Re: Fw: Newbie with older baby

[Guest guest]

Good luck. I was were your at 2 yrs ago with my daughter and did

helmet theraphy at 13mths with good results. She not perfectly round

but a big improvement. The 18 months post helmet hasent done any

significent improvement but I'm ok with that too. I would get on with

the casting without approval and fight afterwards. Every day you miss

is a correction day you cant get back.

Lorraine.

>

>

> --------- Forwarded message ----------

> From: Ellen Hemple <hemplee@j...>

> PositionalPlagioSupport@y...

> Date: Wed, 15 May 2002 18:01:03 -0400

> Subject: Newbie with older baby

> Message-ID: <20020515.180107.-229729.0.hemplee@j...>

>

> Hello!

> My name is Ellen and my 1 year old daughter Amy has plagio. Here

is our

> story. By the time we had our 2 month visit to our Ped., I was very

> concerned about the shape of Amy's head. Our ped. shrugged it off

and

> said to try repositioning and moving stimulus to her right side.

By 4

> months I was so concerned we saw Dr. Queenan, neurosurgeon at the

well

> respected A.I. duPont Institute in Delaware. He looked at her and

said

> moderate plagio with slight tort. I asked about helmets (not

knowing

> about bands and aggressive therapy at the time) and he scoffed and

said

> that helmets don't work and insurance companies don't pay for

them! He

> suggested repositioning, propping, and neck stretches. When Amy

was 5

> months old, just 1 month later, we saw the neuro. again because I

knew

> correction was best done on younger babies. He just told us the

same

> advice. I brought up my same concerns to our ped. at the 6 and 9

month

> visits. His advice was the same as many of you have heard....the

> condition will improve as the baby spends more time sitting up, it

will

> round out on its own, her hair will cover it! He even has

triplets, 2 of

> whom have plagio in the back so it doesn't affect the symmetry their

> faces! He did nothing with his own children and therefore was not

overly

> concerned. I however could see and was alarmed by all the

asymmetries of

> her head, face, ears, and cheeks.

>

> A day before Amy's first birthday, I picked up a BabyTalk magazine,

which

> is sent to me only occasionally. In it was a reader's response to

an

> article on plagio. and a response from CAPPS. I got up out of bed

and

> visited this web site. I was in tears seeing all the stunning and

> positive results achieved by banding. I contacted their co-founder

and

> others listed on the site. One recommendation was to see a Cranial

Tech.

> clinician for a free consultation. We live in New Jersey and the

CT is

> 21/2 -3 hours from our home. My husband was not supportive at first

> because he could not see the asymmetries and this was his perfect

little

> girl. I visited every web site I could to show him the results and

what

> might happen if we did nothing. In 3 days I was seriously " off the

> fence. " We had a ped. visit and a Cranial Tech visit in the span

of one

> short week.

>

> The OTR at CT confirmed what I had known all along. Yes, they could

> help, it will probably take 6-61/2 months and 2 DOC Bands. Her

> asymmetries were 21mm, 11mm, and 9mm. Well over the 6mm in 2/3

> categories recommended for banding. We are now awaiting a letter of

> medical necessity from our ped. and the prescrip. I am hopeful we

get

> that this week and can schedule a casting for next week.

>

> CT can't do anything without this info. and they'll hope for

immediate

> approval from AEtna USHealthcare. Our insurance initially has said

this

> will be covered out of network as DME. We have a $100.00 deduct.

and

> they pay 80%. This means we will pay about $1400 for 2 bands.

Should I

> be fighting my insurance to get them to pay 100%? Where is the

famous

> Tricia s? We need advice in this area. I have been advised

to

> have my ped. call and tell AEtna is a necessity and have it

processed on

> the HMO side of the plan. When I ran this by CT they said they

only have

> a code which is a DME code and AEtna will pick this up. Any

suggestions?

> Should I fight or be relieved they'll pay that much?

