Re: Am I the only patient with hyperaldosteronism in Los Angeles? (please reply)

[Guest guest]

I would try to see Dr. Willa Hseuh at UCLA or whoever she recommends is their

local expert there now. Mention my name when you call her office. I know

her well.

Lets see if there are 10 million folks in LA about 1/3 will have HTN and if

we give a conservative estimate that only 1% of those have PA the there should

be at least 3,000,000 x .01 = at least 30,000 folks with it. Mostly

unrecongnized I suspect.

May your pressure be low!

Clarence E. Grim, BS, MS, MD

Senior Consultant to Shared Care Research and Consulting, Inc.

(sharedcareinc.com)

Clinical Professor of Internal Medicine and Epidemiology Med. Col. WI

Clinical Professor of Nursing, Univ. of WI, Milwaukee

Specializing in Difficult to Control High Blood Pressure

and the Physiology and History of Survival During

Hard Times and Heart Disease today.

**************

Start the year off right. Easy ways to stay in shape.

http://body.aol.com/fitness/winter-exercise?NCID=aolcmp00300000002489

[Guest guest]

There are probably hundreds of thousands who don't know they have the

AMA's " most under-recognized cause of hypertension in the United States "

- PA - yet. Don't feel too badly - I went through 15 years of worsening

and wrong treatment - and 27 doctors who said they'd seen few or any

cases, translation : they did not test for it - before I found one who

knew how to manage PA. You can check the ASH website:

http://www.ash-us.org/

and the doctor who runs it for California :

http://www.ash-us.org/chapters/california.htm

and try to find a specialist nearest you :

http://www.ash-us.org/specialist_program/directory.htm

here is a bad faith and quality assurance expert witness doctor ready to

frighten those who'd ignore or harm you :

http://www.freereferral.com/resume/C000177A.php

but I'd call the state licensing medical board to see who has HTN

certification

http://www.medbd.ca.gov/board/contact_us.html

Let me know what you find - I will do likewise, as I am in the Bay Area.

Dave

airlinerg wrote:

>

> I live in Los Angeles, California where there is a huge population.

>

> Recently, I have seen 5 doctors and 1 dietician and asked them the

> following questions about hyperaldosteronism:

>

> 1. Have you seen any other patients with hyperaldosteronism?

>

> 2. Do you recommend the DASH diet to patients with hypertension?

>

> _________________________

>

> Here are their answers:

>

> A. My nephrologist Dr. A, who I have been seeing for 20 years for

> hypertension said he has had one patient with an adrenal tumor who

> got it operated out and then was cured. He said he has mentioned

> low salt to his hypertension patients, but never has mentioned the

> DASH diet. I am the only patient he has seen with hyperplasia.

>

> B. My endocrinologist Dr. B, who I have seen for 5 years who

> specializes in diabetic patients said he thinks he has another

> patient with hyperaldosteronism, but he is not sure.

>

> He recommended that I start Byetta shots for weight loss even though

> he knows that I am not diabetic. My A1C is 5.6, my fasting glucose is

> 85-95 and my 2 hour postprandial glucose tolerance test was 122 after

> sugar loading - which are all normal.

>

> When I confronted him about the severe symptoms from Byetta. He said

> to keep taking it.

>

> I asked him if I did loose weight with Byetta then would I gain it all

> back if I stopped the Byetta and he did not answer the question.

>

> C. A new internist Dr. C who sees primarily HIV patients

> (I am HIV-negative) said he did not know of any patients with

> hyperaldosteronism except me, and he refers his patients to a

> diabetes educator for diet counseling. I asked him about Inspra and

> hyperaldosteronism and he was not knowledgable about them.

>

> D. I saw this dietician Dietician D, and I was impressed with her

> knowledge. She recommended a diet that was similar to DASH but

> did not call it that.

>

> Also she says I should do a c-peptide level with my next fasting

> glucose to see if I am insulin resistant.

>

> E. I saw a new internist Dr. E who was recommended by my allergist

> who said he has never met another patient with hyperaldosteronism

> besides me in his 50 year career. He did not know about the DASH

> diet. He could not explain the angiotensin - renin - aldosterone

> system when I asked him about it.

>

> He could make no recommendations to me, but he wanted copies of

> all my studies and reports from all my doctors after he saw me

> 1 1/2 hours late after my appointment time.

>

> F. I saw endocrinologist Dr. F at a major hospital who works in the

> diabetes clinic. He says that I am the only patient with

> hyperaldosteronism that he has, although he said he may have others,

> but he has never checked.

>

> He recommends that I take 2000 mg. Metaformin to facilitate weight

> loss, but I am not diabetic. I have metabolic syndrome.

>

> ----------------------------

>

> Since I cannot find any hypertension and diabetes experts who are

> knowledgable about hyperaldosteronism, what should I do?

>