Guest guest Posted April 27, 2002 Report Share Posted April 27, 2002 Debbie, Thanks for your kind words. We'll keep you posted. I notice he's been tilting more than before. Is that normal in the beginning? Bonnie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 2002 Report Share Posted April 28, 2002 Hi Bonnie: Like Kendra already replied to you, this is somewhat common in the beginning of wearing a band. I'm not a tort. expert either though, I am sure will reply to you with her expert advice.! You also asked if there are any side effects to the STARband. I'm assuming you are wondering about physical or emotional delays? To my knowledge, there are not. I have been a member of this group for 1.5 yrs now and have never heard of any developmental delays as a result of any type of band or helmet therapy. My daughter wore both the STARband & DOCband and has no developmental delays today - she is 26 mos old.. Make sure Dylan's orthotist is educated & experienced in treating plagio baby's with the STARband. I hope you start to see improvement soon! Please be sure to keep us updated. Good luck. Debbie Abby's mom DOCGrad MI > Debbie, > > Thanks for your kind words. We'll keep you posted. I notice he's been > tilting more than before. Is that normal in the beginning? > > Bonnie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 30, 2002 Report Share Posted April 30, 2002 What do you mean? Who are you talking about? dfishcpo@... wrote: Wow - a little drug therapy never hurts! I don't know what she's on these days, but I think I want some. She actually had a nice/supportive comment about the STARband.DeannaFor more plagio info Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 30, 2002 Report Share Posted April 30, 2002 What do you mean? Who are you talking about? dfishcpo@... wrote: Wow - a little drug therapy never hurts! I don't know what she's on these days, but I think I want some. She actually had a nice/supportive comment about the STARband.DeannaFor more plagio info Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 30, 2002 Report Share Posted April 30, 2002 Don't worry about it Bonnie. The person who it was directed to, and the person who it came from have worked everything out. It was a slip of the "tongue" and a slip of the mouse. End of story. Kendra Re: Re: Dylan's new Starband What do you mean? Who are you talking about? dfishcpo@... wrote: Wow - a little drug therapy never hurts! I don't know what she's on these days, but I think I want some. She actually had a nice/supportive comment about the STARband.DeannaFor more plagio info Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 1, 2002 Report Share Posted May 1, 2002 Hi Bonnie, It could be that Dylan is feeling a little " off " from himself with his new hat, and tort kids as I have experienced do tend to tilt or revert back to tilting for a period making it seem worse when they need that comfort zone position. They tend to do this when learning new milestones like crawling, walking, and even with teething and illness. I have learned through this journey that just when I think its worse, its not! The tilt will come and go, but your therapy must remain a constant for as long as possible in my opinion- especially at a younger age when they can't run and squirm away from you as much!! You can also try more " righting " exercises- which will strengthen the non-tort muscle. The tort muscle needs to be stretched out, but the non-tort muscle can be so weak that it doesn't have enough " pull " effect to actually right the head now that the muscle has given way on the other side. You can sit your child on your lap, facing the tv with Elmo and friends, and tilt towards the tort side. Your child will have a natural instinct to keep the head in an upright position, instead of sideways and will only be able to do this by using that non-tort muscle. After time, the tilt will get better as long as you continue to monitor that the tort muscle is stretched out as well and continue to do exercises to ensure that it is. Good luck to you- keep the faith, I have learned to be soooo patient with tort- it can really play games with you thinking one day its gone, the next its worse! Hang in there! As Marci suggested, the www.torticolliskids is a great sounding board for lots of tips and parents experiencing the same thing- many of us are members of both since they are so related for some of us! Please keep us posted on Dylan! ' Mom Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2002 Report Share Posted May 2, 2002 ! Thanks for the informative advice on treating the TORT. That exercise is one thing my therapist showed me to do. I'll have to do it more often. Bonnie rella1234@... wrote: Hi Bonnie,It could be that Dylan is feeling a little "off" from himself with his new hat, and tort kids as I have experienced do tend to