Val's story (con't)

[Guest guest]

I agree that she didn't read your paper. At least she didn't have a

seizure when I gave it to her. She told me she's never seen PA. I

told her she's probably seen it but didn't recognize it. I have real

fears about not getting any satisfaction from the endo on March 6.

Worst comes to worst, I know where I can get some spiro but I'd

rather try a trial of Inspra.

I got my urine tests

Aldosterone 15 (2 - 20.0) (on very, very low salt diet but she didn't

do urine solium.

VMA 3.6 (0.0 - 7.9)

Cortisol Free 29 (3.5- 45)

Metanephrines 135 (90 - 315)

I'd say no pheo.

They still did not send me the plasma aldo and renin results. They

were 28 and 1.35 as far as I know but I don't know the ranges. When

she read me the lab report, she said the lab marked the aldo

as " high. "

One of the problems I had with getting the hyperparathyroidism

treatment was that my calcium was never terribly high. For years, it

was near the top of the range or slightly over. My estradiol also

tests sub-optimal but I know I'm getting enough estradiol.

There is no question in my mind about being sensitive to salt.

Yesterday, I ate a few low-salt crackers and a slice of cheese.

Within 30 minutes, I was feeling the panic and anxiety.

Val

Grim Clarence <lowerbp2@...> wrote:

> Guess he did not read my article. We want to teach him to take

> care of the many pts he has with PA in various stages so he does

> not have to mess with an Endo who usually does not know much about

this either.

> -----Original Message-----

> From: val1198 <val@...>

> > Still no progress. My doc will not give me a trial of Inspra or

> > spiro. I have an endo appointment on March 6. I am keeping my BP

> > relatively in check with virtually no salt, triam/HCTZ 37.5 - 25,

> > some Valerian root and an occasional Ativan when I get too

anxious.