Guest guest Posted April 11, 2002 Report Share Posted April 11, 2002 Hi, Velma! I just wanted to say thanks for the response you sent yesterday. It is nice to know there are others out there on the same timeline with similar questions cropping up. How did your son's follow-up appointment go today? Did they adjust the helmet at all? > Message: 24 > Date: Tue, 09 Apr 2002 02:34:54 -0000 > From: " tssep1968 " <tracysmithschmidt@y...> > Subject: some more info on us -- we're new! > > ...but mostly I am frustrated with myself for not researching this problem > earlier. > > I know exactly how you feel with this one. I think that in some of the > reading I've done very recently that their heads are still supple to 18 > months, so certainly 8 months is a great time to do this. My son is 10 > months, and he's been in his DOCband for 3 days now. > > Since he is in the mild to moderate range, and the flatness is mostly > limited to the back/right side of his head (his facial features are > not really distorted), my husband and I wrestled with the decision to > put him in a helmet. His head is definitely misshapen, but from the > front, you wouldn't really notice it. > > I'm going to ask them on Thursday what range is in...he sounds like > about the same as your little guy. Flat on the back mostly, but looks find > from the frong. We wrestled with the idea too, but came to the conclusion > that to NOT put him in the band was thinking only of ourselves. Kids can be > cruel, and who knows what kind of teasing he would get when he's older. > Plus, dh has Alopecia (hairloss in circles which may or may not grow back), > and from what I researched this may be genetic. Dh shaves his head right > now. If this were to happen to , his flat head would be there for all > to see with no hair to hide it. > > So, I am concerned that maybe > we are blowing this out of proportion, that we should just let well > enough alone. Nevertheless, we finally decided to go ahead with the > treatment, but I'm still worried about whether we are doing what is > best for him. One of the first of many difficult parental decisions, > I'm sure, but that isn't stopping me from worrying. > > I don't think you are blowing it out of proportion at all. You are doing > what's best for your son despite your own emotions. I have two very dear > friends who told me they were proud of me because I was putting my son first > above my own feelings. The right thing isn't always easy. > > The helmet doesn't seem to bother him too much, although the sound of > the velcro closure frightens him when I take the helmet off. If he > arches his back when on the floor, the helmet will scoot down and > almost cover his eyes, which worries me a bit and seems to disturb > him, but it usually scoots back up when he straightens out. He just > went to sleep for the night with it on for the first time, so we will > see how well he does with that. > > 's does that too. I think it bothers us more than it bothers him. > Besides, it's only temporary. 3-4 months is a very short time in his life. > I'm kind of happy about the fact that it will be protecting his head. He's > already discovered that when he sits against a wall he can bang his head > without it hurting. > > I have noticed several red spots (not always in the same place, but > often on the top/side of his head) when the helmet is taken off, but > they diminish greatly within an hour. The technician who fitted the > helmet said this is normal, that I should be worried only about > bright red spots that don't diminish, but I am still concerned about > the ones that are there. > > Most of what you've been saying is mirroring what 's going through...now > I know I'm definitely now alone! We go for his first follow-up appointment > on Thursday, so I'll be bringing these up. She'll probably tell me the same > thing she told me when we got the band, which is the same thing your > technician told you. That's okay. Maybe I just need to hear it a few > times. > > It looks like we'll be going through this side be side. You probably did > say where you were from, but I missed it. I'm in Calgary, Alberta, Canada. > > Velma Gallant (Mom to ) > Calgary, AB > " When you get to the end of all the light you know and it's time to step > into the darkness of the unknown, faith is knowing that one of two things > shall happen: either you will be given something solid to stand on, or you > will be taught how to fly. " ~~ Teller > http://BetterLife.themomteam.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 11, 2002 Report Share Posted April 11, 2002 Hi , Actually, it's still Wednesday here...Now I really wonder where you are! His appointment is tomorrow afternoon, so we'll see how it goes. He doesn't cry anymore when I put the helmet on. I call it his hat when I talk to him. He still tries to push it off once in a while, but otherwise he's just fine with it. He has one spot on the side of his head that is still red. It fades when I take it off, but each time it's just a little bit redder. I think I'm going to have them shave that area. I dunno, but I think there's already some improvement. It's been almost a week. The back of his head was starting to round out a bit on the bottom before we got the band, but the top was almost getting dented because the very centre was not rounding out. I think that dent isn't quite as prominent. Maybe I'm just looking for things. I'm hoping he just has to wear the one band, and only for 3-4 months, but I really don't know what's going to happen. I'll let you know how the appointment goes tomorrow. Velma Gallant (Mom to ) Calgary, AB "When you get to the end of all the light you know and it's time to step into the darkness of the unknown, faith is knowing that one of two things shall happen: either you will be given something solid to stand on, or you will be taught how to fly."