tilt or revert back to tilting for a period making it seem worse when they need that comfort zone position. They tend to do this when learning new milestones like crawling, walking, and even with teething and illness. I have learned through this journey that just when I think its worse, its not! The tilt will come and go, but your therapy must remain a constant for as long as possible in my opinion- especially at a younger age when they can't run and squirm away from you as much!! You can also try more "righting" exercises- which will strengthen the non-tort muscle. The tort muscle needs to be stretched out, but the non-tort muscle can be so weak that it doesn't have enough "pull" effect to actually right the head now that the muscle has given way on the other side. You can sit your child on your lap, facing the tv with Elmo and friends, and tilt towards the tort side. Your child will have a natural instinct to keep the head in an upright position, instead of sideways and will only be able to do this by using that non-tort muscle. After time, the tilt will get better as long as you continue to monitor that the tort muscle is stretched out as well and continue to do exercises to ensure that it is. Good luck to you- keep the faith, I have learned to be soooo patient with tort- it can really play games with you thinking one day its gone, the next its worse! Hang in there! As Marci suggested, the www.torticolliskids is a great sounding board for lots of tips and parents experiencing the same thing- many of us are members of both since they are so related for some of us! Please keep us posted on Dylan!' MomFor more plagio info Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2002 Report Share Posted May 2, 2002 Bonnie, Great!! So you know what my babbling was all about! I make a game out of this and do it as often as possible, and you can even be creative and use different positions that will generate the same goal. Good luck to you!!! ' Mom Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 23, 2004 Report Share Posted March 23, 2004 Hi Beth- I had to hop on here, since we are also in GR and my 6.5 month daughter has a STARBand from MFB. She was banded on Feb 10, but we've had some issues with fit, and so she has really only been wearing it about 3-4 weeks off and on. Who do you see at MFB? The best thing I did to get used to Abigail's band was to decorate it and put her name on it. People in the grocery store stop to talk to her, and it really breaks the ice and makes me feel less self- conscious about it. I found I just had to get over being shy, and I started looking people in the eye when they stare, and I am always willing to explain what it's for. Within the first week, we were so used to seeing her wearing it, that when we had to have it off, she looked funny to us! You really will get used to it, I promise! Who is your ped? Maybe I've heard of him/her. Feel free to email me if you have questions... two of the mods are also from here in GR, too! , mom to Abigail - STARBanded 2/10 & 3/16 and tort > My son Dylan, is 10 months old. He was first diagnosed with > positional plagiocephaly at 4 months old. He was seeing our family > doctor at the time. I have had friends with babies who've had flat > spots on their heads and all of their heads rounded out. So, when > he was six months old, our doctor referred him to a cranio-facial > surgeon to see if a helmet was needed. We felt as if our doctor was > being too aggressive and didn't want to believe that Dylan might > need a helmet. So, at 8 months, we switched Dylan to a pediatrician > to get a second opinion. She recommended a helmet. He just received > his Orthomerica Starband on Friday and has adjusted so well to it. > He barely even notices it. My husband and I are not doing as well. > We are having a hard time seeing our little baby with a helmet > covering everything but his face and ears. I had no idea it would > be so big! I don't really have any questions for the group but > would like to hear how other parents have adjusted to this. > > Thanks, > > Beth > Grand Rapids, MI Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 23, 2004 Report Share Posted March 23, 2004 Hi Beth, I just wanted to welcome you to the group and tell you that I think we all have a hard time at first seeing our precious little ones in these " hugh " helmets/bands, but believe me, you'll get used to it real soon. After awhile, he'll look 'odd' to you with out it. And, before you know it, he'll be out of it and you'll even miss it a bit. I know that is hard to believe, but you'll see what I am talking about soon enough :-) Please keep us posted on him!! mom to makenna LLUMC helmet grad. > My son Dylan, is 10 months old. He was first diagnosed with > positional plagiocephaly at 4 months old. He was seeing our family > doctor at the time. I