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Karin,

I agree with Margaret.....what you say makes me worry because I can see

being like this and as you say " ds proofing " I have already done some

" proofing (as I call it). " I just recently started putting some things

back into 's room because I was feeling quilty for it being pretty bare

compared to his twin's room. We have had to remove the door stopper, also his

bed rail (because he takes it and uses it as a weapon) surprisingly he hasn't

fallen out of bed more then a few times. He ripped his boarder off his wall a

long time ago (his twin just did it a short while ago)...there isn't much in his

room (even tho he has the biggest room). We have only the light on the ceiling

because if we were to put a lamp in his room he would pull the cord (there is a

cable cord coming up thru the floor and he yanks on that all the time....I have

had to tie some fancy knots in it around his bed posts to stop him from pulling

on it). He DID have a night light but won't let it stay in the outlet. He

mostly has books in his room but even those keep disappearing (think they are

between his bed and the wall). We put a night side table in his room but I

don't know if its going to stay because we have found him buried under it a few

times (knocked it over onto himself....its a heavy one). Oh ya, he also ripped

his curtain apart. The rest of our house is pretty " proffed " as

well....I tied the one lamp that we have onto the table that we have it on. We

bought a stereo system that attaches to the wall....and have lights that attach

to the wall (the cords still get pulled tho).

Another question I have is about sleeping. has been really

difficult lately. He keeps banging the wall with his feet, laughing really loud

and even sometimes running back and forth in his room at all hours of the night.

Whenever I go into his room to put him back into bed he acts like I just woke

him up. I know that I use to sleep walk when I was younger (and still talk in

my sleep) BUT I don't think it was ever to this extent. Does anyone have any

ideas why he might be doing this? Is this normal? He is being so loud that he

is waking the other kids up....and its hard enough to get the girls to sleep. I

don't know how any of you can get your ds kids to sleep with their siblings

because I tried that and was so difficult that it was impossible....we

had to buy a house (moved 9 months ago) big enough for each of the kids to have

their own bedroom!!!

Over and Out

, mom to Nicala & ,ds (3) and (1)

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  • 2 years later...

a situation like this, i think a meeting should be held with the mother, is

she aware of how often these outbursts occur???? The next thing would be is

get her to talk to the childs doctor or whoever she has him under, as a

child this age, really may need something to calm him down, as if he is so

intense, other smaller children may be in danger. it is so very sad if this

is the case. it must be done carefully, as you do not want to humiliate the

mum, or cause her to not ask for help any more. Do not envy you at all.

Cheryl

behavior

Hi, I am the mother of a 11 year old daughtor with autism, she does

have some behavior problems but I have a question, is although my

child has what I call 'outburst', they are mangable, but there is

such a need in this area, Mobile Alabama for daycare providers to

extend services to specialneeds children, so I have talked to my sons

christian school, they have agreed to begin this ministry, but my

question is this, we had a mother come by who son attends a public

school here in Mobile, he is 15, seem to be maybe medium fuctioning

level, well she wanted us to assist her with afterschool care, the

bus would drop in off. I agreed, I am the head caretaker, The first 3

days was typical, but............ then the next few days, to say the

least,,,, complete disaster he went into a rage, nothing , nothing

would calm him,he was throwing things, trying to psysically beat up

anyone he could see, but the second he seen his mom, he calmed down,

now in my opioion If there would have been a adjusting period, should

it not have been when he first came, the change of routine.. to say

the least he distroyed the facility, broke windows, busted t.v, vcr.

light fixures, blacken the principals eye, my question is is this

normal of a older autistic child, I am very active at my childs

school which is a public school for specialneeds, I have never seen

this, I called this childs dayschool, they said he is so aggresive

that they liturlly have a drill to prepare for his ourburst, which

are common, any suggestions would help, We want to help parents but

with a child with such aggresivness it creates a danger for me, the

other childen and parents, coming and going.I have come to learn he

has been put out of the ymca, the public school afterschool program,

and his mom has had to have perimedics called due to injuries he put

on her. any suggestions

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Hi.

My answer may not go over well, but I have to say that there are some kids who

just don't fit well into an included classroom or school. Kids who are violent

and pose a danger to other kids need to have an alternative learning situation.

If my Hannah turned into a violent, aggressive teenager I would be the first to

say that she needs something different. I would not want to put another child or

teacher in danger.

I used to babysit a young boy with fragile X Syndrome. He turned 13 and started

to have some violent outbursts and I just couldn't physically handle him,

especially with other small children around and my own special needs children. I

had to stop babysitting him, although I had grown to love him dearly. I just

couldn't put the other kids at risk and his parents were not co-operative in

supporting me in trying to manage his outbursts.

