Re: Need Help In Detroit Michigan Area

[Guest guest]

Hi & welcome to our group!

This is not right for your pediatrician to refuse to refer your son

to a specialist. Have you considered switching pediatricians? I did

a really quick search of our group archives as I know we have a lot

of Detroit area group members. I live in Grand Rapids, MI - if you

would like I could give you the name of our ped. neurosurgeon, but I

am sure you'd like something closer in your area. I'll search the

archive again a bit later to see what I can turn up. But below is a

message about a clinic in the Detroit area that deals with helmets &

plagio babies. I really hope this helps. I am sure some of our

Detroit area members will chime in too with their advice & Drs.

Welcome again - in the mean time you also might want to try

repositioning your son to keep him off his flat side. Check out

www.plagiocephaly.org/support for some great repositioning tips.

Please keep us updated on whatever you find out!

Debbie Abby's mom

DOCGrad

Grand Rapids, MI

Here's the message #29187

From: " sambra301 " <sambra301@...>

Date: Tue Mar 12, 2002 12:28 am

Subject: danmarproducts out of detroit,michigan

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Hi everyone,

My daughter was diagnosed with postional plagiocephaly about a month

ago. She was just casted this morning for her helment. The

orthodist that was there works out of The Detroit Institute for

Children in Detroit, Michigan. He told me the helment she will be

wearing is being made by Danmar products. Is anyone familiar with

this brand of helment?

> Our son has some flattening on the left side of his head and we

have

> noticed that his ears are misaligned. Unfortunately we are in the

> HAP HMO here in the Detroit area and his PCP's will not refer us to

a

> specialist nor will they will prescribe a band for him.

>

> They have said that nobody's head is perfect, and that it will

> correct itself for the most part, as he gets older. He is 4 months

> old now and we want doctors who are familiar with band technology

to

> look at him.

>

> We do not agree with his pediatricians, and are interested in names

> and locations of any doctors who work with band technology in the

> Detroit Michigan area.

>

> Any suggestions and help would be appreciated.

[Guest guest]

Hi:

Ok, I searched the archives again & found the following message from

another Detroit area member, she also had HAP insurance so I thought

it might be of interest to you:

Debbie Abby's mom DOCGrad

Grand Rapids, MI

From: Elena <sailadvntrs@...>

Date: Wed Dec 12, 2001 11:19 am

Subject: New member - update

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Hello Everyone!

I joined and sent a note out with questions just

before Thanksgiving. Thank you to everyone that

responded and welcomed me to the group. It has been a

very stressful couple of weeks, but I am happy to say

that my son Jake (9 months) has an appointment with CT

in Chicago 12/17 for his consult/casting. Recap - We

live in the Metro Detroit area and have HAP insurance.

We received a script from the neurosurgeon for a

molding helmet. Then we processed the referral with

HAP. It was directed toward the only in-network

provider & Fillipis. The referral was denied

because it was not a covered expense. However our

policy states it is covered as DME but at HAP's

pre-approval. With the denial we decided to check

into the various helmet/band options and to proceed

with treatment. We didn't want to wait any longer. I

spoke to the orthotist at & Fillipis. They use

the STARband. He said that the band is used up to the

age of 12 months. Not feeling comfortable about this,

since Jake would be almost 10 months by the time he

received the band, we decided the DOCband was the way

to go. Unfortunately, CT wanted us to get a specific

script for the DOCband and file another referral. The

neurosurgeons office was a pain because they did not

know about the DOCband and were reluctant to talk to

the DR about a new script. But once they did, I

received the script right away. The neuro WAS

familiar with the DOCband. It was frustrating to say

the least to get the Ped to process the referral

again. But after some constant pestering, they did.

Now that we have the official denial for the DOCband

we can proceed with treatment. Not excited about the

out of pocket cost or the travel, but its something

that has to be done for our son and well worth it.

Sorry about the long winded note and many run on

sentences. I have to say everyone in the group is so

helpful and friendly. I have learned so much from the

various notes and sites. Thank you very much.

Elena

mom to Jake (9 months)

MI