Potty training question

July 1, 2001

Hi , started p tr at 3.5 years and was totally tr. by K .We were really

consistent at home and at school with lots of praise and encouragement and

everyone thought he did real well with that time frame.He too was interested in

wearing his new undies!With the alarm system he may well be able to be all set

by K. Good luck. Carole

Doug <doug.smith@...> wrote: Hi everyone,

I have a question to all all, is 5 and in summer school starting

tommarow we are starting potty training. we will be using the nytone

alarm and underware. for those of you who have been thru this what kind

of results did you have with the trip training and the alarms? s

summer school program is almost all summer, he will go up untill a week

before school starts back, not everyone gets this program and it is the

first year for it. In the last iep meeting i left saying the due process

word because they offered us 4 weeks of 1/2 day. yea right i said c- ya

in mediation. needless to say after many calls from the superintendent

and principle of the school we all came to and agreement.

Anyway back to the original thought, the doctor the school district has

hired to work with , and his programming said he feels will

be potty trained by end of summer. Starting kindergarted trained. is

this realistic. Now remember keep in mind is a child diagnosised

with moderate level of intellectuall impairement and severe autism. I

guess I just don't want to get my hopes up. but at hope he loves to

ware his underware as oposed to his diaper, but I guess I would to. I

got him one of those little pottys that sing a song when you flush it.

it doesnt't really flush but the handle is connected to a music box

thing. He is only 30 pounds so he is too small for the bigh pottys even

the ones at school...

Well let me know what you all think.

Thanks-- mom to Alek 8, 7, 5 DS/ASD, Logan 31/2,

and Liam 11/2.

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July 13, 2001

Hi everyone,

Just wanted to ask if any of your kids went through this . During the

toilet training process , wearing a cloth underwear . Did any of your

kids hold their urine/poop ? Even not wanting to do it in the

toilet , during the schedule routine . This happen to he

finally gave in to wearing an underwear , glad he did not want to

wear pull-ups . Bedtime I convinced him to wear a pull-up with a

little struggle . Remember has not done the restroom at all . I

stepped out for a quick drink of water and Holy Smokins !

finally released it all over the bed and himself . Just wondering if

it had happen to your kids ? Thanks !..... any luck with your

toilet training for at summer school . Are they also trying

with the visual schedule pictures ? Would I love to have known all

this information I know now , when my son was your age . Visual

schedule has helped alot . Being consistent is the key . Take Care

everyone .

Irma , 12, DS/ASD.

-- In @y..., carole any <carole9545@y...> wrote:

>

> Hi , started p tr at 3.5 years and was totally tr. by K .We

were really consistent at home and at school with lots of praise and

encouragement and everyone thought he did real well with that time

frame.He too was interested in wearing his new undies!With the alarm

system he may well be able to be all set by K. Good luck. Carole

> Doug <doug.smith@s...> wrote: Hi everyone,

> I have a question to all all, is 5 and in summer school

starting

> tommarow we are starting potty training. we will be using the nytone

> alarm and underware. for those of you who have been thru this what

kind

> of results did you have with the trip training and the alarms?

s

> summer school program is almost all summer, he will go up untill a

week

> before school starts back, not everyone gets this program and it is

the

> first year for it. In the last iep meeting i left saying the due

process

> word because they offered us 4 weeks of 1/2 day. yea right i said c-

ya

> in mediation. needless to say after many calls from the

superintendent

> and principle of the school we all came to and agreement.

> Anyway back to the original thought, the doctor the school district

has

> hired to work with , and his programming said he feels

will

> be potty trained by end of summer. Starting kindergarted trained.

is

> this realistic. Now remember keep in mind is a child

diagnosised

> with moderate level of intellectuall impairement and severe

autism. I

> guess I just don't want to get my hopes up. but at hope he loves to

> ware his underware as oposed to his diaper, but I guess I would

to. I

> got him one of those little pottys that sing a song when you flush

it.

> it doesnt't really flush but the handle is connected to a music box

> thing. He is only 30 pounds so he is too small for the bigh pottys

even

> the ones at school...

> Well let me know what you all think.

> Thanks-- mom to Alek 8, 7, 5 DS/ASD, Logan

31/2,

> and Liam 11/2.

>

> --------------------------------------------------

> Checkout our homepage for information, bookmarks, and

photos of our kids. Share favorite bookmarks, ideas, and other

information by including them. Don't forget, messages are a permanent

record of the archives for our list. ds-

autism

> --------------------------------------------

>

July 14, 2001

irma, nathan does often retain his urine or bm, but he

doesnt go all ove the bed, he just says he doesnt have

to go, and then when he does finally go after hours

and hours, he goes and goes and goes, its a family

giggle, " hes still going " lol, its just life stuff and

toys are too much fun then taking time out to go to

bathroom. isnt afraid of using the toilet at

all, and if he soils his pants a little he will

change, and go " see! " that is part of the training we

did with him, make him wash himself, and change his

clothes everytime was incontinent so he would learn

its much easier to use toilet than wet slef and hav

eto do all of this. Not sure if it workde completely

but he is a cleanlier child for it i think. shawna.