Inclusion is wonderful and neccessary, but there comes a point when some kids

may need an alternative if attempts to make the situation successful have

failed.

Andy

:0)

behavior

Hi, I am the mother of a 11 year old daughtor with autism, she does

have some behavior problems but I have a question, is although my

child has what I call 'outburst', they are mangable, but there is

such a need in this area, Mobile Alabama for daycare providers to

extend services to specialneeds children, so I have talked to my sons

christian school, they have agreed to begin this ministry, but my

question is this, we had a mother come by who son attends a public

school here in Mobile, he is 15, seem to be maybe medium fuctioning

level, well she wanted us to assist her with afterschool care, the

bus would drop in off. I agreed, I am the head caretaker, The first 3

days was typical, but............ then the next few days, to say the

least,,,, complete disaster he went into a rage, nothing , nothing

would calm him,he was throwing things, trying to psysically beat up

anyone he could see, but the second he seen his mom, he calmed down,

now in my opioion If there would have been a adjusting period, should

it not have been when he first came, the change of routine.. to say

the least he distroyed the facility, broke windows, busted t.v, vcr.

light fixures, blacken the principals eye, my question is is this

normal of a older autistic child, I am very active at my childs

school which is a public school for specialneeds, I have never seen

this, I called this childs dayschool, they said he is so aggresive

that they liturlly have a drill to prepare for his ourburst, which

are common, any suggestions would help, We want to help parents but

with a child with such aggresivness it creates a danger for me, the

other childen and parents, coming and going.I have come to learn he

has been put out of the ymca, the public school afterschool program,

and his mom has had to have perimedics called due to injuries he put

on her. any suggestions

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Very true andy, unfortunatley this will be the case with some. It is good to

try to include them, if they respond....wonderful.....if they don't

something else has to be figured out.....i'd be the same with my Hannah.

Cheryl.

Re: behavior

Hi.

My answer may not go over well, but I have to say that there are some kids

who just don't fit well into an included classroom or school. Kids who are

violent and pose a danger to other kids need to have an alternative learning

situation. If my Hannah turned into a violent, aggressive teenager I would

be the first to say that she needs something different. I would not want to

put another child or teacher in danger.

I used to babysit a young boy with fragile X Syndrome. He turned 13 and

started to have some violent outbursts and I just couldn't physically handle

him, especially with other small children around and my own special needs

children. I had to stop babysitting him, although I had grown to love him

dearly. I just couldn't put the other kids at risk and his parents were not

co-operative in supporting me in trying to manage his outbursts.

Inclusion is wonderful and neccessary, but there comes a point when some

kids may need an alternative if attempts to make the situation successful

have failed.

Andy

:0)

behavior

Hi, I am the mother of a 11 year old daughtor with autism, she does

have some behavior problems but I have a question, is although my

child has what I call 'outburst', they are mangable, but there is

such a need in this area, Mobile Alabama for daycare providers to

extend services to specialneeds children, so I have talked to my sons

christian school, they have agreed to begin this ministry, but my

question is this, we had a mother come by who son attends a public

school here in Mobile, he is 15, seem to be maybe medium fuctioning

level, well she wanted us to assist her with afterschool care, the

bus would drop in off. I agreed, I am the head caretaker, The first 3

days was typical, but............ then the next few days, to say the

least,,,, complete disaster he went into a rage, nothing , nothing

would calm him,he was throwing things, trying to psysically beat up

anyone he could see, but the second he seen his mom, he calmed down,

now in my opioion If there would have been a adjusting period, should

it not have been when he first came, the change of routine.. to say

the least he distroyed the facility, broke windows, busted t.v, vcr.

light fixures, blacken the principals eye, my question is is this

normal of a older autistic child, I am very active at my childs

school which is a public school for specialneeds, I have never seen

this, I called this childs dayschool, they said he is so aggresive

that they liturlly have a drill to prepare for his ourburst, which

are common, any suggestions would help, We want to help parents but

with a child with such aggresivness it creates a danger for me, the

other childen and parents, coming and going.I have come to learn he

has been put out of the ymca, the public school afterschool program,

and his mom has had to have perimedics called due to injuries he put

on her. any suggestions

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  • 6 months later...
Guest guest

Prayers a....let us know what's going on when you get a minute.

