Guest guest Posted May 20, 2002 Report Share Posted May 20, 2002 Thanks for the update on Grant - keep us posted! ' Mom Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 20, 2002 Report Share Posted May 20, 2002 We spent the morning at CT (actually Rehab Designs of America - a CT authorized clinic in KC). Grant had moderate to severe plagio shape. I'm not sure what I'm going to do from here. I am about to call my ped and talk with him about it. The concern for waiting even 2 more weeks to see the specialist is that Grant's head is already ahead of his body (head is in the 90%, body in the 50%) and there is a chance the head growth could start to slow down while his body catches up...so the sooner he's banded..probably the better. I am going to see if the ped will agree to write an rx so we can get the ball rolling, in agreement to keeping the appt. with the craniofacial specialist to rule out craniosyntesis. CT also gave me a name of another craniofacial spec. with the hopes that possibly I can get in to see this one even sooner if I explain that CT has looked at him and thinks he needs to be banded asap. Phone calls to make! I'll keep you updated! R, mom to Grant Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 20, 2002 Report Share Posted May 20, 2002 : I am glad you were able to get into Cranial Tech to have Grant evaluated & they gave you their opinion. Let us know if you were able to talk with your ped & what you will be doing from here. Debbie Abby's mom DOCGrad MI > We spent the morning at CT (actually Rehab Designs of America - a CT > authorized clinic in KC). Grant had moderate to severe plagio > shape. I'm not sure what I'm going to do from here. I am about to > call my ped and talk with him about it. The concern for waiting even > 2 more weeks to see the specialist is that Grant's head is already > ahead of his body (head is in the 90%, body in the 50%) and there is > a chance the head growth could start to slow down while his body > catches up...so the sooner he's banded..probably the better. I am > going to see if the ped will agree to write an rx so we can get the > ball rolling, in agreement to keeping the appt. with the craniofacial > specialist to rule out craniosyntesis. CT also gave me a name of > another craniofacial spec. with the hopes that possibly I can get in > to see this one even sooner if I explain that CT has looked at him > and thinks he needs to be banded asap. Phone calls to make! I'll > keep you updated! > > R, mom to Grant Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 20, 2002 Report Share Posted May 20, 2002 I'm glad you got him in...hopefully the Ped will at least write the script fo the band...Good Luck and keep us posted..Trisha -----Original Message-----From: kellysdogs [mailto:kellysdogs@...]Sent: Monday, May 20, 2002 2:03 PMPlagiocephaly Subject: Took Grant to CTWe spent the morning at CT (actually Rehab Designs of America - a CT authorized clinic in KC). Grant had moderate to severe plagio shape. I'm not sure what I'm going to do from here. I am about to call my ped and talk with him about it. The concern for waiting even 2 more weeks to see the specialist is that Grant's head is already ahead of his body (head is in the 90%, body in the 50%) and there is a chance the head growth could start to slow down while his body catches up...so the sooner he's banded..probably the better. I am going to see if the ped will agree to write an rx so we can get the ball rolling, in agreement to keeping the appt. with the craniofacial specialist to rule out craniosyntesis. CT also gave me a name of another craniofacial spec. with the hopes that possibly I can get in to see this one even sooner if I explain that CT has looked at him and thinks he needs to be banded asap. Phone calls to make! I'll keep you updated! R, mom to GrantFor more plagio info Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 21, 2002 Report Share Posted May 21, 2002 , Thanks for the update on Grant. I can understand the rush to get things moving if they think Grant's growth might start slowing! Good luck with whichever path you choose and keep us posted. Marci (Mom to ) Oklahoma Quote Link to comment Share on other sites More sharing options...
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