__________________________________________________

July 14, 2001

a ,

That idea I like , cleaning after himself when soiled wet . Whew!

glad to hear does the same thing , retains his urine/bm . Then

when he does its the never ending on-going busy concentration . I was

starting to worry, thought it was going to become a medical issue .

Well , I guess I'm allowed to panic , huh ? Just didn't want to add

more grey hairs . What a lifesaver , Thanks .

Irma , 12, DS/ASD.

> irma, nathan does often retain his urine or bm, but he

> doesnt go all ove the bed, he just says he doesnt have

> to go, and then when he does finally go after hours

> and hours, he goes and goes and goes, its a family

> giggle, " hes still going " lol, its just life stuff and

> toys are too much fun then taking time out to go to

> bathroom. isnt afraid of using the toilet at

> all, and if he soils his pants a little he will

> change, and go " see! " that is part of the training we

> did with him, make him wash himself, and change his

> clothes everytime was incontinent so he would learn

> its much easier to use toilet than wet slef and hav

> eto do all of this. Not sure if it workde completely

> but he is a cleanlier child for it i think. shawna.

>

> __________________________________________________

>

July 17, 2001

Irma wrote:

<Just wanted to ask if any of your kids went through this . During the

toilet training process , wearing a cloth underwear . Did any of your

kids hold their urine/poop ? Even not wanting to do it in the

toilet , during the schedule routine >

Hello Irma

My Fabio (10) also holds back urine/poop until he gets a pull up. He gets a

pull up to wear in the bus home from school (during school he is wearing

cotton underwear and like at home has to go to the toilet every hour), so

sometimes the pull up is a bit wet when he gets home at 3 pm, then he goes

to the toilet and gets to wear his underwear again and goes to toilet every

hour, the last time at 8 pm. then ge gets his pull up to go to bed and

usually after five minutes he wets everything ! sometimes during the day, he

points to his belly and says 'aua' which means pain. He seems not to be able

to make it in the toilet. I even got a special seat to put on the toilet and

he sits really comfortable. The teacher told me I should try and not give

him a pull up during the night and see what happens, at the moment I'm not

quite ready to do that (all kids are home for vacation and a cousin of my

kids is spending some time with our family).

Kind regards from Switzerland

with Tanja 12, Fabio 10 with DS/? and Elena 7

July 18, 2001

In a message dated 01-07-13 18:16:49 EDT, you write:

<< During the

toilet training process , wearing a cloth underwear . Did any of your

kids hold their urine/poop ? Even not wanting to do it in the

toilet , during the schedule routine >>

Marley would hold to the point of tears. When he finally let it go--no

matter where he was we rewarded him with praise and high-5's but said " next

time you will do it in the potty, what a great job you did! " I think the

poor guy had been holding his urine and poop close to him in diapers and pull

ups for so many years (8) that the change just gave him so much anxiety.

mom to Marley 10 DS/ASD, Cas 9, & Kira 4.

July 18, 2001

In a message dated 01-07-14 21:46:59 EDT, you write:

<< a ,

That idea I like , cleaning after himself when soiled wet . Whew!

glad to hear does the same thing , retains his urine/bm . Then

when he does its the never ending on-going busy concentration . I was

starting to worry, thought it was going to become a medical issue .

Well , I guess I'm allowed to panic , huh ? Just didn't want to add

more grey hairs . What a lifesaver , Thanks .

Irma , 12, DS/ASD.

> irma, nathan does often retain his urine or bm, but he

> doesnt go all ove the bed, he just says he doesnt have

> to go, and then when he does finally go after hours

> and hours, he goes and goes and goes, its a family

> giggle, " hes still going " lol, its just life stuff and

> toys are too much fun then taking time out to go to

> bathroom. isnt afraid of using the toilet at

> all, and if he soils his pants a little he will

> change, and go " see! " that is part of the training we

> did with him, make him wash himself, and change his

> clothes everytime was incontinent so he would learn

> its much easier to use toilet than wet slef and hav

> eto do all of this. Not sure if it workde completely

> but he is a cleanlier child for it i think. shawna.

> >>

As I mentioned in another email my son Marley also did this, but from my

physical therapy perspective I can say that I think our kids who hold it have

better muscle control once they do learn to realease. I have talked to lots

of parents who have dribbling problems and kids who have to go frequently.

Marley holds it holds it holds it, and then goes forever too! We call him

the everready bunny ---because he's still going!