(((((hugs)))))

Gail :-)

<< hi all, just a quick email, has continued to be

very hyper from the moment he gets up until we finally

get him into bed, cant get him to just sit and relax

for a couple minuets, uuuugh, driving us nuts sooo the

doc thinks it may be his meds causing the hyper

activity he takes 72mg of concerta and 50 mg of luvox

every morning, plus his miralax, and th en 10mg of

ritalin every evening, but unless some sort of ritalin

is in his body whooly cow its like he was slippped a

jolt cola, so now i have to drive 8hour round trip

today to go see his psych soo please all keep us in

your thoughts and prayers for safe trip and answers at

the docs. He wants to try risperidal or seraquel, and

we refuse to try risperdal again and im not to keen on

antipsychotics cause of their EPSE's. shawna. >>

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Guest guest

whew im tired, a 500mile drive to go see his doc, but

we are going to try 10mg of ritalin around 5-6am when

DH and i are up so it kicks in when he gets up around

630am (well when his alarm goes off signaling him he

can be up and around,lol) then the usual concerta and

luvox (we still have some room with luvox is nned to

later on) then 10mg of ritalin in early eve anywhere

from 330-530pm, then next week were going to start

25mg of seraqueul (sp?) i know there are a few others

on this list who have tried it and are using it (let

me know how its working for your child) We refused

risperidal cause of the weight issues, and is at the

max for ritalin, i was pretty against using a

antipsychotic med but the doc had some good info on

seraquel and children and young adults like nathan on

it. AFter a few days on it if not calming him some and

stopping the nightly beating of the family members we

will try upping the dose to 50mg every noc. thank you

for keeping us in your thoguhts and prayers --continue

for things to improve b4 school starts. shawna.

--- smilinggail@... wrote:

> Prayers a....let us know what's going on when

> you get a minute.

> (((((hugs)))))

> Gail :-)

>

> << hi all, just a quick email, has continued

> to be

> very hyper from the moment he gets up until we

> finally

> get him into bed, cant get him to just sit and

> relax

> for a couple minuets, uuuugh, driving us nuts sooo

> the

> doc thinks it may be his meds causing the hyper

> activity he takes 72mg of concerta and 50 mg of

> luvox

> every morning, plus his miralax, and th en 10mg of

> ritalin every evening, but unless some sort of

> ritalin

> is in his body whooly cow its like he was slippped

> a

> jolt cola, so now i have to drive 8hour round trip

> today to go see his psych soo please all keep us in

> your thoughts and prayers for safe trip and answers

> at

> the docs. He wants to try risperidal or seraquel,

> and

> we refuse to try risperdal again and im not to keen

> on

> antipsychotics cause of their EPSE's. shawna. >>

>

> --------------------------------------------------

> Checkout our homepage for information,

> bookmarks, and photos of our kids. Share favorite

> bookmarks, ideas, and other information by including

> them. Don't forget, messages are a permanent record

> of the archives for our list.

>

> --------------------------------------------

>

>

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Guest guest

-Prayers for the med. to help ! sounds like you are on top of

all this as is the doc. will have a complete work up, downs

syndrome clinic at Vandy,(Pam have the girls been there?) consults

with therapists, psyc. etc. to see if he should be on any meds. some

days, many days he is hyper like and cannot slow down, I feel

sorry that he seems so uncomfortable. I try things but when he is in

this state, it is difficult. Does seem unhappy when agitated

like this? does not seem unhappy, sometimes he is even

laughing but know it has to be uncomfortable cause he is moving and

moving and cannot stop. We sometimes have to stay clear cause this is

when he can grab etc. Hope this med is perfect for , let us

know!!! Dawn s mom

-- In @y..., mashawnag <mashawnag@y...> wrote:

> whew im tired, a 500mile drive to go see his doc, but

> we are going to try 10mg of ritalin around 5-6am when

> DH and i are up so it kicks in when he gets up around

> 630am (well when his alarm goes off signaling him he

> can be up and around,lol) then the usual concerta and

> luvox (we still have some room with luvox is nned to

> later on) then 10mg of ritalin in early eve anywhere

> from 330-530pm, then next week were going to start

> 25mg of seraqueul (sp?) i know there are a few others

> on this list who have tried it and are using it (let

> me know how its working for your child) We refused

> risperidal cause of the weight issues, and is at the

> max for ritalin, i was pretty against using a

> antipsychotic med but the doc had some good info on

> seraquel and children and young adults like nathan on

> it. AFter a few days on it if not calming him some and

> stopping the nightly beating of the family members we

> will try upping the dose to 50mg every noc. thank you

> for keeping us in your thoguhts and prayers --continue

> for things to improve b4 school starts. shawna.

> --- smilinggail@a... wrote:

> > Prayers a....let us know what's going on when

> > you get a minute.

