Re: Please Help...

[Guest guest]

:

I forgot to mention that to you that Cranial Tech in the KC office is

called Rehab Designs! But they are Cranial Technologies. I am not

sure if that particular office does free evals or if they are one of

the 2 that charge, but to my understanding, you do not need a

referral from your ped. just to have Grant evaluated by them. You do

need a prescription though for them to band Grant IF that's what you

end up doing - they cannot put the band on his head or even cast him

w/o an RX.

I would definitely demand a referral for phys. therapy from your ped

in the mean time. If your ped. won't authorize this, then switch

peds! Or ask to speak with his partner that brought up Grant's head

shape to you and see if she/he will refer you. I know how hard it is

to speak up to Drs, but it sounds like your ped. needs a swift kick

in the you know where to light a fire under his behind!!!!

I hope Cranial Tech gets back with you SOON. Let us know when they do

call you back & what they recommend!

Debbie Abby's mom DOCGrad

MI

> >

> > Hello,

> >

> > My name is . I had my first baby, a son named Grant, on

> September 26, 2001. Not long after he was born, we noticed he had

a

> tendency to turn his head to the left. We did see him occasionally

> turn it to the right, but never to the extent that he turned it to

> the left. We also noticed that when he settled down and fell

asleep,

> his head would always fall the left. When his hair starting

> thickening up, we noticed that he had a lot more hair on the right

> side...like he was wearing away the hair towards the back of the

left

> side. I mentioned this at EVERY doc appt and was told about

> positioning opposite directions on changing table, in crib, etc.

> minimize use of bouncy seat, swing, etc. I did all these things,

but

> he would just find something new to look at in the left direction

and

> we never were really using the bouncy seat, swing, etc. anyway. He

> never really liked those kind of toys. Well, even now, with him

> sitting up or on his tummy all the time it's growing worse. The

> flattening is getting very noticeable on the left side and his ears

> look misaligned. I don't really notice any asymmetry in his face,

> though. Well, a couple of weeks ago I took him to the

pediatrician

> to get his ears checked (he was pulling at them). We saw a

different

> ped..the one who was taking emerg. sick visits. She took one look

at

> him and noticed the head flattening, favoring one side with neck,

> etc. She seemed a bit alarmed (even though our normal ped blows it

> off constantly and he is one of the top noted pediatricians in the

> city?!). She gave me one exercise to do with him, stressed tummy

> time (we're doing it all day already), and said he needed to come

> back in 3 weeks and be evaluated for possible PT. Hello? Why wait

3

> weeks? I was confused and angry and scared. After a couple days

of

> these excruciating exercises (they are getting a bit easier now) I

> called back and demanded to talk to our normal ped. I asked him

for

> a referral to a specialist to see what needed to be done (after

much

> reading up on this stuff on my own). He agreed and gave me a

name

> of a craniofacial specialist (a pediatric reconstructive/plastic

> surgery doc)... I call this guy and can't get in until July 18th!!!

> My baby will be almost 9 mos. old then!!! I called my ped back to

> tell him and see what my alternatives where (can he grease the

> wheels? Is there someone else?) and he says just keep doing the

> exercises...you won't get in anywhere else sooner. HELP...what

would

> you experienced ladies do in my spot? What do I do next? Will it

be

> too late to fix his head shape? Would you find someone to call on

> your own? Help, please. Anyone in the KC area? Thanks so much.

> >

> > R, mom to Grant

> >

> >

> >

> > ---------------------------------

> >