Re: Thank you and follow-up on

May 2, 2002

and Jim,

It sounds like you guys are on the right track! Good for you doing

the stretches, increasing tummy time, and setting up a PT

evaluation. Hopefully someone here will have some insight on Dr.

Grahm. Keep up the great work, and be sure to keep us posted!

Niki

Kaylie & Danny (STAR grads)

Phila., PA

> Thank you all for your responses and kind wishes. My wife and I

were

> certainly reassured that we weren't paranoid and that we need to be

> proactive advocates for our child's health.

>

> It turns our that has mild Left tort with the

plagiocephaly

> resulting for the consistent on the back position. We have begun

> doing stretches and tummy time activities to begin to increase ROM

> and neck strength. In addition I got our pediatrician to refer us

> for a Physical Therapy evaluation.

>

> I am also looking for a specialist in the Los Angels area to

examine

> his plagiocephaly. I've heard good things about Dr. Grahm the

> Director of the Pediatric Outatient Clinic at Cedars Sinai in LA.

The

> clinc may aslo be known as Cedars-Sinai Medical Center's

Craniofacial

> Clinic. Has anyone heard of this facility or Dr. Gtahm? I read that

> he the president of the Society of Craniofacial Genetics.

>

> I am hopeful that since is only 9 weeks old we have a

great

> head start.

>

> Also, can anyone recommend a sleep/positioning pillows or foam

> products to help him sleep on his back with his heard rotated to

the

> Left? I tried rolling up towels last night and placing them under

> his right side so he tilts to the left. Unfortunately, he wiggled

> them loose and I found him in his old tilted position this monrning.

>

> Sorry for the long message. I promise that as I learn more I will

> send it out to the group in hope it may be of assistance.

>

> Gratefully Yours

>

> & Jim Micali parents of

May 2, 2002

& Jim:

I am very happy to hear you were referred to physical therapy for

' tort! That should help a lot! You sound like you are

doing everything you can do to help him our already! Good for you.

You have definitely caught ' tort & plagio at a great younger

age so you can hopefully resolve everything sooner.

We do have a couple or few CA members who will hopefully give you

some local information regarding Cedars Sinai.

You can find some repositioning ideas & products in our " bookmarks "

section. Hopefully you can find something that will work for

.

Good luck & let us know when he has his first phys. therapy session.

Keep us posted!

Debbie Abby's mom DOCGrad

MI