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Dr Grim more comments:  Side effects from AVS procedure

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In a message dated 1/6/08 11:15:46 AM, smacarth@... writes:

>

>

> > >

> > > > I recently underwent an AVS procedure(last week of Nov). Within a week

> > > > after the procedure

> > >

> > What did they start you on?

> Spironolactone. 100mg two weeks after the AVS procedure. I have been on

> Potassium

> supplements for 6 months after they measured my potassium at 2.6. I have

> been on

> Norvasc for about 4 years. At this time I am only taking the Spironolactone.

> Stopped the

> Norvasc adn potassium supplements.

>

> One week after taking the Sriroolactone measure

> postassium level is 3.6

>

Will need more spiro in all likeyhood.

> >

> > What has the BP been dong?

> Prior to taking the potassium supplements it was averaging about 148:94.

> After taking

> taking the potassium supplements it averages 140:77. I take the BP readings

> in the

> morning in a resting lying down position. I did suffer a TIA in 2006 and the

> only thing

> they found was very low potassium so they put me on supplements for several

> weeks.

>

Pity they did not try to see why the K was low. Would have saved you 2 years.

A simple aldo and renin test would have made the DX in all likelyhood.

We just need to teach you Drs who did this how to not make the same mistake

twice.

Please give them all my articile.

The standard for taking home BP is to do it seated accourding to our

guidelines. You can take it lying down but it may be different and we dont know

what

to do with supine BPs.

> >

> > Any paid over kidneys after AVS?

> Not sure what you mean by paid over?

>

Sorry pain over kidneys

> >

> >

> > > > I begin to have dizziness, balance problems, cogwheeling movements,

> tense

> > > > muscle (legs,

> > > > arms, back), upper back pain, and slight headache pain.

>

K was likely low during these times.

> Test results came

> > > > back an indicated

> > > > that I have high aldosterone in left side adrenal gland. They put me

> on

> > > > 100mg of

> > > > Spironolactone and recommended to have the left adrenal gland removed.

> > >

> > do you have the aldo AND cortisol results from the AVS?

> The Endocrinologist went over the numbers with me but I do not remember the

> exact

> figures. I will try to request a copy of them.

> >

> > Was a bump seen on any imaging procedures?

> I have had two MRI's one in 2001 and detailed adrenal gland one in 2007.

> Both show a 1

> cm adenoma on the left adrenal gland

>

The correct interpretation is that it showed a 1 cm bump. You cannot tell

what it is making, if anything, by the imaging. Reason to do AVS.

> >

> > > > Before the AVS

> > > > procedure I had some occasional dizziness which I attributed to the BP

> > > > medication I was

> > > > taking (5mg of Norvasc) but never had all these issues I have now.

> > >

> > As you know if you have read my article in the files on the Evolution of

> PA

> > Norvasc does not work very well in PA.

> >

> > > It's

> > > > been over a month

> > > > since procedure and these side effects have me worried. I have an

> > > > appointment with my

> > > > primary care physician in a couple of weeks. Anyone have problems like

> > > > this after the AVS

> > > > procedure?

> > >

> > As Farahbar suggests; most likely lowering of BP due to spiro. Still on

> > Norvasc? If so may need to stop it after talking to Dr.

> >

> > Are you DASHing as well. BP may normalize with sprio and DASH. If so we

> > generally do not recommend surgery.

>

> I have not been good about Dashing. I have been doing it off and on over

> the last several

> years.

>

Now is the time to do it to save your adrenal.

> >

> > Do we have a detailed Steves 08 story?

> I can write some thing up and post it.

> >

> > > >

> > > > Steve

> >

> > > >

> > > >

> > > >

> > >

> > >

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