Guest guest Posted April 20, 2002 Report Share Posted April 20, 2002 Hi Everyone! I'm new to this group. My son was diagnoised with torticollis at three months and has been in therapy since. He's now 7.5 months with some minor facial and head asymmetry. My husband and I went to a Craniofacial doctor in March and he recommended my child get the helmut. The torticollis caused some flatness (even with some repositioning for two months) on his right side of head, one ear is more forward than the other, and one eye socket is a little bigger. I was reluctant to do the helmut at first. But I convinced myself to do it. I hope it can come off by his first birthday. Nothing is noticable on his face to others unless I point it out. But, we see it so I guess it's the right thing to do. Has anyone out there had success with the helmut? How much or how little improvement? How long was it worn? Any pointers? or words of wizdom or advice? Thanks to anyone who answers..... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 20, 2002 Report Share Posted April 20, 2002 Hello, Our son Tucker will be 12 months in a few days. We started treatment with a DOC band when he was 7 months old. We are very pleased with his progress! Tucker out grew his first band in 3 months. He has been in his new band for a little over a month and will likely be in it thru July. Good Luck!!! Tucker's Mom - In Plagiocephaly@y..., " brosey123 " <brosey123@y...> wrote: > Hi Everyone! > > I'm new to this group. My son was diagnoised with torticollis at > three months and has been in therapy since. He's now 7.5 months with > some minor facial and head asymmetry. > > My husband and I went to a Craniofacial doctor in March and he > recommended my child get the helmut. The torticollis caused some > flatness (even with some repositioning for two months) on his right > side of head, one ear is more forward than the other, and one eye > socket is a little bigger. > I was reluctant to do the helmut at first. But I convinced myself to > do it. I hope it can come off by his first birthday. > > Nothing is noticable on his face to others unless I point it out. > But, we see it so I guess it's the right thing to do. > > Has anyone out there had success with the helmut? How much or how > little improvement? How long was it worn? Any pointers? or words of > wizdom or advice? > > Thanks to anyone who answers..... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2002 Report Share Posted April 21, 2002 Hi & welcome to our group! We're glad you have found us. Has your son already been casted for his helmet? Do you know if it is a locally made helmet, a DOCband made by Cranial Technologies or a STARband made by Orthomerica? I have been a member of this group for 1.5 yrs already & can tell you there have been VERY few members who have not had success with their child's helmet. Not all members have rec'd full 100% correction of their child's head, but the helmet/band definitely improved their child's head shope. My daughter began her DOCband treatment at age 11.5 mos, wore it for 4.5 mos & we were able to get good correction. She had severe plagio & began at an " older " age so we are very happy with her results. Your son is younger, so he will be hitting growth spurts & you should get good improvement. How is his torticollis coming? Best of luck with everything. Please be sure to keep us posted on his progress. Welcome again. Debbie Abby's mom DOCGrad MI > Hi Everyone! > > I'm new to this group. My son was diagnoised with torticollis at > three months and has been in therapy since. He's now 7.5 months with > some minor facial and head asymmetry. > > My husband and I went to a Craniofacial doctor in March and he > recommended my child get the helmut. The torticollis caused some > flatness (even with some repositioning for two months) on his right > side of head, one ear is more forward than the other, and one eye > socket is a little bigger. > I was reluctant to do the helmut at first. But I convinced myself to > do it. I hope it can come off by his first birthday. > > Nothing is noticable on his face to others unless I point it out. > But, we see it so I guess it's the right thing to do. > > Has anyone out there had success with the helmut? How much or how > little improvement? How long was it worn? Any pointers? or words of > wizdom or advice? > > Thanks to anyone who answers..... