Check out this page on Cleveland.com

[Guest guest]

Dear Plagio Parents:

(rmanias@...) thought you would be interested in this item from

Cleveland.com.

http://www.cleveland.com/medical/plaindealer/index.ssf?/xml/story.ssf/html_stand\

ard.xsl?/base/news/10212823303119256.xml

says:

Here is an article from today's Cleveland Plain Dealer. It quotes and

has a picture of her daughter Jane, which isn't shown, which stinks. Thought

you might be interested. It's not the most glowing article, but it gets the

word out!

Dane's mom

______________________________

Want more news and info from Cleveland.com?

Subscribe to My Newsletters and get

FREE e-mail updates delivered to your inbox.

http://www.cleveland.com/subscribe/

[Guest guest]

ok..i just had to put my 2 cents in..yes its good that the word is getting out but i don't like how the dr is quoted in this article..i didn't have very good things to say about him!!! just my opinion tho!!

brenda

mom of tucker

Check out this page on Cleveland.com

Dear Plagio Parents: (rmanias@...) thought you would be interested in this item from Cleveland.com.http://www.cleveland.com/medical/plaindealer/index.ssf?/xml/story.ssf/html_standard.xsl?/base/news/10212823303119256.xml says:Here is an article from today's Cleveland Plain Dealer. It quotes and has a picture of her daughter Jane, which isn't shown, which stinks. Thought you might be interested. It's not the most glowing article, but it gets the word out!Dane's mom______________________________Want more news and info from Cleveland.com?Subscribe to My Newsletters and get FREE e-mail updates delivered to your inbox.http://www.cleveland.com/subscribe/For more plagio info

[Guest guest]

-

I particularly loved (sarcastic) the comment where the dr said, "It's a cosmetic thing. It doesn't screw up your brain." Wow, that really confirms for me that doctors are really no better than any of us. They just have eight more years of school and two more initials behind their name. I CANNOT believe that article. Yes, as far as getting the word out, I hope someone out there who might have a child in this situation can benefit from reading that, but I hope that person takes what's important and then leaves all the other crap. I will never again let a doctor govern my decisions regarding my children.

And as far as the comment by the high and mighty doctor about being glad that's all we have to worry about, and not tumors and hemmorrahges, I say this: Again, it's an issue of whether or not it's your OWN child. That doctor is not going to tell me that he wouldn't do the exact same thing if it were his own child. And frankly, I think we parents have every right in the world to worry about the shape of our children's heads, cosmetic or not. When we brought these children into the world, and while we were pregnant with them, we wanted the very best for them possible. That's why we popped the huge horse pills every day and went to humiliating prenatal appointments and ate the right things (sometimes). We wanted the very best for our children from day one. And if it's for cosmetic reasons, I say, why not? We all know that's not the only reason, but yeah, I want my kid to look like everyone else. I was made fun of about my looks, crooked teeth, funny hair cut, until I was in the 7th grade and finally got braces and took control of my own hair. But the point is that I had a normal shaped head and kids were still cruel to me. Plus, our society won't admit it, but people are still judged by the color of their skin and whether they're a male or female. When my son grows up, will there be a new discrimination for adults with uncorrected plagio?

I have had it with these doctors and their holier than thou attitudes towards their patients and their parents. When did they lose sight of who they were? One of my good friends is pregnant right now and had her ultrasound yesterday. She's had one before so she knew common questions to ask. She asked about the size of her baby and if the spine looked okay. Her doctor just looked at her and chuckled and said, "Well, don't worry about it. That's what you pay ME for." What kind of crap is that? Get off your freaking pedestal and answer some questions for your patients.

I am so irritated by the attitudes. I think I could just go on and on. That article had many points that bothered me. The reporter needs some lessons in cooth also. Comparing a baby's head to that of Gumby in this very sensitive subject makes my head want to explode!

Kellie, mom of

Tacoma, WA

[Guest guest]

-

I emailed them a letter to the Editor slamming the Doctors! Let's

see if they print it!

> ok..i just had to put my 2 cents in..yes its good that the word is

getting out but i don't like how the dr is quoted in this article..i

didn't have very good things to say about him!!! just my opinion

tho!!

>

> brenda

> mom of tucker

> Check out this page on Cleveland.com

>

>

> Dear Plagio Parents:

>

> (rmanias@a...) thought you would be interested in this

item from Cleveland.com.

>

>

http://www.cleveland.com/medical/plaindealer/index.ssf?/xml/story.ssf

/html_standard.xsl?/base/news/10212823303119256.xml

>

> says:

> Here is an article from today's Cleveland Plain Dealer. It

quotes and has a picture of her daughter Jane, which isn't

shown, which stinks. Thought you might be interested. It's not the

most glowing article, but it gets the word out!

>

> Dane's mom

>

> ______________________________

> Want more news and info from Cleveland.com?

> Subscribe to My Newsletters and get

> FREE e-mail updates delivered to your inbox.

