Guest guest Posted September 16, 2008 Report Share Posted September 16, 2008 My husband once hid my Christmas present where we put the iron...he knew I would NEVER find it there...lol Can you hide it in the open somewhere...behind cans of vegetables or something?? Kym ----- Original Message ----- From: " CSBC " <cindysue@...> <<<< And they say he has MR. I'm going to try > an empty dresser drawer tomorrow...see how long before he finds it this > time! Or maybe behind the shower curtain downstairs.............or behind > his father's tool box.................................>>>> > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 16, 2008 Report Share Posted September 16, 2008 > > and i also ask that the parents of children who are not struggling in the > way depicted so often in the media ALSO share their just as valid and just > as honest stories. > Ana, I truly hope you continue on this path of being blessed with good health and no struggles with your child...I really do. I would encourage you to find parents whose children are older if you want to present just the positive side. I think even in the non-DS world, people are going to think- they just have a baby/toddler/young child. I'm being honest. If you do find parents who haven't had any problems, I'd be very interested in reading their stories. After 14+ years of running online support groups for DS, I haven't met one parent who hasn't had any problems/struggles as their child developed and grew. Even if the child is healthy, higher functioning, etc., the family still may deal with issues such as early onset dementia,depression and trying to help their child understand why they are different. That hurts for alot of our kids. I remember the one and only " real " support group meeting I attended. That was with none other than Cmancari (Cari). Our babies were just that, babies. I hated that meeting, hated the parent who rambled on and on about all her problems and blamed her marital problems on her son's disability (not DS). I never went back. I hung on to the positive stories of kids who were slightly older than my child. School issues bored me. I tried to empathize with those dealing with cardiac issues. I leaned on those experienced with RSV and other URI. I reached out on issues related to gross motor skills and bragged a hell of alot on 's gross motor progress. I stayed in contact with Cari. I started to deal with medical issues, school issues, family issues, communication issues, etc. I dealt with the wandering issue more times than I would have liked to. I started to deal with behavioral issues (it took me years to admit my son had behaviors). I stayed in contact with Cari. Throughout the years, I met and stayed in contact with many more parents that I can turn to in a heartbeat. Through the years, my family has strengthened..not just my wonderful adult children, but my extended family, too. I will always stay in contact with Cari. We've been on his trip to Holland together since almost day one. oh yea, KISS' biggest long haired, goatee sporting #1 fan just happens to be my almost 60 year old cousin with DS. He's a neat guy, but there have been struggles in his lifetime. His father advocated to get special education in their school system (back in the 1950's), the school agreed yet they didn't take kids like . is slowing down, I see it more each and every year. With that said, even those of us who deal with various challenges, have many positives to share. God, we love our kids!!! In the past 14 years, I have only seen ONE parent who was negative about their child- just one. We are all just a bunch of regular people, all different, raising our families and juggling life like our neighbors-only we put extra energy into one child who needs it due to their disability. In closing, I'll share that my sister commented on a picture of on facebook today. That picture was taken as he was peering into her purse to see what little surprise she brought him. Her comment " I love that you got a picture of that! I like the look on his face when I give him something. It's like Christmas morning. " Sincerely, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 16, 2008 Report Share Posted September 16, 2008 I've tried that. He knows I get one out every morning for him to give to the bus driver. I think he is on high alert to my whereabouts right before I come out with the can of coke. Then when he gets home from school, he is on a mission. He's quite good at it. I've even hid a case in a suitcase. Found! I just found out he doesn't like ice in his coke. Can't figure that one out. If I had to guess, he wants the stronger taste and not the diluted one. that is funny about the iron. I guess Tim could hid my presents in the oven and I wouldn't find it. Now the iron, I use mine almost every day---but rarely the oven. -- cindysue@... Re: I Need Your Story! > My husband once hid my Christmas present where we put the iron...he knew I > would NEVER find it there...lol Can you hide it in the open > somewhere...behind cans of vegetables or something?? > > Kym > > ----- Original Message ----- > From: " CSBC " <cindysue@...