~~ Teller http://BetterLife.themomteam.com Message: 21 Date: Thu, 11 Apr 2002 01:25:24 -0000 From: "tssep1968" <tracysmithschmidt@...>Subject: Reply to VelmaHi, Velma!I just wanted to say thanks for the response you sent yesterday. Itis nice to know there are others out there on the same timeline withsimilar questions cropping up.How did your son's follow-up appointment go today? Did they adjustthe helmet at all? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 11, 2002 Report Share Posted April 11, 2002 Velma, Oops. Sorry! It is still Wednesday in NYC too! I just got ahead of myself. Do let me know how the appt. goes! I don't really see any changes in Philip yet. He doesn't seem to mind his hat at all, though (I always call it his hat to him, too!). He gets excited when he looks at it when it is off. > Hi , > > Actually, it's still Wednesday here...Now I really wonder where you are! > His appointment is tomorrow afternoon, so we'll see how it goes. He doesn't > cry anymore when I put the helmet on. I call it his hat when I talk to him. > He still tries to push it off once in a while, but otherwise he's just fine > with it. He has one spot on the side of his head that is still red. It > fades when I take it off, but each time it's just a little bit redder. I > think I'm going to have them shave that area. > > I dunno, but I think there's already some improvement. It's been almost a > week. The back of his head was starting to round out a bit on the bottom > before we got the band, but the top was almost getting dented because the > very centre was not rounding out. I think that dent isn't quite as > prominent. Maybe I'm just looking for things. I'm hoping he just has to > wear the one band, and only for 3-4 months, but I really don't know what's > going to happen. > > I'll let you know how the appointment goes tomorrow. > > Velma Gallant (Mom to ) > Calgary, AB > " When you get to the end of all the light you know and it's time to step > into the darkness of the unknown, faith is knowing that one of two things > shall happen: either you will be given something solid to stand on, or you > will be taught how to fly. " ~~ Teller > http://BetterLife.themomteam.com > > > > Message: 21 > Date: Thu, 11 Apr 2002 01:25:24 -0000 > From: " tssep1968 " <tracysmithschmidt@y...> > Subject: Reply to Velma > > Hi, Velma! > > I just wanted to say thanks for the response you sent yesterday. It > is nice to know there are others out there on the same timeline with > similar questions cropping up. > > How did your son's follow-up appointment go today? Did they adjust > the helmet at all? > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 12, 2002 Report Share Posted April 12, 2002 Hi , So the appointment seemed to go okay. He's afraid of the Judy. Cried whenever she came close to him. I think it's because of the casting that he doesn't want anyone there to come near him. I found out he has Brachycephaly, and it's moderate to serious. I also found out that children with bracycephaly generaly only have one band (not two like some Plagio children), and that they generally keep in on for 4-5 months. He's only had it on for a week, so there's not much going on. I think there's progress. There is a dent in the back about 1/3 of the way down, and I think it's not as noticeable. We'll see. We are set to go back in next Thursday afternoon again. doesn't cry anymoe when I put it on, so that's good. Although he likes it when I take it off. He did something knew today though. He pulled himself up on the coffee table and on the baby gate into a standing position. First time he ever did that! We just spent the morning with my friends and her kids (3 years and 10 mos.), and I think he must have got the idea from them. Colby (the 10 month old) has been pulling himself up for quite some time now, and I'm sure was watching. Velma Gallant (Mom to )Calgary, AB"When you get to the end of all the light you know and it's time to step into the darkness of the unknown, faith is knowing that one of two things shall happen: either you will be given something solid to stand on, or you will be taught how to fly."~~ Teller http://BetterLife.themomteam.com Message: 12 Date: Thu, 11 Apr 2002 03:05:33 -0000 From: "tssep1968" <tracysmithschmidt@...>Subject: Re: Reply to VelmaVelma,Oops. Sorry! It is still Wednesday in NYC too! I just got ahead ofmyself. Do let me know how the appt. goes! I don't really see any changes inPhilip yet. He doesn't seem to mind his hat at all, though (I alwayscall it his hat to him, too!). He gets excited when he looks at itwhen it is off. Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.