Re: We got the helmut today!

[Guest guest]

Bonnie,

Allyson does have mild tort. None of her docs noticed it. But I'm

an occupational therapist and I noticed that she tended to turn to

the right more than the left. So I checked with one of my physical

therapy friends who said she did have tort. We've been ranging her

neck and it seems to be loosening up.

I'm hoping to set up a casting appointment for her soon. The

pediatrician and neurosurgeon both said not to band. My ped said it

won't round out but her hair will cover it (not what I wanted to

hear.) However Allyson's neonatologist (she's a preemie) brought the

whole idea of banding up to me. That's why I'm confused about what

to do because her case is mild and people keep telling me not to have

her banded. Her face appears symmetrical but I do notice that the

right side of her forehead is slightly more prominent than the left.

It's not really noticeable now but I'm concerned that if her head

keeps growing like this, then the prominence will become more

noticeable.

Is there any asymmetry to Dylan's face?

> > Hi Everyone!

> >

> > Today was the big day! Dylan got his STARband today. It's so sad

to

> > see him in it. How long did it take any of you to get used to

> seeing

> > your child in it. I feel so bad for him. Even though he doesn't

> seem

> > to realize. I guess it doesn't bother him because he's fast

asleep

> > for the night already. How does he sleep with that on? I

couldn't...

> > We really hope we're doing the right thing. Dylan has such a mild

> > case but we want his head to be more symmetrical and not flat on

> the

> > right side(it was from the TORT).

> >

> > We'll tomorrow we'll start taking him out with it on. I have to

be

> > prepared for lookers and questions. Well, I'll keep you all

posted.

> >

> > Any advice or thought? Let me know. THANKS in advance!

> >

> > Bonnie

>

>

>