need advice for tv interview

[Guest guest]

hi everyone. WRAL in Raleigh, NC is coming on Wednesday morning to

talk to me and get some footage of emma in her DOC band. i contacted

them asking them to do a story on plagio. i was hoping that this would

be a way to inform people and get the word out, and perhaps with this

knowledge other people can prevent having to go through what we're

going through with emma. i feel this is especially important

because although my husband and i will struggle to pay for the

band, there are people for whom this would not even be an option.

had i known 5 or 6 months ago what i know now, emma might not have to

spend the scorching NC summer in a hot helmet. since i'm no expert

(although i sure know a lot more than i did a few months ago!), i

thought i'd check with all of you for things to try and highlight. i'm

sure they'll only use a minute or two of what i say, so i want it to

be worthwhile.

i want to stress that:

· parents need to be made aware of what plagio is

· parents should alter their child's sleeping position

· there has been a huge increase in the number of cases of plagio

since the introduction of the Back to Sleep campaign

· tummy time is important not only for strengthening muscles, but also

for preventing plagio

· time in infant carriers, swings, bouncy seats, etc. should be

limited

· babies with torticollis are at an increased risk for developing

plagio

· many, many doctors ignore the signs of plagio and tell parents

things like, " it will round out on its own, " " no one is completely

symmetrical, " " she can grow her hair long, " etc., and i have read too

many heartbreaking stories of parents who trusted their doctors but

never saw any correction, and then the child was too old for treatment

· there is an effective treatment - even though many doctors seem to

be opposed to banding

· most of all - this is something that is possibly preventable

please send me more ideas!

thanks so much!

amy

mom to emma (born 9/24/01) (DOC band 5/6/02)

[Guest guest]

Sounds like you have GREAT ideas for the interview. The only thing I might

add is that cranio is sometimes mistaken for plagio and that it is important

to have your baby checked for cranio before starting treament for plagio.

Good luck and make sure you tell us how it goes.

Marci (mom to )

Oklahoma

[Guest guest]

Hi Amy

I wish you lots of luck for Wednesday. It sounds like you have everything on

the list. I agree with everything you have put. I think the most annoying

thing is that it is preventable and so annoying when Doctors/Ped tell us " it

will round out in time " !! that makes me so mad!!

Again abslolutly super news please keep us informed to how it goes and i am

sure that Emma will be a " star " .

best wishes

Kerry - Marcus (3) Dylan in second DOCband (16months)

Calgary,AB

>From: " amy_coppedge " <amy_coppedge@...>

>Reply-Plagiocephaly

>Plagiocephaly

>Subject: need advice for tv interview

>Date: Mon, 20 May 2002 17:49:14 -0000

>

>hi everyone. WRAL in Raleigh, NC is coming on Wednesday morning to

>talk to me and get some footage of emma in her DOC band. i contacted

>them asking them to do a story on plagio. i was hoping that this would

>be a way to inform people and get the word out, and perhaps with this

>knowledge other people can prevent having to go through what we're

>going through with emma. i feel this is especially important

>because although my husband and i will struggle to pay for the

>band, there are people for whom this would not even be an option.

>had i known 5 or 6 months ago what i know now, emma might not have to

>spend the scorching NC summer in a hot helmet. since i'm no expert

>(although i sure know a lot more than i did a few months ago!), i

>thought i'd check with all of you for things to try and highlight. i'm

>sure they'll only use a minute or two of what i say, so i want it to

>be worthwhile.

>i want to stress that:

>· parents need to be made aware of what plagio is

>· parents should alter their child's sleeping position

>· there has been a huge increase in the number of cases of plagio

>since the introduction of the Back to Sleep campaign

>· tummy time is important not only for strengthening muscles, but also

>for preventing plagio

>· time in infant carriers, swings, bouncy seats, etc. should be

>limited

>· babies with torticollis are at an increased risk for developing

>plagio

>· many, many doctors ignore the signs of plagio and tell parents

>things like, " it will round out on its own, " " no one is completely

>symmetrical, " " she can grow her hair long, " etc., and i have read too

>many heartbreaking stories of parents who trusted their doctors but

>never saw any correction, and then the child was too old for treatment

>· there is an effective treatment - even though many doctors seem to

>be opposed to banding

>· most of all - this is something that is possibly preventable

>

>please send me more ideas!

>thanks so much!

>amy

>mom to emma (born 9/24/01) (DOC band 5/6/02)

>

>

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