>

> http://www.cleveland.com/subscribe/

>

>

[Guest guest]

You go Girl

-----Original Message-----From: rmanias [mailto:rmanias@...]Sent: Tuesday, May 14, 2002 8:00 AMPlagiocephaly Subject: Re: Check out this page on Cleveland.com -I emailed them a letter to the Editor slamming the Doctors! Let's see if they print it!> ok..i just had to put my 2 cents in..yes its good that the word is getting out but i don't like how the dr is quoted in this article..i didn't have very good things to say about him!!! just my opinion tho!!> > brenda> mom of tucker> Check out this page on Cleveland.com> > > Dear Plagio Parents:> > (rmanias@a...) thought you would be interested in this item from Cleveland.com.> > http://www.cleveland.com/medical/plaindealer/index.ssf?/xml/story.ssf/html_standard.xsl?/base/news/10212823303119256.xml> > says:> Here is an article from today's Cleveland Plain Dealer. It quotes and has a picture of her daughter Jane, which isn't shown, which stinks. Thought you might be interested. It's not the most glowing article, but it gets the word out!> > Dane's mom> > ______________________________> Want more news and info from Cleveland.com?> Subscribe to My Newsletters and get > FREE e-mail updates delivered to your inbox.> > http://www.cleveland.com/subscribe/> >

[Guest guest]

Hi :

I'm with you. I am SOOOOOO tired of doctors' standard answer for

chronic conditions that are bothersome/painful/life-altering or

deformational situations that they have no clue what to do with (or

they do, but it would be " too hard " ) and they say " You should be

glad! You don't have a tumour! " . Great medicine. Tell the young

man of 27 who struggles with his " flat head " that it's not a problem

and that he should be grateful. I don't think so. We as parents and

he as someone with " flat head " do not have to be grateful that they

don't have something else. That minimizes the situation we are in

and is a very patronizing, belittling, shaming answer to our

situation. I'm disgusted!!

, Rhiannon's mom

> > ok..i just had to put my 2 cents in..yes its good that the word

is

> getting out but i don't like how the dr is quoted in this

article..i

> didn't have very good things to say about him!!! just my opinion

> tho!!

> >

> > brenda

> > mom of tucker

> > Check out this page on Cleveland.com

> >

> >

> > Dear Plagio Parents:

> >

> > (rmanias@a...) thought you would be interested in this

> item from Cleveland.com.

> >

> >

>

http://www.cleveland.com/medical/plaindealer/index.ssf?/xml/story.ssf

> /html_standard.xsl?/base/news/10212823303119256.xml

> >

> > says:

> > Here is an article from today's Cleveland Plain Dealer. It

> quotes and has a picture of her daughter Jane, which isn't

> shown, which stinks. Thought you might be interested. It's not

the

> most glowing article, but it gets the word out!

> >

> > Dane's mom

> >

> > ______________________________

> > Want more news and info from Cleveland.com?

> > Subscribe to My Newsletters and get

> > FREE e-mail updates delivered to your inbox.

> >

> > http://www.cleveland.com/subscribe/

> >

> >

[Guest guest]

Perfectly said...I Totally Agree....Ditto...Trisha

-----Original Message-----From: stinamom21 [mailto:dweston6587@...]Sent: Tuesday, May 14, 2002 9:02 AMPlagiocephaly Subject: Re: Check out this page on Cleveland.comHi :I'm with you. I am SOOOOOO tired of doctors' standard answer for chronic conditions that are bothersome/painful/life-altering or deformational situations that they have no clue what to do with (or they do, but it would be "too hard") and they say "You should be glad! You don't have a tumour!". Great medicine. Tell the young man of 27 who struggles with his "flat head" that it's not a problem and that he should be grateful. I don't think so. We as parents and he as someone with "flat head" do not have to be grateful that they don't have something else. That minimizes the situation we are in and is a very patronizing, belittling, shaming answer to our situation. I'm disgusted!!, Rhiannon's mom> > ok..i just had to put my 2 cents in..yes its good that the word is > getting out but i don't like how the dr is quoted in this article..i > didn't have very good things to say about him!!! just my opinion > tho!!> > > > brenda> > mom of tucker> > Check out this page on Cleveland.com> > > > > > Dear Plagio Parents:> > > > (rmanias@a...) thought you would be interested in this > item from Cleveland.com.> > > > > http://www.cleveland.com/medical/plaindealer/index.ssf?/xml/story.ssf> /html_standard.xsl?/base/news/10212823303119256.xml> > > > says:> > Here is an article from today's Cleveland Plain Dealer. It > quotes and has a picture of her daughter Jane, which isn't > shown, which stinks. Thought you might be interested. It's not the > most glowing article, but it gets the word out!> > > > Dane's mom> > > > ______________________________> > Want more news and info from Cleveland.com?> > Subscribe to My Newsletters and get > > FREE e-mail updates delivered to your inbox.> > > > http://www.cleveland.com/subscribe/> > > >

[Guest guest]

I thought the article was OK, but was worded pretty non-chalantely.

Thanx for sending it to us !

Kendra

Check out this page on Cleveland.com

Dear Plagio Parents: (rmanias@...) thought you would be interested in this item from Cleveland.com.http://www.cleveland.com/medical/plaindealer/index.ssf?/xml/story.ssf/html_standard.xsl?/base/news/10212823303119256.xml says:Here is an article from today's Cleveland Plain Dealer. It quotes and has a picture of her daughter Jane, which isn't shown, which stinks. Thought you might be interested. It's not the most glowing article, but it gets the word out!Dane's mom______________________________Want more news and info from Cleveland.com?Subscribe to My Newsletters and get FREE e-mail updates delivered to your inbox.http://www.cleveland.com/subscribe/For more plagio info

[Guest guest]

Kellie-

You should email that reporter. His email address is on the

article.

That comment from Dr. Cohen about how we should be glad it's not

something worse PMO too. Sure a broken bone or an ear infection is

better than having epilepsy, but shouldn't it still be treated?

Around here, it seems almost all of the dr. are anti-helmet. Most

of them never even tell parents about that option, so having it in

the paper is a good thing as far as I'm concerned. I am hoping

Jane's story and picture will alert some parents to the fact that

there are options other than having the kid's hair cover it up.

And the dr. who said it is just a cosmetic thing!!! What a PIA! My

son's eyes were 8 mm off. Is that just a cosmetic thing? I don't

think so. Imagine if your eyes weren't level. That would cause

vision probs.

Anyhow, sorry for rambling. My bro called me to say that he thought

the article made the dr. seem like pompous a**holes and that most

people can see right through that. I hope he is right!

