Summer Plans

[Guest guest]

think about wait listing for camps. Last year I wait listed Elie for camp

for the end of summer after his first week was so great at the beginning of

summer. Someone got sick and he got the slot. I know that wreaks havoc on

planning, but hope is better than none!! :~()

Sara

_________________________________________________________________

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[Guest guest]

Marisa,

All my kids have MediCal from the adoption program. CHAMPUS is our

primary(they don't pay for diapers) and MediCal is the secondaryl. I think

they all have the waiver. We get 2 cases of diapers a month per

kid(Tim{pull-ups}, JJ & Essie{diapers}) Our insurance does not pay but

MediCal does. Regional Center makes the arrangements. Those are call the

diaper company and they get the prescription from our doctors office.

MediCal does the TAR and the diapers are delivered to the door.

We had a few months that Essie did not get diapers, then they delivered 12

cases!!! So there is a family with an autistic that can only get 2 cases a

month. I return the extras to RC and they take them to this family.

Sometimes they keep a supply for families that run out.

& Garry, parents of (10 ds), (9 ds), JJ (7

ds/autism/celiac), (6 ds/ADHD/Celiac), and Esther (4 ds). All adopted.

[Guest guest]

In a message dated 5/14/01 2:33:48 PM Eastern Daylight Time, duffey48@...

writes:

<< Gail,

Stroudsburg is up in the mountains. I would say it's 1 1/2 hours away

from me. You're always welcome at my home honey!!! :-) When are you

headed that way?

Donna >>

Donna,

We will be taking jo to gymnastics camp on August 18th and picking her up

on the 25th. I'm not sure whether they will be day trips or over-nighters

yet. I'll have to see how many attractions there are in the area to visit

first. Becky will go to music camp at Mansfield College, PA, and I know that

is no where near you! LOL

Gail

[Guest guest]

No i dont think so, our case manager is gone until

friday. i dont understand he has got in previous times

with no probs, we always just fill out the stuff and

send it back as soon as we get the application. I may

email them and see about placement as soon as spot

opens if it does. shawna.

--- duffey48@... wrote:

> In a message dated 5/14/01 9:30:23 AM Eastern

> Daylight Time,

> mashawnag@... writes:

>

>

> >

> >

> >

> >

> >

> > im totoally devastated, we did get funding for

> > nathan's trike but now we just got a letter

> stating

> > there are no slots for him at camp this year, i

> dont

> > understand, we applied in march for crying

> outloud!!!

> > When didi the others apply? the year before?

> errrrrr.

> >

>

> Uh Oh a!!! I'm so sorry. Do you have any

> other options?

> Donna

>

>

> [Non-text portions of this message have been

> removed]

>

>

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[Guest guest]

Hi, my AS son is nearly 9. He went to summer camp for the first time last year. It was only 5 days and 4 nights. I phoned the camp before it started and explained to them about . I told them there were things he just will not eat no matter what, and some activities he will just not try no matter what. I explained that he doesn't like to be touched, (although I don't think he would do anything like hit or anything like that - he just doesn't like it) I also let them know that I carry a cell phone at all times and that for any reason, day or night, was allowed to call me. That was the assurance he needed to know that I would be there for him whenever he needed me. Once we got to the camp I was able to talk to the councelors that were in his cabin to explain things to them, plus I met with other camp personel and told them about too. Anyway, I think I was there longer than any other parent but - who cares, this was about my son!! Well, the good news was that he had a wonderful time and can't wait to go back this year. Everyone was very accepting of him. He tried most activities but only ate what he wanted, which was fine as the food was not served to the kids, it was a "help yourself" deal so he only took what he liked.

I guess this was kind of long but the camp experience was wonderful for and I hope your son can also have a good camp experience this summer. Talk to the camp people. You'll probably get a good idea of how they feel about having your son at camp just from talking to them.

Good luck!