>

> Are we proceeding propery folks? I read all the lit. from CT and am

> still stunned that doctors are not right about this one! How can

they

> possibly think that ears, jaws, cheeks, and heads that aren't

aligned

> won't " be a problem " later on? Our OTR pointed out that even one of

> Amy's eyes is pushed forward in alignment. I was horrified that I

hadn't

> noticed that. The awful shame is that we viewed a casting of a two

year

> old's head at CT, not much different than my daughter's. This

almost

> adult sized misshapen head is the one this child will have for the

rest

> of his life.

>

> I feel as if I have been tremendously blessed to find CAPPS and this

> group before it was too late.

> My best regards to you all and a heartfelt thank you for helping

others!

>

>

> Sincerely,

> Ellen, mom to Amy

> Bridgeton, NJ

>

>

>

>

>

>

>

> ________________________________________________________________

> GET INTERNET ACCESS FROM JUNO!

> Juno offers FREE or PREMIUM Internet access for less!

> Join Juno today! For your FREE software, visit:

> http://dl.www.juno.com/get/web/.

[Guest guest]

Candy,

YEAH RYAN!!!!! Sounds like he is doing terrific!!!! Can't wait to see that

graduation post )

' Mom

[Guest guest]

You are not starting too late. My son started his first band at the

New Jersey CT at 9 and 1/2 months. He went into his second band at

14 months. He has been in the second band almost 3 months now. He

started with measurements of 16mm cva, 6mm facial asymmetry, and 6mm

skull base asymmetry. He was just measured last week and I cried on

the way home I was so happy. His cranial vault asymmetry is now 2mm,

his ear asymmetry (skull base) is now 1mm off, and his facial

asymmetry is down to 2mm off. I am so very happy with the correction

achieved with the DOCband on my son. He only has 6 to 8 weeks left

and that is for hopefully more filling in the areas he still needs a

little. I am happy to say my son looks normal. So older babies can

achieve excellent correction, it just takes a little longer.

Candy, mom to (DOCband #1, 10/5/01, #2, 2/25/02)

land

>

>

> --------- Forwarded message ----------

> From: Ellen Hemple <hemplee@j...>

> PositionalPlagioSupport@y...

> Date: Wed, 15 May 2002 18:01:03 -0400

> Subject: Newbie with older baby

> Message-ID: <20020515.180107.-229729.0.hemplee@j...>

>

> Hello!

> My name is Ellen and my 1 year old daughter Amy has plagio. Here

is our

> story. By the time we had our 2 month visit to our Ped., I was very

> concerned about the shape of Amy's head. Our ped. shrugged it off

and

> said to try repositioning and moving stimulus to her right side.

By 4

> months I was so concerned we saw Dr. Queenan, neurosurgeon at the

well

> respected A.I. duPont Institute in Delaware. He looked at her and

said

> moderate plagio with slight tort. I asked about helmets (not

knowing

> about bands and aggressive therapy at the time) and he scoffed and

said

> that helmets don't work and insurance companies don't pay for

them! He

> suggested repositioning, propping, and neck stretches. When Amy

was 5

> months old, just 1 month later, we saw the neuro. again because I

knew

> correction was best done on younger babies. He just told us the

same

> advice. I brought up my same concerns to our ped. at the 6 and 9

month

> visits. His advice was the same as many of you have heard....the

> condition will improve as the baby spends more time sitting up, it

will

> round out on its own, her hair will cover it! He even has

triplets, 2 of

> whom have plagio in the back so it doesn't affect the symmetry their

> faces! He did nothing with his own children and therefore was not

overly

> concerned. I however could see and was alarmed by all the

asymmetries of

> her head, face, ears, and cheeks.

>

> A day before Amy's first birthday, I picked up a BabyTalk magazine,

which

> is sent to me only occasionally. In it was a reader's response to

an

> article on plagio. and a response from CAPPS. I got up out of bed

and

> visited this web site. I was in tears seeing all the stunning and

> positive results achieved by banding. I contacted their co-founder

and

> others listed on the site. One recommendation was to see a Cranial

Tech.

