Re: Fw: Anyone out there NOT banding - Part 2

[Guest guest]

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She is truly a doll!

I know summer would be uncomfortable with your head covered, but the

bands (STARBand and DOCBand) are open on top. The DOC Band is so

light. I think it is about 6 oz. When I hold it, it literally

feels like nothing. I have never held a STARBand, but bet they are

similar in weight.

I wish I had a scanner so I could show you a very good picture of

Dane's asymmetry before he started the band and today. The best one

was taken at the Picture People and I don't have it on disk.

I do notice the asymmetry on her left side with her eye and ear. We

repositioned Dane for 2 months (2-4 months). While we did see some

progress in the flat spot, the asymmetry never seemed to budge until

we got the Band. I swear at least once a week when he wakes up, I

can look at his face and tell he grew that night because it is

coming back into alignment.

Our dr said the same thing as yours, that it should round out. We

felt that " should " wasn't a good option for us and we didn't want to

gamble with our child's head. DH was worried about Dane being

uncomfortable in the band. I insisted that it was better for him to

be uncomfortable for a few months that have health problems and

ridicule throughout his life. BTW - he doesn't even notice the band

is on.

I'm not saying that banding is for everyone and I certainly hope you

get complete correction with repositioning. I hope the drs. are

right and everyone's head rounds out on its own. We went to college

with a guy who had a terribly mangled head, so I KNOW not EVERY head

rounds out.

It's a very hard decision. I didn't sleep well at all from the time

he was dx until the night we (I) decided to get the band. That

night I slept like a baby, because my mind was finally made up - one

way or the other. I think dh agreed just to shut me up!

Good luck and I really pray you get the correction you are looking

for!

Dane's mom (DOC Band 2/14)

>

> I wrote this message last Thursday and it was just returned to

me. It

> was never posted. Anyone else having troubles posting???????

>

>

>

>

> I can't believe I forgot to include my daughter's

> age.... she is 8 months. I know the window is closing

> fast.

>

> Her assymetry is most noticeable from the top and

> back. Her face is pretty straight when viewed head-on

> --- I've attached a picture for anyone that wants to

> scrutinize it.

>

> One of my concerns is that the Ped. Neuro. said the

> babies are pretty miserable because the bands/helmets

> are hot and heavy. We live in deep, south Texas where

> it is already summer. It's been over 90 degrees

> everyday for the past 2 weeks, and will be until

> Thanksgiving. If it will correct without a band and

> she can be spared of the misery, I'm all for it. But

> I don't want her to be miserable as an adult.

>

> My husband firmly believes the doc --- that she will

> outgrow this.

>

> Thanks for the replies I've received. I'm just as

> lost as ever, but I appreciate the support.

>

>

[Guest guest]

Hi ,

We are in Texas too, and I was a bit concerned about the heat and the lovely Gulf moisture in the air. My twins have been in their bands for 3 1/2 weeks. Yes, they have been sweaty, but the change in their head shape has been amazing. I just make sure that I dress them a little cooler than I normally would, and I tell my husband, "I have to turn the air down. It's for the babies sake." We also "air out" all the time and let them roll around in just a diaper, bands off, under the ceiling fan. They seem absolutely fine. Just think of it like a good workout - a little sweat and hard work leads to a more shapelier (is that a word?) person. Good luck with your decision!

Gail

, Texas

> > One of my concerns is that the Ped. Neuro. said the> babies are pretty miserable because the bands/helmets> are hot and heavy. We live in deep, south Texas where> it is already summer. It's been over 90 degrees> everyday for the past 2 weeks, and will be until> Thanksgiving. If it will correct without a band and> she can be spared of the misery, I'm all for it. But> I don't want her to be miserable as an adult.