Re: Working with an orthotist

[Guest guest]

,

I don't want to scare you or anything, but what you are reporting does not

sound too good. I'm not sure that your orthotist really understands and knows

about plagio and babies. If she has never seen ears come back into alignment

then she has either not had much experience with her product or the product

is not up to par. Also, the way you described the foam holding in the areas

that don't need correction to allow the flat areas to grow is correct. I

don't know what she meant about putting the foam pads in the flat areas. This

does not sound correct AT ALL. And the fact that she is not going to allow

for the forward bossing is a very bad sign. Again, I don't want to scare you,

but this does not sound like a good situation. I would try to get a second

opinion or a consultation elsewhere as soon as you can. Your ortho should be

extremely helpful and informative and should be a professional expert in the

field. Anything short of that should not be acceptable.

I'm sorry to hear about what is going on, but you are correct that it does

not sound good. Let us know what you decide to do.

Marci (mom to )

Oklahoma

[Guest guest]

,

Wow- I think you have every right to be concerned. When she said the ears

have NEVER been realigned, she is waaaayyyy off on that one. My son is

living proof of that. I think you are doing all of the right things by

asking questions and having CT give you a second opinion. This just doesn't

seem right to me. Your right, why wouldn't you do all that you could if the

child is already wearing the helmet in the first place? Maybe things work

differently for a locally made orthotic, and I'm sure you'll get some great

feedback from Debbie on her daughter's first helmet. I think you are a great

mom and right on top of it, Rhia is one lucky little lady! Good luck and let

us know the outcome of this!

' Mom

[Guest guest]

To and Marci:

Thank you for your support and concern!!! Here is what I have done -

I called the surgeon's nurse and talked to her about this. She was

very concerned and agreed that things didn't go well on Monday. She

was very pro-active and is going to address all my questions with the

surgeon, as well as the Orthotic Manager (I have met him and he is

really, really nice. He took one look at Rhia while we were

scheduling an appointment and said " She has classic plagiocephaly -

we can do alot for her because she is so young and you will be very,

very pleased with the results. " ) Much different than " You can't

expect a round head! " - which is what I got last Monday.(I'm not

looking for round, but I want as close to it as possible!) So, I do

feel alot better knowing that the band itself will probably be signed

off on by the head guy and the the surgeon now, as well as there will

be some mention of the need for attitude adjustment. Of course, I

will be asking to switch to another orthotist - I don't need the

negativity. A professional can certainly express realistic results

without sounding so negative.

I also have the phone numbers to the DOC band folks in Madison Wi,

and have my list of questions for them when I call them on Monday or

Tuesday. I will be open to switching helmet brands if necessary.

But first, I'll see how Monday goes, when we actually receive the

helmet. I'm sure that the head guy will be there to explain things

to me at that appointment...

Again, thanks for your support!

, Rhiannon's mom

Plagiocephaly@y..., marcisch@a... wrote:

> ,

>

> I don't want to scare you or anything, but what you are reporting

does not

> sound too good. I'm not sure that your orthotist really understands

and knows

> about plagio and babies. If she has never seen ears come back into

alignment

> then she has either not had much experience with her product or the

product

> is not up to par. Also, the way you described the foam holding in

the areas

> that don't need correction to allow the flat areas to grow is

correct. I

> don't know what she meant about putting the foam pads in the flat

areas. This

> does not sound correct AT ALL. And the fact that she is not going

to allow

> for the forward bossing is a very bad sign. Again, I don't want to

scare you,

> but this does not sound like a good situation. I would try to get a

second

> opinion or a consultation elsewhere as soon as you can. Your ortho

should be

> extremely helpful and informative and should be a professional

expert in the

> field. Anything short of that should not be acceptable.

>

> I'm sorry to hear about what is going on, but you are correct that

it does

> not sound good. Let us know what you decide to do.

>

> Marci (mom to )

> Oklahoma

[Guest guest]

,

Nice work - sounds like you have everything under control and have handled

the situation perfectly! Please let us know how it goes on Monday.

Marci (Mom to )

Oklahoma

[Guest guest]

:

I couldn't agree with Marci's original reply more - and I'm so glad

to read that you got in touch with the office & explained what you

were told by the orthotist. I would definitely demand a different

orthotist & go from there. You are wonderfully on top of this,

that's terrific. It sounds like you prevented what could have been a

disaster in the making! Way to go. Good luck on Monday, I really

hope everything goes well - if not, definitely call Cranial Tech..

Please let us know how it goes.

Debbie Abby's mom DOCgrad

MI

> > ,

> >

> > I don't want to scare you or anything, but what you are reporting

> does not

> > sound too good. I'm not sure that your orthotist really

understands

> and knows

> > about plagio and babies. If she has never seen ears come back

into

> alignment

> > then she has either not had much experience with her product or

the

> product

> > is not up to par. Also, the way you described the foam holding in

> the areas

> > that don't need correction to allow the flat areas to grow is

> correct. I

> > don't know what she meant about putting the foam pads in the flat

> areas. This

> > does not sound correct AT ALL. And the fact that she is not going

> to allow

> > for the forward bossing is a very bad sign. Again, I don't want

to

> scare you,

> > but this does not sound like a good situation. I would try to get

a

> second

> > opinion or a consultation elsewhere as soon as you can. Your

ortho

> should be

> > extremely helpful and informative and should be a professional

> expert in the

> > field. Anything short of that should not be acceptable.

> >

> > I'm sorry to hear about what is going on, but you are correct

that

> it does

> > not sound good. Let us know what you decide to do.

> >

> > Marci (mom to )

> > Oklahoma

[Guest guest]

> " She has classic plagiocephaly -

> we can do alot for her because she is so young and you will be

very,

> very pleased with the results. " ) Much different than " You can't

> expect a round head! " - which is what I got last Monday.>

This is great to hear! I hope they retrain this first orthotist you

saw, because she seriously needs it!

Anne

[Guest guest]

,

Great news that you have been reassured by the experts about what is

happening. Sounds like you are making all the right moves and being very to

the point about what you expect and what you don't (negativity!). Good luck

and please keep us posted!

' Mom