Oh, what is happening to us? Frightened.

[Guest guest]

My son just had his 4 month check up and we mentioned to our

pediatrican that his right cheek appeared to be more prominent.

After

examining his head, she noted that his right ear and right forehead

are also more prominent, as well as noting a flat spot on the

right-rear of his head. We've now been referred to a surgeon at

Children's Mercy Hospital in Kansas City.

I began looking into this on the web, and now I'm so frightened for

our son. The thought of him having to go through all of this is

heartbreaking. And, our appointment with the specialist is almost 3

MONTHS AWAY!

What do I do? How do you all handle this?

A Frightened Mom

Kansas City

artbyjules@everest

[Guest guest]

Hi & welcome to the group!

Ok, take a deep breath & relax!!! I know just how frightened &

concerned you are for your son's well being. I've been there! First

thing I would like to suggest is for you to call the specialist's

office back where you have your appt in 3 mos & request to be placed

on their cancellation list. If their office gets any cancellations

between now & your appt., they should call you to offer you that

earlier appt.. Getting appts with specialists often take some time.

But 3 mos does sound a bit too long - are there any other specialists

in your area your ped. could refer you to?

Next up, in the mean time in between your appt with the specialist,

you could try repositioning your son to keep him off of his flat

side. Check out http://www.plagiocephaly.org/support then click

repositioning tips for some excellent helpful suggestions.

I also saw you are located in Kansas City.....there is a Cranial

Technologies location there. Cranial Technologies is the mfg. of the

DOCband which is a corrective band to treat plagiocephaly. Cranial

Tech is the leader in treating plagiocephaly cases. They specialize

& are trained in treating plagio babies only. They offer free

evaluations of plagio babies, however I am not sure if this

particular clinic does free eval, there might be a charge at this

clinic, you better double check w/them. I am sure they would get

your son in for a free eval much earlier than the 3 mos wait you

currently have. They will give you their honest opinion of your

son's head shape & I am sure give you helpful tips. That KC location

phone # is 816-523-1333 - their address is 6650 Troost #100 Kansas

City, MO 64131. You can visit their webpage at www.cranialtech.net

Really, do not get too scared about all of this. It is very

overwhelming at first, but there is help for your son. Try

repositioning in the mean time & I would suggest calling Cranial Tech

for an evaluation if you are near their clinic, if not it would even

be worth a drive.

Welcome again to our group. Please let us know whatever you find

out. Best of luck.

Debbie Abby's mom DOCGrad

MI

> My son just had his 4 month check up and we mentioned to our

> pediatrican that his right cheek appeared to be more prominent.

> After

> examining his head, she noted that his right ear and right forehead

> are also more prominent, as well as noting a flat spot on the

> right-rear of his head. We've now been referred to a surgeon at

> Children's Mercy Hospital in Kansas City.

>

> I began looking into this on the web, and now I'm so frightened for

> our son. The thought of him having to go through all of this is

> heartbreaking. And, our appointment with the specialist is almost

3

> MONTHS AWAY!

>

> What do I do? How do you all handle this?

>

>

> A Frightened Mom

> Kansas City

> artbyjules@everest

[Guest guest]

:

FYI, if you do decide to call Cranial Tech, the actual name of the KC

clinic is not Cranial Technologies, it is Rehab Designs of America,

but it is the same as Cranial Tech, I just didn't want you to get

confused if you called there & they didn't answer the phone

saying " Cranial Technologies " !

Debbie Abby's mom

MI

> > My son just had his 4 month check up and we mentioned to our

> > pediatrican that his right cheek appeared to be more prominent.

> > After

> > examining his head, she noted that his right ear and right

forehead

> > are also more prominent, as well as noting a flat spot on the

> > right-rear of his head. We've now been referred to a surgeon at

> > Children's Mercy Hospital in Kansas City.

> >

> > I began looking into this on the web, and now I'm so frightened

for

> > our son. The thought of him having to go through all of this is

> > heartbreaking. And, our appointment with the specialist is

almost

> 3

> > MONTHS AWAY!

> >

> > What do I do? How do you all handle this?

> >

> >

> > A Frightened Mom

> > Kansas City

> > artbyjules@everest