Guest guest Posted May 21, 2002 Report Share Posted May 21, 2002 JULIE!!! I'm in Overland Park and we have an appt on June 3rd with Dr. Witt, too! I'm not sure if we'll be keeping the appointment, however, as I have been trying to get my son looked at for a long time and finally took him myself to CT (Rehab Designs of America in KC, MO) to get an evaluation. They took all his measurements, showed us before and after head castings, gave us LOTS of literature, we spent a few hours there. Anyway, they categorized Grant's plagio as moderate to severe (MUCH to my surprise. I was amazed to see how off his ears really were and how asymmetrical his head measured). Anyway, after that I asked my ped to order the tests NOW to rule out cranio and then to consider writing the rx himself for the DOCband and having CT do it. We are going tomorrow for the tests at Children's Mercy and then we'll see if our ped still wants us to wait the 2 more weeks for Dr. Witt or if we can push forward. My son is already 8 months and already has a 47 cent. head (big! 95 percentile)...so I'm antsy to get this going. If we do go to DR Witt (may do it for another opinion even if we get started at CT)...maybe I'll see you?! What time is your appt? If you ever want to get together for lunch or something and talk...I'm game. I'm still learning so much and would love to meet someone else in the same boat. Here's a link to a little website I made a while back...just so you can see we're pretty normal people . http://hometown.aol.com/kkrobben/myhomepage/index.html You may have to hit refresh or reload a few times it has trouble loading sometimes. artbyjules <artbyjules@...> wrote: Well, it's been awhile since I've posted as we've been trying to get the ba= ll rolling.Old news was that our pediatrician referred us to "the only doctor in KC th= at deals with plagio". An appointment was set for the end of July. Neither my husband or I were happ= y with this long delay,and we got nowhere trying to move the appt. up.Next we began telling our friends at church about the plagio, asking for pr= ayer for ny. Along the way we discovered that Dr. Witt at KU Med Center attends our chur= ch AND that he is recog-nized internationally for his work with plagio kids. I phoned his wife an= d she got me hooked up with Dr. Witt's nurse. Our appt. with Dr. Witt is June 3rd! I might also add that his nurse was exceptionally kind and very well inform= ed. In fact, she speaks to parent groups and pediatricians groups, teaching them about the importan= ce of "tummy time" from DAY ONE! She is sending material to my pediatrician. She noted some stati= stics that were very disconncerting, regarding plagio. She said that a study was done recently = which noted that some infants are spending as much as 24 HOURS A DAY in the prone position in eit= her a carrier, carseat, swing, etc. I found this to be sickening! No wonder plagio is so much on t= he rise.She said that it isa result of our current, fast-paced lifestyle.Just two decades ago all these "baby sitting" gadgets didn't exist. So I s= ay, "MOM, PICK UP YOUR BABY! The housework can wait." She also noted something very important. She said that she does battle wit= h insurance companies for coverage of treatment. HOWEVER, she said that it won't be long before insurance carrie= rs educate themselves about plagio. Not that it is "simply cosmetic" (which it is not), but that it is PREVENTABLE.= A Mom Who Loves Her Boy,ny's MomFor more plagio info Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 21, 2002 Report Share Posted May 21, 2002 , Grant is a CUTIE PATOOTIE!!!! Your dh is a cutie also and you are just beautiful!!!! thanks for sharing the page...you did a great job..Trisha -----Original Message-----From: Robben [mailto:kellysdogs@...]Sent: Tuesday, May 21, 2002 12:08 PMPlagiocephaly Subject: Re: UPDATE: ny's Mom JULIE!!! I'm in Overland Park and we have an appt on June 3rd with Dr. Witt, too! I'm not sure if we'll be keeping the appointment, however, as I have been trying to get my son looked at for a long time and finally took him myself to CT (Rehab Designs of America in KC, MO) to get an evaluation. They took all his measurements, showed us before and after head castings, gave us LOTS of literature, we spent a few hours there. Anyway, they categorized Grant's plagio as moderate to severe (MUCH to my surprise. I was amazed to see how off his ears really were and how asymmetrical his head measured). Anyway, after that I asked my ped to order the tests NOW to rule out cranio and then to consider writing the rx himself for the DOCband and having CT do it. We are going tomorrow for the tests at Children's Mercy and then