's Mom

[Guest guest]

Hi

Thanks so for your reply. I'm very stressed out right not my head is killing me I can only think that when I'm trying not to think about it. It's still running through my head. I'm not sure what you are talking about a hemivertebrae at the apex of the curve. could you explain. So far they haven't said anything about a CT- scan so I'm not sure it maybe Tuesday they will say something then. I'm thinking about contacting shirners but wanted to wait until we got more information and if they refer us to a specialist. Thanks again

's Mom

That sounds like a very horrible day. It concerns me that the pedi did not notice this curve before. It is really a shame they did not seem to take you seriously the last visit. How frustrating. We had a problem with getting taken seriously too. I looked at 's x ray. I, of course, am just a mom, but there looks to be some abnormal vertebrae formation. It almost looks like there is a hemivertebrae at the apex of the curve. This would seem like it is congenital scoliosis to me. But, that is just an idea. I had always heard that congenital scoliosis is not painful though. So maybe there is something else going on as well. The MRI should be able to tell more are they going to do a CT scan as well? Maybe you could try to set something up with a Shriners while you are waiting for the MRI. You could always cancel later. I would be sure to ask the Dr. how many of these kinds of cases he has treated before. The curve seems pretty serious. Don't let them push you off before they explain to you and show you what they think is causing the curve. It is awful that they mention tumor and then expect you to just wait around until next week. Especially since she is complaining of pain. I will be thinking of you guys.Maybe someone else will have some more advise.

[Guest guest]

Hi there. I have 3 daughters, is 9 with DS, is 6 and

Katelyn is 2. was also just diagnosed with Celiac disease. We

didn't really notice any symptoms but her ped. recommended adding the

test to her annual blood work in Jan. Her numbers were terrible

indicating most likely she has Celiac. We did the endoscopy in June

and the biopsy confirmed it. We are in our 2nd week of Gluten free/

Wheat free eating. And it hasn't been easy. The hard part is my 2

younger girls who want to eat whatever whenever! Which I am trying to

control! Anyway, just wondering if there is anyone else going through

this or already has....thanks!