Guest guest Posted June 14, 2001 Report Share Posted June 14, 2001 Kay, it took me a while to finally give up on certain folks to help me. I think back Dayton was about 28months when I started to say ok.. I elimated 1/2 feed for about a month. I slowly did it then by the time mid March arrive he got nothing!I have to say it is weird. Dayton got the tube out monday and here it is thursday and he is eating alot better. Before I still was working on him eating little here and there. Never ate breakfast and much lunch.Well I have to say he eating breakfast may only be 3 bites but better than nothing. he is eating lunch and still pigs out with supper. He loves his milk. We tried Gatorade today......seem to like it.Not sure if the tube was making him feel full or not. Or it is was a mental thing. hope this help. Need any help let me know. Mabey I can give suggestions here and there. __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 9, 2006 Report Share Posted August 9, 2006 Our son has real issues with food and eating/appetite. However, he is growing well...we supplement with protein shakes and ensure. Lori, Mom to Nino- will be 8 in two weeks...weighs 55 lbs. --- prestonpatti <prestonpatti@...> wrote: > I just have a question for other parents.... > Again, my son was > diagnosed with at 2 1/2, and at almost 8 is > still having the > cycled fevers. I am very curious to know if there > are many kids out > there that have that also have feeding and > eating issues. Our > son has had a feeding tube since he was 6 months > old. He had a very > hard start to life due to a heart condition and had > open heart > surgery at the age of 4 months. Many complications > later and 3 weeks > of being flat on his back without eating orally > cause a huge feeding > aversion. He literally would throw up if we touched > his mouth with a > bottle. We struggled through that for a couple > months but then had a > feeding tube placed at 6 months of age. It was at > about 1 1/2 years > that the cycled fevers began. He has been labeled > failure to thrive > and is a month away from being 8 and weighs 43 lbs. > The more posting > I read makes me wonder if this feeding and appetite > issue he still > has could somehow be related to the . So just > looking for > comment from anyone else. He doesn't suffer from GI > problems, just > has no interest in eating, and no appetite. > > If anyone out there has any comments, I would love > to hear them. > Maybe someday this whole puzzle will come together. > > Thanks, > > Patti, mother of Brady 7 1/2 > > > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 9, 2006 Report Share Posted August 9, 2006 Sorry to hear about your son's heart condition ... I'm sure that is very scary to say the least! My son has had all sorts of issues, but mostly GI related in addition to the cyclic fevers. My son also has a very difficult time gaining weight and just this year was labeled as " failure to thrive " . My son is six years old and weighs 35 pounds. Right now we are beginning tests (upper GI again, and a PH probe) to determine the severity of his acid reflux and then he will have a mickey button placed to do overnight feedings. Even while being on acid reflux medication, our son has no appetite ... sometimes just the smell of the food nauseates him. He's had an upper GI in the past ... seeing no signs of acid reflux, and just late last year had an endoscopy ... again no signs of acid reflux; however, when he's not on medication for acid reflux he will vomit when eating ... go figure?! But the Surgeon is now ordering new tests and feels he may have an issue with the one valve at his stomach which he may need to fix while placing the mickey button. I know all too well how it feels ... the frustration of seeing your child not have any type of appetite to eat and just struggling so badly to put the weight on. Currently we are giving Mason calorie supplements ... but its barely just maintaining his weight and not adding to it, like it is supposed to. Our son's GI/Nutritionist feels his cyclic fevers are definitely related to the GI issues and major issues with his weight, and so do we. He is now working with Mason's Doctor at NIH to hopefully someday figure it all out. For now, we are just trying different things to see what works best. I wish you and your son the very best in getting more help. Heidi Mommy of Mason 5. Feeding Issues Posted by: " prestonpatti " prestonpatti@... prestonpatti Tue Aug 8, 2006 8:47 pm (PST) I just have a question for other parents.... Again, my son was diagnosed with at 2 1/2, and at almost 8 is still having the cycled fevers. I am very curious to know if there are many kids out there that have that also have feeding and eating issues. Our son has had a feeding tube since he was 6 months old. He had a very hard start to life due to a heart condition and had open heart surgery at the age of 4 months. Many complications later and 3 weeks of being flat on his back without eating orally cause a huge feeding aversion. He literally would throw up if we touched his mouth with a bottle. We struggled through that for a couple months but then had a feeding tube placed at 6 months of age. It was at about 1 1/2 years that the cycled fevers began. He has been labeled failure to thrive and is a month away from being 8 and weighs 43 lbs. The more posting I read makes me wonder if this feeding and appetite issue he still has could somehow be related to the . So just looking for comment from anyone else. He doesn't suffer from GI problems, just has no interest in eating, and no appetite. If anyone out there has any comments, I would love to hear them. Maybe someday this whole puzzle will come together. Thanks, Patti, mother of Brady 7 1/2 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 17, 2008 Report Share Posted March 17, 2008 Hi all, I am new to this group. My grandson, is a little over 2 years and doesn't like to eat anything that isn't pureed. He doesn't live in the same city as us, but my daughter-in-law always keeps me informed. Anyway, they're not sure if he just doesn't want to eat things he has to chew or if he can't. He will eat small pieces of fruit and small cereal that will dissolve in his mouth. He won't eat things like chicken nuggets, etc. Feeding has always been an issue but he hasn't had to have a feeding tube. He just seems dis-interested in eating. He also aspirates; he is now on nectar thick which is a step down from the honey thick and has had his tonsils and adenoids removed. My son and daughter-in-law haven't met anyone else whose child has the same type of feeding issues. The waiting list to work with a speech therapist who can work on feeding issues is about 6 months. Any suggestions on what may have worked for someone else? He is doing great in a lot of other areas such as walking, signing and talking. He is my first grandchild and a true blessing to our family, I can't imagine our lives without him. Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.