> > <<<< And they say he has MR. I'm going to try >> an empty dresser drawer tomorrow...see how long before he finds it this >> time! Or maybe behind the shower curtain downstairs.............or >> behind >> his father's tool box.................................>>>> >> >> > > > > ------------------------------------ > > Click reply to all for messages to go to the list. Just hit reply for > messages to go to the sender of the message. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 16, 2008 Report Share Posted September 16, 2008 Hey , Have you tried in the dirty clothes hamper?? Heaven knows, neither of my kids would ever dream of looking there!! Sounds like Karrie and continue to show similar tastes....Karrie loves her " Hoke " (Coke). Sue mom to Kate 18 and Karrie 12 w/ds and mild autism ---- CSBC <cindysue@...> wrote: > I've tried that. He knows I get one out every morning for him to give to > the bus driver. I think he is on high alert to my whereabouts right before > I come out with the can of coke. Then when he gets home from school, he is > on a mission. He's quite good at it. I've even hid a case in a suitcase. > Found! > > I just found out he doesn't like ice in his coke. Can't figure that one > out. If I had to guess, he wants the stronger taste and not the diluted > one. > > that is funny about the iron. I guess Tim could hid my presents in the oven > and I wouldn't find it. Now the iron, I use mine almost every day---but > rarely the oven. > > > > -- > > cindysue@... > Re: I Need Your Story! > > > > My husband once hid my Christmas present where we put the iron...he knew I > > would NEVER find it there...lol Can you hide it in the open > > somewhere...behind cans of vegetables or something?? > > > > Kym > > > > ----- Original Message ----- > > From: " CSBC " <cindysue@...> > > <<<< And they say he has MR. I'm going to try > >> an empty dresser drawer tomorrow...see how long before he finds it this > >> time! Or maybe behind the shower curtain downstairs.............or > >> behind > >> his father's tool box.................................>>>> > >> > >> > > > > > > > > ------------------------------------ > > > > Click reply to all for messages to go to the list. Just hit reply for > > messages to go to the sender of the message. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 16, 2008 Report Share Posted September 16, 2008 This is the reason why we bought a small fridge at Sam's a few years ago. It has a lock on it. I have had to change the hiding place for the key about 3 times. You can't get anything past these guys, God bless em! They certanly keep us on our toes, lol Tena Re: I Need Your Story! > My husband once hid my Christmas present where we put the iron...he knew I > would NEVER find it there...lol Can you hide it in the open > somewhere...behind cans of vegetables or something?? > > Kym > > ----- Original Message ----- > From: " CSBC " <cindysue@...> > <<<< And they say he has MR. I'm going to try >> an empty dresser drawer tomorrow...see how long before he finds it this >> time! Or maybe behind the shower curtain downstairs.............or >> behind >> his father's tool box.................................>>>> >> >> > > > > ------------------------------------ > > Click reply to all for messages to go to the list. Just hit reply for > messages to go to the sender of the message. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 16, 2008 Report Share Posted September 16, 2008 What dirty clothes hamper? I do laundry every day..just kidding!!!!! throws his clothes down the stairs where I pick it up and move it to the laundry room. Now hiding in the sock hamper (remember, I am a sock party person..even with three kids out of the nest) is a possibility. That basket never gets moved and appears just to hold socks that never get moved back into a drawer. Hummmmm...........I'll give it a try. I'm so proud of preferring coke over Pepsi. He takes after his momma -- cindysue@... Re: I Need Your Story! > Hey , > > Have you tried in the dirty clothes hamper?? Heaven knows, neither of my > kids would ever dream of looking there!! > > Sounds like Karrie and continue to show similar tastes....Karrie > loves her " Hoke " (Coke). > Sue mom to Kate 18 and Karrie 12 w/ds and mild autism > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 16, 2008 Report Share Posted September 16, 2008 In our house, that clothes hamper usually isn't seen...it's under the dirty clothes, usually it's emply, too I'm just as much to blame as Karrie....I toss the dirty clothes on the hamper instead of in it!! I never seem to stay caught up on anything, not laundry or dishes or lawn mowing or house cleaning or....sigh...... Sue mom to Kate 18 and Karrie 12 w/ds and mild autism ---- CSBC <cindysue@...