Guest guest Posted March 10, 2008 Report Share Posted March 10, 2008 Welcome, ! I am Granny, mom to , 34/DS. We've had the opposite problem with . When she first started solid food she would eat until she threw up. I've had to drill into her that when she's full, stop eating. Forget cleaning your plate and all that. She is 4'8 " and weighs 150 lbs! She is now on the glycemic index diet and is gradually losing weight. granny my 13 yo son with DS > >Hi, all. I’m new the group and hope to get some input from you. > >I am a homeschooling (20+ years) mother of nine children ages 28-6. Our #5 >child and our #9 child have DS. Our #5 child, , is 13 and since last >August has shown some very odd behavior. He suddenly began withdrawing and >appeared as though he had just woken up from a deep sleep-but he would never >‘perk up’. Gradually he began to not eat unless we sat with him and >insisted. We found that supplementing with protein shakes would bring back >‘the old ’ somewhat but he would easily become quite and withdrawn >again. He acts almost autistic-like. He used to be so engaged and funny. He >would be quick with a joke or involved socially. > >There has been no event that preceded this. The only thing we see is he has >been and is growing quickly-normal for a 13 yo boy. It’s not normal for a >13yo boy to have to tell him to eat, though! > > We’ve checked his teeth thinking he was having pain and that caused him not >to want to chew-no problems. At times he seems to forget how to chew, even. > >He is 5 feet tall and weighs just over 100lbs. Our children tend to run on >the lean side. We have a non DS daughter aged 12 that is also five feet tall >and weighs 70lbs. he’s not on any medication. > >Have any of you experienced this? > > > > >No virus found in this outgoing message. >Checked by AVG. >Version: 7.5.518 / Virus Database: 269.21.7/1323 - Release Date: 3/10/2008 >11:07 AM > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2008 Report Share Posted March 10, 2008 , Does he get his thyroid checked yearly? I would rule that out. Maverick always had his checked but when he hit puberty he got hypo. We also started him out on protein drinks in the morning and double does of B-12 and it's helped him somewhat. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2008 Report Share Posted March 10, 2008 Did he have shots recently? Just a thought... ~ Thanks! ☺ Kim L. Doll, PMP IT Acquisition Solutions ~ Project Manager DIRECTV, INC (310) 964-4358 (w) (310) 503-6822 © kdoll2@... (IM) " Don't be afraid to give your best to what seemingly are small jobs. Every time you conquer one it makes you that much stronger. If you do the little jobs well, the big ones will tend to take care of themselves. " - Dale Carnegie my 13 yo son with DS Hi, all. I’m new the group and hope to get some input from you. I am a homeschooling (20+ years) mother of nine children ages 28-6. Our #5 child and our #9 child have DS. Our #5 child, , is 13 and since last August has shown some very odd behavior. He suddenly began withdrawing and appeared as though he had just woken up from a deep sleep-but he would never ‘perk up’. Gradually he began to not eat unless we sat with him and insisted. We found that supplementing with protein shakes would bring back ‘the old ’ somewhat but he would easily become quite and withdrawn again. He acts almost autistic-like. He used to be so engaged and funny. He would be quick with a joke or involved socially. There has been no event that preceded this. The only thing we see is he has been and is growing quickly-normal for a 13 yo boy. It’s not normal for a 13yo boy to have to tell him to eat, though! We’ve checked his teeth thinking he was having pain and that caused him not to want to chew-no problems. At times he seems to forget how to chew, even. He is 5 feet tall and weighs just over 100lbs. Our children tend to run on the lean side. We have a non DS daughter aged 12 that is also five feet tall and weighs 70lbs. he’s not on any medication. Have any of you experienced this? No virus found in this outgoing message. Checked by AVG. Version: 7.5.518 / Virus Database: 269.21.7/1323 - Release Date: 3/10/2008 11:07 AM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2008 Report Share Posted March 10, 2008 Welcome (and et al!). I am , mom to 4 - my youngest is 14 and has DS and some other issues. Are you located near a Down syndrome clinic? I would get your son in for an assessment from a doctor who is in the Down Syndrome Medical Interest Group. You can find a list of DS clinics at http://www.ds-health.com. I thought I had seen a video of a young person with DS who developed autism while in their teens. I can see the young man..I just can't recall where I saw the video. If it comes to me, I'll let you know. I would get his thyroid checked, too - if you haven't already done that..but I'd really try to get him in a DS clinic ASAP. How is your other child doing? Feel free to post about all nine of your children - this list is Family Centered and I look forward to hearing more from you. I do hope you can find out what is going on with . Please keep us posted. -- cindysue@... my 13 yo son with DS Hi, all. I'm new the group and hope to get some input from you. I am a homeschooling (20+ years) mother of nine children ages 28-6. Our #5 child and our #9 child have DS. Our #5 child, , is 13 and since last August has shown some very odd behavior. He suddenly began withdrawing and appeared as though he had just woken up from a deep sleep-but he would never 'perk up'. Gradually he began to not eat unless we sat with him and insisted. We found that supplementing with protein shakes would bring back 'the old ' somewhat but he would easily become quite and withdrawn again. He acts almost autistic-like. He used to be so engaged and funny. He would be quick with a joke or involved socially. There has been no event that preceded this. The only thing we see is he has been and is growing quickly-normal for a 13 yo boy. It's not normal for a 13yo boy to have to tell him to eat, though! We've checked his teeth thinking he was having pain and that caused him not to want to chew-no problems. At times he seems to forget how to chew, even. He is 5 feet tall and weighs just over 100lbs. Our children tend to run on the lean side. We have a non DS daughter aged 12 that is also five feet tall and weighs 70lbs. he's not on any medication. Have any of you experienced this? No virus found in this outgoing message. Checked by AVG. Version: 7.5.518 / Virus Database: 269.21.7/1323 - Release Date: 3/10/2008 11:07 AM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2008 Report Share Posted March 11, 2008 - Have you had your son evaluated by the doctor for possible psych issues? We had a friend of ours back in Colorado that had an older son with DS. I say older because our daughter is only 8. I remember her saying that their son went through this same exact thing. They were strong Christians as we are and didn't want to do a Medication eval and see a doctor over it. They got tired of the funny behaviors. Their son, Timmy, would withdraw, forget to eat or just not eat at all and started being agressive. They finally got tired of it all and put him on some type of Psych medication and he is stable and fine now. According to their doctor, some DS children do this because of the changes of hormones in their bodies. I'm not a doctor nor a nurse but just passing along what I remember from our friend's situation. Hope this helps. Rebekah Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2008 Report Share Posted March 11, 2008 My son had a rough year when he hit puberty and turned 13 and then even a rougher year when he was 16. He struggles with severe anxiety and depression. We've gone the psychiatrist route with very little improvement and are now getting somewhere with a naturopath. I think sometimes hormones can really affect kids. You might consider getting him a full medical eval to start. Jodi www.jodireimer.blogspot.com > > - > > Have you had your son evaluated by the doctor for possible psych > issues? We had a friend of ours back in Colorado that had an older son > with DS. I say older because our daughter is only 8. I remember her > saying that their son went through this same exact thing. They were > strong Christians as we are and didn't want to do a Medication eval and > see a doctor over it. They got tired of the funny behaviors. Their > son, Timmy, would withdraw, forget to eat or just not eat at all and > started being agressive. They finally got tired of it all and put him > on some type of Psych medication and he is stable and fine now. > According to their doctor, some DS children do this because of the > changes of hormones in their bodies. I'm not a doctor nor a nurse but > just passing along what I remember from our friend's situation. Hope > this helps. > > Rebekah > Quote Link to comment Share on other sites More sharing options...
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