> clinician for a free consultation. We live in New Jersey and the

CT is

> 21/2 -3 hours from our home. My husband was not supportive at first

> because he could not see the asymmetries and this was his perfect

little

> girl. I visited every web site I could to show him the results and

what

> might happen if we did nothing. In 3 days I was seriously " off the

> fence. " We had a ped. visit and a Cranial Tech visit in the span

of one

> short week.

>

> The OTR at CT confirmed what I had known all along. Yes, they could

> help, it will probably take 6-61/2 months and 2 DOC Bands. Her

> asymmetries were 21mm, 11mm, and 9mm. Well over the 6mm in 2/3

> categories recommended for banding. We are now awaiting a letter of

> medical necessity from our ped. and the prescrip. I am hopeful we

get

> that this week and can schedule a casting for next week.

>

> CT can't do anything without this info. and they'll hope for

immediate

> approval from AEtna USHealthcare. Our insurance initially has said

this

> will be covered out of network as DME. We have a $100.00 deduct.

and

> they pay 80%. This means we will pay about $1400 for 2 bands.

Should I

> be fighting my insurance to get them to pay 100%? Where is the

famous

> Tricia s? We need advice in this area. I have been advised

to

> have my ped. call and tell AEtna is a necessity and have it

processed on

> the HMO side of the plan. When I ran this by CT they said they

only have

> a code which is a DME code and AEtna will pick this up. Any

suggestions?

> Should I fight or be relieved they'll pay that much?

>

> Are we proceeding propery folks? I read all the lit. from CT and am

> still stunned that doctors are not right about this one! How can

they

> possibly think that ears, jaws, cheeks, and heads that aren't

aligned

> won't " be a problem " later on? Our OTR pointed out that even one of

> Amy's eyes is pushed forward in alignment. I was horrified that I

hadn't

> noticed that. The awful shame is that we viewed a casting of a two

year

> old's head at CT, not much different than my daughter's. This

almost

> adult sized misshapen head is the one this child will have for the

rest

> of his life.

>

> I feel as if I have been tremendously blessed to find CAPPS and this

> group before it was too late.

> My best regards to you all and a heartfelt thank you for helping

others!

>

>

> Sincerely,

> Ellen, mom to Amy

> Bridgeton, NJ

>

>

>

>

>

>

>

> ________________________________________________________________

> GET INTERNET ACCESS FROM JUNO!

> Juno offers FREE or PREMIUM Internet access for less!

> Join Juno today! For your FREE software, visit:

> http://dl.www.juno.com/get/web/.

[Guest guest]

>

Hi Ellen & welcome to our group!

We're so happy to have you with us! That is terrific that the

BabyTalk article made such a difference in your decision! I'm happy

to hear that.

I am so sorry though to hear of the way your neuro & ped. treated

your concernes from early on. Unfortunately though, that is so very

common. I really get so upset reading post after post about laid

back Drs.. The important thing though, is that you will now be

getting the band to help Amy's head shape.

My daughter also began her DOCband treatment when she was 11.5 mos

old. Abby wore one band for 4.5 mos time, with good correction! I

am sure you'll have good success with Amy as well.

As for your ins., it's up to you whether to try for more coverage.

Many group members don't get approved at all. It all depends on your

policy.

Welcome again, we look forward to hearing more from you as Amy's head

gets rounder! Let us know when the casting is scheduled. Good luck.

Debbie Abby's mom DOCGrad

MI

> --------- Forwarded message ----------

> From: Ellen Hemple <hemplee@j...>

> PositionalPlagioSupport@y...

> Date: Wed, 15 May 2002 18:01:03 -0400

> Subject: Newbie with older baby

> Message-ID: <20020515.180107.-229729.0.hemplee@j...>

>

> Hello!

> My name is Ellen and my 1 year old daughter Amy has plagio. Here

is our

> story. By the time we had our 2 month visit to our Ped., I was very

> concerned about the shape of Amy's head. Our ped. shrugged it off

and

> said to try repositioning and moving stimulus to her right side.