Estevan, Saskatchewan

Canada

-- Summer Plans

Hello, My son is 11 with Aspergers. The usual story, very bright, charming child, but when you try to direct him, he balks and is uncooperative. School is a nightmare because he does not see the value in it, regardless of what we tell him. School ends in 2 weeks. I have NO summer plans for him. I work. He wants very much to go to a resident camp for which he saw a video. Problem is, this is a mainsteam camp, there is going to be no accomodation for "I don't want to", "I'm not going to eat that" or other sensory things. He is not extreme, but does need to be handled carefully. Do not touch him or allow him to be touched, he will throw out an arm to ward off whoever or whatever is touching him. So, my question is, has anyone sent their child with Aspergers to summer camp? Any recomendations? I would like a residential camp. He has no problems being away from home. In researching options, I have found a few camps like Talisman and Soar. Any experience? Opinions? Anyone?I am searching out other options, but would like to give him the camp away experience and would like it to be fun. Thanks.BeckyH

[Guest guest]

Hello: There are summer camps specifically designed for persons with all kinds of special needs. Contact the Autism Society of America, I am sure they can give you some ideas. Call social services in your school district; talk with the counselor at his school. Where do you live? Many school districts have Extended Summer School programs. Talk with your son's counselor at his school. My son who is now grown attended extended summer school programs, Vacation Bible School, church camp(many churches will accept children from other denominations and church camp counselors are for the most part very sensitive to children's needs, you would have to discuss this with the minister and the camp counselor) and Boy Scout camp at your son's age. I know of several denominations that have camps for children with special needs. Tell your son, point blank, that there is no way he could go to that camp because his behaviors would be totally unacceptable and that he would be sent home the first day by the camp counselors. You need to start out with a day camp first and work up to a residential camp. I can call you long distance for no charge. Its the way my long distance service is set up(I have family/friends all over the U.S). Let me know what you find out. God Bless, JDW <hollands@...> wrote: Hello, My son is 11 with Aspergers. The usual story, very bright, charming child, but when you try to direct him, he balks and is uncooperative. School is a nightmare because he does not see the value in it,

regardless of what we tell him. School ends in 2 weeks. I have NO summer plans for him. I work. He wants very much to go to a resident camp for which he saw a video. Problem is, this is a mainsteam camp, there is going to be no accomodation for "I don't want to", "I'm not going to eat that" or other sensory things. He is not extreme, but does need to be handled carefully. Do not touch him or allow him to be touched, he will throw out an arm to ward off whoever or whatever is touching him. So, my question is, has anyone sent their child with Aspergers to summer camp? Any recomendations? I would like a residential camp. He has no problems being away from home. In researching options, I have found a few camps like Talisman and Soar. Any experience? Opinions? Anyone?I am searching out other options, but would like to give him

the camp away experience and would like it to be fun. Thanks.BeckyH __________________________________________________

[Guest guest]

BeckyH,

Your son sounds a lot like mine, same age and all, except for the touching. He only has a problem with it when he is agitated. We are sending our son to a "teen club rec. center" through our local parks and recreation. It is almost free, only a dollar a day and it is from noon until 5p.m. and they are going to provide him with an "inclusion coach" to help him with any problems or social issues.

The children will do arts, crafts, viedo games, basketbal, swimming, & field trips (feild trips are extra $). This is our first time trying this. Perhaps you have something similar in your area. We live in Virginia.

Jeanette

Summer Plans

Hello, My son is 11 with Aspergers. The usual story, very bright, charming child, but when you try to direct him, he balks and is uncooperative. School is a nightmare because he does not see the value in it, regardless of what we tell him. School ends in 2 weeks. I have NO summer plans for him. I work. He wants very much to go to a resident camp for which he saw a video. Problem is, this is a mainsteam camp, there is going to be no accomodation for "I don't want to", "I'm not going to eat that" or other sensory things. He is not extreme, but does need to be handled carefully. Do not touch him or allow him to be touched, he will throw out an arm to ward off whoever or whatever is touching him. So, my question is, has anyone sent their child with Aspergers to summer camp? Any recomendations? I would like a residential camp. He has no problems being away from home. In researching options, I have found a few camps like Talisman and Soar. Any experience? Opinions? Anyone?I am searching out other options, but would like to give him the camp away experience and would like it to be fun. Thanks.BeckyH

[Guest guest]

Hello,

This is my first posting to this group. I am a new member. I am

not sure where you are located, but here in NY there is a camp

called " Anchor Camp " which specializes in catering to children up to

18 years old, that have special needs. I have the opposite

problem... my son (also 11) has to attend school through the summer,

and since it is on a reduced schedule, I have no where to send him

come 2 in the afternoon. I am a single working parent, and he can

not be left alone. Good luck with your search and with your summer.

