Guest guest Posted April 8, 2002 Report Share Posted April 8, 2002 > > The Plagio Group!! > > > > Just wanted to let you all know that I spoke to Karmel-Ross on the > > phone this past Saturday morning. She agreed to do a consultation for > > next Saturday at Straight Ahead at 2:30 p.m. We are about 2 1/2 hrs. east > > of Cleveland. One hour east of Pittsburgh. > > > > Our reasons for an evaluation are 's jaw asymmetry, last little > > bit of tilt, the apparent " spasms " he seems to be having and the lack of > > stretching/strengthening/massage our PT has us doing at home. > > > > 's PT and I have not seen eye to eye on several occasions. She > > has quite a big ego and has the " know-it-all " attitude about > > torticollis/plagio and the treatment for it. She does not like it when I > > give any kind of input towards his therapy. We go through EI for his > > therapy, and she is the best and most experienced PT they have, so finding > > another is kind of out of the question. Besides, has been > with > > her since July 2001 (about 9 mos.). I've learned a tremendous amount from > > this group, the tort group, and also from my own research, so my > questions > > can be very knowledgeable. I just wish I would have found these groups > > before his treatment began, so I would have had a jump start on his > therpay. > > I do think our PT has helped him tremendously and I am grateful to her > (she > > is actually the one who got the ball rolling for his STAR therapy - even > > 's neuro thought " repositioning " was the answer, he was 6 1/2 > > mos. old at the time!!) > > Our PT considers 's tort (left-sided) to be resolved and he has > > complete ROM, but I will not be satisfied until he sees the " expert " on > > torticollis.I am so glad that she does consultations. Like I said before, > > if I would have known back at the start of ' s therapy, what I > do > > now -- I would have taken him to Straight Ahead from the very > beginning!!!! > > After all, we are only a couple of hours away. But you can not dwell on > > what you should have done -- you just move forward and hope for the best!! > > I will keep in touch with you all. Take care. > > > > AnnMarie & (14 mos.) > > STAR grad > > Tort resolved (?) > > > > PS -- When explaining to KKR 's course of treatment for his > tort > > and plagio, she seemed very surprised that he was in his " original " > STARband > > for the entire > > time (7 mos.) and also that our PT has not had us do any > > stretching/strengthening at home throughout 's therapy. She > said > > his tort was very mild and he did not need any more than what she was > > providing (?) > > > > > > > > > > > > If you haven't been to our groups website lately, you can check it out at > > http://www.TorticollisKids.org > > > > Without all of you this group wouldn't be possible!! Thank you! > > > > Quote Link to comment Share on other sites More sharing options...
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