Guest guest Posted January 2, 2008 Report Share Posted January 2, 2008 In a message dated 1/2/08 8:39:51 PM, val@... writes: > > That is, I wear braces at night only. > > Val > > > maybe they are making your hands go numb. Are the too tight? May your pressure be low! Clarence E. Grim, BS, MS, MD Senior Consultant to Shared Care Research and Consulting, Inc. (sharedcareinc.com) Clinical Professor of Internal Medicine and Epidemiology Med. Col. WI Clinical Professor of Nursing, Univ. of WI, Milwaukee Specializing in Difficult to Control High Blood Pressure and the Physiology and History of Survival During Hard Times and Heart Disease today. ************************************** See AOL's top rated recipes (http://food.aol.com/top-rated-recipes?NCID=aoltop00030000000004) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 2, 2008 Report Share Posted January 2, 2008 Are you sleeping on them or are you elbows being pressured and compressing the nerve there. Where are your hands at night? May your pressure be low! Clarence E. Grim, BS, MS, MD Senior Consultant to Shared Care Research and Consulting, Inc. (sharedcareinc.com) Clinical Professor of Internal Medicine and Epidemiology Med. Col. WI Clinical Professor of Nursing, Univ. of WI, Milwaukee Specializing in Difficult to Control High Blood Pressure and the Physiology and History of Survival During Hard Times and Heart Disease today. ************************************** See AOL's top rated recipes (http://food.aol.com/top-rated-recipes?NCID=aoltop00030000000004) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 2, 2008 Report Share Posted January 2, 2008 In a message dated 1/2/08 3:24:53 PM, beecathy@... writes: > > I asked about this a while ago in relation to Conns - at that time I > had had some nerve conduction tests to see if it was carpal tunnel > syndrome - well tose tests are apparently normal (my endo consultant > gave me the result when I saw him.) I'm just about to get an appt for > a scan on my neck and shoulder (it could be related to whip lash from > a couple of rear shunts over the last 3 years) HOWEVER, someone wrote > about this happening to them also (but i can't find it). So does > anyone have any thoughts on why this be? Is it possibly Conns related? > My endo thinks not though. > > > Not unless your K is low. May your pressure be low! Clarence E. Grim, BS, MS, MD Senior Consultant to Shared Care Research and Consulting, Inc. (sharedcareinc.com) Clinical Professor of Internal Medicine and Epidemiology Med. Col. WI Clinical Professor of Nursing, Univ. of WI, Milwaukee Specializing in Difficult to Control High Blood Pressure and the Physiology and History of Survival During Hard Times and Heart Disease today. ************************************** See AOL's top rated recipes (http://food.aol.com/top-rated-recipes?NCID=aoltop00030000000004) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 2, 2008 Report Share Posted January 2, 2008 I don't know if it is PA related but I've had it since I went hypothyroid. I wear braces on my wrists and that fixes the problem. I usually only have to wear them when I've been doing lots of work, like painting. The ones you can get from a physical therapist are much better than anything in the drug store. Val From: hyperaldosteronism [mailto:hyperaldosteronism ] On Behalf Of catma1162 I asked about this a while ago in relation to Conns - at that time I had had some nerve conduction tests to see if it was carpal tunnel syndrome - well tose tests are apparently normal (my endo consultant gave me the result when I saw him.) I'm just about to get an appt for a scan on my neck and shoulder (it could be related to whip lash from a couple of rear shunts over the last 3 years) HOWEVER, someone wrote about this happening to them also (but i can't find it). So does anyone have any thoughts on why this be? Is it possibly Conns related? My endo thinks not though. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 2, 2008 Report Share Posted January 2, 2008 That is, I wear braces at night only. Val From: hyperaldosteronism [mailto:hyperaldosteronism ] On Behalf Of Valarie I don't know if it is PA related but I've had it since I went hypothyroid. I wear braces on my wrists and that fixes the problem. I usually only have to wear them when I've been doing lots of work, like painting. The ones you can get from a physical therapist are much better than anything in the drug store. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 2, 2008 Report Share Posted January 2, 2008 No, the braces aren't tight. They just keep my wrist straight so it doesn't bend and compress the nerves on the inside of the wrist. Sometimes I only need it on the right hand. If I haven't been doing manual labor, I generally don't need them. Val From: hyperaldosteronism [mailto:hyperaldosteronism ] On Behalf Of lowerbp2@... In a message dated 1/2/08 8:39:51 PM, val@... <mailto:val%40wyosip.com> writes: > > That is, I wear braces at night only. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2008 Report Share Posted January 3, 2008 I have some of those also as recommended by GP (who didn't think it was carpal tunnel and who pushed for the neurology tests at thehospital) They do help but I just don't want some other " unexplainable " thing to have to worry about!! Nor do I want to have to wear them all the time as they annoy me! I sleep generally in a recovery position so it's not your common or garden dead arm or leg.My potassion is fine as evidenced by my last trip to consultant in dec but this has been going on for a while now and is getting a bit tedious. Fortunately I was offered a cancellation for the scan so can have that tomorrow. (NHS might drive us mad but boy it's good to have free treatment) So hopefully I'll get back to see the consultant for this in a couple of weeks. > > I don't know if it is PA related but I've had it since I went hypothyroid. > I wear braces on my wrists and that fixes the problem. I usually only have > to wear them when I've been doing lots of work, like painting. The ones you > can get from a physical therapist are much better than anything in the drug > store. > > Val > > From: hyperaldosteronism > [mailto:hyperaldosteronism ] On Behalf Of catma1162 > > > I asked about this a while ago in relation to Conns - at that time I > had had some nerve conduction tests to see if it was carpal tunnel > syndrome - well tose tests are apparently normal (my endo consultant > gave me the result when I saw him.) I'm just about to get an appt for > a scan on my neck and shoulder (it could be related to whip lash from > a couple of rear shunts over the last 3 years) HOWEVER, someone wrote > about this happening to them also (but i can't find it). So does > anyone have any thoughts on why this be? Is it possibly Conns related? > My endo thinks not though. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2008 Report Share Posted January 3, 2008 In a message dated 1/3/08 2:53:27 PM, jarrigo@... writes: > > P.S. I forgot to mention that I also had nerve conduction tests for > carpal tunnel and I didn't have that either. I'm glad that I don't > have all of these things but it makes you start feeling crazy and we > need to fight against that. > Has anyone biopsied your nerves to see if you have an allergic (immune mediated) neuropathy May your pressure be low! Clarence E. Grim, BS, MS, MD Senior Consultant to Shared Care Research and Consulting, Inc. (sharedcareinc.com) Clinical Professor of Internal Medicine and Epidemiology Med. Col. WI Clinical Professor of Nursing, Univ. of WI, Milwaukee Specializing in Difficult to Control High Blood Pressure and the Physiology and History of Survival During Hard Times and Heart Disease today. ************** Start the year off right. Easy ways to stay in shape. http://body.aol.com/fitness/winter-exercise?NCID=aolcmp00300000002489 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2008 Report Share Posted January 3, 2008 In a message dated 1/3/08 11:59:47 AM, beecathy@... writes: > > I have some of those also as recommended by GP (who didn't think it > was carpal tunnel and who pushed for the neurology tests at > thehospital) They do help but I just don't want some other > " unexplainable " thing to have to worry about!! Nor do I want to have > to wear them all the time as they annoy me! I sleep generally in a > recovery position so it's not your common or garden dead arm or leg.My > potassion is fine as evidenced by my last trip to consultant in dec > but this has been going on for a while now and is getting a bit tedious. > Fortunately I was offered a cancellation for the scan so can have that > tomorrow. (NHS might drive us mad but boy it's good to have free > treatment) So hopefully I'll get back to see the consultant for this > in a couple of weeks. > > > Ask someone to watch you sleep and see where your hands are. Then report back. When you wake up tell them where you are numb. Repeat until you see if it might be a sleeping on the arms or hands or on the areas that innervated the areas the get numb. Keep us posted. If you have a video camera I think you can set it on slow as see what happens or get one of the cheap baby watch cameras that stores