July 19, 2001

yes, somethimes I worry about it too, one wouldnt think it would be too

healthy, but he drinks lots of liquids, and if he hasnt taken himslef in a

few hours (something he is really starting to do lately, yaaaaaa)we have him

go and give him choice reward of video or game or computer to encourage the

more frequent times of going. shawna.

> Re: Re: potty training question

>

> In a message dated 01-07-14 21:46:59 EDT, you write:

>

> << a ,

> That idea I like , cleaning after himself when soiled wet . Whew!

> glad to hear does the same thing , retains his urine/bm . Then

> when he does its the never ending on-going busy concentration . I was

> starting to worry, thought it was going to become a medical issue .

> Well , I guess I'm allowed to panic , huh ? Just didn't want to add

> more grey hairs . What a lifesaver , Thanks .

> Irma , 12, DS/ASD.

>

> > irma, nathan does often retain his urine or bm, but he

> > doesnt go all ove the bed, he just says he doesnt have

> > to go, and then when he does finally go after hours

> > and hours, he goes and goes and goes, its a family

> > giggle, " hes still going " lol, its just life stuff and

> > toys are too much fun then taking time out to go to

> > bathroom. isnt afraid of using the toilet at

> > all, and if he soils his pants a little he will

> > change, and go " see! " that is part of the training we

> > did with him, make him wash himself, and change his

> > clothes everytime was incontinent so he would learn

> > its much easier to use toilet than wet slef and hav

> > eto do all of this. Not sure if it workde completely

> > but he is a cleanlier child for it i think. shawna.

> > >>

>

> As I mentioned in another email my son Marley also did this, but from my

> physical therapy perspective I can say that I think our kids who

> hold it have

> better muscle control once they do learn to realease. I have

> talked to lots

> of parents who have dribbling problems and kids who have to go

> frequently.

> Marley holds it holds it holds it, and then goes forever too! We

> call him

> the everready bunny ---because he's still going!

>

> --------------------------------------------------

> Checkout our homepage for information, bookmarks, and

> photos of our kids. Share favorite bookmarks, ideas, and other

> information by including them. Don't forget, messages are a

> permanent record of the archives for our list.

>

> --------------------------------------------

>

July 30, 2001

Hi Everyone, Landon is now three and is showing an

interest in potty training, I think. He will sit on

the potty with his clothes on( without me prompting

him to) and has started taking off his diaper and

tinkling on the floor. The first time he did it, He

laughed and said " Again " I had to laugh. He is a trip.

Anyway, I still have him in diapers and I think maybe

it would be time to transition him into pull ups. What

do yall think? When did yall start using pull ups for

your child who has Ds? I've also heard boys are harder

to train than girls and I wonder if there is any truth

to that. Any input or past experiences would be

welcomed.One more thing, Good luck with the potty

training Kay!! Thanks, mom to Landon (Ds) and

Ashton - 3 years

--- " Tiernan, Kay M " <kay.tiernan@...> wrote:

> Welcome Noreen! I have 28 mo. old triplets and live

> in the DC area not too

> far from Katy. Our daughter has DS. She had

> hear surgery 2/00 and has

> a pacemaker. She is just starting to walk like Tyler

> is. She can do the

> hokey pokey while sitting on the floor. I tried to

> video all the kids doing

> it with Grandma last night, but of course they saw

> the camcorder and just

> wanted to look through it. I missed it again!

>

> We just started potty training and

> . watches, but is

> not ready. Two is enough! I spent half my weekend

> changing clothes and

> sitting in the bathroom. It's a lot of work at first

> with two at a time!

> Even with three adults in the house. I was soooo

> happy they didn't have an

> accident while at church. My worst nightmare would

> have been for one of them

> to start leaking while walking up for communion.

> Instead I was just totally

> embarrassed because held my hand and

> covered her head with the

> other hand the entire time so the Pastor wouldn't

> bless her on the head. The

> Pastor said he almost started laughing when he saw

> her. We figure it is the

> robes because she's done it to the Pastor and a

> visiting Chaplain. ) What

> can we do. She doesn't fight walking up.. just

> doesn't want anyone touching

> her head (her hair). Oh, grandma took her for a

> haircut on Friday. I

> expected Grandma to have to hold down a screaming

> girl. Of course she said

> not a peep. Guess mom won't take her anymore! )

>

> , yes I definitely think it's more work to

> travel someone with the

> kids when nothing is child proofed.

