Guest guest Posted April 26, 2002 Report Share Posted April 26, 2002 Hi , Its really goods to hear that Rhia is doing so well in her helmet. And even better still that you are seeing some improvment already. I think its a really good idea for you to still seek that second opinion, it definitely couldn't hurt any. Be sure to let us know when you do go to Cranial Tech, and what they say. I'm wishing you continued success! Niki Kaylie & Danny (STAR grads) Phila.,PA > Hello to all: > > Just a quick update: Rhiannon is still doing really well with the > helmet, and we are really pleased with the changes that we've seen so > far, although I have to admit that I hate having to have her wear > it. But, I am grateful that treatment exists, and that we are able > to do this, so I just keep focusing on the outcome. > > I have called Cranial Technologies and have decided that I do want to > take that 5 hour trip probably next month or so to get a second > opinion from them. My hope is that they will look at Rhia and tell > me to go home and be glad that we had such great results!! But, just > for my own peace of mind I want the second opinion. > > We continue on with the Tort issue, and while she stays loose most of > the time some days she seems to be tight, which is puzzling. I guess > the tort issue is a day by day thing, so we'll just keep on with our > therapies and stretching. > > Well, I hear my daughter calling me.. I will update again. Good > luck to all of you as well.. > > , Rhiannon's mom Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 26, 2002 Report Share Posted April 26, 2002 , Don't be discouraged- the tort will seem worse when they hit milestones like teething, walking, crawling- its like a comfort zone they revert back to because its familiar, as I've always been told and have noticed with my son . Keep up with the stretches even when all looks clear, its important so that you don't lose time while they are still young enough to get good stretches in without too much of a fight! Good luck! Please keep us posted! ' Mom Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 26, 2002 Report Share Posted April 26, 2002 : Thanks so much for the update. I am glad to hear how well Rhiannon is doing in her helmet & that you've seen improvement already. That's terrific. It never hurts to get a 2nd opinion. Cranial Tech will give you a very good & honest opinion. Please let us know what they have to say. Keep up with the tort stretches & exercises. I can imagine how frustrating & tiresome it gets after time. I'm sure will offer some good tips. Keep us updated Debbie Abby's mom DOCgrad MI > Hello to all: > > Just a quick update: Rhiannon is still doing really well with the > helmet, and we are really pleased with the changes that we've seen so > far, although I have to admit that I hate having to have her wear > it. But, I am grateful that treatment exists, and that we are able > to do this, so I just keep focusing on the outcome. > > I have called Cranial Technologies and have decided that I do want to > take that 5 hour trip probably next month or so to get a second > opinion from them. My hope is that they will look at Rhia and tell > me to go home and be glad that we had such great results!! But, just > for my own peace of mind I want the second opinion. > > We continue on with the Tort issue, and while she stays loose most of > the time some days she seems to be tight, which is puzzling. I guess > the tort issue is a day by day thing, so we'll just keep on with our > therapies and stretching. > > Well, I hear my daughter calling me.. I will update again. Good > luck to all of you as well.. > > , Rhiannon's mom Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 1, 2002 Report Share Posted May 1, 2002 , Two adjustments in four days??? Wow- like growing like a beanstalk! That's fantastic! The growth spurts probably tired her out also, and they do tilt when tired as well. also had his head tilted when laying down, and another parent asked me about this because their daughter did this too. It was a big joke on the tort board about hanging your child upside down and the tilt was there! I always straighten his head when laying down too. Good luck- hope you have continued growth spurts for Rhia and before you know it, you'll be posting graduation! ' Mom Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 25, 2002 Report Share Posted June 25, 2002 Holy cow !!!!!! Rhia's outgrown her first band already????? That is WONDERFUL news! Geesh, she's gotta look terrific. She's only been in her DOCband a month or a little more right? Wow...I'm SO happy for her & your family. You definitely deserve this after her unpleasant experience prior to the DOCband. I know how worth it every last mile drive is for a rounding head! I am SO happy for you guys. Thanks for such a terrific update. I'm sure Rhia will be crawling around in no time, then mommy will wish she'd just stay in one place again Debbie Abby's mom DOCgrad MI > Hello to all: > > I haven't been active on this website for a while, as I am just too > busy right now, but I want to you all to know that I think of all our > little plagio kids every day! I am hoping all our little ones are > getting rounder, stronger and developing wonderfully, and that moms > and dads are doing great too! > > We have good news with Rhiannon - she has " used up " the life of her > first helmet (she's to the shell now), and will be casting for her > second helmet on Saturday! She corrected to the life of the first > helmet in only one month, and her head is pretty round in the back. > Now to work on some of her other areas (facial asymmetry, > parallelogram shape) with the new helmet. We saw amazing correction > on both of these areas already, but we feel that since she is still > responding so well to the treatment, and since we do have some areas > that can still move, why not do it? When it's over, I want to feel > that we did all we could for my beautiful darling and want to have no > regrets! > > As you all may remember, we are driving 325 miles (that's 5 hours one > way) to the nearest CT. (I live in St. MN, CT is in Madison, WI) > Although I am EXHAUSTED, it is worth every mile. Thank God for CT. > What a wonderful product they have!!! To anyone who has to drive a > ways, please know that it is well worth it! > > Rhiannon's gross motor skills are coming right along. (She has > torticollis as well). Her midline is just fine (she claps!) and she > can roll over both ways, front to back and back to front. She is > almost sitting all by herself (she does so now with a little help), > and we are working on crawling - that one is a little harder for a > baby who doesn't particularily care for her tummy time, but I think > that as soon as she figures out that she can MOVE on her tummy, that > will be motive enough LOL. > > Well, gotta run. Have a great day! > > , Rhiannon's mom Quote Link to comment Share on other sites More sharing options...
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