> > (((((hugs)))))

> > Gail :-)

> >

> > << hi all, just a quick email, has continued

> > to be

> > very hyper from the moment he gets up until we

> > finally

> > get him into bed, cant get him to just sit and

> > relax

> > for a couple minuets, uuuugh, driving us nuts sooo

> > the

> > doc thinks it may be his meds causing the hyper

> > activity he takes 72mg of concerta and 50 mg of

> > luvox

> > every morning, plus his miralax, and th en 10mg of

> > ritalin every evening, but unless some sort of

> > ritalin

> > is in his body whooly cow its like he was slippped

> > a

> > jolt cola, so now i have to drive 8hour round trip

> > today to go see his psych soo please all keep us in

> > your thoughts and prayers for safe trip and answers

> > at

> > the docs. He wants to try risperidal or seraquel,

> > and

> > we refuse to try risperdal again and im not to keen

> > on

> > antipsychotics cause of their EPSE's. shawna. >>

> >

> > --------------------------------------------------

> > Checkout our homepage for information,

> > bookmarks, and photos of our kids. Share favorite

> > bookmarks, ideas, and other information by including

> > them. Don't forget, messages are a permanent record

> > of the archives for our list.

> >

> > --------------------------------------------

> >

> >

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Guest guest

is usually happy but is sooo wound up he starts

to get agressisve and hits us especially little

brother( he is an easy target)this is waht we want to

clam down in the eve. I will let you all know, cant

start the seraquel until wednesday, only wanted to

make one change at a time. shawna.

--- dpligon37129 <DPLigon@...> wrote:

> -Prayers for the med. to help ! sounds like

> you are on top of

> all this as is the doc. will have a complete

> work up, downs

> syndrome clinic at Vandy,(Pam have the girls been

> there?) consults

> with therapists, psyc. etc. to see if he should be

> on any meds. some

> days, many days he is hyper like and cannot

> slow down, I feel

> sorry that he seems so uncomfortable. I try things

> but when he is in

> this state, it is difficult. Does seem

> unhappy when agitated

> like this? does not seem unhappy, sometimes

> he is even

> laughing but know it has to be uncomfortable cause

> he is moving and

> moving and cannot stop. We sometimes have to stay

> clear cause this is

> when he can grab etc. Hope this med is perfect for

> , let us

> know!!! Dawn s mom

>

>

>

> -- In @y..., mashawnag <mashawnag@y...>

> wrote:

> > whew im tired, a 500mile drive to go see his doc,

> but

> > we are going to try 10mg of ritalin around 5-6am

> when

> > DH and i are up so it kicks in when he gets up

> around

> > 630am (well when his alarm goes off signaling him

> he

> > can be up and around,lol) then the usual concerta

> and

> > luvox (we still have some room with luvox is nned

> to

> > later on) then 10mg of ritalin in early eve

> anywhere

> > from 330-530pm, then next week were going to start

> > 25mg of seraqueul (sp?) i know there are a few

> others

> > on this list who have tried it and are using it

> (let

> > me know how its working for your child) We refused

> > risperidal cause of the weight issues, and is at

> the

> > max for ritalin, i was pretty against using a

> > antipsychotic med but the doc had some good info

> on

> > seraquel and children and young adults like nathan

> on

> > it. AFter a few days on it if not calming him some

> and

> > stopping the nightly beating of the family members

> we

> > will try upping the dose to 50mg every noc. thank

> you

> > for keeping us in your thoguhts and prayers

> --continue

> > for things to improve b4 school starts. shawna.

> > --- smilinggail@a... wrote:

> > > Prayers a....let us know what's going on

> when

> > > you get a minute.

> > > (((((hugs)))))

> > > Gail :-)

> > >

> > > << hi all, just a quick email, has

> continued

> > > to be

> > > very hyper from the moment he gets up until we

> > > finally

> > > get him into bed, cant get him to just sit and

> > > relax

> > > for a couple minuets, uuuugh, driving us nuts

> sooo

> > > the

> > > doc thinks it may be his meds causing the hyper

> > > activity he takes 72mg of concerta and 50 mg of

> > > luvox

> > > every morning, plus his miralax, and th en 10mg

> of

> > > ritalin every evening, but unless some sort of

> > > ritalin

> > > is in his body whooly cow its like he was

> slippped

> > > a

> > > jolt cola, so now i have to drive 8hour round

> trip

> > > today to go see his psych soo please all keep

> us in

> > > your thoughts and prayers for safe trip and

> answers

> > > at

> > > the docs. He wants to try risperidal or

> seraquel,

> > > and

> > > we refuse to try risperdal again and im not to

> keen

> > > on

> > > antipsychotics cause of their EPSE's. shawna.

> >>

> > >

> > >

> --------------------------------------------------

> > > Checkout our homepage for

> information,

> > > bookmarks, and photos of our kids. Share

> favorite

> > > bookmarks, ideas, and other information by

> including

> > > them. Don't forget, messages are a permanent

> record

> > > of the archives for our list.

> > >

> > > --------------------------------------------

> > >

> > >

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  • 2 months later...