have had friends with babies who've had flat > spots on their heads and all of their heads rounded out. So, when > he was six months old, our doctor referred him to a cranio-facial > surgeon to see if a helmet was needed. We felt as if our doctor was > being too aggressive and didn't want to believe that Dylan might > need a helmet. So, at 8 months, we switched Dylan to a pediatrician > to get a second opinion. She recommended a helmet. He just received > his Orthomerica Starband on Friday and has adjusted so well to it. > He barely even notices it. My husband and I are not doing as well. > We are having a hard time seeing our little baby with a helmet > covering everything but his face and ears. I had no idea it would > be so big! I don't really have any questions for the group but > would like to hear how other parents have adjusted to this. > > Thanks, > > Beth > Grand Rapids, MI Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 23, 2004 Report Share Posted March 23, 2004 Beth, Welcome to the group! It gets easier as time goes on, you'll adjust. I'm so happy to hear that Dylan is adjusting so well. Please keep us posted on his progress. > My son Dylan, is 10 months old. He was first diagnosed with > positional plagiocephaly at 4 months old. He was seeing our family > doctor at the time. I have had friends with babies who've had flat > spots on their heads and all of their heads rounded out. So, when > he was six months old, our doctor referred him to a cranio-facial > surgeon to see if a helmet was needed. We felt as if our doctor was > being too aggressive and didn't want to believe that Dylan might > need a helmet. So, at 8 months, we switched Dylan to a pediatrician > to get a second opinion. She recommended a helmet. He just received > his Orthomerica Starband on Friday and has adjusted so well to it. > He barely even notices it. My husband and I are not doing as well. > We are having a hard time seeing our little baby with a helmet > covering everything but his face and ears. I had no idea it would > be so big! I don't really have any questions for the group but > would like to hear how other parents have adjusted to this. > > Thanks, > > Beth > Grand Rapids, MI Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2004 Report Share Posted March 24, 2004 Hi Beth, The helmet never really bothered me, I was so happy to be getting my son treatment. After a while you will get used to it and it will become a part of Dylan. Is your's white where you can decorate it? That helps. Glad to hear that he has adjusted so well, you will too. Hugs, Natasha > My son Dylan, is 10 months old. He was first diagnosed with > positional plagiocephaly at 4 months old. He was seeing our family > doctor at the time. I have had friends with babies who've had flat > spots on their heads and all of their heads rounded out. So, when > he was six months old, our doctor referred him to a cranio-facial > surgeon to see if a helmet was needed. We felt as if our doctor was > being too aggressive and didn't want to believe that Dylan might > need a helmet. So, at 8 months, we switched Dylan to a pediatrician > to get a second opinion. She recommended a helmet. He just received > his Orthomerica Starband on Friday and has adjusted so well to it. > He barely even notices it. My husband and I are not doing as well. > We are having a hard time seeing our little baby with a helmet > covering everything but his face and ears. I had no idea it would > be so big! I don't really have any questions for the group but > would like to hear how other parents have adjusted to this. > > Thanks, > > Beth > Grand Rapids, MI Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2004 Report Share Posted March 24, 2004 Hi Beth and welcome!! Man, is it in the water up there? lol It will get easier to see Dylan in his STARBand. It is much harder on us the parents than the babies. You'll get use to it and actually think he looks " naked " without it. Keep us updated on his progress. Dustie, mom to , DOCGrad'03 Texas > My son Dylan, is 10 months old. He was first diagnosed with > positional plagiocephaly at 4 months old. He was seeing our family > doctor at the time. I have had friends with babies who've had flat > spots on their heads and all of their heads rounded out. So, when > he was six months old, our doctor referred him to a cranio-facial > surgeon to see if a helmet was needed. We felt as if our doctor was > being too aggressive and didn't want to believe that Dylan might > need a helmet. So, at 8 months, we switched Dylan to a pediatrician > to get a second opinion. She recommended a helmet. He just received > his Orthomerica Starband on Friday and has adjusted so well to it. > He barely even notices it. My husband and I are not doing as well. > We are having a hard time seeing our little baby with a helmet > covering everything but his face and ears. I had no idea it would > be so big! I don't really have any questions for the group but > would like to hear how other parents have adjusted to this. > > Thanks, > > Beth > Grand Rapids, MI Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2004 Report Share Posted March 24, 2004 Hi Beth, Getting used to the helmet usually is harder on the parents! Believe it or not, you'll forget he's wearing it in no time. I'd go out w/Hannah and notice people staring at her and actually wonder why for a second until the helmet would pop into my mind! It does get easier though, and eventually you'll think he looks funny with it off! I'm glad Dylan is adjusting so well though. , mom to Hannah, DOC #3 3/30 Cape Cod, Ma > My son Dylan, is 10 months old. He was first diagnosed with > positional plagiocephaly at 4 months old. He was seeing our family > doctor at the time. I have had friends with babies who've had flat > spots on their heads and all of their heads rounded out. So, when > he was six months old, our doctor referred him to a cranio-facial > surgeon to see if a helmet was needed. We felt as if our doctor was > being too aggressive and didn't want to believe that Dylan might > need a helmet. So, at 8 months, we switched Dylan to a pediatrician > to get a second opinion. She recommended a helmet. He just received > his Orthomerica Starband on Friday and has adjusted so well to it. > He barely even notices it. My husband and I are not doing as well. > We are having a hard time seeing our little baby with a helmet > covering everything but his face and ears. I had no idea it would > be so big! I don't really have any questions for the group but > would like to hear how other parents have adjusted to this. > > Thanks, > > Beth > Grand Rapids, MI Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2004 Report Share Posted March 24, 2004 Thanks so much for the words of encouragement. It helps so much to talk to other parents about this. I've noticed that a lot of our family members and friends who know nothing about this condition tend to say insensitive things sometimes. I can't count how many times I've heard " He's going to hate wearing that helmet " or, " That's going to be hard on you " . I feel that if they know that we're already having a hard enough time with it, we really don't need to hear negative comments. I'm trying so hard to focus on the positives. Knowing that we're doing the best thing for Dylan at this point helps get us through it. I can't wait to start seeing the improvements. I'm sure that is exciting! Beth Grand Rapids, MI > > My son Dylan, is 10 months old. He was first diagnosed with > > positional plagiocephaly at 4 months old. He was seeing our > family > > doctor at the time. I have had friends with babies who've had > flat > > spots on their heads and all of their heads rounded out. So, when > > he was six months old, our doctor referred him to a cranio- facial > > surgeon to see if a helmet was needed. We felt as if our doctor > was > > being too aggressive and didn't want to believe that Dylan might > > need a helmet. So, at 8 months, we switched Dylan to a > pediatrician > > to get a second opinion. She recommended a helmet. He just > received > > his Orthomerica Starband on Friday and has adjusted so well to > it. > > He barely even notices it. My husband and I are not doing as > well. > > We are having a hard time seeing our little baby with a helmet > > covering everything but his face and ears. I had no idea it would > > be so big! I don't really have any questions for the group but > > would like to hear how other parents have adjusted to this. > > > > Thanks, > > > > Beth > > Grand Rapids, MI Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2004 Report Share Posted March 26, 2004 , We see Ellie at MFB. Who do you see? Dylan hasn't been wearing his this week because he's had a virus and a fever for 5 days. We see Dr. Bates at Grand Rapids Pediatrics. It's great that you're doing the helmet at 6 months. I'm sure it will be very successful at her age. Thanks for the advice on dealing with the stares out in public. We took Dylan to church and to Meijer last weekend and it wasn't too bad. People definitely took a longer glance than usual. I know that I was watching for it too. Thanks so much for your support and feel free to email me anytime as well. Dylan typed you this message: 89lplllllloooooooooooooooooooooy=4trfvgggggggggggggggggggggggggggggggggggggggggg\ ggc Not sure what it means but he's definitely having fun at the computer with mom! Beth GR, MI >From: " " <allison@...