Guest guest Posted April 29, 2002 Report Share Posted April 29, 2002 Hi, My name is and I have a 9 month old daughter, Mackenzie and we live in Phoenix. I have a dilemma and I don't know what to do. When Mackenzie was about 3 months old, my husband & I noticed that she had a flat spot behind her right ear that was pretty prominent and took her into her pediatrician for a check on it. We were told that it would round out on its own and that we needed to try repositioning. We tried repositioning but Mackenzie had already begun to move around in her crib and would definitely not stay in one position or to any position into which we moved her. When we went back for her 4 month check up in November, I again brought it up to her pediatrician who once again said not to worry, it would round out. Well, I pushed and finally got a referral to a pediatric neurosurgeon but was unable to get in until February. At that appt in which we saw the nurse practioner and not the neurosurgeon, she also emphasized a wait & see approach and to follow up in 8 weeks. She had also told us that Mackenzie didn't turn as well to her left side and gave us neck stretching exercises. However, when we got Mackenzie home, we noticed no problem with her turning to the left and thought it was just stranger anxiety in the np's office. So, unfortunately, we didn't proceed with the exercises. When my husband took Mackenzie in for her follow up on the 12th of April, the np said that she did not think that Mackenzie needed a band and that if she was her daughter, she wouldn't do it. My husband agreed with her at that point but after this appt my husband was given Cranial Tech's DOCband brochure. When we looked thru it at home, we immediately noticed that the picture showing a plagiocephalic head was Mackenzie's head. It was no longer that severe but it was definitely the shape of her head. So we took her into Cranial Tech here in Phoenix for their free consultation. Margie, one of their therapists, definitely recommended getting the band. She said that as she observed Mackenzie, she could see the bossing of the right forehead, the flat spot on the back right, the assymetry of her ears, Mackenzie's inability to turn left as well as she does to the right, and other symptoms that I can't recall at the moment. She stated that she couldn't understand how the NP would say that Mackenzie did not need the DOCband. So we decided to go ahead with it and are waiting for the NP's office to fax over the transcriptions of Mac's visits so that the insurance process can begin. Well, today the NP called me back after talking with Mac's pediatrician and reemphasized that they both thought that Mac didn't need the band and that she has a very mild case of plagiocephaly. When I stated that CT had definitely recommended the band, she said that it's just because they want to sell one to us. I didn't get that feeling from CT and am now wondering if we're making the right decision. My husband is definitely in favor of the band and I'm the one waffling on it. So, after that long story, here is my question - Has anybody ever thought that CT would recommend getting a band if the baby didn't truly need it? I was very impressed with our visit to CT and didn't get that impression myself. But that dang NP has put doubts in my head. She wrote the prescription for the band as she said that she would do whatever we wanted to do. I wish that we had been able to get a picture of the top of Mac's head so that I could show you but she won't sit still long enough for it to be done! She's only 9 months old and started walking this week. We can't keep her down anymore! If anyone can help addess my doubts, I'd really appreciate it! Thanks, & Mackenzie (7/19) Here is a link to her latest pictures - password - sweetpea http://www.picturetrail.com/gallery/view?p=999 & gid=772071 & uid=427285 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 29, 2002 Report Share Posted April 29, 2002 Hi & welcome to the group! You are faced with a difficult decision! We've all been there. Do we band or do we wait and see if it rounds out on it's own? Unfortunately, if you do wait & see & the head shape has not improved, it's usually too late to band. Let me first say Cranial Technologies does NOT try to " sell " their product. I have heard of cases where the parent wanted to band but they would NOT becuz they felt the child's case was too mild. I have been in this group for 1.5 yrs now & they are a wonderful organization! Ultimately, go with your gut instincts in deciding whether or not to go ahead with the band. Remember, the band will not hurt your daughter at all! It will be handy as she is learning to walk & will most likely protect her from bumps & bruises! So many of us in the group have gotten the " don't worry, the head will round on it's own " story for their ped. and/or specialist. A lot of specialists are not in favor of banding, but from my personal experience, it does help! Did Cranial Tech. recommend you take Mackenzie to physical therapy for her torticollis (tight neck muscles)? I am sure - our tort expert - will give you helpful stretching tips! Please, be sure you let us know whatever you decide! Go with those mommy instincts! Welcome again. Debbie Abby's mom DOCgrad MI > Hi, > > My name is and I have a 9 month old daughter, Mackenzie and we > live in Phoenix. I have a dilemma and I don't know what to do. When > Mackenzie was about 3 months old, my husband & I noticed that she had > a flat spot behind her right ear that was pretty prominent and took > her into her pediatrician for a check on it. We were told that it > would round out on its own and that we needed to try repositioning. > We tried repositioning but Mackenzie had already begun to move around > in her crib and would definitely not stay in one position or to any > position into which we moved her. When we went back for her 4 month > check up in November, I again brought it up to her pediatrician who > once again said not to worry, it would round out. Well, I pushed and > finally got a referral to a pediatric neurosurgeon but was unable to > get in until February. At that appt in which we saw the nurse > practioner and not the neurosurgeon, she also emphasized a wait & see > approach and to follow up in 8 weeks. She had also told us that > Mackenzie didn't turn as well to her left side and gave us neck > stretching exercises. However, when we got Mackenzie home, we noticed > no problem with her turning to the left and thought it was just > stranger anxiety in the np's office. So, unfortunately, we didn't > proceed with the exercises. > > When my husband took Mackenzie in for her follow up on the 12th of > April, the np said that she did not think that Mackenzie needed a > band and that if she was her daughter, she wouldn't do it. My husband > agreed with her at that point but after this appt my husband was > given Cranial Tech's DOCband brochure. When we looked thru it at > home, we