AmyR.

Long Island, NY

>

> Hello,

>

> My son is 11 with Aspergers. The usual story, very bright,

charming

> child, but when you try to direct him, he balks and is

> uncooperative. School is a nightmare because he does not see the

> value in it, regardless of what we tell him.

>

> School ends in 2 weeks. I have NO summer plans for him. I work.

He

> wants very much to go to a resident camp for which he saw a

video.

> Problem is, this is a mainsteam camp, there is going to be no

> accomodation for " I don't want to " , " I'm not going to eat that "

or

> other sensory things. He is not extreme, but does need to be

handled

> carefully. Do not touch him or allow him to be touched, he will

> throw out an arm to ward off whoever or whatever is touching him.

>

> So, my question is, has anyone sent their child with Aspergers to

> summer camp? Any recomendations? I would like a residential

camp.

> He has no problems being away from home.

>

> In researching options, I have found a few camps like Talisman and

> Soar. Any experience? Opinions? Anyone?

>

> I am searching out other options, but would like to give him the

camp

> away experience and would like it to be fun.

>

> Thanks.

>

> BeckyH

>

[Guest guest]

Campfire USA will usually take kids who have ASpergers and Sensory issues. My son went for 2 years and it worked pretty well. What state are you in? CrystalDesignladyt <designladyt@...> wrote: I don't have news you'll like probably. I've been sending my son to summer camp for 5 years. The problem is the first 4 it took me going to and the first two years he was in my

cabin. I made procures about Aspergers for all the counslers and dean. I also made procures for the kids in their language about Aspergers. The first year wasn't easy..it got a little better each year. He can be with ND teens now without me. In fact he has done several work projects this spring with his youth group and done a good job. He is doing wonderfully but I have mentored him with some great kids which has helped. Good luck to you and your son this summer. Designladyt

Feel free to call! Free PC-to-PC calls. Low rates on PC-to-Phone. Get Messenger with Voice

[Guest guest]

Campfire USA will usually take kids who have ASpergers and Sensory issues. My son went for 2 years and it worked pretty well. What state are you in? CrystalDesignladyt <designladyt@...> wrote: I don't have news you'll like probably. I've been sending my son to summer camp for 5 years. The problem is the first 4 it took me going to and the first two years he was in my

cabin. I made procures about Aspergers for all the counslers and dean. I also made procures for the kids in their language about Aspergers. The first year wasn't easy..it got a little better each year. He can be with ND teens now without me. In fact he has done several work projects this spring with his youth group and done a good job. He is doing wonderfully but I have mentored him with some great kids which has helped. Good luck to you and your son this summer. Designladyt

Feel free to call! Free PC-to-PC calls. Low rates on PC-to-Phone. Get Messenger with Voice

[Guest guest]

Hi Becky,

Have you looked into Cub Creek Science camp? It is located in Rolla

and they are great with kids with different needs. The work with both

kids with special needs and without. Depending on the age of your son

they still have a few openings. The website is BearRiverRanch.com.

Hope this helps.

Jan

>

> Hello,

>

> My son is 11 with Aspergers. The usual story, very bright, charming

> child, but when you try to direct him, he balks and is

> uncooperative. School is a nightmare because he does not see the

> value in it, regardless of what we tell him.

>

> School ends in 2 weeks. I have NO summer plans for him. I work. He

> wants very much to go to a resident camp for which he saw a video.

> Problem is, this is a mainsteam camp, there is going to be no

> accomodation for " I don't want to " , " I'm not going to eat that " or

> other sensory things. He is not extreme, but does need to be handled

> carefully. Do not touch him or allow him to be touched, he will

> throw out an arm to ward off whoever or whatever is touching him.

>

> So, my question is, has anyone sent their child with Aspergers to

> summer camp? Any recomendations? I would like a residential camp.

> He has no problems being away from home.