> >Reply-Plagiocephaly >Plagiocephaly >Subject: Re: Dylan's new Starband >Date: Tue, 23 Mar 2004 19:01:30 -0000 > >Hi Beth- >I had to hop on here, since we are also in GR and my 6.5 month >daughter has a STARBand from MFB. She was banded on Feb 10, but >we've had some issues with fit, and so she has really only been >wearing it about 3-4 weeks off and on. Who do you see at MFB? > >The best thing I did to get used to Abigail's band was to decorate >it and put her name on it. People in the grocery store stop to talk >to her, and it really breaks the ice and makes me feel less self- >conscious about it. I found I just had to get over being shy, and I >started looking people in the eye when they stare, and I am always >willing to explain what it's for. Within the first week, we were so >used to seeing her wearing it, that when we had to have it off, she >looked funny to us! You really will get used to it, I promise! > >Who is your ped? Maybe I've heard of him/her. Feel free to email >me if you have questions... two of the mods are also from here in >GR, too! > >, mom to Abigail - STARBanded 2/10 & 3/16 and tort > > > > My son Dylan, is 10 months old. He was first diagnosed with > > positional plagiocephaly at 4 months old. He was seeing our >family > > doctor at the time. I have had friends with babies who've had >flat > > spots on their heads and all of their heads rounded out. So, when > > he was six months old, our doctor referred him to a cranio-facial > > surgeon to see if a helmet was needed. We felt as if our doctor >was > > being too aggressive and didn't want to believe that Dylan might > > need a helmet. So, at 8 months, we switched Dylan to a >pediatrician > > to get a second opinion. She recommended a helmet. He just >received > > his Orthomerica Starband on Friday and has adjusted so well to >it. > > He barely even notices it. My husband and I are not doing as >well. > > We are having a hard time seeing our little baby with a helmet > > covering everything but his face and ears. I had no idea it would > > be so big! I don't really have any questions for the group but > > would like to hear how other parents have adjusted to this. > > > > Thanks, > > > > Beth > > Grand Rapids, MI > _________________________________________________________________ All the action. All the drama. Get NCAA hoops coverage at MSN Sports by ESPN. http://msn.espn.go.com/index.html?partnersite=espn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2004 Report Share Posted March 26, 2004 Debbie, I know exactly how you felt. We love MFB. They're great there. We see Ellie who is a great Orthotist. She takes so much time with us and called me before we even met her because the receptionist told her that I had questions. It helps so much when you feel like your baby is getting great care. Is Abby done with her band? How is it going? Thanks so much for the reply and I'm sure we'll talk again soon. Beth GR, MI >From: " Debbie " <dj2kirby@...> >Reply-Plagiocephaly >Plagiocephaly >Subject: Re: Dylan's new Starband >Date: Tue, 23 Mar 2004 18:58:32 -0000 > >Hi Beth & welcome to our group: >You must be going to MFB for Dylan's STARband?! I'm in GR as are >several other members, small world! >I too had a very very difficult time seeing my Abby in her band for >the first couple wks even. I even cried about it, meanwhile, she was >happy as a clam & couldn't have cared less. You'll soon adjust to >it, trust me, if I did, you will! After the first couple wks or so, >I no longer noticed it as it became a part of her! >I'm glad Dylan is doing so well in it. He's on his way to a rounder >head. Please keep us posted on his progress. >Debbie >Jenison, MI > > > > > > My son Dylan, is 10 months old. He was first diagnosed with > > > positional plagiocephaly at 4 months old. He was seeing our > > family > > > doctor at the time. I have had friends with babies who've had > > flat > > > spots on their heads and all of their heads rounded out. So, >when > > > he was six months old, our doctor referred him to a cranio- >facial > > > surgeon to see if a helmet was needed. We felt as if our doctor > > was > > > being too aggressive and didn't want to believe that Dylan might > > > need a helmet. So, at 8 months, we switched Dylan to a > > pediatrician > > > to get a second opinion. She recommended a helmet. He just > > received > > > his Orthomerica Starband on Friday and has adjusted so well to > > it. > > > He barely even notices it. My husband and I are not doing as > > well. > > > We are having a hard time seeing our little baby with a helmet > > > covering everything but his face and ears. I had no idea it >would > > > be so big! I don't really have any questions for the group but > > > would like to hear how other parents have adjusted to this. > > > > > > Thanks, > > > > > > Beth > > > Grand Rapids, MI > _________________________________________________________________ Get rid of annoying pop-up ads with the new MSN Toolbar – FREE! http://toolbar.msn.com/go/onm00200414ave/direct/01/ Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.