Dane's mom

> -

>

> I particularly loved (sarcastic) the comment where the dr

said, " It's a

> cosmetic thing. It doesn't screw up your brain. " Wow, that

really confirms

> for me that doctors are really no better than any of us. They

just have

> eight more years of school and two more initials behind their

name. I CANNOT

> believe that article. Yes, as far as getting the word out, I hope

someone

> out there who might have a child in this situation can benefit

from reading

> that, but I hope that person takes what's important and then

leaves all the

> other crap. I will never again let a doctor govern my decisions

regarding my

> children.

>

> And as far as the comment by the high and mighty doctor about

being glad tha

> t's all we have to worry about, and not tumors and hemmorrahges, I

say this:

> Again, it's an issue of whether or not it's your OWN child. That

doctor is

> not going to tell me that he wouldn't do the exact same thing if

it were his

> own child. And frankly, I think we parents have every right in

the world to

> worry about the shape of our children's heads, cosmetic or not.

When we

> brought these children into the world, and while we were pregnant

with them,

> we wanted the very best for them possible. That's why we popped

the huge

> horse pills every day and went to humiliating prenatal

appointments and ate

> the right things (sometimes). We wanted the very best for our

children from

> day one. And if it's for cosmetic reasons, I say, why not? We

all know

> that's not the only reason, but yeah, I want my kid to look like

everyone

> else. I was made fun of about my looks, crooked teeth, funny hair

cut, until

> I was in the 7th grade and finally got braces and took control of

my own

> hair. But the point is that I had a normal shaped head and kids

were still

> cruel to me. Plus, our society won't admit it, but people are

still judged

> by the color of their skin and whether they're a male or female.

When my son

> grows up, will there be a new discrimination for adults with

uncorrected

> plagio?

>

> I have had it with these doctors and their holier than thou

attitudes towards

> their patients and their parents. When did they lose sight of who

they were?

> One of my good friends is pregnant right now and had her

ultrasound

> yesterday. She's had one before so she knew common questions to

ask. She

> asked about the size of her baby and if the spine looked okay.

Her doctor

> just looked at her and chuckled and said, " Well, don't worry about

it.

> That's what you pay ME for. " What kind of crap is that? Get off

your

> freaking pedestal and answer some questions for your patients.

>

> I am so irritated by the attitudes. I think I could just go on

and on. That

> article had many points that bothered me. The reporter needs some

lessons in

> cooth also. Comparing a baby's head to that of Gumby in this very

sensitive

> subject makes my head want to explode!

>

> Kellie, mom of

> Tacoma, WA

[Guest guest]

Hi Kellie:

I just want to add my 2 cents about these " godlike " attitudes.

Another thing that gets me is, if they happen to fix you, THEY did

it, THEY are gods. But if, as in the case of my daughter, the helmet

isn't fitting (due to a crappy design), all of a sudden it's the

patient's fault. Her head is " too deformed to get a good fit. " When

I had a rash (that was painful, itchy, drove me crazy, and covered my

entire body) that wouldn't go away for 2 years, I was told " I'm not a

god, be thankful it's not cancer, quit bothering me I have people who

are really sick and need my help " . I did find someone who was a

god - a humble herbalist who made a tea for me and cured the rash in

2 weeks. I have never had it back - and I didn't have to be abused,

shamed, belittled and put-down while I doctored with him. Go figure.

, Rhiannon's mom

> > -

> >

> > I particularly loved (sarcastic) the comment where the dr

> said, " It's a

> > cosmetic thing. It doesn't screw up your brain. " Wow, that

> really confirms

> > for me that doctors are really no better than any of us. They

> just have

> > eight more years of school and two more initials behind their

> name. I CANNOT

> > believe that article. Yes, as far as getting the word out, I

hope

> someone

> > out there who might have a child in this situation can benefit

> from reading

> > that, but I hope that person takes what's important and then

> leaves all the

> > other crap. I will never again let a doctor govern my decisions

> regarding my

> > children.

> >

> > And as far as the comment by the high and mighty doctor about

> being glad tha

> > t's all we have to worry about, and not tumors and hemmorrahges,

I

> say this:

> > Again, it's an issue of whether or not it's your OWN child. That

> doctor is

> > not going to tell me that he wouldn't do the exact same thing if

> it were his

> > own child. And frankly, I think we parents have every right in

> the world to

> > worry about the shape of our children's heads, cosmetic or not.

> When we

> > brought these children into the world, and while we were pregnant

> with them,

> > we wanted the very best for them possible. That's why we popped

> the huge

> > horse pills every day and went to humiliating prenatal

> appointments and ate

> > the right things (sometimes). We wanted the very best for our

> children from

> > day one. And if it's for cosmetic reasons, I say, why not? We

> all know

> > that's not the only reason, but yeah, I want my kid to look like

> everyone

> > else. I was made fun of about my looks, crooked teeth, funny

hair

> cut, until

> > I was in the 7th grade and finally got braces and took control of

> my own

> > hair. But the point is that I had a normal shaped head and kids

> were still

> > cruel to me. Plus, our society won't admit it, but people are

> still judged

> > by the color of their skin and whether they're a male or female.

> When my son

> > grows up, will there be a new discrimination for adults with

> uncorrected

> > plagio?

> >

> > I have had it with these doctors and their holier than thou

> attitudes towards

> > their patients and their parents. When did they lose sight of

who

> they were?

> > One of my good friends is pregnant right now and had her

> ultrasound

> > yesterday. She's had one before so she knew common questions to

> ask. She

> > asked about the size of her baby and if the spine looked okay.

> Her doctor

> > just looked at her and chuckled and said, " Well, don't worry

about

> it.

