Re: post left adrenalectomy

[Guest guest]

>

> Dr Grim

>

> Is there any chance at all of adrenal insufficiency 1 year after a

> successful left adrenalectomy for Conn's?

>

> I wrote before how I am struggling with a viral illness since Dec

9th

> Went into an allergic reaction on Jan 3rd from taking Sudafed which

> had yellow dye I wasn't aware of.

>

> Was seen in ER, given Prednisone 50 mg to take 5 days, after 4 I

felt

> so ill with nausea and leg fatigue that I stopped it, felt better

for

> one day then had extreme excitablility, almost manic, unable to eat

> or sleep, shaking chills without any fever at all which lasted for

so

> many hours I ended up in the ER at the hospital my Endo goes to, 50

> miles away.

>

> Endocrinology totally denies it can be anything to do with the

> remaining adrenal and refused to see me in the ER or offer any

> suggestions. They say the prednisone wouldn't have caused those

> problems.

> Says it has to be allergic or viral and my primary has to handle it.

> She refused to handle it so now I am forced to find another primary.

>

> My allergies, which were under control, are now not and I feel like

I

> am coming down with another URI. Energy was good yesterday, bad

today

> I lost 7n lbs in one week.

>

> Any suggestions for the new primary doc?

>

> I felt so good prior to this after feeling so poorly for so many

> years before the Conn's diagnosis. I want to feel good again

>

>

>

Dear ,

Hate to give you bad news but you can certainly have PA after a left

adrenalectomy. About a year after my left adrenalectomy, I began to

have symptoms again. Started with fatigue, facial sweats and just

not feeling well. I am lucky with my doctors who keep a regular check

on me so I'm pretty sure about when it got worse. My endo

immediately did potassium and aldosterone/renin tests and sure enough

PA is back. I have not done a scan yet so don't know if it's a tumor

or hyperplasia but my bp and potassium are under control so I'm just

watching it for now. Did you have the same type of symptoms before

adrenalectomy as you do now? I've found through research that a lot

of symptoms that I thought were something else were actually directly

or indirectly caused by PA. Blood tests should tell if you are having

a reoccurance of PA - Potassium and adosterone/renin.

I'm amazed that your endo didn't run tests. I have done the

aldosterone/renin tests 4 times since my surgery 17 months ago. I

wonder if it's about money (insurance or hmo). I'm doing monthly

potassium tests to make sure it doesn't get out of control.

If I remember your story, your experience and symptoms were very

close to mine. I also have alergies but seem to be minor now since

surgery. Your symptoms don't sound like PA right now but something is

going on and you'll feel better knowing.

Good Luck, Jan

>

[Guest guest]

Jan

I am beginning to think my endocrinologists don't know

much about Primary aldosteronism either.

I did have electolytes done several times since

surgery and my serum K is 4.3-4.5

I had a slightly elevated serum Calcium for which I

was extensively tested , everything has come back

normal. I did have a low vit D level corrected now by

supplementation.

I had a serum aldosterone done once a few months after

surgery, it was 5, before surgery it was 21.

Not sure what else they did, I am writing to obtain a

copy of my records from them. No one around here

likes to " share " you have to demand the records.

I am on no medication and maintain a normal BP.

My symptoms are not like before, I had total

exhaustion after any activity and extreme muscle

weakness, had to quit work, barely had energy to take

a shower. That isn't happening now. I had a bad

prednisone withdrawl that lasted longer than anyone

thought it should.

I am getting better now after making sure I eat food

without any additives or preservatives, taking no

meds.

I have many sensitivities to medications,

preservatives, fillers and dyes.

I do work in a pediatric office and did start all this

with a virus...my immune system got really messed up

Thanks for your reply

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[Guest guest]

Sounds like the got it--at least for awhile. Congrats.

Did you ever get a path report for your files?

CE Grim MS, MD

High Blood Pressure Consulting

Clnical Professor of Medicine Medical Colege of Wisconsin

Board certified in Internal Med, Geritrics and Hypertension.

Interests: The effect of recent evolutionary forces on high blood

pressure in human populations.

On Jan 20, 2008, at 2:33 PM, shotzie wrote:

> I had a serum aldosterone done once a few months after

> surgery, it was 5, before surgery it was 21.

[Guest guest]

, just out of curiosity, where was your Mg level? Mine (stage 4

PA) was low, and it took much experimentation to find a supplement w/o

calcium but that brought my bloodwork to normal (incidentally, helped

parastalsis). Solgar's Mg citrate tabs.

I also have hypercalcemia with spinal stenosis, 6-7 kidney stones per

incident, calcium powder residue in perpiration, urine, etc. Lotsa

sensitivities to lots things - meds of course.

What vit D supplement did you use? Mine's low too, but ordinaire causes

" episodes. " Low K, arrhythmia.

