Guest guest Posted April 18, 2002 Report Share Posted April 18, 2002 hi cindy! i just read your post and saw where you mentioned that one of nicholas' ears is smaller than the other. one of emma's is smaller than the other too (the one on her tort side), and i have asked the pediatrician, neurosurgeon, and craniofacial surgeon about it. all they say is " no one's ears are the same size. " the pediatrician actually said it would eventually " unfurl " (his word). it is significantly smaller (i measured it - i know - i'm an obsessive mom. my husband still teases me about that one!). 10 mm. maybe that's not really " significant, " but it seems so to me. Did you ever get any info on nicholas' ear? could it be cause by the tort??? i noticed the size difference way before she showed any signs of plagio. thanks. amy (obsessive) mom to emma (born 9/24/01) > Hi Marcie, > Welcome to the group! I posted a response to you sometime ago and it never > showed up that I can see - Sorry! > You can start looking for physical therapists at the Children's Hospital you > referred to. My neuro gave me no direction on this so I had to go digging > for information just by calling all over. I found out that most hospitals > (not just a childrens hospital) have a pediatric outpatient physical therapy > dept. or can probably refer you to a hospital that does. You can call and > ask if they have treated infants with torticollis. I called one private > practice and they thought I said " tuberculosis " - when I told them that it > was torticollis, she put me on hold and said they would have to look it up! > Well, that was not what I was looking for, and I would recommend to you that > you don't want someone learning about how to treat tort while working on your > child and possibly losing valuable time and effort. A great suggestion that > Niki offered was the EI program- Early Intervention that is at no cost to you > if your child qualifies- tort in itself is a shoo in, but they evaluate the > child and there must be a 25% delay to be eligible. Please also check into > www.torticolliskids@y... for more tips and advice- you may find a > mom or dad from your area that can refer you to someone close by. I will > attach a link of exercises to show you the idea of what your trying to > achieve in resolving tort. On the band, we decided to do it and was > in one by 5 months- a few reasons were that we found it close to impossible > to reposition with the tort springing him back to the left, almost > immediately, daycare, facial asymmetry to be brief. We used the DOC band and > had about 95% correction- the facial asymmetry is gone and the ears are in > alignment, although one will always be smaller. Really do your homework and > decide what's best for your child, every case is not alike, so you have to do > what you feel is the best option. > Please feel free to email me anytime. Good luck and please keep us posted! > > ' Mom > <A HREF= " http://www.orthoseek.com/articles/ifs-left.html " >Stretches/Holds </A> Quote Link to comment Share on other sites More sharing options...
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