> > That's what you pay ME for. " What kind of crap is that? Get off

> your

> > freaking pedestal and answer some questions for your patients.

> >

> > I am so irritated by the attitudes. I think I could just go on

> and on. That

> > article had many points that bothered me. The reporter needs

some

> lessons in

> > cooth also. Comparing a baby's head to that of Gumby in this

very

> sensitive

> > subject makes my head want to explode!

> >

> > Kellie, mom of

> > Tacoma, WA

[Guest guest]

:

Thanks for forwarding that - it at least does get the word out. It

was OK, but far from great. I agree with Kendra about the wording of

it.

Debbie Abby's mom DOCgrad

MI

> Check out this page on Cleveland.com

>

>

> Dear Plagio Parents:

>

> (rmanias@a...) thought you would be interested in this

item from Cleveland.com.

>

>

http://www.cleveland.com/medical/plaindealer/index.ssf?/xml/story.ssf/

html_standard.xsl?/base/news/10212823303119256.xml

>

> says:

> Here is an article from today's Cleveland Plain Dealer. It

quotes and has a picture of her daughter Jane, which isn't

shown, which stinks. Thought you might be interested. It's not the

most glowing article, but it gets the word out!

>

> Dane's mom

>

> ______________________________

> Want more news and info from Cleveland.com?

> Subscribe to My Newsletters and get

> FREE e-mail updates delivered to your inbox.

>

> http://www.cleveland.com/subscribe/

>

>

[Guest guest]

Hi Guys,

It is (and Jane)from the article. Can you believe it? I hope

is right and that the public will see right through the

doctor's attitude. My mom had a good point about that stupid comment

at the end about the brain hemoraging.. " THATS NOT THE POINT DUFAS...

The article isn't about brain cancer..its about Plagiocephaly! " (Or

should we rename it " Gumby disease " Reporter ?) Ironically, it

was this very same Doctor Cohen who Jane and I saw as a specialist

when we were deciding about the band and you would not believe how

fast he whipped out his Rx pad to give us a prescription for DOC if

we wanted (although in all fairness he did reccomend we reposition).

I could tell from the interview that the reporter was going to be

more on the Doctors sides..However, the photographer who came and

took the picture was so nice..and stayed 45 minutes to talk about the

disease. He also had a 9 month old. He took some info to give to

another reporter to do an article about the insurance issues. Still,

this article pretty much shot any chance for insurance appeals

calling it both " cosmetic " and pretty much " unnecessary " ) Thanks

alot Plain Dealer! Thank God this peon paper has no nationwide

exposure! I am sure and my UHC appeal board was smiling ear to

ear when they saw it...just wait till they get a copy of the letter I

sent to Ohio Department of Insurance. can tell you..its a

good one!

Well, never the less. Jane looked really cute in her band and I hope

in the long run this sends a positive messsage to people that there

are options.

and Jane

Cleveland, Ohio

[Guest guest]

! A doctor really said that to you?! Quite bothering me?! WOW...that is insane. Did you say something really rude back to him/her? Ohhhh I would have given that doctor an earful! I do think many docs have God complexes, but I've never had one so blatently rude...whoa. Can't you report him to your insurance and the AMA or something? Ohhh I would really want to!

stinamom21 <dweston6587@...> wrote: Hi Kellie:I just want to add my 2 cents about these "godlike" attitudes. Another thing that gets me is, if they happen to fix you, THEY did it, THEY are gods. But if, as in the case of my daughter, the helmet isn't fitting (due to a crappy design), all of a sudden it's the patient's fault. Her head is "too deformed to get a good fit." When I had a rash (that was painful, itchy, drove me crazy, and covered my entire body) that wouldn't go away for 2 years, I was told "I'm not a god, be thankful it's not cancer, quit bothering me I have people who are really sick and need my help" . I did find someone who was a god - a humble herbalist who made a tea for me and cured the rash in 2 weeks. I have never had it back - and I didn't have to be abused, shamed, belittled and put-down while I doctored with him. Go figure., Rhiannon's mom> > -> > > > I particularly loved (sarcastic) the comment where the dr > said, "It's a > > cosmetic thing. It doesn't screw up your brain." Wow, that > really confirms > > for me that doctors are really no better than any of us. They > just have > > eight more years of school and two more initials behind their > name. I CANNOT > > believe that article. Yes, as far as getting the word out, I hope > someone > > out there who might have a child in this situation can benefit > from reading > > that, but I hope that person takes what's important and then > leaves all the > > other crap. I will never again let a doctor govern my decisions > regarding my > > children.> > > > And as far as the comment by the high and mighty doctor about > being glad tha> > t's all we have to worry about, and not tumors and hemmorrahges, I > say this: > > Again, it's an issue of whether or not it's your OWN child. That > doctor is > > not going to tell me that he wouldn't do the exact same thing if > it were his > > own child. And frankly, I think we parents have every right in > the world to > > worry about the shape of our children's heads, cosmetic or not. > When we > > brought these children into the world, and while we were pregnant > with them, > > we wanted the very best for them possible. That's why we popped > the huge > > horse pills every day and went to humiliating prenatal > appointments and ate > > the right things (sometimes). We wanted the very best for our > children from > > day one. And if it's for cosmetic reasons, I say, why not? We > all know > > that's not the only reason, but yeah, I want my kid to look like > everyone > > else. I was made fun of about my looks, crooked teeth, funny hair > cut, until > > I was in the 7th grade and finally got braces and took control of > my own > > hair. But the point is that I had a normal shaped head and kids > were still > > cruel to me. Plus, our society won't admit it, but people are > still judged > > by the color of their skin and whether they're a male or female. > When my son > > grows up, will there be a new discrimination for adults with > uncorrected > > plagio?> > > > I have had it with these doctors and their holier than thou > attitudes towards > > their patients and their parents. When did they lose sight of who > they were? > > One of my good friends is pregnant right now and had her > ultrasound > > yesterday. She's had one before so she knew common questions to > ask. She > > asked about the size of her baby and if the spine looked okay. > Her doctor > > just looked at her and chuckled and said, "Well, don't worry about > it. > > That's what you pay ME for." What kind of crap is that? Get off > your > > freaking pedestal and answer some questions for your patients. > > > > I am so irritated by the attitudes. I think I could just go on > and on. That > > article had many points that bothered me. The reporter needs some > lessons in > > cooth also. Comparing a baby's head to that of Gumby in this very > sensitive > > subject makes my head want to explode!> > > > Kellie, mom of > > Tacoma, WAFor more plagio info

