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Re: Bad Neurosurgeon Follow Up Appt.

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Dian-

Dane got an MRI when he was 2 days old. He needed to be sedated and

intubated for that. It was only tramatic for us! He didn't care.

My friends daughter got ear tubes at 8 months. She said the only

time the baby was freaked was when she woke up and didn't realize

where she was. She calmed down after 2-3 minutes.

Good luck. I'll keep my fingers crossed!

Dane's mom (DOC Band 2/14)

> Hi all,

> Yesterday we had 's monthly neurosurgeon appt. Well, I

expected

> to hear how great her head looks. (she's ben in the band for

approx.

> 6 weeks). And the dr. did tell me that the back of her head is

> rounding out nicely. But, what I didn't expect to hear was that

he

> wants to send my daughter for a 3D Cat Scan of her skull as well

as

> cervial spine. He believes her orbital plate may have fused early

> and misaligned due to the tort and plagio. I was shocked. Orbital

> plate is just above eyes and effects facial features near the

eyes.

> So, now we have a CT appt. on 4/15. I can't believe they sedate

> little babies ( is 8 1/2 months). How scary. She also has

food

> restrictions just like an adult would. Truly freaks me out. We

are

> also to go see a Ped. eye dr. to make sure eyes are ok since he

> belives her eyes are not aligned. I knew that one was smaller

then

> the other. I used to be consumed by the band and tort. Now I am

> consumed by the possiblity of surgery whether medical or

cosmetic.

> Any input or experience with this out there?

> As always, thanks so much for any replies.

> Dian and

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  • 3 weeks later...
Guest guest

Dina:

How did 's CT scan turn out? Have you gotten the results yet?

I hope all went well & you have negative results. Please let us know

when you get a minute. Thanks!

Debbie Abby's mom DOCgrad

MI

> Hi all,

> Yesterday we had 's monthly neurosurgeon appt. Well, I

expected

> to hear how great her head looks. (she's ben in the band for

approx.

> 6 weeks). And the dr. did tell me that the back of her head is

> rounding out nicely. But, what I didn't expect to hear was that he

> wants to send my daughter for a 3D Cat Scan of her skull as well as

> cervial spine. He believes her orbital plate may have fused early

> and misaligned due to the tort and plagio. I was shocked. Orbital

> plate is just above eyes and effects facial features near the eyes.

> So, now we have a CT appt. on 4/15. I can't believe they sedate

> little babies ( is 8 1/2 months). How scary. She also has

food

> restrictions just like an adult would. Truly freaks me out. We

are

> also to go see a Ped. eye dr. to make sure eyes are ok since he

> belives her eyes are not aligned. I knew that one was smaller then

> the other. I used to be consumed by the band and tort. Now I am

> consumed by the possiblity of surgery whether medical or cosmetic.

> Any input or experience with this out there?

> As always, thanks so much for any replies.

> Dian and

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