Guest guest Posted April 12, 2002 Report Share Posted April 12, 2002 Amy, Wow - you really have been through quite an ordeal. I'm glad to hear that things are looking up. Sometimes specialists will write the scripts if that is what the parents want even if they do not think it is medically necessary. Some specialists are of the school of thought that plagio is not a medical condition, but rather a cosmetic one. I'm sorry your specialist was not more sensitive and even worse that his office people cannot seem to use the US Mail system and get that script to you!!! Can you maybe arrange to go and pick the darn thing up?? I'm glad that things went well at CT. They really are professional and caring through and through from all I have heard. Let us know how things progress and best wishes to you and Emma. Marci (Mom to ) Oklahoma Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 12, 2002 Report Share Posted April 12, 2002 Amy, So glad to hear from you that you are getting the ball rolling (however slowly!). Emma would still be at a great age for correction even if it takes another 2 months- so don't sweat it- your doing the best you can and you are an awesome mom for going the distance!!! Hang in there! So many of us have had the run around from Doctors, so keep fighting the good fight whatever it takes!! Please keep us posted and hang in there! ' Mom Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 12, 2002 Report Share Posted April 12, 2002 hi everyone. i haven't had much time to post or read emails in the past week, but i wanted to let you all know (especially those of you who have responded to my questions with such great advice) that i took emma to charlotte last friday for a free consultation with Cranial Technologies. you may remember that we saw a pediatric neurosurgeon at Duke who recommended we continue repositioning and come back to see him in a month. since we had been repositioning (or trying to - emma has torticollis) for the 5 - 6 weeks it took to get an appointment with the neurosurgeon, and i hadn't seen any results, i decided to see what CT could tell me. the Charlotte office was great, and they measured her (which the neurosurgeon did not do). She has 18 mm of asymmetry, 11 mm of ear asymmetry. so, i decided i wanted to go ahead with the doc band. we have BCBS in NC and they require a letter of medical necessity as well as the prescription. the neurosurgeon had told us he would write us a script, even though he didn't recommend that treatment at this time, so i had called his office the week before our visit to CT and they said they would mail me the script. it had been over two weeks and it still hadn't arrived. on moday i called to ask for the letter of medical necessity (which i didn't know i needed until our visit at CT), and after 3 days of leaving messages, someone finally called me back to say he wouldn't write the letter!! has this ever happened to anyone else? how can a doctor prescribe something that he doesn't deem medically necessary??!! anyway, i called CT all upset and they recommended a craniofacial surgeon in Charlotte. we drove back yesterday (3 hours each way) to meet with him. he not only wrote us the script and the letter, he told me that emma's case is severe enough that most likely she will require two bands. now i am anxiously waiting for BCBS to deny us, so we can schedule an appointment for the casting. and, would you believe it, the script from the neurosurgeon has STILL not arrived?!! i am so anxious to get things going. it makes me sick to think of how much time has already been lost. i've been working on this since she was 4 months old and she's already 6 1/2 months old now! i swear, i feel like i have two full time jobs - on top of being a mommy!! emma has been pulling my hair lately, and i told her she was only allowed to pull out the white ones! : ) is my post long enough?? thanks for listening and thanks for all the great advice! amy mom to emma (born 9/24/01) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 12, 2002 Report Share Posted April 12, 2002 Amy: Good for you pursuing this ALL on your own...that's really a shame about your neurosurgeon & his attitude towards the band. I'm glad CT recommended a different specialist & he took care of your needs. I have heard of several specialists that refused to write a letter of necessity for the band, we had a mom recently talking about that as well. Don't feel like you're starting too late! 6.5 mos is plenty young enough, I'm sure Emma has a lot of growing to do over the next few mos.! She'll get great correction in the band. I am hoping BCBS will come thru for you & not give you any hassles! Please let us know what they do & when you can get Emma casted. Thanks for your update. Debbie Abby's mom DOCgrad MI > hi everyone. > i haven't had much time to post or read emails in the past week, but i > wanted to let you all know (especially those of you who have responded > to my questions with such great advice) that i took emma to charlotte > last friday for a free consultation with Cranial Technologies. you may > remember that we saw a pediatric neurosurgeon at Duke who recommended > we continue repositioning and come back to see him in a month. since > we had been repositioning (or trying to - emma has torticollis) for > the 5 - 6 weeks it took to get an appointment with the neurosurgeon, > and i hadn't seen any results, i decided to see what CT could tell me. > the Charlotte office was great, and they measured her (which the > neurosurgeon did not do). She has 18 mm of asymmetry, 11 mm of ear > asymmetry. so, i decided i wanted to go ahead with the doc band. we > have BCBS in NC and they require a letter of medical necessity as well > as the prescription. the neurosurgeon had told us he would write us a > script, even though he didn't recommend that treatment at this time, > so i had called his office the week before our visit to CT and they > said they would mail me the script. it had been over two weeks and it > still hadn't arrived. on moday i called to ask for the letter of > medical necessity (which i didn't know i needed until our visit at > CT), and after 3 days of leaving messages, someone finally called me > back to say he wouldn't write the letter!! has this ever happened to > anyone else? how can a doctor prescribe something that he doesn't deem > medically necessary??!! anyway, i called CT all upset and they > recommended a craniofacial surgeon in Charlotte. we drove back > yesterday (3 hours each way) to meet with him. he not only wrote us > the script and the letter, he told me that emma's case is severe > enough that most likely she will require two bands. now i am anxiously > waiting for BCBS to deny us, so we can schedule an appointment for the > casting. and, would you believe it, the script from the neurosurgeon > has STILL not arrived?!! i am so anxious to get things going. it makes > me sick to think of how much time has already been lost. i've been > working on this since she was 4 months old and she's already 6 1/2 > months old now! i swear, i feel like i have two full time jobs - on > top of being a mommy!! > emma has been pulling my hair lately, and i told her she was only > allowed to pull out the white ones! : ) > is my post long enough?? thanks for listening and thanks for all the > great advice! > amy > mom to emma (born 9/24/01) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 12, 2002 Report Share Posted April 12, 2002 Amy - Think positive! BCBS might not deny you! It only took UHC 4 days to deny us the first time, so keep checking your mail. Weren't you shocked to get Emma's measurements? I knew Dane was probably going to need a band, but I was so floored to hear his measurements and that he may need 2 bands. Dane's mom (DOC Band 2/14) > hi everyone. > i haven't had much time to post or read emails in the past week, but i > wanted to let you all know (especially those of you who have responded > to my questions with such great advice) that i took emma to charlotte > last friday for a free consultation with Cranial Technologies. you may > remember that we saw a pediatric neurosurgeon at Duke who recommended > we continue repositioning and come back to see him in a month. since > we had been repositioning (or trying to - emma has torticollis) for > the 5 - 6 weeks it took to get an appointment with the neurosurgeon, > and i hadn't seen any results, i decided to see what CT could tell me. > the Charlotte office was great, and they measured her (which the > neurosurgeon did not do). She has 18 mm of asymmetry, 11 mm of ear > asymmetry. so, i decided i wanted to go ahead with the doc band. we > have BCBS in NC and they require a letter of medical necessity as well > as the prescription. the neurosurgeon had told us he would write us a > script, even though he didn't recommend that treatment at this time, > so i had called his office the week before our visit to CT and they > said they would mail me the script. it had been over two weeks and it > still hadn't arrived. on moday i called to ask for the letter of > medical necessity (which i didn't know i needed until our visit at > CT), and after 3 days of leaving messages, someone finally called me > back to say he wouldn't write the letter!! has this ever happened to > anyone else? how can a doctor prescribe something that he doesn't deem > medically necessary??!! anyway, i called CT all upset and they > recommended a craniofacial surgeon in Charlotte. we drove back > yesterday (3 hours each way) to meet with him. he not only wrote us > the script and the letter, he told me that emma's case is severe > enough that most likely she will require two bands. now i am anxiously > waiting for BCBS to deny us, so we can schedule an appointment for the > casting. and, would you believe it, the script from the neurosurgeon > has STILL not arrived?!! i am so anxious to get things going. it makes > me sick to think of how much time has already been lost. i've been > working on this since she was 4 months old and she's already 6 1/2 > months old now! i swear, i feel like i have two full time jobs - on > top of being a mommy!! > emma has been pulling my hair lately, and i told her she was only > allowed to pull out the white ones! : ) > is my post long enough?? thanks for listening and thanks for all the > great advice! > amy > mom to emma (born 9/24/01) Quote Link to comment Share on other sites More sharing options...
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