> wrote: > What dirty clothes hamper? I do laundry every day..just kidding!!!!! > throws his clothes down the stairs where I pick it up and move it to > the laundry room. Now hiding in the sock hamper (remember, I am a sock > party person..even with three kids out of the nest) is a possibility. That > basket never gets moved and appears just to hold socks that never get moved > back into a drawer. Hummmmm...........I'll give it a try. > > I'm so proud of preferring coke over Pepsi. He takes after his > momma > > > > -- > > cindysue@... > Re: I Need Your Story! > > > > Hey , > > > > Have you tried in the dirty clothes hamper?? Heaven knows, neither of my > > kids would ever dream of looking there!! > > > > Sounds like Karrie and continue to show similar tastes....Karrie > > loves her " Hoke " (Coke). > > Sue mom to Kate 18 and Karrie 12 w/ds and mild autism > > > > > ------------------------------------ > > Click reply to all for messages to go to the list. Just hit reply for messages to go to the sender of the message. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 16, 2008 Report Share Posted September 16, 2008 ROFLOL- I am the other way around- rarely use the iron, but oven is used nearly daily Can you give the bus driver a case of coke and then the bus driver can tell you when there is 1 or 2 cans left. then cannot follow you around?? LOL re the ice- could be the cold and the clinking?? All my kids adore ice- and straws- if it has a straw they will drink it, they ask for straws in their drinks all the time............ likes to crunch the ice,so no sensory issues there for him Aussie Leis- mum to , Natasha, and Liliana Man is the only creature that seems to have the time and energy to pump all his sewage out to sea, and then go swimming in it Miles Kington CSBC wrote: > I've tried that. He knows I get one out every morning for him to give to > the bus driver. I think he is on high alert to my whereabouts right before > I come out with the can of coke. Then when he gets home from school, he is > on a mission. He's quite good at it. I've even hid a case in a suitcase. > Found! > > I just found out he doesn't like ice in his coke. Can't figure that one > out. If I had to guess, he wants the stronger taste and not the diluted > one. > > that is funny about the iron. I guess Tim could hid my presents in the oven > and I wouldn't find it. Now the iron, I use mine almost every day---but > rarely the oven. > > > > > > >> My husband once hid my Christmas present where we put the iron...he knew I >> would NEVER find it there...lol > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 16, 2008 Report Share Posted September 16, 2008 My house is in a constant flux of mess- it just shifts from room to room I have told the kids, if the lounge room is untidy on Friday mornings, no lunch orders. Especially now that is starting school very soon- all 3 of them will miss out.........They weren't happy with THAT new rule I prefer Pepsi My kids don't care , they will drink any , as they are not allowed to drink it usually Aussie Leis- mum to , Natasha, and Liliana Man is the only creature that seems to have the time and energy to pump all his sewage out to sea, and then go swimming in it Miles Kington karriemom@... wrote: > In our house, that clothes hamper usually isn't seen...it's under the dirty clothes, usually it's emply, too I'm just as much to blame as Karrie....I toss the dirty clothes on the hamper instead of in it!! > I never seem to stay caught up on anything, not laundry or dishes or lawn mowing or house cleaning or....sigh...... > > Sue mom to Kate 18 and Karrie 12 w/ds and mild autism > > ---- CSBC <cindysue@...> wrote: > >> What dirty clothes hamper? I do laundry every day..just kidding!!!!! >> throws his clothes down the stairs where I pick it up and move it to >> the laundry room. Now hiding in the sock hamper (remember, I am a sock >> party person..even with three kids out of the nest) is a possibility. That >> basket never gets moved and appears just to hold socks that never get moved >> back into a drawer. Hummmmm...........I'll give it a try. >> >> I'm so proud of preferring coke over Pepsi. He takes after his >> momma >> >> >> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 17, 2008 Report Share Posted September 17, 2008 In a message dated 9/16/2008 11:59:58 PM Eastern Daylight Time, JB66111@... writes: Now he is 43 years old and I haven't been caught up since. LOL!! Too funny! Life just sort of happens to us doesn't it??? Loree **************Psssst...Have you heard the news? There's a new fashion blog, plus the latest fall trends and hair styles at StyleList.com. (http://www.stylelist.com/trends?ncid=aolsty00050000000014) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 17, 2008 Report Share Posted September 17, 2008 I can remember years ago reading about a dad who got one of the coke machines for his kids so they'd have to have the money to get a coke. Don't know if you can even do that anymore or would have the interest, but it's a thought. Might make the behavioral " tokens " (cash) even more valuable to . Judi _____ From: [mailto: ] On Behalf Of CSBC Sent: Tuesday, September 16, 2008 9:53 PM kym mac Cc: Subject: Re: I Need Your Story! I've tried that. He knows I get one out every morning for him to give to the bus driver. I think he is on high alert to my whereabouts right before I come out with the can of coke. Then when he gets home from school, he is on a mission. He's quite good at it. I've even hid a case in a suitcase. Found! I just found out he doesn't like ice in his coke. Can't figure that one out. If I had