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Re: We picked up 's helmet!

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Dana

Hi! I am sorry to hear that isnt liking his new helmet. Mya

adjusted well from the very beginning. How old is ? Mya never

fought it at all. And I was very concerned about disrupting sleep as

well. Mya is an excellent sleeper. She sleeps from 8 pm till 930 am

every night. SHe did this before her DOC band and she still does it

now. Mya was sweating terribly at first and then after a couple of

days she seemed to adjust her body temperature and the sweating had

went away but now that the temp has been in the 80s and 90s here the

sweating has starting A LOT! I have to take off her band several

times a day to wipe it out and dry off her head. I am hoping maybe

her body will adjust a little better to the heat but I really just

dont know. SHe has gotten a rash on her forehead that the orthotist

said is from her sweating so badly. They put moleskin in that spot

and told me to use hydrocortisone cream but theres still a big red

spot there. Good luck with getting to keep his helmet on. Keep

us posted on how things are going with him.

Christi mom to MYa (DOC band 3/6/02)

> Hi all,

> Well, we have 's helmet. Needless to say, he is NOT

impressed.

> So far I have managed to keep it on his head for 45 minutes. He

> screams and tries to take it off. I distracted him with " the

> Wiggles " which is why he kept it on for as long as he did. Please

> tell me this will get better. I know most babies adjust right

away,

> but my son has a mind of his own.

>

> I have a few questions:

> 1) Will the helmet disrupt his sleep? Right now he sleeps from

8pm -

> 7am. I can't tell you how much I want this to continue :)

>

> 2) He's sweating like a pig. How often should I take it off and

> wipe him down? He just seems so overheated.

>

> 3) When will the sweating stop?

>

> Thanks.

> Dana (mommy to )

> Ont.

> ps. oh, FYI, an orthotist from Australia was present during 's

> fitting. He said that he has travelled all over the States

learning

> about the molding helemt/band. He lives an hour from Melbourne. He

> was impressed with how the band/helmet was so accepted in the US as

> a form of corrective therapy.

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Dana:

What a bummer! I will tell you it will get better! It is very rare

for baby's not to tolerate helmets at all. Some babies take longer

to get used to them than others. Give him a few days :). I'll try to

answer your other questions below:

1) Will the helmet disrupt his sleep? Right now he sleeps from 8pm -

> 7am. I can't tell you how much I want this to continue :)

MOST babies sleep just fine with their helmet/band. Of course with

not tolerating his helmet at all right now, he could have a

harder time sleeping in it. He should get used to it & hopefully

SOON!

>

> 2) He's sweating like a pig. How often should I take it off and

> wipe him down? He just seems so overheated.

Are you taking his helmet off on an hourly basis already to check for

red spots? With most new bands for the first week or so the

orthotist recommends an hour on hour off schedule. I would wipe him

down probably every hour of so.

>

> 3) When will the sweating stop?

The sweating will greatly diminish as 's body temperature adjusts

to wearing that hunk of plastic on top of his head. Usually within a

week or maybe 2 the child adjusts & the sweating will get a lot

better. Is it hot there in Ont. too? (It's VERY hot across the US

right now). The heat of course will only make it worse. Maybe dress

a little lighter too.

>

That's great to hear about the australia orthotist. We've had a few

Aussie members - they'd be thrilled with more progress made in their

area.

Well I have my fingers crossed hoping adjusts soon. Please keep

us updated & GOOD LUCK :)

Debbie Abby's mom DOCgrad

MI

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Dana,

I'm so glad to hear that got his helmet...yay!! The sweating

usually decreases after about 2 or 3 weeks, as the body temperature

adjusts to having the helmet on. Until then, dress him in lighter

clothing. The twins never really had a problem sleeping in their

bands after the first night, they just needed to get used to it.

Each kid is different, but on the most part, it usually takes a few

weeks for the child to get completely used to the helmet. Good luck

Dana, and be sure to let us know how does.

On another topic, those 'Wiggles' crack me up. They are so hyper, I

swear they are going to hurt themselves!! :o)

Niki

Kaylie & Danny (STAR grads)

Phila., PA

> Hi all,

> Well, we have 's helmet. Needless to say, he is NOT

impressed.