Dave

shotzie wrote:

>

> Jan

>

> I am beginning to think my endocrinologists don't know

> much about Primary aldosteronism either.

>

> I did have electolytes done several times since

> surgery and my serum K is 4.3-4.5

>

> I had a slightly elevated serum Calcium for which I

> was extensively tested , everything has come back

> normal. I did have a low vit D level corrected now by

> supplementation.

>

> I had a serum aldosterone done once a few months after

> surgery, it was 5, before surgery it was 21.

> Not sure what else they did, I am writing to obtain a

> copy of my records from them. No one around here

> likes to " share " you have to demand the records.

>

> I am on no medication and maintain a normal BP.

>

> My symptoms are not like before, I had total

> exhaustion after any activity and extreme muscle

> weakness, had to quit work, barely had energy to take

> a shower. That isn't happening now. I had a bad

> prednisone withdrawl that lasted longer than anyone

> thought it should.

>

> I am getting better now after making sure I eat food

> without any additives or preservatives, taking no

> meds.

> I have many sensitivities to medications,

> preservatives, fillers and dyes.

>

> I do work in a pediatric office and did start all this

> with a virus...my immune system got really messed up

>

> Thanks for your reply

>

>

>

>

[Guest guest]

Dave

No one had tested my Mag level in years. Around 2002

I had a RBC mag level tested by an alternative

physician and it was low. I have supplemented with

extra Magnesium for years on and off.

Somehow all my docs think PA is just hypertension and

hypokalemia that effect nothing else. I struggled

with slightly elevated fasting blood sugars which are

finally corrected. I just feel my entire system was

unbalanced and took time to correct

I had an 11 Vit D level now corrected to 36 after

taking OTC Vit D3 2000 IU daily for 4 months. I now

take 1000 three times a week, My daily MVI has 400 IU

I do get extra D in my Organic Lowfat Yogurt.

Some say we should all get 2000 IU daily but I am

hesitant to jump onto new research until proven.

Original Message:

, just out of curiosity, where was your Mg level?

Mine (stage 4

PA) was low, and it took much experimentation to find

a supplement w/o

calcium but that brought my bloodwork to normal

(incidentally, helped

parastalsis) . Solgar's Mg citrate tabs.

I also have hypercalcemia with spinal stenosis, 6-7

kidney stones per

incident, calcium powder residue in perpiration,

urine, etc. Lotsa

sensitivities to lots things - meds of course.

What vit D supplement did you use? Mine's low too, but

ordinaire causes

" episodes. " Low K, arrhythmia.

Dave

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[Guest guest]

Dr Grim

Yes I did post my path report. Showed the single

adenoma on the left, of course not certain of the

expertise of the pathologist. They did look at the

rest of the gland.

Posted by: " Grim Clarence " lowerbp2@... lowerbp2

Sun Jan 20, 2008 1:43 pm (PST)

Sounds like the got it--at least for awhile. Congrats.

Did you ever get a path report for your files?

CE Grim MS, MD

High Blood Pressure Consulting

________________________________________________________________________________\

____

Be a better friend, newshound, and

know-it-all with Mobile. Try it now.

http://mobile./;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ

[Guest guest]

I have slightly elevated fasting glucose. Actos put on 10 lbs and barely

reduced it. Metformin gave me hypoglycemia and put on another seven lbs.

Val

From: hyperaldosteronism

[mailto:hyperaldosteronism ] On Behalf Of shotzie

I struggled with slightly elevated fasting blood sugars which are

finally corrected. I just feel my entire system was

unbalanced and took time to correct

[Guest guest]

>

> Dave

>

> No one had tested my Mag level in years. Around 2002

> I had a RBC mag level tested by an alternative

> physician and it was low. I have supplemented with

> extra Magnesium for years on and off.

>

> Somehow all my docs think PA is just hypertension and

> hypokalemia that effect nothing else. I struggled

> with slightly elevated fasting blood sugars which are

> finally corrected. I just feel my entire system was

> unbalanced and took time to correct

>

> I had an 11 Vit D level now corrected to 36 after

> taking OTC Vit D3 2000 IU daily for 4 months. I now

> take 1000 three times a week, My daily MVI has 400 IU

> I do get extra D in my Organic Lowfat Yogurt.

> Some say we should all get 2000 IU daily but I am

> hesitant to jump onto new research until proven.

>

>

>

>

> Original Message:

>

> , just out of curiosity, where was your Mg level?

>

> Mine (stage 4

> PA) was low, and it took much experimentation to find

> a supplement w/o

> calcium but that brought my bloodwork to normal

> (incidentally, helped

> parastalsis) . Solgar's Mg citrate tabs.

>

> I also have hypercalcemia with spinal stenosis, 6-7

> kidney stones per

> incident, calcium powder residue in perpiration,

> urine, etc. Lotsa

> sensitivities to lots things - meds of course.

>

> What vit D supplement did you use? Mine's low too, but

> ordinaire causes

> " episodes. " Low K, arrhythmia.