>

> In researching options, I have found a few camps like Talisman and

> Soar. Any experience? Opinions? Anyone?

>

> I am searching out other options, but would like to give him the camp

> away experience and would like it to be fun.

>

> Thanks.

>

> BeckyH

>

[Guest guest]

I don't have news you'll like probably. I've been sending my son to summer camp for 5 years. The problem is the first 4 it took me going to and the first two years he was in my cabin. I made procures about Aspergers for all the counslers and dean. I also made procures for the kids in their language about Aspergers.

The first year wasn't easy..it got a little better each year. He can be with ND teens now without me. In fact he has done several work projects this spring with his youth group and done a good job. He is doing wonderfully but I have mentored him with some great kids which has helped.

Good luck to you and your son this summer.

Designladyt

[Guest guest]

Becky,

I don't know if this is an option where you live (I'm in Ontario),

but here you can apply for respite funding and then hire someone to

accompany your child to camp. I am sending my AS son just to a day

camp for the first time and so his friend's mom and I are hiring a

respite worker to go along with the two boys. Usually college

students taking CYW or ECE hire themselves out for this. Maybe that

is something you can look into.

W.

>

> Hello,

>

> My son is 11 with Aspergers. The usual story, very bright,

charming

> child, but when you try to direct him, he balks and is

> uncooperative. School is a nightmare because he does not see the

> value in it, regardless of what we tell him.

>

> School ends in 2 weeks. I have NO summer plans for him. I work.

He

> wants very much to go to a resident camp for which he saw a

video.

> Problem is, this is a mainsteam camp, there is going to be no

> accomodation for " I don't want to " , " I'm not going to eat that "

or

> other sensory things. He is not extreme, but does need to be

handled

> carefully. Do not touch him or allow him to be touched, he will

> throw out an arm to ward off whoever or whatever is touching him.

>

> So, my question is, has anyone sent their child with Aspergers to

> summer camp? Any recomendations? I would like a residential

camp.

> He has no problems being away from home.

>

> In researching options, I have found a few camps like Talisman and

> Soar. Any experience? Opinions? Anyone?

>

> I am searching out other options, but would like to give him the

camp

> away experience and would like it to be fun.

>

> Thanks.

>

> BeckyH

>

[Guest guest]

HI there,

Whoever mentioned respite funding for camp, for having an aide along, well that is available at some places in the US, but BUUUUTTTTTTTTTT A family must apply and be accepted and almost always have a ver low income as well as a documented disability and proof of needs for that child. The state of PENN has something however, and one's income, I am told does not have to be that low. So, it might be state to state here in the states!

in IL-- nothing here in IL

[Guest guest]

We do happen to have school holidays in July for 2 weeks. ( We have 4 x

10 week school terms here, with 2 weeks break in between each term,

wioth 6-7weeks summer holidays -xmas time- for you guys who dont know

how Aussie schools work....)

Our school runs a vacation care program with heaps of activities etc.

Natasha is old enough to pick her own stuff she wants to do, so we sit

and she tells me what she wants to do, and then I co-ordinate other days

for her to be with her friends.

attends his daycare as usual, but his kindy stops during the

holidays. Due to the weird way South Australia runt heir school intake

programs, starts school in October, so he will be able to attend

vacation care at the school in September holidays.

(ds) he will go to the vacation care. I usually get him in there

3 or 4 days of the week to keep him occupied- he loves it there. He gets

funding to get support , so that means that the child to adult ratio is

reduced. He isnt suppose dot get 1:1 attention, but he usually does

BJ does have friends at school, but they dont always want to play with

him outside of school. We will see if he gets any invites this holidays.

He is fitting in with this class this year really well.

Aussie Leis- mum to , Natasha, and Liliana

A woman knows she's wearing the right dress, when her man wants to take

it off.

CSBC wrote:

> Ok..yuns are being too quiet. What are your summer (or winter for our friends

" down under " ) plans?

>

> This is the first year that we will not be going to the beach for the 4th of

July. Tim is turing 50 on July 30th so I will be having a party for him and the

best part -- TJ will be home for that weekend!!!!!! The worse part is that TJ

will be returning to Iraq after his R & R until February 2009. and her

husband are moving to Texas (anyone from Lubbock, here?) in August. She dropped

off her pugs (only a seven hour drive each way from her house..lol) for us to

watch while they are on their house hunting trip.