[Guest guest]

,

I agree wholeheartedly with everything you said here. Does anyone here have problems with their parents or inlaws on this issue? My MIL keeps saying "Well, nobody's head is perfectly round" I feel like screaming when she says that. Well...my ears are lined up and I certainly don't have a large flat slant on one back of the side of my head. She's making me feel like I'm a nervous nellie, hypersensitive first time mom because I'm on such a mission to get Grant treated. I want his head normal shaped. I don't want to up his risks for things like vision problems, jaw problems (I have TMJ and OUCH it hurts!), etc. etc. I have to admit..most of all I don't want to be teased or for him to feel insecure about his head shape. He has a big head (always in the 75th or 90th percentile) and I want it to be more round. I don't think that is a lot for a mom to not want her baby to have a deformed skull...UGH! She doesn't understand that this is a relatively new issue with the back sleeping.

, mom to Grant

rmanias <rmanias@...> wrote: Kellie-You should email that reporter. His email address is on the article. That comment from Dr. Cohen about how we should be glad it's not something worse PMO too. Sure a broken bone or an ear infection is better than having epilepsy, but shouldn't it still be treated? Around here, it seems almost all of the dr. are anti-helmet. Most of them never even tell parents about that option, so having it in the paper is a good thing as far as I'm concerned. I am hoping Jane's story and picture will alert some parents to the fact that there are options other than having the kid's hair cover it up. And the dr. who said it is just a cosmetic thing!!! What a PIA! My son's eyes were 8 mm off. Is that just a cosmetic thing? I don't think so. Imagine if your eyes weren't level. That would cause vision probs. Anyhow, sorry for rambling. My bro called me to say that he thought the article made the dr. seem like pompous a**holes and that most people can see right through that. I hope he is right!Dane's mom> -> > I particularly loved (sarcastic) the comment where the dr said, "It's a > cosmetic thing. It doesn't screw up your brain." Wow, that really confirms > for me that doctors are really no better than any of us. They just have > eight more years of school and two more initials behind their name. I CANNOT > believe that article. Yes, as far as getting the word out, I hope someone > out there who might have a child in this situation can benefit from reading > that, but I hope that person takes what's important and then leaves all the > other crap. I will never again let a doctor govern my decisions regarding my > children.> > And as far as the comment by the high and mighty doctor about being glad tha> t's all we have to worry about, and not tumors and hemmorrahges, I say this: > Again, it's an issue of whether or not it's your OWN child. That doctor is > not going to tell me that he wouldn't do the exact same thing if it were his > own child. And frankly, I think we parents have every right in the world to > worry about the shape of our children's heads, cosmetic or not. When we > brought these children into the world, and while we were pregnant with them, > we wanted the very best for them possible. That's why we popped the huge > horse pills every day and went to humiliating prenatal appointments and ate > the right things (sometimes). We wanted the very best for our children from > day one. And if it's for cosmetic reasons, I say, why not? We all know > that's not the only reason, but yeah, I want my kid to look like everyone > else. I was made fun of about my looks, crooked teeth, funny hair cut, until > I was in the 7th grade and finally got braces and took control of my own > hair. But the point is that I had a normal shaped head and kids were still > cruel to me. Plus, our society won't admit it, but people are still judged > by the color of their skin and whether they're a male or female. When my son > grows up, will there be a new discrimination for adults with uncorrected > plagio?> > I have had it with these doctors and their holier than thou attitudes towards > their patients and their parents. When did they lose sight of who they were? > One of my good friends is pregnant right now and had her ultrasound > yesterday. She's had one before so she knew common questions to ask. She > asked about the size of her baby and if the spine looked okay. Her doctor > just looked at her and chuckled and said, "Well, don't worry about it. > That's what you pay ME for." What kind of crap is that? Get off your > freaking pedestal and answer some questions for your patients. > > I am so irritated by the attitudes. I think I could just go on and on. That > article had many points that bothered me. The reporter needs some lessons in > cooth also. Comparing a baby's head to that of Gumby in this very sensitive > subject makes my head want to explode!> > Kellie, mom of > Tacoma, WAFor more plagio info

[Guest guest]

lol..good for you rachel.i was worried i was the only one that didn't like him!!!what a rude thing for him to say...hurts the parents phsyche (sp) .... and especially the end comment..how unprofessional!!!

Check out this page on Cleveland.com> > > Dear Plagio Parents:> > (rmanias@a...) thought you would be interested in this item from Cleveland.com.> > http://www.cleveland.com/medical/plaindealer/index.ssf?/xml/story.ssf/html_standard.xsl?/base/news/10212823303119256.xml> > says:> Here is an article from today's Cleveland Plain Dealer. It quotes and has a picture of her daughter Jane, which isn't shown, which stinks. Thought you might be interested. It's not the most glowing article, but it gets the word out!> > Dane's mom> > ______________________________> Want more news and info from Cleveland.com?> Subscribe to My Newsletters and get > FREE e-mail updates delivered to your inbox.> > http://www.cleveland.com/subscribe/> >

[Guest guest]

I still am glad it was printed. I can't tell you how many parents

ask me about the band wishing they had known about it for their

kids. At least since it was printed in the paper, maybe some

parents will realize their kids have plagio and call StraightAhead

and they can be directed them to a competent Dr.