the scenes. Keep us posted. May your pressure be low! Clarence E. Grim, BS, MS, MD Senior Consultant to Shared Care Research and Consulting, Inc. (sharedcareinc.com) Clinical Professor of Internal Medicine and Epidemiology Med. Col. WI Clinical Professor of Nursing, Univ. of WI, Milwaukee Specializing in Difficult to Control High Blood Pressure and the Physiology and History of Survival During Hard Times and Heart Disease today. ************** Start the year off right. Easy ways to stay in shape. http://body.aol.com/fitness/winter-exercise?NCID=aolcmp00300000002489 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2008 Report Share Posted January 3, 2008 > > I asked about this a while ago in relation to Conns - at that time I > had had some nerve conduction tests to see if it was carpal tunnel > syndrome - well tose tests are apparently normal (my endo consultant > gave me the result when I saw him.) I'm just about to get an appt for > a scan on my neck and shoulder (it could be related to whip lash from > a couple of rear shunts over the last 3 years) HOWEVER, someone wrote > about this happening to them also (but i can't find it). So does > anyone have any thoughts on why this be? Is it possibly Conns related? > My endo thinks not though. Dear , I have had this problem for years. I have had blood tests for everything, brain scans, sinus scans, neck scans, carotid artery scans, chest scan, total heart work up twice, several consultations with a top neurologist and rheumatologist and nothing showed any direct cause of the pain, numbness and tingling. I had pretty much accepted that it was caused by arthritis (original diagnosis by rheumatologist) until I had my left adrenal gland removed (tumor). The second day after surgery, the pain was gone. It did come back gradually after about 6 weeks and I started to research the cause on my own. The first symptom was burning feet and they turned bright red by evening. This is clearly neuropathy. Then my arms and hands started up with the same kind of pain. Terrible in the morning. I took this to my doctors and they agreed that I probably had neuropathy but won't commit to a cause. I'm not diabetic, don't drink alcoholic beverages and my vitamin b tests are normal. They started me on increasing doses of elavil. By August, 2007, I started having symptoms of PA again, with low potassium and high aldosterone/low renin. This is what sent me back to the internet and this message board. As patients, we really need a Dr. Grim to get together or at least oversee the development of a data base with symptons, meds, diet, etc. so all of this gets out to doctors. If you start reading through the posts on this site, you start seeing a lot of similarities. My doctors are excellent but I've gotten a lot of wrong treatment and even though they listen to me, I feel like I have to convince them and get them to " think outside of the lines " . As an example, I kept trying all kinds of bp meds and combinations of meds that didn't work and my bp was still nearly 200/85. This was after I was diagnosed. My advice to all of you is: TAKE CONTROLL OF YOUR OWN HEALTH AND DON'T GIVE UP! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2008 Report Share Posted January 3, 2008 > > > > I asked about this a while ago in relation to Conns - at that time I > > had had some nerve conduction tests to see if it was carpal tunnel > > syndrome - well tose tests are apparently normal (my endo consultant > > gave me the result when I saw him.) I'm just about to get an appt for > > a scan on my neck and shoulder (it could be related to whip lash from > > a couple of rear shunts over the last 3 years) HOWEVER, someone wrote > > about this happening to them also (but i can't find it). So does > > anyone have any thoughts on why this be? Is it possibly Conns related? > > My endo thinks not though. > > Dear , > > I have had this problem for years. I have had blood tests for > everything, brain scans, sinus scans, neck scans, carotid artery scans, > chest scan, total heart work up twice, several consultations with a top > neurologist and rheumatologist and nothing showed any direct cause of > the pain, numbness and tingling. I had pretty much accepted that it > was caused by arthritis (original diagnosis by rheumatologist) until I > had my left adrenal gland removed (tumor). The second day after > surgery, the pain was gone. It did come back gradually after about 6 > weeks and I started to research the cause on my own. The first symptom > was burning feet and they turned bright red by evening. This is > clearly neuropathy. Then my arms