>

> Dave

Dear Dave,

I found I had low vit d in August, 2007 (14) and have been taking

50,000iu for about 5 months now. Up to 42 now but i am wondering how

many PA patients have low vit d. I believe most of us may never

have been tested for vit d (i don't think i was ever tested

previously)or how important it is in the over all picture.

Maybe we should do a survey like the sleep apnea survey for vit d. I

would bet most don't know if they have been tested for vit d and

those that have tested would be high.

Just a thought. I don't know how much that would affect our help but

I'm sure it makes a difference in our health.

Your thoughts, Dr. Grim?

Jan

>

>

>

>

>

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_______________

> Looking for last minute shopping deals?

> Find them fast with Search.

http://tools.search./newsearch/category.php?

category=shopping

>

[Guest guest]

DASH is good Vit D as well.

CE Grim MS, MD

High Blood Pressure Consulting

Clnical Professor of Medicine Medical Colege of Wisconsin

Board certified in Internal Med, Geritrics and Hypertension.

Interests: The effect of recent evolutionary forces on high blood

pressure in human populations.

On Jan 21, 2008, at 5:04 PM, ipscalifornia wrote:

> I had an 11 Vit D level now corrected to 36 after

> > taking OTC Vit D3 2000 IU daily for 4 months. I now

> > take 1000 three times a week, My daily MVI has 400 IU

> > I do get extra D in my Organic Lowfat Yogurt.

> > Some say we should all get 2000 IU daily but I am

> > hesitant to jump onto new research until proven.

> >

> >

[Guest guest]

DASHing would be better than these meds.

CE Grim MS, MD

High Blood Pressure Consulting

Clnical Professor of Medicine Medical Colege of Wisconsin

Board certified in Internal Med, Geritrics and Hypertension.

Interests: The effect of recent evolutionary forces on high blood

pressure in human populations.

On Jan 21, 2008, at 10:40 AM, Valarie wrote:

> I have slightly elevated fasting glucose. Actos put on 10 lbs and

> barely

> reduced it. Metformin gave me hypoglycemia and put on another seven

> lbs.

>

> Val

[Guest guest]

I would be happy to look at the slides if you give them permission to

have them sent to me.

CE Grim MS, MD

High Blood Pressure Consulting

Clnical Professor of Medicine Medical Colege of Wisconsin

Board certified in Internal Med, Geritrics and Hypertension.

Interests: The effect of recent evolutionary forces on high blood

pressure in human populations.

On Jan 21, 2008, at 10:02 AM, shotzie wrote:

> Dr Grim

>

> Yes I did post my path report. Showed the single

> adenoma on the left, of course not certain of the

> expertise of the pathologist. They did look at the

> rest of the gland.

>

>

CE Grim MS, MD

High Blood Pressure Consulting

Clnical Professor of Medicine Medical Colege of Wisconsin

Board certified in Internal Med, Geritrics and Hypertension.

Interests: The effect of recent evolutionary forces on high blood

pressure in human populations.

[Guest guest]

Prob not worthwhile to have these quacks measure anything.

CE Grim MS, MD

High Blood Pressure Consulting

Clnical Professor of Medicine Medical Colege of Wisconsin

Board certified in Internal Med, Geritrics and Hypertension.

Interests: The effect of recent evolutionary forces on high blood

pressure in human populations.

On Jan 21, 2008, at 10:00 AM, shotzie wrote:

> I had a RBC mag level tested by an alternative

> physician and it was low.

CE Grim MS, MD

High Blood Pressure Consulting

Clnical Professor of Medicine Medical Colege of Wisconsin

Board certified in Internal Med, Geritrics and Hypertension.

Interests: The effect of recent evolutionary forces on high blood

pressure in human populations.

[Guest guest]

Oh, I do DASH, like my life depends on it. I've still not heard from one

physician about eating low-salt. Without this forum, I still probably would

not know.

Val

From: hyperaldosteronism

[mailto:hyperaldosteronism ] On Behalf Of Grim Clarence

DASHing would be better than these meds.

On Jan 21, 2008, at 10:40 AM, Valarie wrote:

> I have slightly elevated fasting glucose. Actos put on 10 lbs and

> barely

> reduced it. Metformin gave me hypoglycemia and put on another seven

> lbs.

[Guest guest]

trust you are teaching them! ;-)

CE Grim MS, MD

High Blood Pressure Consulting

Clnical Professor of Medicine Medical Colege of Wisconsin

Board certified in Internal Med, Geritrics and Hypertension.

Interests: The effect of recent evolutionary forces on high blood

pressure in human populations.

On Jan 21, 2008, at 10:31 PM, Valarie wrote:

> Oh, I do DASH, like my life depends on it. I've still not heard

> from one

> physician about eating low-salt. Without this forum, I still

> probably would

> not know.

>

> Val