Hi everybody.

I know there's a lot going on here with the new baby and all. But the last

couple days 's behavior has been unbearable. And really, if I'm honest

with myself, she's been high maintenance her whole life. I chalked it up to

Terrible Two's back then, then Independent Three's, but really the simple

fact is she is not well behaved. She is in some aspects, but as far as

listening, following directions and doing what she is told? Forget it.

She has recently been a little destructive as well. I'm at my wits end. She

has no respect for parental authority it appears. I have tried to be very

consistent and all of that, but to no avail. I've been very sensitive about

the new baby and read up about how to make that transition easier and done

all those things. Even before that, I've read books on parenting and even

parenting the difficult child, etc. etc. We've had bedtime battles ever since

we moved to this house and our ped recommended a book which you don't need

the title of. In it they advocate bribing the child by instituting " sleep

rules " and if they follow the sleep rules they get a pre-arranged treat, no

matter if it's chocolate and they can have it right when they get up. Well,

having candy for breakfast seems like a really crazy idea to me and while

it's enough of a bribe to work sometimes I can't say that it has the

potential to work any long term improvement. I have always believed sugar

made her behavior worse and here she is having sugar in the morning and after

her lunchtime nap.

Maybe this is a sinus infection brewing, I don't know. But I'm really upset

right now. And Kate picked today to " wake up " and she's been up all morning

and I don't know whether to interact with her and stimulate her, which means

I'm ignoring somewhat and she'll probably burn the house down, or go

ahead and ignore Kate and pay attention to . Can't do much with them

together because is too rough with Kate. I was going to take them

somewhere but would NOT get dressed no matter what. Ended up I mostly

just cuddled and fed Kate while watched a movie (with me making

comments and asking questions and such throughout to interact with ) and

I was going to do some fun things with after that (Halloween

decorations) but she was supposed to clean her room first and that was a

battle of wills that lasted all the way until lunch and naptime, so nobody

got to do anything except sulk or fume.

Sorry this is off topic but I'm really upset and need to vent.

(mom to Kate, born 9/19/02; and , age 3-1/2 -- currently has

polysaccharide antibody def, previously had transient IgG, IgA, t-cell &

other defs)

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  • 1 month later...

Diane,

Sorry about your day. I'm so glad your Ped is back, though. We are

continuing to pray for Kody as always. And it sound like he is in excellent

hands. That Doc isn't so bad either :)

Sandi

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Thanks, Sandi. I'm doing better about it. I did some research on the

internet, and wellbutron will be out for Kody anyhow, it says that people

with epilepsy shouldn't take it. So I'll have to call my ped when it comes

time to that. Which won't be until after his MRI next friday. Which by the

way, was God planned. I say that because it has to be His timing! The only

appointment available was 8am next friday at the hospital where we go for

Kody's IVIG. Guess what next friday is? IVIG day! And we usually arrive

there for that at 9 or 9:30am....plenty of time to do the MRI before heading

up to our room!!! How cool is that? Don't ya just love when things fall into

place easily? Normally for me, I'd be racing as fast as I could from one end

of town to the other....unusual that it worked out that way! LOL

Diane

Please feel free to visit my website for parents of children with multiple

special needs :

www.geocities.com/schmidtzoo/SNAK.index.html

-- Re: Behavior

Diane,

Sorry about your day. I'm so glad your Ped is back, though. We are

continuing to pray for Kody as always. And it sound like he is in excellent

hands. That Doc isn't so bad either :)

Sandi

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Diane,

That's definitely " God timing " . I recognize it. No matter how we plan,

His plan is always better.

About the antidepressants. I had forgotten this before, but they give me

seizures. I had a huge one (the last one--over five years ago) BECAUSE of

Zoloft. I was trying different ones because of my headaches. Luckily, I

don't have major depression, because I can't take ANY of them. Just be

careful, I'm a little worried that the meds will make Kody have more

seizures. Of course, I am unusually sensitive to meds, so that is half of

the problem. Just FYI.

Sandi

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Hi Diane, Be aware that in some kids an antidepressant can increase problems.

You may want to look a the www.bipolar child.com website. I am not

suggesting a diagnosis but am suggesting that you be cautious with the

antidepressant until you get a more complete evaluation. It can take years to

get a complete diagnosis. I said all of this because we have been dealing

with this for 6 years to be exact. Lucas will be 7 next week. It has been

tough. We are still looking for a med to help with his significant mood

swings. We have not been able to take Depakote or Oxycarbazepine because of

his CVID and other allergies. Counseling has been a significant part of our

lives since he was two. Remember there is alot you can do with support. It

is still a challenge. Some days I feel very overwhelmed. If you want to talk

further feel free offline. My email is mother1544@.... I do not have

answers only lots of experience. BARBIE ( Lucas,6, CVID, IVIg, Asthma,

Bipolar etc.)

