Update: Dr. Wood and the CranioCap

May 7, 2002

Hello to all:

Well, I just got off the phone with Dr. Wood. I told him that I was

concerned about Rhiannon's head as she now has a verticle " dent "

where the seams of the helmet come on her head. The response? Well,

that really wasn't his forte, and that I would have to take that up

with the orthotist. I explained that I had been having difficulties

communicating from the start with the orthotist that I have. I was

told that she is the best and, essentially, if I didn't like how the

helmet fit I could always stop using it. Just like that.

I cannot tell you all how p.o'd. I am. It seems that every time I

have been in a situation that has required an MD or other

health " professional " I get the same result. If the problem isn't

convenient, then it's my fault, (or in this case my 4 month old

daughter's.).

So, bottom line is they will NOT make a new cap (after all, out of

400 patients, they have only had trouble with 3 or 4 of them, yet if

you add it up my baby is a 1-30,000 baby, so it tells me that those

that really need the help are denied.) Yet, I'm sure they will take

their entire $2,300 from our insurance, which we pay for with our

monthly premiums.

I called the PT and told her that we would be discontinuing

treatment. I will just continue on with the folks with whom I am

getting results. I don't have to go to PT 1x per week to be told

she's fine. I can see that on my own.

I have spoken with someone in Madison, WI with the DOC band, and they

are very supportive. I will see 2 people there, and they will

access Rhia, and if need be have the neurosurgeon give her a script

for the DOC band.

I am feeling very betrayed, let down, and ripped-off right now. We

will be seeing another orthotist tomorrow, but I already know the

outcome based on the past. He or she will " fall into line " and say

the same things. In the meantime, a baby is not getting the

treatment that her mommy and daddy have ALREADY PAID FOR. What a

tragedy.

Well, I'd better go.

I hope you all had better days than I did.

Kind regards,

, Rhiannon's mom

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