Our weekend

[Guest guest]

Judi, The NICU renunion sounded like so much fun! I

wish The NICU that my twins were in would have one.

You really do grow close to those people. I know when

we finally went home after the NICU stay, I almost

felt like a part of me was missing after going there

daily for two months. It was the strangest feeling.

Sounds like you had a wonderful weekend. Waht type of

ESY program does your district offer? Just curious??

My district doesn't offer one so I really like to ehar

what others are doing. mom to Landon (DS) and

Ashton 35 months

--- Judi Grossman <judig2@...> wrote:

> Good Monday Morning to you all! We had a nice

> weekend

> here in No. Texas. Pleasant weather (but kinda hot

> on

> Sunday). Friday, some old friends were passing thru

> on their way home to Colorado. We went out to eat

> at

> our favorite Mexican restaurant and had a nice

> evening. Saturday, Sam was crabby and I attributed

> it

> to a stuffy nose from allergies. Saturday night

> Mike

> and I were up with him 4 times, leading me to

> believe

> he had an ear infection (that's usually the only

> time

> he wakes up crying at night). Took him to a

> " doc-in-the-box " (walk in minor emergency center)

> Sunday morning. No ear infection, but a URI.

> Thankfully he responded quickly to antibiotics and a

> new prescription for his congestion/drainage

> problems.

> Sunday afternoon was the " Celebration of Life "

> Baylor

> University Medical Center NICU Reunion. They have

> one

> ever 2 years (we missed the last one cuz it was the

> same weekend we went to Disneyworld). It was quite

> an

> event. Games, dancing, petting zoo, clowns, etc.

> All

> staffed by the NICU employees. It was nice to see

> many of the people we grew close to over the 18

> weeks

> spent there after the boys were born. Especially

> nice

> were visiting with two of the boy's primary nurse,

> Susie and Camille. We ran into Sandy, Thierry and

> the

> triplets, , and there too (The

> triplets are *veterans* of the same NICU). We had a

> nice little visit with them (hogging a good chunk of

> the shaded path with all the strollers, kids and

> nurse

> entourage - LOL) It was pretty hot out so we didn't

> stay too long.

> Nothing else much going on around here. Have to

> fill

> out the paperwork for ESY and get it back to the

> school this week. If I were smart, I would have

> brought it to work w/me and filled out one set

> -minus

> the name and photocopy it. Maybe tomorrow.

> Hope you all had a nice weekend and have a good week

> !

> Judi-Mom to Sam & , 4, Identical Twins

>

> __________________________________________________

>

[Guest guest]

Timbo is turning 50 on the 30th of the month and is retiring from the federal

government on that day. I had a birthday/retirement party for him yesterday and

even two of his childhood friends made it. TJ is home from Iraq on leave - but

he's going back to Georgia in the morning to spend the last few days alone with

his wife. is here but also leaving in the morning-only for me to follow

her down on Thursday evening. She is pregnant again (Yippeeee!) so I'll be

headed out to Texas in February.

Anyway, this is the last time we'll probably have all four kids under our roof

for a long time. I took two days off to clean it and now I need two more days to

clean it again ))))

and I head to Kennedy Krieger tomorrow to see the neurologist.

[Guest guest]

Yep, Dakota had meningitis three summers ago.? It was a very scary thing,

especially the doctors in the ER's, and yep, plural ER's kept saying he didn't

have it.?? One guaranteed it, by looking at him.? The spinal tap came back

positive, and the rest if? history, but we were very lucky.? No lasting

effects.? There could have very well have been had we not thrown so many fits to

get him tested and started on meds.? They would probably have waited until he

was, well, enough.? Good luck at the doc, and , congrats, Grammy!

Beth,

Mom to Austin, 11/ds and Dakota, 11/Mouthy and the proud owner of 2 muscle

stitches and 14 skin stitches Thursday, while he is spending 3 weeks 19 hours

away from mom and dad.? Well, they both are!

Re: Our weekend

Loree - I can't believe we are going to miss each other by two days. Dr. Capone

once told me the enlarged cistrerna magna is common in people with DS (showed up

on s MRI years ago). The meningitis piece definately could have a huge

impact on Micah. We still don't know why Hayley died, but I joined a meningitis

board shortly after her death and have learned how damaging that illness can be

on individuals who survive.

I think is overdue for a new MRI and EEG. Can't wait for this coming

weekend to hear how the KKI visit went for you all.

--

cindysue@...

Re: Our weekend

In a message dated 7/27/2008 10:23:11 AM Eastern Daylight Time,

cindysue@... writes:

She is pregnant again (Yippeeee!)

Oh what great news! I am so happy for them and for you all! We leave on

Wed. morning for Kennedy Kreiger. Will be there through Friday. Micah may be

having an MRI as well as sleep study. When he had his neuropsych eval the doctor

found that he had something called a Magna Cisterna from the MRI's that he had

done when he was newborn and had meningitis. He asked if he had any follow up

MRI's ( which he did not even though his doctors had all his info) and said we

should have this done. It would explain why it is so difficult for him to attain

reading skills (alphabet etc.). He said he was amazed at how well Micah was

doing considering this fact. Said that it was a testament to what we have been

doing with him (made me feel a lot better as I always feel we are not doing

enough) and that he shouldn't be doing a lot of what he is doing. It will be

interesting to see what a new MRI shows.

Loree

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