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  • 2 weeks later...

Agh... I hate being behind in emails! This is one I would have replied

to immediately, had I seen it... and now that I'm seeing it, am replying

immediately!

I bet others may have commented on this, too, but just in case -

Wellbutrin is well-known to cause seizures in people who have a

predisposition to seizures. I was told never to take it, because I have

a seizure disorder due to damage done by encephalitis/meningitis a

number of years ago. I was warned about this med in particular, and

told there were better options out there, so never to take this. It

really can cause lots of problems. I know how much you love your

pediatrician, and I'm glad he's looking at all the options for you guys,

but I would double check with your neurologist (whoever's in charge of

Kody's seizure care) before starting Wellbutrin.

Sorry for the delay... and I hope that things are better, and that the

MRI is reassuring! I will be looking for more info as I plow forward in

the mail box tonight!

Take care,

Diane Schmidt wrote:

> and the pediatrician said he would like to put Kody on

> Wellbutron (sp) for two things, one, it would help his behavior, and two it

> also works well with ADD and focusing attention etc so it would have a two

> fold benefit for Kody. But he won't start it until we do the MRI (scheduled

> for Dec. 13) and until after we see the pyschiatrist.a

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In a message dated 12/17/02 8:49:42 PM Pacific Standard Time,

williamk@... writes:

> I bet others may have commented on this, too, but just in case -

> Wellbutrin is well-known to cause seizures in people who have a

> predisposition to seizures

Zoloft caused a seizure for me--it was the last seizure I had. I cannot take

most antidepressants because of seizures. Luckily I was trying them for pain

and I don't need them for depression!!

Sandi, 's Mom

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It makes perfect sense to me that kids who are chronically ill or have to

endure lots of medical procedures would have behavioral/mental problems.

gives over all control at the doctor/hospital -- she lets them do

anything they want to her and does not fight them. I think some of her

behavior issues at home are ways of getting that control back. I also think

her late potty training was/is another control issue for her.

When I mentioned her behavior issues and then they got the background from me

at the Jumpstart assessment (PID, illnesses and medical procedures, plus

moving 8 times in one year and losing much of her stuff due to the * & ^%$#@

mold remediation) they looked at me like " DUH! Of COURSE she's going to act

up with a history like that! "

I'm wondering if I shouldn't have her work with a therapist to try to

counteract some of that.

(mom to Kate, born 9/19/02; and , age 3-3/4 -- currently has

polysaccharide antibody def, previously had transient IgG, IgA, t-cell &

other defs)

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Thank You Autumn, Yes, I believe you were the one that mentioned the article

several years ago. I would love to have a copy of it. Lucas actually is very

tall for his age. He is the tallest in his class. He has been failure to

thrive several times in his life but currently is on Respiradal ( for very

agressive behaviour) which has made him put on 8 pounds in 6 weeks. I am not

sure what I think. He has had a history of depression, severe anxiety, etc.

He is quite the challenge. We have just been through the IEP process and they

have told us that he is very smart. His IQ is between 125-140. We moved him

out of the public school because he was doing so poorly but in a class of 10

he is doing much better. We feel like we are providing all the supports and

the school is getting by with nothing. I am not finished yet and this is the

tip of the iceberg as far as the real story. Please forward me the article

if you find it. BARBIE

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Barbie,

my non-PID son is on Risperdol. He is autistic and was getting rather

aggressive, the Risperdol has helped a lot. I was worried about the weight gain

too, but it hasn't seemed to affect him (he's been on it around 7 weeks now)

he's on 1mg (1 tablet) in the morning.

I'm interested in the behaviour discussion, now there's research to support

autism being associated with immune deficiency. 's never been tested for

PID, although he has always had enlarged lymph glands all over but keeps quite

healthy, especially compared to his brother Ben (6) who has CVID. Also Ben and

his sister Emma (5) have a language disability which again may be connected to

the whole immune deficiency/autism thing. Ben and Emma are what I would

self-diagnose as ADHD, Ben's teacher has said she is worried about his

concentration/fidgeting and Emma is a livewire too. All 3 of them hardly sleep

at night, is already on Ritalin for ADHD and I'm not inclined to subject

the other 2 to medication at this stage. My older 2 boys Josh and Luke are very

active too, and fight a lot, sometimes I just don't know how much of all this

is " typical boy " behaviour.

Hugs

Tina

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  • 3 years later...
Guest guest

Actually, a son who did this, or rather similar behavior (same

result, LOL). Like you I told him in private/in his room. I forgot

how old he was, pretty young, not sure he was in kindergarten yet.

