Guest guest Posted April 8, 2002 Report Share Posted April 8, 2002 Ann Marie - I'm bummed! We will miss you on Saturday by a couple of hours! It's always nice to meet someone from this group. 's STAR Band has Steelers decorations, right? Please let me know how people react to it in Cleveland. My husband is from Buffalo and if Dane gets a second band, he wants to do a Bills helmet. I don't mind talking about plagio everywhere I go, but I don't want to hear about the Browns or the Bills too! I hear enough about that at home! > > > > The Plagio Group!! > > > > > > Just wanted to let you all know that I spoke to Karmel- Ross on the > > > phone this past Saturday morning. She agreed to do a consultation for > > > > next Saturday at Straight Ahead at 2:30 p.m. We are about 2 1/2 hrs. > east > > > of Cleveland. One hour east of Pittsburgh. > > > > > > Our reasons for an evaluation are 's jaw asymmetry, last > little > > > bit of tilt, the apparent " spasms " he seems to be having and the lack of > > > stretching/strengthening/massage our PT has us doing at home. > > > > > > 's PT and I have not seen eye to eye on several occasions. > She > > > has quite a big ego and has the " know-it-all " attitude about > > > torticollis/plagio and the treatment for it. She does not like it when > I > > > give any kind of input towards his therapy. We go through EI for his > > > therapy, and she is the best and most experienced PT they have, so > finding > > > another is kind of out of the question. Besides, has been > > with > > > her since July 2001 (about 9 mos.). I've learned a tremendous amount > from > > > this group, the tort group, and also from my own research, so my > > questions > > > can be very knowledgeable. I just wish I would have found these groups > > > before his treatment began, so I would have had a jump start on his > > therpay. > > > I do think our PT has helped him tremendously and I am grateful to her > > (she > > > is actually the one who got the ball rolling for his STAR therapy - even > > > 's neuro thought " repositioning " was the answer, he was 6 1/2 > > > mos. old at the time!!) > > > Our PT considers 's tort (left-sided) to be resolved and he > has > > > complete ROM, but I will not be satisfied until he sees the " expert " on > > > torticollis.I am so glad that she does consultations. Like I said > before, > > > if I would have known back at the start of ' s therapy, what > I > > do > > > now -- I would have taken him to Straight Ahead from the very > > beginning!!!! > > > After all, we are only a couple of hours away. But you can not dwell on > > > what you should have done -- you just move forward and hope for the > best!! > > > I will keep in touch with you all. Take care. > > > > > > AnnMarie & (14 mos.) > > > STAR grad > > > Tort resolved (?) > > > > > > PS -- When explaining to KKR 's course of treatment for his > > tort > > > and plagio, she seemed very surprised that he was in his " original " > > STARband > > > for the entire > > > time (7 mos.) and also that our PT has not had us do any > > > stretching/strengthening at home throughout 's therapy. She > > said > > > his tort was very mild and he did not need any more than what she was > > > providing (?) > > > > > > > > > > > > > > > > > > If you haven't been to our groups website lately, you can check it out > at > > > http://www.TorticollisKids.org > > > > > > Without all of you this group wouldn't be possible!! Thank you! > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 8, 2002 Report Share Posted April 8, 2002 Ann Marie: That's great you'll be seeing her - It's a good idea to get thoroughly evaluated by one of the best (from what I've heard) tort. experts. Good luck - happy travels . Let us know what she says & how it goes. Debbie Abby's mom DOCgrad MI > > > > The Plagio Group!! > > > > > > Just wanted to let you all know that I spoke to Karmel- Ross on the > > > phone this past Saturday morning. She agreed to do a consultation for > > > > next Saturday at Straight Ahead at 2:30 p.m. We are about 2 1/2 hrs. > east > > > of Cleveland. One hour east of Pittsburgh. > > > > > > Our reasons for an evaluation are 's jaw asymmetry, last > little > > > bit of tilt, the apparent " spasms " he seems to be having and the lack of > > > stretching/strengthening/massage our PT has us doing at home. > > > > > > 's PT and I have not seen eye to eye on several occasions. > She > > > has quite a big ego and has the " know-it-all " attitude about > > > torticollis/plagio and the treatment for it. She does not like it when > I > > > give any kind of input towards his therapy. We go through EI for his > > > therapy, and she is the best and most experienced PT they have, so > finding > > > another is kind of out of the question. Besides, has been > > with > > > her since July 2001 (about 9 mos.). I've learned a tremendous amount > from > > > this group, the tort group, and also from my own research, so my > > questions > > > can be very knowledgeable. I just wish I would have found these groups > > > before his treatment began, so I would have had a jump start on his > > therpay. > > > I do think our PT has helped him tremendously and I am grateful to her > > (she > > > is actually the one who got the ball rolling for his STAR therapy - even > > > 's neuro thought " repositioning " was the answer, he was 6 1/2 > > > mos. old at the time!!) > > > Our PT considers 's tort (left-sided) to be resolved and he > has > > > complete ROM, but I will not be satisfied until he sees the " expert " on > > > torticollis.I am so glad that she does consultations. Like I said > before, > > > if I would have known back at the start of ' s therapy, what > I > > do > > > now -- I would have taken him to Straight Ahead from the very > > beginning!!!! > > > After all, we are only a couple of hours away. But you can not dwell on > > > what you should have done -- you just move forward and hope for the > best!! > > > I will keep in touch with you all. Take care. > > > > > > AnnMarie & (14 mos.) > > > STAR grad > > > Tort resolved (?) > > > > > > PS -- When explaining to KKR 's course of treatment for his > > tort > > > and plagio, she seemed very surprised that he was in his " original " > > STARband > > > for the entire > > > time (7 mos.) and also that our PT has not had us do any > > > stretching/strengthening at home throughout 's therapy. She > > said > > > his tort was very mild and he did not need any more than what she was > > > providing (?) > > > > > > > > > > > > > > > > > > If you haven't been to our groups website lately, you can check it out > at > > > http://www.TorticollisKids.org > > > > > > Without all of you this group wouldn't be possible!! Thank you! > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 9, 2002 Report Share Posted April 9, 2002 Ann Marie, I think it is wonderful that will be seen by the 'Tort God' (as says)! Its great that you are checking into every means possible to you so that you can know without a doubt that you are on the right track to getting his tort resolved. Please be sure to let us all know how it goes at your appointment! Niki Kaylie & Danny (STAR grads) Phila., PA > > > > The Plagio Group!! > > > > > > Just wanted to let you all know that I spoke to Karmel- Ross on the > > > phone this past Saturday morning. She agreed to do a consultation for > > > > next Saturday at Straight Ahead at 2:30 p.m. We are about 2 1/2 hrs. > east > > > of Cleveland. One hour east of Pittsburgh. > > > > > > Our reasons for an evaluation are 's jaw asymmetry, last > little > > > bit of tilt, the apparent " spasms " he seems to be having and the lack of > > > stretching/strengthening/massage our PT has us doing at home. > > > > > > 's PT and I have not seen eye to eye on several occasions. > She > > > has quite a big ego and has the " know-it-all " attitude about > > > torticollis/plagio and the treatment for it. She does not like it when > I > > > give any kind of input towards his therapy. We go through EI for his > > > therapy, and she is the best and most experienced PT they have, so > finding > > > another is kind of out of the question. Besides, has been > > with > > > her since July 2001 (about 9 mos.). I've learned a tremendous amount > from > > > this group, the tort group, and also from my own research, so my > > questions > > > can be very knowledgeable. I just wish I would have found these groups > > > before his treatment began, so I would have had a jump start on his > > therpay. > > > I do think our PT has helped him tremendously and I am grateful to her > > (she > > > is actually the one who got the ball rolling for his STAR therapy - even > > > 's neuro thought " repositioning " was the answer, he was 6 1/2 > > > mos. old at the time!!) > > > Our PT considers 's tort (left-sided) to be resolved and he > has > > > complete ROM, but I will not be satisfied until he sees the " expert " on > > > torticollis.I am so glad that she does consultations. Like I said > before, > > > if I would have known back at the start of ' s therapy, what > I > > do > > > now -- I would have taken him to Straight Ahead from the very > > beginning!!!! > > > After all, we are only a couple of hours away. But you can not dwell on > > > what you should have done -- you just move forward and hope for the > best!! > > > I will keep in touch with you all. Take care. > > > > > > AnnMarie & (14 mos.) > > > STAR grad > > > Tort resolved (?) > > > > > > PS -- When explaining to KKR 's course of treatment for his > > tort > > > and plagio, she seemed very surprised that he was in his " original " > > STARband > > > for the entire > > > time (7 mos.) and also that our PT has not had us do any > > > stretching/strengthening at home throughout 's therapy. She > > said > > > his tort was very mild and he did not need any more than what she was > > > providing (?) > > > > > > > > > > > > > > > > > > If you haven't been to our groups website lately, you can check it out > at > > > http://www.TorticollisKids.org > > > > > > Without all of you this group wouldn't be possible!! Thank you! > > > > > > Quote Link to comment Share on other sites More sharing options...
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