Dr. o Franco de Camargo, Profa. Dra. Pessia Grywac

Meyerhof, Dra. a Mustacchi, Dra. Cristina Fonseca Pires,

Profa. Dra. Gusman, Dra. Valéria Mondin Alabarse dos Santos,

Prof. Dr. Zan Mustacchi, Prof. Fábio Adiron, Dr. Jovelino Quintino

Leão, Dra. Lídia Mello de Almeida, Dra. Virgínia L.

Machado.

Contact: (55 11) 3721-0748 -

www.sindromededown.com.br

4)Curitiba-PR

20/3 – 9 am to 5 pm Boca Maldita – Mobilization of people with DS and

their families – Information, Painting and Photo Exhibition, T- shirt

selling " By each one's way " .

5)Cuiabá - MT

19/3 – Public Audience – International Convention of the Rights of

People with Disability

20/03 - 8 h Crafts exhibition - Centro de Reabilitação Dom Aquino

Corrêa - ASDMT

6)Fortaleza - CE

17/3 – 3 pm to 5 pm Meeting – Youngsters with Down Syndrome and other

intellectual disabilities to discuss themes like their right to

leisure, work and education. Suggestions will be forwarded to the

State Meeting of People with Disability and National Forum for Young

People. Apae/Fortaleza

17 to 23/3 – Exhibition " Dream High Enough " Benfica Shopping Mall

18/03 - State and Municipal Deputies will make statements refering

the date Assembléia Legislativa and Câmara de Vereadores

25/03 – 13 h Meeting on Inclusive Education – Workers on Education

Coop - COOEDUCAR - Auditório o Freire

7)João Pessoa – PB 8/03 - 10:30 am Band (local TV Naldo Barbosa

program) - Interview Eliane Pacote about 21/3

21/03 – From 6 pm Distribution of folders on DS - Busto de Tamandaré

in Tambaú

8)Itabuna-BA

13/3 – 7 pm Presentation – Down Syndrome, New paradigms beyond

imaginary... Prof fina Castro. Doctor in education. Universities

Santa Cruz and Facsul

14/3 Meeting at Olinto Leone Square – Distribution of folders, arts

show (painting, dance, capoeira). Secretary of Education, Social

Wellbeing and Apae

9)São José dos Campos – SP

15/3 -12:00 am Community Barbacue - (Project Light, Building Paths

and friends) Salão Vitória - Estrada do Bom Sucesso, 2235

10)Jacareí – SP

21/3 – 2 pm Presentation – Health Eating and Mouth Health –

Recreation for children - Project Light - SEST/SENAT Av. Humberto

Alencar Castelo Branco, 3.201 - Rio Abaixo

11)Sorocaba – SP

21/3 – 7.30 pm 2nd Meeting – Sorocaba – World Down Syndrome Day

Ipanema Clube - Rua Sete de Setembro, 700 – Centro Presentation of

people with DS, videos, info, dance and cocktail. Realization: Célia

Regina e Tomás André, parents of Bruna , 25.

12)Juazeiro do Norte/CE

14, 15 and 16/3 – Informative Exhibition Cariri Shopping Mall 14/3 -

6ª - Walk - Leão Sampaio School

We also lauched Down21 Brazil, the portuguese version for Canal

Down21 of

IberoAmerica.

http://www.down21.org/latinoamerica/brasil/marco.htm

Both of them are now included on the links os DSI:

http://www.worlddownsyndromeday.org/links.htm

Below, the translation of the news story on the main national news –

Jornal

Nacional, Rede Globo, that went on air yesterday, Saturday, regarding

World Down

Syndrome Day. The show is watched by 60 million people.

You can watch the video on the link above and read the translation:

http://video.globo.com/Videos/Player/Noticias/0,,GIM803480-7823-

CAMPANHA+PELA+IN\

CLUSAO+SOCIAL+DE+PORTADORES+DE+DOWN,00.html

Live presentation - In the next two weeks relatives and friends of

people with

Down syndrome start a campaign all over Brazil for social inclusion

and end of

prejudice.

(Video travels through a regular classroom of a public school in

Brazil and

the images close on s face) Not long ago, a scene like these

would be

impossible: in a regular public school, a student with Down syndrome.

Observing

little eyes, fast fingers when she shows how old she is.

" The teacher gives her work and she finishes it up before us " , tells

us her

friend Victor Santos.

Down syndrome happens on conception. Instead of 46 chromosomes, the

new life

starts with 47. This one more provokes physical changes and, in many

cases,

cardiac problems. But modern medicine is attentive of the treatments.

What still

remains to evolve is the way we see these differences.

" Nothing stops her from doing anything another child can do,

respecting her

timing " . She has a different timing, like we all have different

timings " ,

explains geneticist Llerena.

´s little friend has an explanation.

" Other people, when they speak up, they don´t think. She thinks and,

because

of that, she takes more time to speak " , says her peer.

The mother thinks about the future.

" That she studies now, that she grows up, that she goes to work and

has an

autonomous life, that she is a productive person " , hopes the mother.

(Live reporter – Beatriz Thiellman) " Aim high enough " , said Dr Down

142 years

ago, when he published his first scientific study on Down syndrome.

From that

time to now, the aim to end social exclusion keeps growing.

Today, another knows exactly what not to be necessary to dream

anymore

means. Everything she idealized happened. She has been a receptionist

at a

clinic for 5 years.

" She´s very caring, when she comes to work, she hugs every employee " ,

tells

her work colleague.

says she is very happy and tells us why: " Because I am very

important to

myself " .

Regards,

Pat, mum to , 3.5, Brasilia, Brazil