I don't think he quite grasped the *why* it had to be private or

rather exactly what was going on, LOL, but it also decreased - at

least in public.

I think I would just keep reminding her and even prompting her if

she begins to in inappropriate times/places.

And, yes, many young kids do this and many don't! 50/50 chance I

guess.

>

> My dd, Abby, is 5, & was dx in Dec. Looking back, I see a lot of

signs that I didnt know where there then. One thing she does, I

wondered if anyone else's child does. Since she was about 2, she

started " humping " (as her teenage brother and friends named it).

She sits like a " W " , with her feet behind her and holds something

between her legs (stuffed animal, blanket, small pillow, anything

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Guest guest

Thanks Chris. I do feel it is totally normal behavior, not worried about that

at all. She has asked why, and I told her since she is " humping " on her private

area, that is why it needs to be in private. She accepts that. I wonder if it

is part of the OCD, like a tick, or just typical childhood behavior.

Sharon

Re: behavior

Actually, a son who did this, or rather similar behavior (same

result, LOL). Like you I told him in private/in his room. I forgot

how old he was, pretty young, not sure he was in kindergarten yet.

I don't think he quite grasped the *why* it had to be private or

rather exactly what was going on, LOL, but it also decreased - at

least in public.

I think I would just keep reminding her and even prompting her if

she begins to in inappropriate times/places.

And, yes, many young kids do this and many don't! 50/50 chance I

guess.

>

> My dd, Abby, is 5, & was dx in Dec. Looking back, I see a lot of

signs that I didnt know where there then. One thing she does, I

wondered if anyone else's child does. Since she was about 2, she

started " humping " (as her teenage brother and friends named it).

She sits like a " W " , with her feet behind her and holds something

between her legs (stuffed animal, blanket, small pillow, anything

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  • 1 year later...
Guest guest

> Hello.

>

> This is a role call for one list and I am also forwarding

it

> to my other support lists.

>

> Still here. Kiersten, Military Mom and wife to Joe. 3

> dc,

> Hannah (12 in Mar), (10), and Alden (6). Alden has

> DS.

>

> I have had some problems lately with behavior. Alden

> will

> get attention any way he is able, and he has been hitting

> and kicking at school. He picks up poor behavior quickly

> and then getting him to stop it is quite a task. Mostly,

> he does better with positive modeling, positive talk,

> etc.

> If you tell him No hitting, he will only hear the " hit "

> part.

>

> I have explained this to those at school that work with

> Alden. Most of the teachers get it but the aid that

> works

> with him really does not understand. She is so young.

> But

> one of the teachers that has special ed certification

> called me today and we talked about what we might do. I

> am

> going to share it and please, if anyone has any

> suggestions

> let me know!

>

> First, time out is a " break " for Alden so if he warrants

> a

> time out he will have some sort of job to do. Sorting or

> some task. Fine motor work. He is doing what he can to

> get a time out in order to get away from something he

> does

> not want to do.

>

> Second, we are going to be reading positive behavior

> stories to him before school and before bed. This

> teacher

> has some in mind and will send me them before the week is

> out. We also have some here, too. Any suggestions? I

> do

> NOT use the series, " Help Me Be Good " because it talks

> about the negative behavior and I realized back in 1998

> with my girls that it reinforced the behavior that you

> DON'T want!

>

> I have taken away all movies (he loves movies) that have

> ANY violence whatsoever. He loves musicals but most of

> those have some violence. He loves to dance. It is just

> amazing how much stuff has some sort of slap stick. A

> hit

> or a kick, it is amazing.

>

> We use behavior modification techniques for his feedings.

>

> He responds very well to our strict protocol, yet we are

> still quite a ways away from him eating on his own and

> trying more foods. At least we did get the G-tube out

> and

> he is maintaining growth. He sure does not like to chew.

>

> I am tired tonight, I think. I should have waited to

> email

> when I didn't feel so defeated but I could use any

> thoughts

> on this behavior thing.

>

> Also, he understands a lot but I am not convinced that he

> understands long term consequences very well. We have

> told

> him that if he " controls his hands " and get smiley faces

> then he can watch a certain show after school. He can

> parrot back what we say, and he will also answer " What

> did

> you do today? " . He will tell us what he did and he

> usually starts with who he hit or kicked. Sheesh

>

> I worry that what he was able to do with me, he is NOT

> doing at school. For instance, he no longer sits on the

> carpet for stories since he cannot control his hands. I

> worked summer after summer teaching him to sit at the

> Library for story time with the other kids and he did

> great. What am I missing here? Is it that I am

> expecting

> too much?