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2002 Report Share Posted April 21, 2002 My son is 7 months old too (9/10/01)! He has been in a DOC Band for 2 months. It is a miracle! His ears are coming back into alignment and the left side of his face isn't droppy anymore. The flat spot is filling in too. It is really amazing when he hits a growth spurt and we notice immediately how the improvement. Not many people noticed Dane's asymmetry before he was banded. Now when they look at him -or see his pictures- everybody notices such a drastic change. Good luck with your decision! Dane's mom (DOC Band 2/14) > Hi Everyone! > > I'm new to this group. My son was diagnoised with torticollis at > three months and has been in therapy since. He's now 7.5 months with > some minor facial and head asymmetry. > > My husband and I went to a Craniofacial doctor in March and he > recommended my child get the helmut. The torticollis caused some > flatness (even with some repositioning for two months) on his right > side of head, one ear is more forward than the other, and one eye > socket is a little bigger. > I was reluctant to do the helmut at first. But I convinced myself to > do it. I hope it can come off by his first birthday. > > Nothing is noticable on his face to others unless I point it out. > But, we see it so I guess it's the right thing to do. > > Has anyone out there had success with the helmut? How much or how > little improvement? How long was it worn? Any pointers? or words of > wizdom or advice? > > Thanks to anyone who answers..... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2002 Report Share Posted April 21, 2002 Thanks for the info. His torticollis is improving but slowly. I'm glad you found great results with your child. I'll keep you posted. We should be getting the helmut in another week. debbieandabby <dj2kirby@...> wrote: Hi & welcome to our group!We're glad you have found us. Has your son already been casted for his helmet? Do you know if it is a locally made helmet, a DOCband made by Cranial Technologies or a STARband made by Orthomerica?I have been a member of this group for 1.5 yrs already & can tell you there have been VERY few members who have not had success with their child's helmet. Not all members have rec'd full 100% correction of their child's head, but the helmet/band definitely improved their child's head shope.My daughter began her DOCband treatment at age 11.5 mos, wore it for 4.5 mos & we were able to get good correction. She had severe plagio & began at an "older" age so we are very happy with her results. Your son is younger, so he will be hitting growth spurts & you should get good improvement.How is his torticollis coming? Best of luck with everything. Please be sure to keep us posted on his progress. Welcome again.Debbie Abby's mom DOCGradMI> Hi Everyone!> > I'm new to this group. My son was diagnoised with torticollis at > three months and has been in therapy since. He's now 7.5 months with > some minor facial and head asymmetry. > > My husband and I went to a Craniofacial doctor in March and he > recommended my child get the helmut. The torticollis caused some > flatness (even with some repositioning for two months) on his right > side of head, one ear is more forward than the other, and one eye > socket is a little bigger.> I was reluctant to do the helmut at first. But I convinced myself to > do it. I hope it can come off by his first birthday.> > Nothing is noticable on his face to others unless I point it out. > But, we see it so I guess it's the right thing to do.> > Has anyone out there had success with the helmut? How much or how > little improvement? How long was it worn? Any pointers? or words of > wizdom or advice?> > Thanks to anyone who answers.....For more plagio info Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 2002 Report Share Posted April 22, 2002 Hi and welcome to the group! I'm glad to hear that improvement is being made on your son's tort, getting that addressed will help with the plagio. Good luck with the helmet, be sure to let us know how your son does with it! Niki Kaylie & Danny (STAR grads) Phila.,PA > Hi Everyone! > > I'm new to this group. My son was diagnoised with torticollis at > three months and has been in therapy since. He's now 7.5 months with > some minor facial and head asymmetry. > > My husband and I went to a Craniofacial doctor in March and he > recommended my child get the helmut. The torticollis caused some > flatness (even with some repositioning for two months) on his right > side of head, one ear is more forward than the other, and one eye > socket is a little bigger. > I was reluctant to do the helmut at first. But I convinced myself to > do it. I hope it can come off by his first birthday. > > Nothing is noticable on his face to others unless I point it out. > But, we see it so I guess it's the right thing to do. > > Has anyone out there had success with the helmut? How much or how > little improvement? How long was it worn? Any pointers? or words of > wizdom or advice? > > Thanks to anyone who answers..... Quote Link to comment Share on other sites More sharing options...
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