Guest guest Posted May 3, 2000 Report Share Posted May 3, 2000 , This is so interesting. I have never heard this mentioned before. What few foods Seth does eat, they are either very spicy or very bland. There is no in-between. The tears rolled down my face when I licked the wall where I had put the cayenne pepper, yet Seth didn't seem to notice it was there. I thought maybe it was old and had no taste, boy was I wrong! I put it there to keep him from eating the wall, but that one backfired! I never tried it, but I would assume the plaster walls are bland! Gail Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2000 Report Share Posted May 3, 2000 Loren, I am soooooo interested! Seth has a big problem with the feces issue and we do the oils on cotton ball thing, (we call them smelling parties) but I, or anyone else, have not thought of a tasting box! You can bet I will put this one into use promptly! We knew his pica problem had a lot to do with oral sensory, as he " explores " everything with his mouth and tongue also. We have concentrated on the ingestion of these things more than on the reason for it. Thanks so much for the info. Gail Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2000 Report Share Posted May 3, 2000 , I don't want to get in trouble again, but the problem we have is not smearing the feces. Seth ingests a lot of very weird things, and that is one of them. We do A LOT of sensory things with him daily, and so does school. This has not cut down on his ingestion of " things " in the least. I am eager to try the spicy things every couple of hours to see what happens. It's getting too warm to continue to put his sleeper on backward now. Seth has no problem smearing pudding, jello, whipped cream or any other smearable things, and he doesn't eat those! Can't wait till he is potty trained and it is out of reach! Gail Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2000 Report Share Posted May 3, 2000 Several years ago, I worked in a group home which was designed to be an extension of a school program for kids with autism (mostly adolescents) who needed more intensive services than their parents could give them at home. There was one boy who had some pretty unpleasant behaviors involving feces. We struggled to try to figure out what need that behavior was fulfilling. One idea we came up with was that it could be somehow related to his love of strong smells and tastes. He was always snagging whole onions and raw garlic cloves, loved the hottest, spiciest sauces we could get him, etc. We created a smell and taste box for him which we kept stocked with a variety of sauces and spreads which he could eat on crackers. We also got all different extracts that we would dab on a cotton ball and let him smell. We faithfully made sure he got his " fix " every couple of hours or so, and the unpleasant behavior almost completely disappeared! If we became lax, and didn't provide him with his fix on a regular basis throughout the day, the behavior returned. I found it fascinating! Loren Re: pain tolerance > , > This is so interesting. I have never heard this mentioned before. What few > foods Seth does eat, they are either very spicy or very bland. There is no > in-between. The tears rolled down my face when I licked the wall where I had > put the cayenne pepper, yet Seth didn't seem to notice it was there. I > thought maybe it was old and had no taste, boy was I wrong! I put it there > to keep him from eating the wall, but that one backfired! I never tried it, > but I would assume the plaster walls are bland! > Gail > > ------------------------------------------------------------------------ > If you love your Mother... > Click Here > 1/3653/6/_/691668/_/957370689/ > ------------------------------------------------------------------------ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2000 Report Share Posted May 3, 2000 Thanks for the tip - we are going to work in just such an environment starting in July!! Would you mind sharing which agency or organization you worked with?/ Sara >>> salori@... - 05/03/0 12:38 PM >>> Several years ago, I worked in a group home which was designed to be an extension of a school program for kids with autism (mostly adolescents) who needed more intensive services than their parents could give them at home. There was one boy who had some pretty unpleasant behaviors involving feces. We struggled to try to figure out what need that behavior was fulfilling. One idea we came up with was that it could be somehow related to his love of strong smells and tastes. He was always snagging whole onions and raw garlic cloves, loved the hottest, spiciest sauces we could get him, etc. We created a smell and taste box for him which we kept stocked with a variety of sauces and spreads which he could eat on crackers. We also got all different extracts that we would dab on a cotton ball and let him smell. We faithfully made sure he got his " fix " every couple of hours or so, and the unpleasant behavior almost completely disappeared! If we became lax, and didn't provide him with his fix on a regular basis throughout the day, the behavior returned. I found it fascinating! Loren Re: pain tolerance > , > This is so interesting. I have never heard this mentioned before. What few > foods Seth does eat, they are either very spicy