and hands started up with the same > kind of pain. Terrible in the morning. I took this to my doctors and > they agreed that I probably had neuropathy but won't commit to a > cause. I'm not diabetic, don't drink alcoholic beverages and my > vitamin b tests are normal. They started me on increasing doses of > elavil. By August, 2007, I started having symptoms of PA again, with > low potassium and high aldosterone/low renin. This is what sent me back > to the internet and this message board. As patients, we really need a > Dr. Grim to get together or at least oversee the development of a data > base with symptons, meds, diet, etc. so all of this gets out to doctors. > > If you start reading through the posts on this site, you start seeing a > lot of similarities. My doctors are excellent but I've gotten a lot of > wrong treatment and even though they listen to me, I feel like I have > to convince them and get them to " think outside of the lines " . As an > example, I kept trying all kinds of bp meds and combinations of meds > that didn't work and my bp was still nearly 200/85. This was after I > was diagnosed. > > My advice to all of you is: TAKE CONTROLL OF YOUR OWN HEALTH AND DON'T > GIVE UP! P.S. I forgot to mention that I also had nerve conduction tests for carpal tunnel and I didn't have that either. I'm glad that I don't have all of these things but it makes you start feeling crazy and we need to fight against that. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2008 Report Share Posted January 3, 2008 In the PA symptom lists we have reviewed, Chvostek's and Trousseau sign, and " pins and needles " were found in association with later PA. Hypocalcemia may add to this numbness you describe, I speculate because I do get " going to sleep " or numbness with pins and needles lots easier since my PA got worse - stage 4. And it happens worse when I sleep on, or lean on an extremity for a long time, among other circumstance of reduced circulation or increased calcium (supplements, food additves, etc.) - or both. Dave ipscalifornia wrote: > > > > > > > > I asked about this a while ago in relation to Conns - at that > time I > > > had had some nerve conduction tests to see if it was carpal tunnel > > > syndrome - well tose tests are apparently normal (my endo > consultant > > > gave me the result when I saw him.) I'm just about to get an appt > for > > > a scan on my neck and shoulder (it could be related to whip lash > from > > > a couple of rear shunts over the last 3 years) HOWEVER, someone > wrote > > > about this happening to them also (but i can't find it). So does > > > anyone have any thoughts on why this be? Is it possibly Conns > related? > > > My endo thinks not though. > > > > Dear , > > > > I have had this problem for years. I have had blood tests for > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2008 Report Share Posted January 4, 2008 In a message dated 1/4/08 12:03:58 AM, riothamus2@... writes: > > In the PA symptom lists we have reviewed, Chvostek's and Trousseau sign, > and " pins and needles " were found in association with later PA. > Hypocalcemia may add to this numbness you describe, I speculate because > I do get " going to sleep " or numbness with pins and needles lots easier > since my PA got worse - stage 4. > > And it happens worse when I sleep on, or lean on an extremity for a long > time, among other circumstance of reduced circulation or increased > calcium (supplements, food additves, etc.) - or both. > > Dave > > > By later we are referring to classical stage or advanced stage of PA. May your pressure be low! Clarence E. Grim, BS, MS, MD Senior Consultant to Shared Care Research and Consulting, Inc. (sharedcareinc.com) Clinical Professor of Internal Medicine and Epidemiology Med. Col. WI Clinical Professor of Nursing, Univ. of WI, Milwaukee Specializing in Difficult to Control High Blood Pressure and the Physiology and History of Survival During Hard Times and Heart Disease today. ************** Start the year off right. Easy ways to stay in shape. http://body.aol.com/fitness/winter-exercise?NCID=aolcmp00300000002489 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 5, 2008 Report Share Posted January 5, 2008 My hands go numb when I sleep every night, but I do have carpal tunnel syndrome, and I wear the wrist guards every night when I sleep. I do not get the numbness when I wear the wrist guards, so have you tried wearing them? > > > > I asked about this a while ago in relation to Conns - at that time I > > had had some nerve conduction tests to see if it was carpal tunnel > > syndrome - well tose