Guest guest Posted April 2, 2002 Report Share Posted April 2, 2002 sorry. didn't mean to post twice! amy mom to emma (born 9/24/01) > > e, , Christy and other tort moms, > > I can so relate to you all, and I can tell you that it will, or > should, get > > easier in regards to the tort. When I found out had tort > at 2 > > months, I cried and cried. Then I got busy! Then I got tired!! > Stretching > > is no easy task. As I'm sure your all aware at this point. And you > feel so > > overwhelmed!! Did I stretch enough today? Is he going to be ok? > Are we > > really hurting him, or helping him? > > The therapy ball was a great source of " entertainment " for , > we would > > put him on his tummy, or have him sit up looking at the T.V. and > roll from > > side to side so he would " right " his head to midline. was > in > > professional therapy from 3 months to 9 months- 2x a week plus > everyday > > stretches and massage from mom and Dad- he was considered severe and > also had > > the lump. The lump was a severe hematoma and finally dissipated > around 6-7 > > months old. I can also tell you that although he is considered > " resolved " as > > the muscle is stretched out, he is almost 15 months and we are STILL > having > > him do stretches, although its mostly making him " right " his head > (very > > important to strengthen that opposite muscle to be able to do this), > and we > > still see him tilt his head on occassion- although its not that > common > > anymore. The tilt, or I feel the constant tilt, is the last to go. > The > > occassional tilt I was told may be a comfort position, but making > sure they > > sit up straight, and correct that posture will help for the long > run. The > > more on top of it you are now, the easier it will be in the long > run- and I > > know how stressful doing those daily stretches (which usually makes > them cry! > > are. I was told that even when they appear resolved, keep an eye > on this > > (posture, milestones) until 2 years old. > > I cried myself when FINALLY could lay on his stomach and > turn his > > head left- I thought we'd never see that day!! A tip for that > working for > > you- we would turn his head when he was sleeping, and sometimes he > would just > > wake up, but we still tried as much as possible. I would say its > not a good > > idea to force them, but my pt was not " gentle " and would make him > turn his > > head that way- the key is to have lots of distractions to make it > " fun " to > > look that way. would lay on the mat on his back and I > would blow > > bubbles as my pt would turn his head left. We were fortunate that a > lot of > > our stretches were done successfully while he was conked out. Our > pt showed > > us relaxation techniques, I would use massage, and then go for it. > He had no > > problem after awhile turning to the left when on his back, but on > his > > stomach, he couldn't do it for the longest time! I also would lay > him on me, > > belly to belly, and kind of have him half to my side and then have > him turn > > left, so it wasn't a full rotation to the left. This eased us into > it > > better. I want to stress not to be very " agressive " and twist that > neck fast > > and hard, but keep in mind that you can't be too passive with this > either, as > > the muscle is already tight, only time and improper posture will > make it > > worse without getting somewhat " aggressive " with those stretches. > Holding the > > stretch longer to the left and right helps as well. If you were to > think of > > a relaxing neck exercise, where you rotated your head in each > direction, back > > and up, this is essentially what we did as well. > > Keep the faith, you will be able to see that light at the very end > of a long > > tunnel- and I think that was the hardest part- looking for a quick > fix- some > > tort is worse than others and takes much longer to resolve- keep > plugging > > away. He now has full rotation to the left, and rarely tilts, but I > will > > still tell him " hold your head up straight " and believe it or not, > this 15 > > month old knows what I'm saying and sometimes listens (poor thing is > probably > > traumatized!!). But I think this is what we HAD to do, and I'm sure > he'll > > thank us later for being very proactive and on top of getting this > resolved. > > I will probably always notice a slight degree of tilt when he gets > tired, or > > hits growth spurts, but in comparison to where we've come from, I'll > take it! > > Good luck and keep the faith! > > > > ' Mom Quote Link to comment Share on other sites More sharing options...
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