to guess, he wants the stronger taste and not the diluted one. that is funny about the iron. I guess Tim could hid my presents in the oven and I wouldn't find it. Now the iron, I use mine almost every day---but rarely the oven. -- cindysuecomcast (DOT) <mailto:cindysue%40comcast.net> net Re: I Need Your Story! > My husband once hid my Christmas present where we put the iron...he knew I > would NEVER find it there...lol Can you hide it in the open > somewhere...behind cans of vegetables or something?? > > Kym > > ----- Original Message ----- > From: " CSBC " <cindysuecomcast (DOT) <mailto:cindysue%40comcast.net> net> > <<<< And they say he has MR. I'm going to try >> an empty dresser drawer tomorrow...see how long before he finds it this >> time! Or maybe behind the shower curtain downstairs.............or >> behind >> his father's tool box.................................>>>> >> >> > > > > ------------------------------------ > > Click reply to all for messages to go to the list. Just hit reply for > messages to go to the sender of the message. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 17, 2008 Report Share Posted September 17, 2008 In a message dated 9/17/2008 1:38:36 PM Eastern Daylight Time, b4alltoday@... writes: I do come here to vent, find solution to problems ......... I have a friendly captive audience but if I were to speak to strangers I would want everyone to know the Sara that I know ......... her strengths, her abilities and how happy she makes me (when they meet her they will see her weaknesses and limitations ) LOL!! As do we all but you are right when we talk about our kids to " outsiders " most of us just tell of all the wonderful things are kids do and the special people they are. Like take this morning for example...we were waiting for the bus and Micah put his backback (which is bigger than he is) on his back because this year he is trying to act like one of the big kids. As the bus pulled around I asked for a kiss and as he tipped his face up to me the back pack tipped his little body over. Well it was about the funniest thing!!! He was find and smiling. I leaned over to give him a kiss and chuckled about it for quite some time this morning. Oh I do love that kid and like you Kathy would just love to give him a squeeze right now! Loree **************Psssst...Have you heard the news? There's a new fashion blog, plus the latest fall trends and hair styles at StyleList.com. (http://www.stylelist.com/trends?ncid=aolsty00050000000014) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 17, 2008 Report Share Posted September 17, 2008 Hi It looks like I am in the minority here lol I would love to go to a web site and read only the positive ...... maybe the subject line can read " Positive stories on Down Syndrome " Pregnant women will read enough of the whole truth but sometimes when telling the whole truth you lose the positive ........ understand??? lol if the subject was worded catchy like our POSITIVE stories that would be the encouragement someone might need. Years back I asked the list to write to me stories of their kids, most were positive reflections of their children ..... until I moved into this house I read them often (had over 30 stories .... somewhere now in a box) those stories encouraged me during some tough times. I believe we have enough avenues for the " whole truth " something only positive would be wonderful and I know on this list we all have something positive to say about our kids heehee I have 4 kids and I daily (some times more often then that lol) thank God that he gave me Sara ....... we've had health issues, school issues, family issues and personal issues but NOTHING has out weighed the good times Go for it on your journey to let the world know about our wonderful kids ........... someone like me will read it and walk away with a smile (maybe the only one I'll have that day Kathy mom to Sara 16 From: ana voog Sent: Sunday, September 14, 2008 3:57 PM Subject: I Need Your Story! Everywhere I look, especially now since down syndrome is getting more media attention because of Palin, I see stories about families with children with DS that are sometimes positive but almost always tempered with how heartbreaking, heartwrenching, lonely, sad and difficult having a child with down syndrome is. How the costs are huge with all the medical bills and therapies are. What what a horrible struggle it is for inclusion, etc. When I read these things over and over again I think no wonder so many women are aborting. The fear mongering is incredible and I believe there is a media bias to want to tell the worst stories (or at least sad in some way) they can find. It makes for more dramatic reading. I know that there are other families out there, like mine, who are NOT having a hard time of it. Who are having a relatively easy time with no struggle. I know I am not alone when I say it is a joy to raise my child with down syndrome and we do not feel lonely and our hearts are not breaking. We are not struggling with the system either. We are not always fighting for inclusion and our lives are not revolving around therapies. Maybe we are in the minority but I think