>

> Ok... I need to stop. Now you know I am here. LOL

>

> Kiersten

________________________________________________________________________________\

____

Never miss a thing. Make your home page.

http://www./r/hs

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  • 2 years later...

well wasnt verbal till 3 almost but can talk now and id extremely smart and high functioning and thanks to eastr seals they got him to where he is now but do i just ask the pediatrician about therapy ? i will try anything ...thanks for the advice i will try it

From: "beckystewart2962@..." <beckystewart2962@...>Autism and Aspergers Treatment Sent: Tue, October 19, 2010 11:54:02 PMSubject: Re: behavior

My Peds Dr. has gotten my High Function ASD child in Behavior Therpy. Can I say it helps. No I can't because it don't help but my child is different. She is 24-7 total care. Non verbal. So with her begin non verbal it complicates things. But it might be a start in the right direction. It don't hurt to at least try it.Becky behaviorhi i am new at this but i need advice and hopefully someone can help. i have a 10 yr old son with asbergers and i am trying to

get behavior issues like name callin and hitting and sometimes he will pick at self or objects. i was just looking for advice on how to use appropriate disipline with him when he does wrong. the school says reward him but he has caught on and smart boy lol acts ok till he gets it then acts oout again to me hes gotta learn without receiving a reward for everytime he acts good . i mean i praise him but now he expects itthanks for any advicedawn

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Spread out the reward, make it to where if he acts good for 30 min. he gets the reward. then if that works for a wk... go to every hr. and eventually you will be able to say, if you can be good, and be a gentlman for the whole day, you will get this extra thing. I know it seems crazy....but take baby steps til you get to where you give it 2 times a day, or 1 time a day. it will take time... like mo. or 2. but try it! :) BowersProud Parent of an Autistic Son! I love my family and my Kids are my world! I do work outside the home, but my Heart is at home! austyn0518@...kaylaa0518@... sburg WVFrom: "beckystewart2962@..." <beckystewart2962@...>Autism and Aspergers Treatment Sent: Wed, October 20, 2010 2:54:02 AMSubject: Re: behavior

My Peds Dr. has gotten my High Function ASD child in Behavior Therpy.

Can I say it helps. No I can't because it don't help but my child is

different. She is 24-7 total care. Non verbal. So with her begin non

verbal it complicates things. But it might be a start in the right

direction. It don't hurt to at least try it.

Becky

behavior

hi i am new at this but i need advice and hopefully someone can help. i

have a 10 yr old son with asbergers and i am trying to get behavior

issues like name callin and hitting and sometimes he will pick at self

or objects. i was just looking for advice on how to use appropriate

disipline with him when he does wrong. the school says reward him but

he has caught on and smart boy lol acts ok till he gets it then acts

oout again to me hes gotta learn without receiving a reward for

everytime he acts good . i mean i praise him but now he expects it

thanks for any advice

dawn

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i thank u so much for the help and i will try this and see how he does thanks

again

________________________________From: Bowers <austyn0518@...>Autism and Aspergers Treatment Sent: Wed, October 20, 2010 10:37:01 AMSubject: Re: behavior Spread out the reward, make it to where if he acts good for 30 min. he gets the reward. then if that works for a wk... go to every hr. and eventually you will be able to say, if you can be good, and be a gentlman for the whole day, you will get this extra thing. I know it seems crazy....but take baby steps til you get to where you give it 2 times a day, or 1 time a day. it will take time... like mo. or 2. but try it! :) BowersProud Parent of an Autistic Son! I love my family and my Kids are my world! I do work outside the home, but my Heart is at home! austyn0518@...kaylaa0518@... sburg

WV________________________________From: "beckystewart2962@..." <beckystewart2962@...>Autism and Aspergers Treatment Sent: Wed, October 20, 2010 2:54:02 AMSubject: Re: behavior My Peds Dr. has gotten my High Function ASD child in Behavior Therpy. Can I say it helps. No I can't because it don't help but my child is different. She is 24-7 total care. Non verbal. So with her begin non verbal it complicates things. But it might be a start in the right direction. It don't hurt to at least try it.Becky behaviorhi i am new at this but i need advice and hopefully someone can help. i have a 10 yr old son with

asbergers and i am trying to get behavior issues like name callin and hitting and sometimes he will pick at self or objects. i was just looking for advice on how to use appropriate disipline with him when he does wrong. the school says reward him but he has caught on and smart boy lol acts ok till he gets it then acts oout again to me hes gotta learn without receiving a reward for everytime he acts good . i mean i praise him but now he expects itthanks for any advicedawn

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I came across this short presentation yesterday, it deals with challenging

behaviors.

Hope this helps.

>

> Need advice my son just started hiting me in my face last month and I hear

that he's doing it for attention.he's nonverbal so that's he's way of getting it

..what do I do to get him to stop.

>

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