>

> Kay Tiernan- Mom to , , -ds-28

> mos. old

>

__________________________________________________

July 31, 2001

,

I made the mistake of using pullups with my older child who

does not have DS. It took almost a year to potty train

him. Pullups are just like diapers, they keep the child

dry and warm so there really is not an insentive to stay

dry. Most kids do not like wet clothes or the feel of

pee running down there legs. I would recommend using training

pants, they will absorb more that regular underware but the

child feels the wetness and does not like it. This should

speed up his training. I would however keep pullups around

for when you take long car rides and do not want to have to

stop every hour or so for potty breaks. Also, if you are

having trouble with Landon realizing when he really has to

go there is a device that sense the first sign of wetness and

sounds an alarm. I think I saw it in the One Step Ahead

catalogue, some of the parents of children with DS in my

area have used it and found it very helpful with potty training.

In fact one family used and had there daughter with DS trained

by two years of age. I plan on using for my older one who still

at four wets at night, he wears a pullup to bed.

Katy

mom to 4yr and twins and Tyler(DS) 20 months

July 31, 2001

........ Also, if you are

> having trouble with Landon realizing when he really has to

> go there is a device that sense the first sign of wetness and

> sounds an alarm. I think I saw it in the One Step Ahead

> catalogue, some of the parents of children with DS in my

> area have used it and found it very helpful with potty training.

> In fact one family used and had there daughter with DS trained

> by two years of age. I plan on using for my older one who still

> at four wets at night, he wears a pullup to bed.

>

> Katy

> mom to 4yr and twins and Tyler(DS) 20 months

The device is called Nite Train'R and it can be found at

http://www.onestepahead.com/leaps/ select Bath and Health option

in the window.

Katy

August 9, 2008

Issy is four years old and attends prek half the day. The school is

really good about helping keep her on a time schedual but it still isnt

happing. How old are most children before they are potty trained? Issy

has good bladder control- she will take her pull ups off and can run

around the house and not have accidents, I will take her to the potty

about every 35 minutes and she refuses to go, but if I put another pull

up on her she goes right away. I have tried reg. panties and she will

use them just like pull ups. I have seen a little watch that beeps

every 30, 60, 90 minutes to remind the child to use the bathroom and

was wondering if anyone tried anything like this, or have any

suggestions I could try? She only has BM at night at about the same

time so most nights I can sit her on the potty and she will have a bm

there, but going pee is the problem.

Thank you.

August 9, 2008

I was told, years ago, that around 5 - 6 is the typical age for a child with DS

to be toilet trained. It was true for Maverick. When he was in kindergarten he

mimiced the rest of the kids and started using the urinal. It was so funny

because the kids at school had to get a pass to go to the bathroom.. so at home,

he would not go to the bathroom unless he had a pass. I used an index card,

wrote BATHROOM on it and put it on the counter. If he had to go potty, he would

run get the pass first.

With his BM's he was very routine about going after dinner, so we would take

flashcards, or books or do finger plays in the bathroom and make it fun while we

waited for it to happen. Eventually, he would take his book on his own and go

sit and read until he had his BM.

Now, with my little Logan (aka Gator), he has never been worked with at all so

at age 6 he is not anywhere NEAR toileting. Our challenge with him is that he

is way too big for the little potty chairs and very unsteady when sitting on the

big toilet. I have been sitting him backwards and hoping he'll go. He went a

couple times.... but just by chance I think.

This week he starts a pre K class 3 hours a day. I am hoping that he'll follow

the lead of the other little guys. We'll see.

It will happen when it's time.

My " typical " 5 yr old still wears a pull up to bed at night. He is a VERY heavy

wetter in his sleep. Once in a while he'll awaken and use the toilet and he

never wets it when he's awake, but when he's sleeping, there is NO WAY he can

stay dry. We are not stressing it.. we figure his little system is just not

ready.

Hope this helps.

August 10, 2008

I think it really depends on the kid. My son, Mac, was pretty much fully

trained around 5 years old. My daughter, Kit, will be 7 in a week and is STILL

not trained and it is driving me crazy. She has bladder control and can hold it

a LONG time, but rarely initiates having to go the bathroom until the very last

second and then it's too late to run--she just goes. She's pretty much been

night time " trained " for over a year. We did away with pull-ups at night in

June and she has only had one accident in almost 3 months during the night. She

will stay dry from 9-13 hrs. overnight. During the day it is hit and miss. We

have not used pull-ups except for certain times--a long car trip, a day at the

amusement park where it would be difficult to get to the bathroom on time and

easily, etc...

We frequently have the same situation you mention...she will sit on the toilet

for 5-10 minutes and do nothing and then get up and almost immediately go potty

in her pants!!! So aggravating!!! I know it is SLOWLY getting better, but it

can still be exasperating. I'm sure the school is not going to be too happy to

learn that she is still not totally trained and independent in 1st grade.

Our pediatrician suggested an alarm that would go off at the first sign of

wetness. I haven't looked into it, but may if we don't see better progress

soon. Has anyone else used one of these?

Jill

Mom to Mac (10 yrs., 5th grade, Ds) and Kit (almost 7, 1st grade, Ds)