I just emailed that Dr. Cohen you are talking about. I found his

email address. I asked him if he was quoted out of context

(reporters are always doing this) or if he needed to work on his

people skills. I will let you know if I hear back.

Dane's mom

> lol..good for you rachel.i was worried i was the only one that

didn't like him!!!what a rude thing for him to say...hurts the

parents phsyche (sp) .... and especially the end comment..how

unprofessional!!!

> Re: Check out this page on Cleveland.com

>

>

> -

> I emailed them a letter to the Editor slamming the Doctors!

Let's

> see if they print it!

>

[Guest guest]

Yes. Unfortunately, yes I was really told that by a doctor

(dermatologist). I was only 18 at the time, so I didn't know how to

respond. I think I actually left the office feeling more depressed

and like a loser.

Thank God that 2 years later I found that herbalist. He saved my

life, or what was left of it. He also made me see that we need to

seek out our care. If it ain't working, get someone else!!

If someone (doctor, lawyer, taxidermist) were to treat me so

abusively these days, they would have to be prepared for the

consequences. I have 18 additional years under my belt since then,

and I'm not about to put up with anyone's sh** at my expense.

As for this latest thing with my daughter, I have some appeals in the

works, and will probably ask for my money back to pay for the new

band.

Thanks for your support and outrage - it really is outrageous, isn't

it!!??

> > > -

> > >

> > > I particularly loved (sarcastic) the comment where the dr

> > said, " It's a

> > > cosmetic thing. It doesn't screw up your brain. " Wow, that

> > really confirms

> > > for me that doctors are really no better than any of us. They

> > just have

> > > eight more years of school and two more initials behind their

> > name. I CANNOT

> > > believe that article. Yes, as far as getting the word out, I

> hope

> > someone

> > > out there who might have a child in this situation can benefit

> > from reading

> > > that, but I hope that person takes what's important and then

> > leaves all the

> > > other crap. I will never again let a doctor govern my

decisions

> > regarding my

> > > children.

> > >

> > > And as far as the comment by the high and mighty doctor about

> > being glad tha

> > > t's all we have to worry about, and not tumors and

hemmorrahges,

> I

> > say this:

> > > Again, it's an issue of whether or not it's your OWN child.

That

> > doctor is

> > > not going to tell me that he wouldn't do the exact same thing

if

> > it were his

> > > own child. And frankly, I think we parents have every right in

> > the world to

> > > worry about the shape of our children's heads, cosmetic or

not.

> > When we

> > > brought these children into the world, and while we were

pregnant

> > with them,

> > > we wanted the very best for them possible. That's why we

popped

> > the huge

> > > horse pills every day and went to humiliating prenatal

> > appointments and ate

> > > the right things (sometimes). We wanted the very best for our

> > children from

> > > day one. And if it's for cosmetic reasons, I say, why not? We

> > all know

> > > that's not the only reason, but yeah, I want my kid to look

like

> > everyone

> > > else. I was made fun of about my looks, crooked teeth, funny

> hair

> > cut, until

> > > I was in the 7th grade and finally got braces and took control

of

> > my own

> > > hair. But the point is that I had a normal shaped head and

kids

> > were still

> > > cruel to me. Plus, our society won't admit it, but people are

> > still judged

> > > by the color of their skin and whether they're a male or

female.

> > When my son

> > > grows up, will there be a new discrimination for adults with

> > uncorrected

> > > plagio?

> > >

> > > I have had it with these doctors and their holier than thou

> > attitudes towards

> > > their patients and their parents. When did they lose sight of

> who

> > they were?

> > > One of my good friends is pregnant right now and had her

> > ultrasound

> > > yesterday. She's had one before so she knew common questions

to

> > ask. She

> > > asked about the size of her baby and if the spine looked okay.

> > Her doctor

> > > just looked at her and chuckled and said, " Well, don't worry

> about

> > it.

> > > That's what you pay ME for. " What kind of crap is that? Get

off

> > your

> > > freaking pedestal and answer some questions for your patients.

> > >

> > > I am so irritated by the attitudes. I think I could just go on

> > and on. That

> > > article had many points that bothered me. The reporter needs

> some

> > lessons in

> > > cooth also. Comparing a baby's head to that of Gumby in this

> very

> > sensitive

> > > subject makes my head want to explode!

> > >

> > > Kellie, mom of

> > > Tacoma, WA

>

>

>

[Guest guest]

In a message dated 5/14/02 9:58:04 AM Central Daylight Time,

Kelliesmith@... writes:

<< Comparing a baby's head to that of Gumby in this very sensitive

subject makes my head want to explode!

>>

Yes, this comment was what I found particularly offensive about this article,

among a great deal of other things!

Marci

[Guest guest]

Kellie,

Very well said!! I totally agree with you on every point! Even if it were

to satisfy the medical " gods " and deem this as purely cosmetic, why act as if

we are all too vain and just being superficial- when in today's world,

anything out of the norm cosmetically is transfixed, transposed, moved,

rearranged, implanted, stretched, braced, molded, injected- why is this all

of a sudden so hugely unimportant because they feel its only cosmetic?!!! If

my child has crooked teeth, he'll get braces- but to think that the bones of

the skull not lining up correctly would only impact someone cosmetically is

so obviously stupid that I cannot believe the medical community would not

have more common sense about it potentially causing more problems!! I could

go on and on- but you all I'm sure feel the same way so I won't waste my hot

air!

