Guest guest Posted May 4, 2002 Report Share Posted May 4, 2002 I made a quick post yesterday asking for help finding a doctor in TN. Forgive me for not giving a better introduction. Here is our story. I have four children age 5 and under. Luke was born Oct. 12th 2001. While my parents were visiting for Christmas, my mom noticed the right side of Luke's head was flat. She was holding him on her lap in a sitting position with his back toward her. I had not noticed his head shape prior to this. After noticing his head was flat, I began to realize he kept his head turned to the right at all times. At Luke's four month check up I mentioned the problem to his ped. He said it would round out with time, especially once he started rolling over. He said if the condition had not improved by his 6mo check up, he would refer us to a specialist. He did order x-rays to rule out tort. I wasn't really given any specific repositioning techniques to try. I did find some from doing research on my own. No matter what I tried Luke would get back to the side he wanted to be on. At his 6mo check up Luke's head had improved some but it was still very flat and his ears were way out of line. At my request, our ped sent us to a neurologist in Knoxville, TN. He told us he sees a case like Luke's every 1-2 years. He suggested we see a craniofacial plastic surgeon and pursue a band. The surgeon he had used in the past is no longer taking pediatric patients. According to him the closest options are Chattanooga and Nashville. These are 3 and 4 hour drives from our home. I found the CAPPS website tonight. I emailed the contact person in TN and NC to see if they could help. My parents live in NC. They are only about 30 minutes from Duke Medical Center. If I have to drive 4 hours to Nashville, I would rather drive 4.5 hours to there house. They could keep my other 3 children and we could save on hotel costs. We have no family in TN. Have any of you traveled long distances? Did you have to take other children with you? How often did you have to make the trip? (I've read fittings are done every 1- 2 weeks!) Thanks for listening, Jama Mommy to 4 precious blessings Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 4, 2002 Report Share Posted May 4, 2002 Have any of you traveled long distances? Did you have to take other children with you? How often did you have to make the trip? (I've read fittings are done every 1- 2 weeks!) Hi Jama: Thanks for the addt'l information. WOW, you needless to say, have your hands VERY full with 4 kids under 5. Geesh! To answer your questions, I did have about a 4 hour one way drive to the Chicago Cranial Technologies with my daughter Abby. Some drives were better than others of course, and some I wanted to overdose on Excedrins . In the long run it was definitely worth the drives. Abby wore one DOCband for 4.5 mos time and we rec'd very good correction. Abby is my only child so I had no other children to take with us. Abby had to go into the clinic every 2 wks for adjustments. Abby didn't begin her treatment til she was 11.5 mos old so she wasn't growing as fast as a younger baby. How often you would go in for adjustments would depend on what age your son is when you begin & how much he is growing. Good luck with all of this. I hope someone from CAPPS can help you some more. Please keep us updated on your decision. Debbie Abby's mom DOCgrad MI > I made a quick post yesterday asking for help finding a doctor in > TN. Forgive me for not giving a better introduction. Here is our > story. > > I have four children age 5 and under. Luke was born Oct. 12th 2001. > While my parents were visiting for Christmas, my mom noticed the > right side of Luke's head was flat. She was holding him on her lap > in a sitting position with his back toward her. I had not noticed > his head shape prior to this. After noticing his head was flat, I > began to realize he kept his head turned to the right at all times. > > At Luke's four month check up I mentioned the problem to his ped. He > said it would round out with time, especially once he started rolling > over. He said if the condition had not improved by his 6mo check up, > he would refer us to a specialist. He did order x-rays to rule out > tort. > > I wasn't really given any specific repositioning techniques to try. > I did find some from doing research on my own. No matter what I > tried Luke would get back to the side he wanted to be on. > > At his 6mo check up Luke's head had improved some but it was still > very flat and his ears were way out of line. At my request, our ped > sent us to a neurologist in Knoxville, TN. He told us he sees a case > like Luke's every 1-2 years. He suggested we see a craniofacial > plastic surgeon and pursue a band. The surgeon he had used in the > past is no longer taking pediatric patients. According to him the > closest options are Chattanooga and Nashville. These are 3 and 4 > hour drives from our home. > > I found the CAPPS website tonight. I emailed the contact person in > TN and NC to see if they could help. My parents live in NC. They > are only about 30 minutes from Duke Medical Center. If I have to > drive 4 hours to Nashville, I would rather drive 4.5 hours to there > house. They could keep my other 3 children and we could save on > hotel costs. We have no family in TN. Have any of you traveled long > distances? Did you have to take other children with you? How often > did you have to make the trip? (I've read fittings are done every 1- > 2 weeks!) > > Thanks for listening, > Jama > Mommy to 4 precious blessings Quote Link to comment Share on other sites More sharing options...
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