our stories are just as valid and need to be heard. For this reason, I am asking that if anyone has their story to share with me, please write it up and email it to me at: anavoog@... I am going to make a webpage for this to balance out all the negativity I see in the media about our children and our lives. With this 90% abortion rate, something has got to give! Enough! So please, forward this message to people you know to get the word out that I am compiling these stories. and to any down syndrome lists/forums and support groups you may go to in your community. I am going to put my all into this! Thank you for your help ---Ana Voog Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 17, 2008 Report Share Posted September 17, 2008 OOOh I just thought about something ..... maybe kind of morbid but I'll say it anyway lol I was thinking about my Mom's funeral, and all that got up to speak. Not one negative thing was said and believe me she was MY mom and I could have stood up there and said some truths lol but this was her time time for all to remember the good because it far out weighed the bad. Since her funeral I kind of look at life that way, the negative is so slammed in our faces as soon as our feet hit the floor, something enlightening is a rarity and maybe ............ well you all know spread some sunshine I do come here to vent, find solution to problems ......... I have a friendly captive audience but if I were to speak to strangers I would want everyone to know the Sara that I know ......... her strengths, her abilities and how happy she makes me (when they meet her they will see her weaknesses and limitations ) Kathy mom to Sara 16 ................ now I want to go to school and hug my baby From: K M Sent: Wednesday, September 17, 2008 12:24 PM ; ana voog Subject: Re: I Need Your Story! Hi It looks like I am in the minority here lol I would love to go to a web site and read only the positive ...... maybe the subject line can read " Positive stories on Down Syndrome " Pregnant women will read enough of the whole truth but sometimes when telling the whole truth you lose the positive ........ understand??? lol if the subject was worded catchy like our POSITIVE stories that would be the encouragement someone might need. Years back I asked the list to write to me stories of their kids, most were positive reflections of their children ..... until I moved into this house I read them often (had over 30 stories .... somewhere now in a box) those stories encouraged me during some tough times. I believe we have enough avenues for the " whole truth " something only positive would be wonderful and I know on this list we all have something positive to say about our kids heehee I have 4 kids and I daily (some times more often then that lol) thank God that he gave me Sara ....... we've had health issues, school issues, family issues and personal issues but NOTHING has out weighed the good times Go for it on your journey to let the world know about our wonderful kids ........... someone like me will read it and walk away with a smile (maybe the only one I'll have that day Kathy mom to Sara 16 From: ana voog Sent: Sunday, September 14, 2008 3:57 PM Subject: I Need Your Story! Everywhere I look, especially now since down syndrome is getting more media attention because of Palin, I see stories about families with children with DS that are sometimes positive but almost always tempered with how heartbreaking, heartwrenching, lonely, sad and difficult having a child with down syndrome is. How the costs are huge with all the medical bills and therapies are. What what a horrible struggle it is for inclusion, etc. When I read these things over and over again I think no wonder so many women are aborting. The fear mongering is incredible and I believe there is a media bias to want to tell the worst stories (or at least sad in some way) they can find. It makes for more dramatic reading. I know that there are other families out there, like mine, who are NOT having a hard time of it. Who are having a relatively easy time with no struggle. I know I am not alone when I say it is a joy to raise my child with down syndrome and we do not feel lonely and our hearts are not breaking. We are not struggling with the system either. We are not always fighting for inclusion and our lives are not revolving around therapies. Maybe we are in the minority but I think our stories are just as valid and need to be heard. For this reason, I am asking that if anyone has their story to share with me, please write it up and email it to me at: anavoog@... I am going to make a webpage for this to balance out all the negativity I see in the media about our children and our lives. With this 90% abortion rate, something has got to give! Enough! So please, forward this message to people you know to get the word out that I am compiling these stories. and to any down syndrome lists/forums and support groups you may go to in your community. I am going to put my all into this! Thank you for your help ---Ana Voog Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 17, 2008 Report Share Posted September 17, 2008 I agree Kath, Even when you hear good