> So far I have managed to keep it on his head for 45 minutes. He

> screams and tries to take it off. I distracted him with " the

> Wiggles " which is why he kept it on for as long as he did. Please

> tell me this will get better. I know most babies adjust right

away,

> but my son has a mind of his own.

>

> I have a few questions:

> 1) Will the helmet disrupt his sleep? Right now he sleeps from

8pm -

> 7am. I can't tell you how much I want this to continue :)

>

> 2) He's sweating like a pig. How often should I take it off and

> wipe him down? He just seems so overheated.

>

> 3) When will the sweating stop?

>

> Thanks.

> Dana (mommy to )

> Ont.

> ps. oh, FYI, an orthotist from Australia was present during 's

> fitting. He said that he has travelled all over the States

learning

> about the molding helemt/band. He lives an hour from Melbourne. He

> was impressed with how the band/helmet was so accepted in the US as

> a form of corrective therapy.

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In a message dated 4/17/2002 11:32:28 PM Eastern Daylight Time, niki_jay175@... writes:

On another topic, those 'Wiggles' crack me up. They are so hyper, I

swear they are going to hurt themselves!! :o)

They are hyper- but (and I!) love them- "bear's now asleep, shhh, shh, shh!"

Hang in there Dana, especially with the tort- its hard work but keep the faith- will do just fine (you'll be exhausted when its all said and done, but he'll do great and that will be such a reward!).

' Mom

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Thanks Christi,

is doing a little better today. We've managed to keep the

helemt on 3 hours so far today (which is great improvement from 2

1/2 hours yesterday..the whole day). When we start overnights

(maybe tomorrow night), things should improve. Right now he is

napping well in the helemt which is GREAT! I've noticed though that

he is not moving around during his naps. Usually I put him down and

he could be upside down when he's finished. This worries me as he

is often changes position alot at night too.

He just looks so sad with it on..it breaks my heart. It'

s like he has a whole new personality. As soon as I take it off, he

smiles and plays again. Thanks for your concern. I'll keep

everyone posted.

Dana (mom to 8.5mo)

Ont.

- In Plagiocephaly@y..., " CMZ1242 " <cmz1242@y...> wrote:

> Dana

> Hi! I am sorry to hear that isnt liking his new helmet.

Mya

> adjusted well from the very beginning. How old is ? Mya never

> fought it at all. And I was very concerned about disrupting sleep

as

> well. Mya is an excellent sleeper. She sleeps from 8 pm till 930

am

> every night. SHe did this before her DOC band and she still does

it

> now. Mya was sweating terribly at first and then after a couple of

> days she seemed to adjust her body temperature and the sweating

had

> went away but now that the temp has been in the 80s and 90s here

the

> sweating has starting A LOT! I have to take off her band several

> times a day to wipe it out and dry off her head. I am hoping maybe

> her body will adjust a little better to the heat but I really just

> dont know. SHe has gotten a rash on her forehead that the

orthotist

> said is from her sweating so badly. They put moleskin in that spot

> and told me to use hydrocortisone cream but theres still a big red

> spot there. Good luck with getting to keep his helmet on.

Keep

> us posted on how things are going with him.

> Christi mom to MYa (DOC band 3/6/02)

>

>

> > Hi all,

> > Well, we have 's helmet. Needless to say, he is NOT

> impressed.

> > So far I have managed to keep it on his head for 45 minutes. He

> > screams and tries to take it off. I distracted him with " the

> > Wiggles " which is why he kept it on for as long as he did.

Please

> > tell me this will get better. I know most babies adjust right

> away,

> > but my son has a mind of his own.

> >

> > I have a few questions:

> > 1) Will the helmet disrupt his sleep? Right now he sleeps from

> 8pm -

> > 7am. I can't tell you how much I want this to continue :)

> >

> > 2) He's sweating like a pig. How often should I take it off and

> > wipe him down? He just seems so overheated.

> >

> > 3) When will the sweating stop?

> >

> > Thanks.

> > Dana (mommy to )

> > Ont.

> > ps. oh, FYI, an orthotist from Australia was present during

's

> > fitting. He said that he has travelled all over the States

> learning

> > about the molding helemt/band. He lives an hour from Melbourne.

He

> > was impressed with how the band/helmet was so accepted in the US

as

> > a form of corrective therapy.

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