tests are apparently normal (my endo consultant > > gave me the result when I saw him.) I'm just about to get an appt for > > a scan on my neck and shoulder (it could be related to whip lash from > > a couple of rear shunts over the last 3 years) HOWEVER, someone wrote > > about this happening to them also (but i can't find it). So does > > anyone have any thoughts on why this be? Is it possibly Conns related? > > My endo thinks not though. > > Dear , > > I have had this problem for years. I have had blood tests for > everything, brain scans, sinus scans, neck scans, carotid artery scans, > chest scan, total heart work up twice, several consultations with a top > neurologist and rheumatologist and nothing showed any direct cause of > the pain, numbness and tingling. I had pretty much accepted that it > was caused by arthritis (original diagnosis by rheumatologist) until I > had my left adrenal gland removed (tumor). The second day after > surgery, the pain was gone. It did come back gradually after about 6 > weeks and I started to research the cause on my own. The first symptom > was burning feet and they turned bright red by evening. This is > clearly neuropathy. Then my arms and hands started up with the same > kind of pain. Terrible in the morning. I took this to my doctors and > they agreed that I probably had neuropathy but won't commit to a > cause. I'm not diabetic, don't drink alcoholic beverages and my > vitamin b tests are normal. They started me on increasing doses of > elavil. By August, 2007, I started having symptoms of PA again, with > low potassium and high aldosterone/low renin. This is what sent me back > to the internet and this message board. As patients, we really need a > Dr. Grim to get together or at least oversee the development of a data > base with symptons, meds, diet, etc. so all of this gets out to doctors. > > If you start reading through the posts on this site, you start seeing a > lot of similarities. My doctors are excellent but I've gotten a lot of > wrong treatment and even though they listen to me, I feel like I have > to convince them and get them to " think outside of the lines " . As an > example, I kept trying all kinds of bp meds and combinations of meds > that didn't work and my bp was still nearly 200/85. This was after I > was diagnosed. > > My advice to all of you is: TAKE CONTROLL OF YOUR OWN HEALTH AND DON'T > GIVE UP! > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 5, 2008 Report Share Posted January 5, 2008 Not that I am aware. Maybe you are on to something. Have you tried wearing only one wrist brace to see if they might be aggravating things. Also assume you are using guards on your keyboard to minimize capral tunnel irritation. May your pressure be low! Clarence E. Grim, BS, MS, MD Senior Consultant to Shared Care Research and Consulting, Inc. (sharedcareinc.com) Clinical Professor of Internal Medicine and Epidemiology Med. Col. WI Clinical Professor of Nursing, Univ. of WI, Milwaukee Specializing in Difficult to Control High Blood Pressure and the Physiology and History of Survival During Hard Times and Heart Disease today. ************** Start the year off right. Easy ways to stay in shape. http://body.aol.com/fitness/winter-exercise?NCID=aolcmp00300000002489 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 5, 2008 Report Share Posted January 5, 2008 > > > In a message dated 1/4/08 12:03:58 AM, riothamus2@... writes: > > > > > > In the PA symptom lists we have reviewed, Chvostek's and Trousseau sign, > > and " pins and needles " were found in association with later PA. > > Hypocalcemia may add to this numbness you describe, I speculate because > > I do get " going to sleep " or numbness with pins and needles lots easier > > since my PA got worse - stage 4. > > > > And it happens worse when I sleep on, or lean on an extremity for a long > > time, among other circumstance of reduced circulation or increased > > calcium (supplements, food additves, etc.) - or both. > > > > Dave > > > > > > > > By later we are referring to classical stage or advanced stage of PA. Dear Dave, I am very interested in any research linking neuropathy to PA. I have lost my left adrenal gland and now I am fighting to save the right one. Right now bp is under control and k is in normal range with one potassium a day but aldosterone/renin is not good. The one symptom that is still keeping me from a normal life is neuropathy pain. The pain in my hands started about 4 years ago as numbness and tingling but it gradually got worse and spread to arms, shoulders, feet and legs. I didn't even know that it