we'll see if our ped still wants us to wait the 2 more weeks for Dr. Witt or if we can push forward. My son is already 8 months and already has a 47 cent. head (big! 95 percentile)...so I'm antsy to get this going. If we do go to DR Witt (may do it for another opinion even if we get started at CT)...maybe I'll see you?! What time is your appt? If you ever want to get together for lunch or something and talk...I'm game. I'm still learning so much and would love to meet someone else in the same boat. Here's a link to a little website I made a while back...just so you can see we're pretty normal people . http://hometown.aol.com/kkrobben/myhomepage/index.html You may have to hit refresh or reload a few times it has trouble loading sometimes. artbyjules <artbyjules@...> wrote: Well, it's been awhile since I've posted as we've been trying to get the ba= ll rolling.Old news was that our pediatrician referred us to "the only doctor in KC th= at deals with plagio". An appointment was set for the end of July. Neither my husband or I were happ= y with this long delay,and we got nowhere trying to move the appt. up.Next we began telling our friends at church about the plagio, asking for pr= ayer for ny. Along the way we discovered that Dr. Witt at KU Med Center attends our chur= ch AND that he is recog-nized internationally for his work with plagio kids. I phoned his wife an= d she got me hooked up with Dr. Witt's nurse. Our appt. with Dr. Witt is June 3rd! I might also add that his nurse was exceptionally kind and very well inform= ed. In fact, she speaks to parent groups and pediatricians groups, teaching them about the importan= ce of "tummy time" from DAY ONE! She is sending material to my pediatrician. She noted some stati= stics that were very disconncerting, regarding plagio. She said that a study was done recently = which noted that some infants are spending as much as 24 HOURS A DAY in the prone position in eit= her a carrier, carseat, swing, etc. I found this to be sickening! No wonder plagio is so much on t= he rise.She said that it isa result of our current, fast-paced lifestyle.Just two decades ago all these "baby sitting" gadgets didn't exist. So I s= ay, "MOM, PICK UP YOUR BABY! The housework can wait." She also noted something very important. She said that she does battle wit= h insurance companies for coverage of treatment. HOWEVER, she said that it won't be long before insurance carrie= rs educate themselves about plagio. Not that it is "simply cosmetic" (which it is not), but that it is PREVENTABLE.= A Mom Who Loves Her Boy,ny's MomFor more plagio info Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 21, 2002 Report Share Posted May 21, 2002 : What terrific new for you & ny. Goes to show you what a small world it really is when you ask your church to pray for ny & his plagio, when a plagio specialist is sitting right next to you in church all this time! That's great! I saw our other group member, also has an appt the same day as yours with Dr. Witt. See, small world again Let us know how the appt goes & what Dr. Witt recommends. Good luck. Debbie Abby's mom DOCgrad MI > artbyjules <artbyjules@e...> wrote: Well, it's been awhile since I've posted as we've been trying to get the ba= > ll rolling. > > Old news was that our pediatrician referred us to " the only doctor in KC th= > at deals with plagio " . An > appointment was set for the end of July. Neither my husband or I were happ= > y with this long delay, > and we got nowhere trying to move the appt. up. > > Next we began telling our friends at church about the plagio, asking for pr= > ayer for ny. Along > the way we discovered that Dr. Witt at KU Med Center attends our chur= > ch AND that he is recog > -nized internationally for his work with plagio kids. I phoned his wife an= > d she got me hooked up > with Dr. Witt's nurse. Our appt. with Dr. Witt is June 3rd! > > I might also add that his nurse was exceptionally kind and very well inform= > ed. In fact, she speaks > to parent groups and pediatricians groups, teaching them about the importan= > ce of " tummy time " from > DAY ONE! She is sending material to my pediatrician. She noted some stati= > stics that were very > disconncerting, regarding plagio. She said that a study was done recently = > which noted that some > infants are spending as much as 24 HOURS A DAY in the prone position in eit= > her a carrier, carseat, > swing, etc. I found this to be sickening! No wonder plagio is so much on t= > he rise.She said that it is > a result of our current, fast-paced lifestyle. > > Just two decades ago all these " baby sitting " gadgets didn't exist. So I s= > ay, " MOM, PICK UP YOUR BA > BY! The housework can wait. " > > She also noted something very important. She said that she does battle wit= > h insurance companies for coverage of > treatment. HOWEVER, she said that it won't be long before insurance carrie= > rs educate themselves about plagio. Not > that it is " simply cosmetic " (which it is not), but that it is PREVENTABLE.