>

> So sometime this summer, I will be going to NC or Texas as moves, maybe

a trip to Tennessee where I'd have to visit Kathy..lol. better get use

to flying longer than 2 hours...cause we will be making trips to Texas by plane

since gas is too high!

>

> is not going to ESY - his respite worker is here every morning and

Katey takes over at 1:00. He is back to his intense fascination with windows

and lights...driving me crazy. We are getting a behavioral consultant in the

home soon..I can't wait!! It's sad that we had to move out of Virginia and back

to WV to get the community support services he needs. We lost a great education

system in the process and I certainly have my hands full with the school here.

>

>

>

>

>

>

[Guest guest]

>>maybe a trip to Tennessee where I'd have to visit Kathy..lol.

YES come on down I told (oldest daughter for those who didn't know

lol) that I need to get , Tim and down here this summer for some

time on Mike's Redneck Yacht ............. his FAV song is Redneck Yacht Club

lol or maybe a bunch of us girls can get together and get a cabin (my type of

camping lol) and spend the days on the water. has learned how to pull

the boat out of the dock so she can chauffeur us heehee

We definitely need some girly time, the last time I saw you all was in PA wasn't

it? OOOOOOOOOh Sara reminded me when and I were talking that she's

almost 17 so she gets to go on girly trips lol

Summer here has been slow, going to my sisters pool, the lake and in 10 days we

are heading to Destin. We've made a few Memphis trips to see Mike's dad and some

trips were made without me so I had the house all to myself. Sara's not doing

ESY or camp this summer due to Mike's dads health and all the travel we've had

to do so far.

Sara's learning how to cook, she made garlic bread for dinner last night and

tomorrow I'm teaching her how to make shrimp and rice and salad. I'm loving her

interest and spending time with her in the kitchen (not my fav room lol) Sara

and I are spending a lot of grown up time together, she's such a teenager with

the exception that she likes me I'm not working on the house this summer,

figure I'll get back to it this fall so we are unscheduled, sleep in and do

stuff on the whim ........... enjoying being laid back

Kathy mom to Sara 16

[Guest guest]

Kathy,

I'm sorry that your life has been in such " turmoil " this past year. That word

seems like such an understatement! I wish we lived closer and I could be there

to give you a hug and some support.

My prayers are with you all and I hope healing starts for you all quickly.

[Guest guest]

Been nice reading some of your plans for your ever so long holiday break. I

really don't know how you manage with the kids home for that period of time.

When my kids where all at school, I really did enjoy having them home but

don't know if I would have coped if it was any longer than the 5-6 weeks we

have, which is broken up with Christmas and New Year festivities.

At the end of this week, we start our Winter holidays (2 weeks) or in

Trent's case he has 1 week at term break. Depending on how I feel sometimes

he has two weeks. I do get very tired of not only driving him into Geelong

but being on his back to get ready of a morning. It appears to be getting

harder and harder as the years go by. I am sure he is bored with his

program, but loves the staff and some of the other clients. I do have the

option of changing his service provider just not sure if I would be doing

the right thing.

Anyway why I entered into this conversation was basically to do some holiday

bragging - Trent is off to New Zealand at the end of august for 11 days

with his day program - costing a small fortune as clients have to contribute

towards staff costs. They are doing a coach tour around the North Island.

While he is away, Shannen and I are heading to Hong Kong for 5 days and

Singapore for 2 to arrive back in Melbourne in time to pick him up from

airport. I'm excited and looking forward to a few days of warmth - sort of

over winter and being cold. It isn't so much that it is cold here, more

that we don't really warm our houses like those in the Northern Hemisphere

do. When my eldest daughter came back from living in Japan, her comment was

basically that we are in denial that it does get cold here. Not me though,

I like to be warm and do wear several layers and my side of the bed has

extra blankets - nice cosy sleeps are great.

Talking of bed, think I might start heading - heat the wheat bag - get the

cat in - grab a book and snuggle in for the night.

Keep smiling

Jan, mother of Trent 23yo w/DS from the LandDownUnder