Please Help...

[Guest guest]

Hello,

My name is . I had my first baby, a son named Grant, on September 26, 2001. Not long after he was born, we noticed he had a tendency to turn his head to the left. We did see him occasionally turn it to the right, but never to the extent that he turned it to the left. We also noticed that when he settled down and fell asleep, his head would always fall the left. When his hair starting thickening up, we noticed that he had a lot more hair on the right side...like he was wearing away the hair towards the back of the left side. I mentioned this at EVERY doc appt and was told about positioning opposite directions on changing table, in crib, etc. minimize use of bouncy seat, swing, etc. I did all these things, but he would just find something new to look at in the left direction and we never were really using the bouncy seat, swing, etc. anyway. He never really liked those kind of toys. Well, even now, with him sitting up or on his tummy all the time it's growing worse. The flattening is getting very noticeable on the left side and his ears look misaligned. I don't really notice any asymmetry in his face, though. Well, a couple of weeks ago I took him to the pediatrician to get his ears checked (he was pulling at them). We saw a different ped..the one who was taking emerg. sick visits. She took one look at him and noticed the head flattening, favoring one side with neck, etc. She seemed a bit alarmed (even though our normal ped blows it off constantly and he is one of the top noted pediatricians in the city?!). She gave me one exercise to do with him, stressed tummy time (we're doing it all day already), and said he needed to come back in 3 weeks and be evaluated for possible PT. Hello? Why wait 3 weeks? I was confused and angry and scared. After a couple days of these excruciating exercises (they are getting a bit easier now) I called back and demanded to talk to our normal ped. I asked him for a referral to a specialist to see what needed to be done (after much reading up on this stuff on my own). He agreed and gave me a name of a craniofacial specialist (a pediatric reconstructive/plastic surgery doc)... I call this guy and can't get in until July 18th!!! My baby will be almost 9 mos. old then!!! I called my ped back to tell him and see what my alternatives where (can he grease the wheels? Is there someone else?) and he says just keep doing the exercises...you won't get in anywhere else sooner. HELP...what would you experienced ladies do in my spot? What do I do next? Will it be too late to fix his head shape? Would you find someone to call on your own? Help, please. Anyone in the KC area? Thanks so much.

R, mom to Grant