= > > > A Mom Who Loves Her Boy, > > ny's Mom > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 21, 2002 Report Share Posted May 21, 2002 Wow, thanks Trisha! You're so nice Trisha s <trisham@...> wrote: , Grant is a CUTIE PATOOTIE!!!! Your dh is a cutie also and you are just beautiful!!!! thanks for sharing the page...you did a great job..Trisha -----Original Message-----From: Robben [mailto:kellysdogs@...]Sent: Tuesday, May 21, 2002 12:08 PMPlagiocephaly Subject: Re: UPDATE: ny's Mom JULIE!!! I'm in Overland Park and we have an appt on June 3rd with Dr. Witt, too! I'm not sure if we'll be keeping the appointment, however, as I have been trying to get my son looked at for a long time and finally took him myself to CT (Rehab Designs of America in KC, MO) to get an evaluation. They took all his measurements, showed us before and after head castings, gave us LOTS of literature, we spent a few hours there. Anyway, they categorized Grant's plagio as moderate to severe (MUCH to my surprise. I was amazed to see how off his ears really were and how asymmetrical his head measured). Anyway, after that I asked my ped to order the tests NOW to rule out cranio and then to consider writing the rx himself for the DOCband and having CT do it. We are going tomorrow for the tests at Children's Mercy and then we'll see if our ped still wants us to wait the 2 more weeks for Dr. Witt or if we can push forward. My son is already 8 months and already has a 47 cent. head (big! 95 percentile)...so I'm antsy to get this going. If we do go to DR Witt (may do it for another opinion even if we get started at CT)...maybe I'll see you?! What time is your appt? If you ever want to get together for lunch or something and talk...I'm game. I'm still learning so much and would love to meet someone else in the same boat. Here's a link to a little website I made a while back...just so you can see we're pretty normal people . http://hometown.aol.com/kkrobben/myhomepage/index.html You may have to hit refresh or reload a few times it has trouble loading sometimes. artbyjules <artbyjules@...> wrote: Well, it's been awhile since I've posted as we've been trying to get the ba= ll rolling.Old news was that our pediatrician referred us to "the only doctor in KC th= at deals with plagio". An appointment was set for the end of July. Neither my husband or I were happ= y with this long delay,and we got nowhere trying to move the appt. up.Next we began telling our friends at church about the plagio, asking for pr= ayer for ny. Along the way we discovered that Dr. Witt at KU Med Center attends our chur= ch AND that he is recog-nized internationally for his work with plagio kids. I phoned his wife an= d she got me hooked up with Dr. Witt's nurse. Our appt. with Dr. Witt is June 3rd! I might also add that his nurse was exceptionally kind and very well inform= ed. In fact, she speaks to parent groups and pediatricians groups, teaching them about the importan= ce of "tummy time" from DAY ONE! She is sending material to my pediatrician. She noted some stati= stics that were very disconncerting, regarding plagio. She said that a study was done recently = which noted that some infants are spending as much as 24 HOURS A DAY in the prone position in eit= her a carrier, carseat, swing, etc. I found this to be sickening! No wonder plagio is so much on t= he rise.She said that it isa result of our current, fast-paced lifestyle.Just two decades ago all these "baby sitting" gadgets didn't exist. So I s= ay, "MOM, PICK UP YOUR BABY! The housework can wait." She also noted something very important. She said that she does battle wit= h insurance companies for coverage of treatment. HOWEVER, she said that it won't be long before insurance carrie= rs educate themselves about plagio. Not that it is "simply cosmetic" (which it is not), but that it is PREVENTABLE.= A Mom Who Loves Her Boy,ny's MomFor more plagio info Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 23, 2002 Report Share Posted May 23, 2002 , Sounds like things are moving right along for ny - Hooray!! Way to be proactive in getting a quicker appointment with another doctor - nice work! Let us know how things go on June 3rd. Marci (Mom to ) Oklahoma Quote Link to comment Share on other sites More sharing options...
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