worries about craniocynostosis

[Guest guest]

i wondered if any one out there could help my son is 7 months old

with what we believe to be severe plagiocephaly but also there is

severe twisting of the back of the skull we were told the lambdoid

was involved he was born with torticollis which seems a lot better we

have had x rays done that showed that the sutures were supposidly

open and zac has just had a helmet fitted last monday has any one

been told there child didnt have cranio and later found to have it if

zacs head improves with the helmet does this mean that he dosent have

cranio i would appreciate advice

laura uk

[Guest guest]

:

There have been a handful of parents who have been told their child's sutures were open, only to find that one (or more) were fused. Yes, it does happen.

As far as improvement with the helmet goes, you MAY see some correction in areas where a fused suture is not involved, but if a suture IS fused, there will be no correction in that area, and in fact the deformity may even worsen.

Was there a CT scan done? This is the best way to find out for sure if there is any suture fusion. Also make sure that the scans are read by a pediatric specialist (I'm assuming Dr. Blecher is??) and not just looked over by the radiologist.

Kendra

worries about craniocynostosis

i wondered if any one out there could help my son is 7 months old with what we believe to be severe plagiocephaly but also there is severe twisting of the back of the skull we were told the lambdoid was involved he was born with torticollis which seems a lot better we have had x rays done that showed that the sutures were supposidly open and zac has just had a helmet fitted last monday has any one been told there child didnt have cranio and later found to have it if zacs head improves with the helmet does this mean that he dosent have cranio i would appreciate advicelaura ukFor more plagio info