or very bland. There is no > in-between. The tears rolled down my face when I licked the wall where I had > put the cayenne pepper, yet Seth didn't seem to notice it was there. I > thought maybe it was old and had no taste, boy was I wrong! I put it there > to keep him from eating the wall, but that one backfired! I never tried it, > but I would assume the plaster walls are bland! > Gail > > ------------------------------------------------------------------------ > If you love your Mother... > Click Here > 1/3653/6/_/691668/_/957370689/ > ------------------------------------------------------------------------ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2000 Report Share Posted May 3, 2000 The feces thing can also be related to touch and texture. Some replacements for that are chocolate pudding and hair mousse. the mousse and hair texture seems to be a big thing for some kids and replaces the feces smearing behavior. Sara >>> smilinggail@... - 05/03/0 1:03 PM >>> Loren, I am soooooo interested! Seth has a big problem with the feces issue and we do the oils on cotton ball thing, (we call them smelling parties) but I, or anyone else, have not thought of a tasting box! You can bet I will put this one into use promptly! We knew his pica problem had a lot to do with oral sensory, as he " explores " everything with his mouth and tongue also. We have concentrated on the ingestion of these things more than on the reason for it. Thanks so much for the info. Gail ------------------------------------------------------------------------ Get paid for the stuff you know! Get answers for the stuff you don't. And get $10 to spend on the site! 1/2200/6/_/691668/_/957373429/ ------------------------------------------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2000 Report Share Posted May 3, 2000 Hi Sara- The agency was called Peninsula Children's Center but has merged with another agency called, Zonta. Their new name is Achieve. They are located in Palo Alto and San in California. Re: pain tolerance > > > > , > > This is so interesting. I have never heard this mentioned before. What > few > > foods Seth does eat, they are either very spicy or very bland. There is > no > > in-between. The tears rolled down my face when I licked the wall where I > had > > put the cayenne pepper, yet Seth didn't seem to notice it was there. I > > thought maybe it was old and had no taste, boy was I wrong! I put it > there > > to keep him from eating the wall, but that one backfired! I never tried > it, > > but I would assume the plaster walls are bland! > > Gail > > > > ------------------------------------------------------------------------ > > If you love your Mother... > > Click Here > > 1/3653/6/_/691668/_/957370689/ > > ------------------------------------------------------------------------ > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2000 Report Share Posted May 3, 2000 ! I put > it there > to keep him from eating the wall, but that one backfired! I never > tried it, > but I would assume the plaster walls are bland! > Gail Gail, Watch the plaster walls. They contain lead, and he can get lead poisoning from it. (from experience with my oldest when she was small!) S ________________________________________________________________ YOU'RE PAYING TOO MUCH FOR THE INTERNET! Juno now offers FREE Internet Access! Try it today - there's no risk! For your FREE software, visit: http://dl.www.juno.com/get/tagj. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 13, 2008 Report Share Posted November 13, 2008 What kind of extremes are people facing with pain tolerance? I'm think I'm over worried about . He busted his teeth had 3 exposed nerves and it didn't faze him at all. 3 hours of sedated dental work including 2 root canals for the busted teeth and he woke up with no pain at all didn't whine, cry or show any sign of pain. We have seen a neurologist and have an MRI scheduled for the 25th of this month and he said it could just be a down syndrome thing. Just want to get other parents input. Thanks, mom to 9yrs old (DS, Bipolar, anxiety, agressive behaviors, complicated behaviors, extremely high pain tolerance, autistic like tendencies (overstimulation), asthma and allergies) Abbey and a 3yrs old (my " normal " identical twins) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 14, 2008 Report Share Posted November 14, 2008 High Pain Tolerance is often a sign in Down syndrome. My son had a compound fracture of both bones in his leg and never needed pain meds throughout the whole ordeal and even weeks later. He has also broken his wrist and didn't know it until the next day. Now, don't confuse this with the other disorder where the children feel no pain at all, because people with Ds do feel pain. It just isn't as strong as some one without Ds. It isn't something to worry about and there is nothing you can actually do about it. Just be sure that if he falls he can move all of his parts so you know they aren't broken. Kristy Colvin IMDSA President ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ International Mosaic Down Syndrome Association PH: 979-828-4177 Toll Free: 1-888-MDS-LINK http://www.imdsa.org http://www.mosaicmoments.today.com Quote Link to comment Share on other sites More sharing options...
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