AND bad, usually the bad things stick in your mind..... LOL on the other hand......I love when people come up to us and say, you are so blessed, children with DS are so loving. Bob and I look at each other in that " oh if they only knew " way. When Nic is having a meltdown, I'll look at Bob and say, " Oh but isn't he the most loving child! " . ROTFL Ya gotta laugh or you'll cry. Di Judge not, and ye shall not be judged. Condemn not, and ye shall not be condemned. Forgive, and ye shall be forgiven. Luke 6:37 I Need Your Story! > > Everywhere I look, especially now since down syndrome is > getting more media attention because of Palin, I see > stories about families with children with DS that are > sometimes positive but almost always tempered with how > heartbreaking, heartwrenching, lonely, sad and difficult > having a child with down syndrome is. How the costs are > huge with all the medical bills and therapies are. What > what a horrible struggle it is for inclusion, etc. > When I read these things over and over again I think no > wonder so many women are aborting. The fear mongering is > incredible and I believe there is a media bias to want to > tell the worst stories (or at least sad in some way) they > can find. It makes for more dramatic reading. > > I know that there are other families out there, like mine, > who are NOT having a hard time of it. Who are having a > relatively easy time with no struggle. I know I am not > alone when I say it is a joy to raise my child with down > syndrome and we do not feel lonely and our hearts are not > breaking. We are not struggling with the system either. We > are not always fighting for inclusion and our lives are not > revolving around therapies. > > Maybe we are in the minority but I think our stories are > just as valid and need to be heard. > For this reason, I am asking that if anyone has their story > to share with me, please write it up and email it to me at: > anavoog@... > I am going to make a webpage for this to balance out all > the negativity I see in the media about our children and > our lives. > With this 90% abortion rate, something has got to give! > Enough! > So please, forward this message to people you know to get the word out > that > I am compiling these stories. > > and to any down syndrome lists/forums and support groups you may go to in > your community. > > I am going to put my all into this! > Thank you for your help > > ---Ana Voog > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 17, 2008 Report Share Posted September 17, 2008 Hi Di I don't get that so much now the " ahhhhhh you are so blessed to have a child with DS, they are so sweet " now they see Sara as a teenager and I hear " oh my you have a teenager on your hands " I say oooh yes but she is the last teen in the home. We went to Fl one summer and while in line checking out of the grocery Sara was soooooooooooo sassy, the clerk who happened to have DS (yes I picked her line lol) reamed Sara out, told her to be nice to me and not be a bad girl. The look on Sara's face was priceless and I laughed all the way to the car. Sometimes I miss those comments on how sweet she must be lol Kathy mom to Sara 16 ........ who has been called Sassy Sara FOREVER From: Di Sent: Wednesday, September 17, 2008 3:28 PM K M ; ; ana voog Subject: Re: I Need Your Story! I agree Kath, Even when you hear good AND bad, usually the bad things stick in your mind..... LOL on the other hand......I love when people come up to us and say, you are so blessed, children with DS are so loving. Bob and I look at each other in that " oh if they only knew " way. When Nic is having a meltdown, I'll look at Bob and say, " Oh but isn't he the most loving child! " . ROTFL Ya gotta laugh or you'll cry. Di Judge not, and ye shall not be judged. Condemn not, and ye shall not be condemned. Forgive, and ye shall be forgiven. Luke 6:37 I Need Your Story! > > Everywhere I look, especially now since down syndrome is > getting more media attention because of Palin, I see > stories about families with children with DS that are > sometimes positive but almost always tempered with how > heartbreaking, heartwrenching, lonely, sad and difficult > having a child with down syndrome is. How the costs are > huge with all the medical bills and therapies are. What > what a horrible struggle it is for inclusion, etc. > When I read these things over and over again I think no > wonder so many women are aborting. The fear mongering is > incredible and I believe there is a media bias to want to > tell the worst stories (or at least sad in some way) they > can find. It makes for more dramatic reading. > > I know that there are other families out there, like mine, > who are NOT having a hard time of it. Who are having a > relatively easy time with no struggle. I know I am not > alone when I say it is a joy to raise my child with down > syndrome and we do not feel lonely and our hearts are not > breaking. We are not struggling with the system either. We > are not always fighting for inclusion and our lives are not > revolving around therapies. > > Maybe we are in the minority but I think our stories are > just as valid and need to be