By 4

> months I was so concerned we saw Dr. Queenan, neurosurgeon at the

well

> respected A.I. duPont Institute in Delaware. He looked at her and

said

> moderate plagio with slight tort. I asked about helmets (not

knowing

> about bands and aggressive therapy at the time) and he scoffed and

said

> that helmets don't work and insurance companies don't pay for

them! He

> suggested repositioning, propping, and neck stretches. When Amy

was 5

> months old, just 1 month later, we saw the neuro. again because I

knew

> correction was best done on younger babies. He just told us the

same

> advice. I brought up my same concerns to our ped. at the 6 and 9

month

> visits. His advice was the same as many of you have heard....the

> condition will improve as the baby spends more time sitting up, it

will

> round out on its own, her hair will cover it! He even has

triplets, 2 of

> whom have plagio in the back so it doesn't affect the symmetry their

> faces! He did nothing with his own children and therefore was not

overly

> concerned. I however could see and was alarmed by all the

asymmetries of

> her head, face, ears, and cheeks.

>

> A day before Amy's first birthday, I picked up a BabyTalk magazine,

which

> is sent to me only occasionally. In it was a reader's response to

an

> article on plagio. and a response from CAPPS. I got up out of bed

and

> visited this web site. I was in tears seeing all the stunning and

> positive results achieved by banding. I contacted their co-founder

and

> others listed on the site. One recommendation was to see a Cranial

Tech.

> clinician for a free consultation. We live in New Jersey and the

CT is

> 21/2 -3 hours from our home. My husband was not supportive at first

> because he could not see the asymmetries and this was his perfect

little

> girl. I visited every web site I could to show him the results and

what

> might happen if we did nothing. In 3 days I was seriously " off the

> fence. " We had a ped. visit and a Cranial Tech visit in the span

of one

> short week.

>

> The OTR at CT confirmed what I had known all along. Yes, they could

> help, it will probably take 6-61/2 months and 2 DOC Bands. Her

> asymmetries were 21mm, 11mm, and 9mm. Well over the 6mm in 2/3

> categories recommended for banding. We are now awaiting a letter of

> medical necessity from our ped. and the prescrip. I am hopeful we

get

> that this week and can schedule a casting for next week.

>

> CT can't do anything without this info. and they'll hope for

immediate

> approval from AEtna USHealthcare. Our insurance initially has said

this

> will be covered out of network as DME. We have a $100.00 deduct.

and

> they pay 80%. This means we will pay about $1400 for 2 bands.

Should I

> be fighting my insurance to get them to pay 100%? Where is the

famous

> Tricia s? We need advice in this area. I have been advised

to

> have my ped. call and tell AEtna is a necessity and have it

processed on

> the HMO side of the plan. When I ran this by CT they said they

only have

> a code which is a DME code and AEtna will pick this up. Any

suggestions?

> Should I fight or be relieved they'll pay that much?

>

> Are we proceeding propery folks? I read all the lit. from CT and am

> still stunned that doctors are not right about this one! How can

they

> possibly think that ears, jaws, cheeks, and heads that aren't

aligned

> won't " be a problem " later on? Our OTR pointed out that even one of

> Amy's eyes is pushed forward in alignment. I was horrified that I

hadn't

> noticed that. The awful shame is that we viewed a casting of a two

year

> old's head at CT, not much different than my daughter's. This

almost

> adult sized misshapen head is the one this child will have for the

rest

> of his life.

>

> I feel as if I have been tremendously blessed to find CAPPS and this

> group before it was too late.

> My best regards to you all and a heartfelt thank you for helping

others!

>

>

> Sincerely,

> Ellen, mom to Amy

> Bridgeton, NJ

>

>

>

>

>

>

>

> ________________________________________________________________

> GET INTERNET ACCESS FROM JUNO!

> Juno offers FREE or PREMIUM Internet access for less!

> Join Juno today! For your FREE software, visit:

> http://dl.www.juno.com/get/web/.