On a side ego trip note, when I was first pregnant, I had some problems

spotting. So I began to educate myself and ask questions and the Doc was

like, you sound negative, your not being positive- I'm like, no, I'm just

being realistic. Then I was about 3 months along and had read that the

mineral selenium is very good for the brain and asked if he knew about it.

He was very nasty and said " just take the prenatal vitamin and don't worry

about the rest, it has everything you need " - then I told him about my

family's history of RH negative and wanted to know how mine read- he was very

irritated and said " well, I might as well give you the whole breakdown of

tests in your file and get it over with " - needless to say, the next day I

asked for a copy of my file and switched OB/GYN's- if he thought he was

dealing with someone that didn't want to have a brain, he thought wrong with

me! How do they get this bad? But actually, my dad was telling me years ago

the Docs didn't even want to tell you what your blood pressure was, they'd

say, " why, are you a Doctor? "

' Mom

[Guest guest]

,

Despite the numbskull reported and Doctor- the word did get out and many many

kudos to you and your cutie for making that happen. At the very least, maybe

someone out there is getting a clue of what may be happening to their child

and will start asking questions- and your story helped do that!! Thanks for

being a stand-up Mom!

' Mom

[Guest guest]

,

My parents were our biggest opposition in the beginning- they thought I was

sooooo overreacting about it and only mentioned the facial asymmetry after

the process of getting the band was started. My dad would even joke, " feel

your mother's head, it feels like she slept on a potato field...nobody's head

is perfect " - (heck I even got that from the Doctor- not the potato field joke

but that her eyes are off!).

I don't care how green you are, a mother knows her child and her sense of

what normal is, and nothing else matters than doing what you need to do to

help your child. My parents really started supporting me when they noticed

changes, and eventually, they thought he didn't look as cute without the band

on!!! Give it time, I'm sure your MIL will start to get a clue! Until then,

continue being the great, concerned and loving mom that you are

' Mom

[Guest guest]

Thanks - I finally got a chance to read the article and I am outraged

at the reporters opening line and the Doctor's statements. Although

informative, I agree with the consensus here that no duh are we grateful its

not a tumor- but yes- lets keep plagio in perspective and talk about plagio-

not mix apples and oranges! I am most definetley going to write a letter to

the reporter and the Doctor about their attitudes and see if the article

about the couple winning the lawsuit to pay for the band will make them smell

the coffee that we're serious about this and its not a joking or trivial

matter- obviously a judge felt it was necessary or would never have ruled in

their favor.

I don't care one iota that a Doctor doesn't feel this is medically

necessary- you can't tell me what my child needs and what this is about

because you really don't care enough to learn about it to know! Like many,

I no longer just listen to Doctors- I educate myself and question anything

and everything that doesn't sit well with me.

Thanks for your positive thoughts on my Dad- same thing there- he is so naive

about the Doctors doing the right thing- and I remind him that some Doctors

have amputated the wrong leg- ok!!! Always take matters into your own hands

I say! Thanks for the email addys- I have them saved for my letter!

[Guest guest]

I know how you feel my family says the same thing, why can't they remember

what it felt like to have a baby? My mom says I can't even notice it unless

you go on about it. First of all I don't go on about it and second of all It

is really noticeable. I escpecially notice when i am playing with her and we

look in the mirror. Have you noticed that difference?

Kim

Jessie's mom

>From: Robben <kellysdogs@...>

>Reply-Plagiocephaly

>Plagiocephaly

>Subject: Re: Check out this page on Cleveland.com

>Date: Tue, 14 May 2002 13:49:18 -0700 (PDT)

>

>

> ,

>I agree wholeheartedly with everything you said here. Does anyone here

>have problems with their parents or inlaws on this issue? My MIL keeps

>saying " Well, nobody's head is perfectly round " I feel like screaming when

>she says that. Well...my ears are lined up and I certainly don't have a

>large flat slant on one back of the side of my head. She's making me feel

>like I'm a nervous nellie, hypersensitive first time mom because I'm on

>such a mission to get Grant treated. I want his head normal shaped. I

>don't want to up his risks for things like vision problems, jaw problems (I

>have TMJ and OUCH it hurts!), etc. etc. I have to admit..most of all I

>don't want to be teased or for him to feel insecure about his head shape.

>He has a big head (always in the 75th or 90th percentile) and I want it to

>be more round. I don't think that is a lot for a mom to not want her baby

>to have a deformed skull...UGH! She doesn't understand that this is a

>relatively new issue with the back sleeping.

>

>, mom to Grant

> rmanias <rmanias@...> wrote: Kellie-

>You should email that reporter. His email address is on the

>article.

>That comment from Dr. Cohen about how we should be glad it's not

>something worse PMO too. Sure a broken bone or an ear infection is

>better than having epilepsy, but shouldn't it still be treated?

>Around here, it seems almost all of the dr. are anti-helmet. Most

>of them never even tell parents about that option, so having it in

>the paper is a good thing as far as I'm concerned. I am hoping

>Jane's story and picture will alert some parents to the fact that

>there are options other than having the kid's hair cover it up.

>And the dr. who said it is just a cosmetic thing!!! What a PIA! My

>son's eyes were 8 mm off. Is that just a cosmetic thing? I don't

>think so. Imagine if your eyes weren't level. That would cause

>vision probs.

>Anyhow, sorry for rambling. My bro called me to say that he thought

>the article made the dr. seem like pompous a**holes and that most

>people can see right through that. I hope he is right!

