Guest guest Posted May 7, 2002 Report Share Posted May 7, 2002 Helen: I was curious how repositioning is going with your daughter? Have you had any luck with any repositioning products? You have an appt with a specialist Friday, May 10 right? Please let us know how that goes. I hope you've had success with repositioning thus far! Good luck Friday, please keep us updated. Debbie Abby's mom DOCGrad MI Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 2002 Report Share Posted May 17, 2002 I had my appointment with my daughter last Friday. We saw Dr. Proctor at the Childrens Hospital in Boston (whom I found through this site!). He measured her head and told me that he felt she was fairly advanced and that even with repositioning, it was unlikely we would have great results. So he wrote a prescription for a helmet and before I knew it my daughter was covered in plaster being casted for a helmet at NOPCO. I wasn't expecting it that very day so I was a little stressed. But the man at NOPCO who did the fitting was incredibly nice and very helpful. I was really happy I decided to bring her to be looked at now instead of waiting. They were very enthusiastic about her young age (4 1/2 months now) since she is likely to get good results. I was told that she may be able to wear the helmet for 2 months full time and then possibly just at night after that for 2 more months? She gets her helmet next Friday. I'm just a little concerned about her somewhat sensitive skin, the hot weather coming, and if she will have trouble sleeping in it at first. We are also doing neck stretches although the Dr. felt that she didn't seem to have too much of a problem with that. I have an appointment with her regular ped. this afternoon and I feel a little bad that I never even consulted her. I just made an appointment with a specialist and went. I don't need a referral for my insurance. I have no idea whether the helmet will be covered or not. I know the plagio website recommends waiting for an answer from your insurance before getting the helmet but I just didn't want to let them be the boss of my daughter's treatment. If that means I pick up the tab, so be it. I will of course try to get them to cover at least some. Thanks so much for your help and I will be sure to update after we get the helmet! Helen and Grace -- In Plagiocephaly@y..., " debbieandabby " <dj2kirby@c...> wrote: > Helen: > I was curious how repositioning is going with your daughter? Have > you had any luck with any repositioning products? You have an appt > with a specialist Friday, May 10 right? Please let us know how that > goes. I hope you've had success with repositioning thus far! Good > luck Friday, please keep us updated. > Debbie Abby's mom DOCGrad > MI Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 19, 2002 Report Share Posted May 19, 2002 Helen: I am sorry that you didn't have better success with repositioning, but am happy to hear that the casting was done so fast & all went well! It might be better that you didn't know ahead of time she'd be casted, that way you didn't stress too much about it for a week in advance . Thanks so much for the update. Please let us know when her helmet is in Fri & how Grace adjusts to it. I am sure she'll sleep fine in it & all will be fine. Good luck Fri! Debbie Abby's mom DOCGrad MI > > Helen: > > I was curious how repositioning is going with your daughter? Have > > you had any luck with any repositioning products? You have an appt > > with a specialist Friday, May 10 right? Please let us know how > that > > goes. I hope you've had success with repositioning thus far! Good > > luck Friday, please keep us updated. > > Debbie Abby's mom DOCGrad > > MI Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 19, 2002 Report Share Posted May 19, 2002 Hi Helen! Sounds like you really have things rolling now - wow - good work!! I think given your daughter's young age you have a great chance of seeing excellent improvement pretty quickly. I hope that you will let us know how the helmet fitting goes on Friday - I think you will be truly amazed at how quickly Grace adjusts. Keep us posted! Marci (Mom to ) Oklahoma Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 21, 2002 Report Share Posted May 21, 2002 Helen, So good to hear from you again and sorry that the repositioning did not work for you in " fixing' the problem, but I'm sure it helped greatly in keeping it from progressing any further. As you know the repositioning is hard work, and your a great mom for doing as much as you could in that regard. Many of us have found that repositioning did not correct what had already begun, despite our best efforts, and I think you will feel a great sense of relief when you start seeing those results from the helmet! Grace will do just fine, and please keep us posted with her progress! Good luck! ' Mom Quote Link to comment Share on other sites More sharing options...
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