immediately noticed that the picture showing a > plagiocephalic head was Mackenzie's head. It was no longer that > severe but it was definitely the shape of her head. So we took her > into Cranial Tech here in Phoenix for their free consultation. > Margie, one of their therapists, definitely recommended getting the > band. She said that as she observed Mackenzie, she could see the > bossing of the right forehead, the flat spot on the back right, the > assymetry of her ears, Mackenzie's inability to turn left as well as > she does to the right, and other symptoms that I can't recall at the > moment. She stated that she couldn't understand how the NP would say > that Mackenzie did not need the DOCband. So we decided to go ahead > with it and are waiting for the NP's office to fax over the > transcriptions of Mac's visits so that the insurance process can > begin. Well, today the NP called me back after talking with Mac's > pediatrician and reemphasized that they both thought that Mac didn't > need the band and that she has a very mild case of plagiocephaly. > When I stated that CT had definitely recommended the band, she said > that it's just because they want to sell one to us. I didn't get that > feeling from CT and am now wondering if we're making the right > decision. My husband is definitely in favor of the band and I'm the > one waffling on it. > > So, after that long story, here is my question - Has anybody ever > thought that CT would recommend getting a band if the baby didn't > truly need it? I was very impressed with our visit to CT and didn't > get that impression myself. But that dang NP has put doubts in my > head. She wrote the prescription for the band as she said that she > would do whatever we wanted to do. > > I wish that we had been able to get a picture of the top of Mac's > head so that I could show you but she won't sit still long enough for > it to be done! She's only 9 months old and started walking this week. > We can't keep her down anymore! > > If anyone can help addess my doubts, I'd really appreciate it! > > Thanks, > & Mackenzie (7/19) > > > Here is a link to her latest pictures - password - sweetpea > http://www.picturetrail.com/gallery/view?p=999 & gid=772071 & uid=427285 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 30, 2002 Report Share Posted April 30, 2002 - MacKenzie is a doll. I love those pictures. Like Debbie said, most of us got the " it'll round out " approach from the peds. The ped who dx our son at 8 weeks told us the same thing about them trying to sell us a band. We waited a couple of months and decided to go ahead with it. Did your dr. and np measure MacKenzie's face and asymmetry or just decided from looking at it? Ours did no measurements. I find the measurements to be hard evidence and that sealed the deal for us. We figured we weren't going to gamble. I know it is a super hard decision. Good luck! Dane's mom (DOC Band 2/14) > Hi, > > My name is and I have a 9 month old daughter, Mackenzie and we > live in Phoenix. I have a dilemma and I don't know what to do. When > Mackenzie was about 3 months old, my husband & I noticed that she had > a flat spot behind her right ear that was pretty prominent and took > her into her pediatrician for a check on it. We were told that it > would round out on its own and that we needed to try repositioning. > We tried repositioning but Mackenzie had already begun to move around > in her crib and would definitely not stay in one position or to any > position into which we moved her. When we went back for her 4 month > check up in November, I again brought it up to her pediatrician who > once again said not to worry, it would round out. Well, I pushed and > finally got a referral to a pediatric neurosurgeon but was unable to > get in until February. At that appt in which we saw the nurse > practioner and not the neurosurgeon, she also emphasized a wait & see > approach and to follow up in 8 weeks. She had also told us that > Mackenzie didn't turn as well to her left side and gave us neck > stretching exercises. However, when we got Mackenzie home, we noticed > no problem with her turning to the left and thought it was just > stranger anxiety in the np's office. So, unfortunately, we didn't > proceed with the exercises. > > When my husband took Mackenzie in for her follow up on the 12th of > April, the np said that she did not think that Mackenzie needed a > band and that if she was her daughter, she wouldn't do it. My husband > agreed with her at that point but after this appt my husband was > given Cranial Tech's DOCband brochure. When we looked thru it at > home, we immediately noticed that the picture showing a > plagiocephalic head was Mackenzie's head. It was no longer that > severe but it was definitely the shape of her head. So we took her > into Cranial Tech here in Phoenix for their free consultation. > Margie, one of their therapists, definitely recommended getting the > band. She said that as she observed Mackenzie, she could see the > bossing of the right forehead, the flat spot on the back right, the > assymetry of her ears, Mackenzie's inability to turn left as well as > she does to the right, and other symptoms that I can't recall at the > moment. She stated that she couldn't understand how the NP would say > that Mackenzie did not need the DOCband. So we decided to go ahead > with it and are waiting for the NP's office to fax over the > transcriptions of Mac's visits so that the insurance process can > begin. Well, today the NP called me back after talking with Mac's > pediatrician and reemphasized that they both thought that Mac didn't > need the band and that she has a very mild case of plagiocephaly. > When I stated that CT had definitely recommended the band, she said > that it's just because they want to sell one to us. I didn't get that > feeling from CT and am now wondering if we're making the right > decision. My husband is definitely in favor of the band and I'm the > one waffling on it. > > So, after that long story, here is my question - Has anybody ever > thought that CT would recommend getting a band if the baby didn't > truly need it? I was very impressed with our visit to CT and didn't > get that impression myself. But that dang NP has put doubts in my > head. She wrote the prescription for the band as she said that she > would do whatever we wanted to do. > > I wish that we had been able to get a picture of the top of Mac's > head so that I could show you but she won't sit still long enough for > it to be done! She's only 9 months old and started walking this week. > We can't keep her down anymore! > > If anyone can help addess my doubts, I'd really appreciate it! > > Thanks, > & Mackenzie (7/19) > > > Here is a link to her latest pictures - password - sweetpea > http://www.picturetrail.com/gallery/view? p=999 & gid=772071 & uid=427285 Quote Link to comment Share on other sites More sharing options...
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