heard. > For this reason, I am asking that if anyone has their story > to share with me, please write it up and email it to me at: > anavoog@... > I am going to make a webpage for this to balance out all > the negativity I see in the media about our children and > our lives. > With this 90% abortion rate, something has got to give! > Enough! > So please, forward this message to people you know to get the word out > that > I am compiling these stories. > > and to any down syndrome lists/forums and support groups you may go to in > your community. > > I am going to put my all into this! > Thank you for your help > > ---Ana Voog > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 17, 2008 Report Share Posted September 17, 2008 Hi Karyn I think you meant this for the list KVanRyzin@...; Re: I Need Your Story! Ana, I think your idea is a nice one and I'm sure there are people out there who will enjoy it. I joke that my three youngest were born perfect and as they get older they all are showing weaknesses in their design and defects in their manufacturing. One has a speech delay, the other needs tonsils out, etc. , 19 with ds, wasn't like that. We knew he had ds when we adopted him. We didn't know about all the other things, some that went with ds and many that went with his abusive and neglectful past. I wish we had weathered it better. I love him. He is a very cool guy and sometimes I wonder how I got such a cool kid when I was aiming for well behaved and well mannered. LOL! If his brothers and sister end up this cool I will really be in trouble. : ) I struggle with nice rosey stories sometimes because people who don't know that ds can have " complications " (my term for lack of a better one), blame parents when a child doesn't turn out self- sufficient, well mannered and,a poster child for ds. Karyn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 17, 2008 Report Share Posted September 17, 2008 " I struggle with nice rosey stories sometimes because people who don't know that ds can have " complications " (my term for lack of a better one), blame parents when a child doesn't turn out self- sufficient, well mannered and,a poster child for ds. " i never said that i am looking for stories of " poster children " for DS. i said i am looking for positive stories of people who are not heartbroken and struggling. notice the huge difference. On Wed, Sep 17, 2008 at 8:55 PM, K M <b4alltoday@...> wrote: > Hi Karyn > > I think you meant this for the list > > KVanRyzin@...; > > Re: I Need Your Story! > > Ana, I think your idea is a nice one and I'm sure there are people > out there who will enjoy it. I joke that my three youngest were born > perfect and as they get older they all are showing weaknesses in > their design and defects in their manufacturing. One has a speech > delay, the other needs tonsils out, etc. , 19 with ds, wasn't > like that. We knew he had ds when we adopted him. We didn't know > about all the other things, some that went with ds and many that went > with his abusive and neglectful past. I wish we had weathered it > better. I love him. He is a very cool guy and sometimes I wonder how > I got such a cool kid when I was aiming for well behaved and well > mannered. LOL! If his brothers and sister end up this cool I will > really be in trouble. : ) > > I struggle with nice rosey stories sometimes because people who > don't know that ds can have " complications " (my term for lack of a > better one), blame parents when a child doesn't turn out self- > sufficient, well mannered and,a poster child for ds. > > Karyn > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 18, 2008 Report Share Posted September 18, 2008 Ana, I didn't mean to imply you did. I was just trying to explain that sometimes my feelings color my reading of things. Not that those things weren't or aren't good. Karyn > > > Hi Karyn > > > > I think you meant this for the list > > > > KVanRyzin@...; > > > > Re: I Need Your Story! > > > > Ana, I think your idea is a nice one and I'm sure there are people > > out there who will enjoy it. I joke that my three youngest were born > > perfect and as they get older they all are showing weaknesses in > > their design and defects in their manufacturing. One has a speech > > delay, the other needs tonsils out, etc. , 19 with ds, wasn't > > like that. We knew he had ds when we adopted him. We didn't know > > about all the other things, some that went with ds and many that went > > with his abusive and neglectful past. I wish we had weathered it > > better. I love him. He is a very cool guy and sometimes I wonder how > > I got such a cool kid when I was aiming for well behaved and well > > mannered. LOL! If his brothers and sister end up this cool I will > > really be in trouble. : ) > > > > I struggle with nice rosey stories sometimes because people who > > don't know that ds can have " complications " (my term for lack of a > > better one), blame parents when a child doesn't turn out self- > > sufficient, well mannered and,a poster child for ds. > > > > Karyn > > > > Quote Link to comment Share on other sites More sharing options...
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