was neuropathy (diagnosed originally as arthritis) until after the adrenalectomy. When I learned that the PA is back, I became intense on finding the reason for the pain. I first started to connect it to PA when I started reading experiences by other PA patients on this message board. There seem to be a lot of patients with similar type of pain. I've discussed this with my doctors and they are interested but won't commit to an opinion. I am intense on finding the cause, not because it will change my treatment but because others might be helped sooner with early diagnosis and treatment. You stated that " pins and needles " were found in later stages of PA but is there any research being done on a connection between PA and neuropathy? Thanks for your help. Jan > > > > May your pressure be low! > > Clarence E. Grim, BS, MS, MD > Senior Consultant to Shared Care Research and Consulting, Inc. > (sharedcareinc.com) > Clinical Professor of Internal Medicine and Epidemiology Med. Col. WI > Clinical Professor of Nursing, Univ. of WI, Milwaukee > > Specializing in Difficult to Control High Blood Pressure > and the Physiology and History of Survival During > Hard Times and Heart Disease today. > > > > ************** > Start the year off right. Easy ways to stay in shape. > > http://body.aol.com/fitness/winter-exercise? NCID=aolcmp00300000002489 > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 5, 2008 Report Share Posted January 5, 2008 Good question, Jan. I am going to " search " Pubmed, MedLine and Google with " primary aldosteronism " and " neuropathy. " Then use hyperaldo and Conn's syndrome. Those terms' usages are sometimes blurred. Maybe if you do likewise we can both report back. I recall one study locating a couple enzumes in red meat (and oily fish) which helped sheath health, and reduced the incidence of neuropathies in the samples. As usual, it was a " side effect " as the researchers were on another trail. Dave ipscalifornia wrote: > > > > > > > > In a message dated 1/4/08 12:03:58 AM, riothamus2@... writes: > > > > > > > > > > In the PA symptom lists we have reviewed, Chvostek's and > Trousseau sign, > > > and " pins and needles " were found in association with later PA. > > > Hypocalcemia may add to this numbness you describe, I speculate > because > > > I do get " going to sleep " or numbness with pins and needles lots > easier > > > since my PA got worse - stage 4. > > > > > > And it happens worse when I sleep on, or lean on an extremity > for a long > > > time, among other circumstance of reduced circulation or > increased > > > calcium (supplements, food additves, etc.) - or both. > > > > > > Dave > > > > > > > > > > > > > By later we are referring to classical stage or advanced stage of > PA. > > Dear Dave, > > I am very interested in any research linking neuropathy to PA. I > have lost my left adrenal gland and now I am fighting to save the > right one. Right now bp is under control and k is in normal range > with one potassium a day but aldosterone/renin is not good. The one > symptom that is still keeping me from a normal life is neuropathy > pain. The pain in my hands started about 4 years ago as numbness and > tingling but it gradually got worse and spread to arms, shoulders, > feet and legs. I didn't even know that it was neuropathy (diagnosed > originally as arthritis) until after the adrenalectomy. When I > learned that the PA is back, I became intense on finding the reason > for the pain. I first started to connect it to PA when I started > reading experiences by other PA patients on this message board. > There seem to be a lot of patients with similar type of pain. I've > discussed this with my doctors and they are interested but won't > commit to an opinion. I am intense on finding the cause, not > because it will change my treatment but because others might be > helped sooner with early diagnosis and treatment. > > You stated that " pins and needles " were found in later stages of PA > but is there any research being done on a connection between PA and > neuropathy? > > Thanks for your help. > > Jan > > > > > > > > May your pressure be low! > > > > Clarence E. Grim, BS, MS, MD > > Senior Consultant to Shared Care Research and Consulting, Inc. > > (sharedcareinc.com) > > Clinical Professor of Internal Medicine and Epidemiology Med. Col. > WI > > Clinical Professor of Nursing, Univ. of WI, Milwaukee > > > > Specializing in Difficult to Control High Blood Pressure > > and the Physiology and History of Survival During > > Hard Times and Heart Disease today. > > > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.