Luke had initial Neuro appt. yesterday

[Guest guest]

The Neurosurgeon is a young guy and was super nice.He said that

Luke's Brachycephaly is mild & still correctable IF we can keep him

off that flat spot.Looking at earlier pics of him I can plainly see

the torticollis but at the time it was easy to mistake it for floppy

newborn head.I did bring it up to the Ped in Feb when I took him in

concerned about the flat spot.She brushed it off,saying that all

babies prefer one side over another.It should have been a red flag to

her.It took me putting 2 & 2 together to get him some help.And to

think I've been accused of reading too much! So,I have found a

different positioner to keep him sleeping on his side instead of his

back and hopefully this one is big enough to keep him from laying on

it! There are 4 stretching exercises we have to do 10x twice a day.He

goes back to the Neuro in 3 months and if it hasn't rounded out then

he will most likely be fitted for a band/helmet. BTW,the Neuro didn't

do anything but look at his head and measure the circumference.

Kelli

[Guest guest]

Kelli:

I am happy to hear you can try repositioning - you are a wonderful

mom!! Great job finding all of this infromation on your OWN. That's

really a shame! Please let us know how repositioning works for

Luke. Best of luck with it.

Also, good luck with the tort stretches & exercises.

Debbie abby's mom DOCGrad

MI

> The Neurosurgeon is a young guy and was super nice.He said that

> Luke's Brachycephaly is mild & still correctable IF we can keep him

> off that flat spot.Looking at earlier pics of him I can plainly see

> the torticollis but at the time it was easy to mistake it for

floppy

> newborn head.I did bring it up to the Ped in Feb when I took him in

> concerned about the flat spot.She brushed it off,saying that all

> babies prefer one side over another.It should have been a red flag

to

> her.It took me putting 2 & 2 together to get him some help.And to

> think I've been accused of reading too much! So,I have found a

> different positioner to keep him sleeping on his side instead of

his

> back and hopefully this one is big enough to keep him from laying

on

> it! There are 4 stretching exercises we have to do 10x twice a

day.He

> goes back to the Neuro in 3 months and if it hasn't rounded out

then

> he will most likely be fitted for a band/helmet. BTW,the Neuro

didn't

> do anything but look at his head and measure the circumference.

> Kelli