>

>Dane's mom

>

> > -

> >

> > I particularly loved (sarcastic) the comment where the dr

>said, " It's a

> > cosmetic thing. It doesn't screw up your brain. " Wow, that

>really confirms

> > for me that doctors are really no better than any of us. They

>just have

> > eight more years of school and two more initials behind their

>name. I CANNOT

> > believe that article. Yes, as far as getting the word out, I hope

>someone

> > out there who might have a child in this situation can benefit

>from reading

> > that, but I hope that person takes what's important and then

>leaves all the

> > other crap. I will never again let a doctor govern my decisions

>regarding my

> > children.

> >

> > And as far as the comment by the high and mighty doctor about

>being glad tha

> > t's all we have to worry about, and not tumors and hemmorrahges, I

>say this:

> > Again, it's an issue of whether or not it's your OWN child. That

>doctor is

> > not going to tell me that he wouldn't do the exact same thing if

>it were his

> > own child. And frankly, I think we parents have every right in

>the world to

> > worry about the shape of our children's heads, cosmetic or not.

>When we

> > brought these children into the world, and while we were pregnant

>with them,

> > we wanted the very best for them possible. That's why we popped

>the huge

> > horse pills every day and went to humiliating prenatal

>appointments and ate

> > the right things (sometimes). We wanted the very best for our

>children from

> > day one. And if it's for cosmetic reasons, I say, why not? We

>all know

> > that's not the only reason, but yeah, I want my kid to look like

>everyone

> > else. I was made fun of about my looks, crooked teeth, funny hair

>cut, until

> > I was in the 7th grade and finally got braces and took control of

>my own

> > hair. But the point is that I had a normal shaped head and kids

>were still

> > cruel to me. Plus, our society won't admit it, but people are

>still judged

> > by the color of their skin and whether they're a male or female.

>When my son

> > grows up, will there be a new discrimination for adults with

>uncorrected

> > plagio?

> >

> > I have had it with these doctors and their holier than thou

>attitudes towards

> > their patients and their parents. When did they lose sight of who

>they were?

> > One of my good friends is pregnant right now and had her

>ultrasound

> > yesterday. She's had one before so she knew common questions to

>ask. She

> > asked about the size of her baby and if the spine looked okay.

>Her doctor

> > just looked at her and chuckled and said, " Well, don't worry about

>it.

> > That's what you pay ME for. " What kind of crap is that? Get off

>your

> > freaking pedestal and answer some questions for your patients.

> >

> > I am so irritated by the attitudes. I think I could just go on

>and on. That

> > article had many points that bothered me. The reporter needs some

>lessons in

> > cooth also. Comparing a baby's head to that of Gumby in this very

>sensitive

> > subject makes my head want to explode!

> >

> > Kellie, mom of

> > Tacoma, WA

>

>

>

[Guest guest]

YES! That is when I really notice it...when I look at his reflection in a mirror. He looks all crooked. Especially because his ear on the flat side is pinned to his head all flat and the ear on the round side is sticking out. Anyone else experience this with the ears?

Kim Marttin <kjm980@...> wrote: I know how you feel my family says the same thing, why can't they remember what it felt like to have a baby? My mom says I can't even notice it unless you go on about it. First of all I don't go on about it and second of all It is really noticeable. I escpecially notice when i am playing with her and we look in the mirror. Have you noticed that difference?KimJessie's mom>From: Robben <kellysdogs@...>>Reply-Plagiocephaly >Plagiocephaly >Subject: Re: Check out this page on Cleveland.com>Date: Tue, 14 May 2002 13:49:18 -0700 (PDT)>>> ,>I agree wholeheartedly with everything you said here. Does anyone here >have problems with their parents or inlaws on this issue? My MIL keeps >saying "Well, nobody's head is perfectly round" I feel like screaming when >she says that. Well...my ears are lined up and I certainly don't have a >large flat slant on one back of the side of my head. She's making me feel >like I'm a nervous nellie, hypersensitive first time mom because I'm on >such a mission to get Grant treated. I want his head normal shaped. I >don't want to up his risks for things like vision problems, jaw problems (I >have TMJ and OUCH it hurts!), etc. etc. I have to admit..most of all I >don't want to be teased or for him to feel insecure about his head shape. >He has a big head (always in the 75th or 90th percentile) and I want it to >be more round. I don't think that is a lot for a mom to not want her baby >to have a deformed skull...UGH! She doesn't understand that this is a >relatively new issue with the back sleeping.>>, mom to Grant> rmanias <rmanias@...> wrote: Kellie->You should email that reporter. His email address is on the>article.>That comment from Dr. Cohen about how we should be glad it's not>something worse PMO too. Sure a broken bone or an ear infection is>better than having epilepsy, but shouldn't it still be treated?>Around here, it seems almost all of the dr. are anti-helmet. Most>of them never even tell parents about that option, so having it in>the paper is a good thing as far as I'm concerned. I am hoping>Jane's story and picture will alert some parents to the fact that>there are options other than having the kid's hair cover it up.>And the dr. who said it is just a cosmetic thing!!! What a PIA! My>son's eyes were 8 mm off. Is that just a cosmetic thing? I don't>think so. Imagine if your eyes weren't level. That would cause>vision probs.>Anyhow, sorry for rambling. My bro called me to say that he thought>the article made the dr. seem like pompous a**holes and that most>people can see right through that. I hope he is right!>>Dane's mom>> > -> >> > I particularly loved (sarcastic) the comment where the dr>said, "It's a> > cosmetic thing. It doesn't screw up your brain." Wow, that>really confirms> > for me that doctors are really no better than any of us. They>just have> > eight more years of school and two more initials behind their>name. I CANNOT> > believe that article. Yes, as far as getting the word out, I hope>someone> > out there who might have a child in this situation can benefit>from reading> > that, but I hope that person takes what's important and then>leaves all the> > other crap. I will never again let a doctor govern my decisions>regarding my> > children.> >> > And as far as the comment by the high and mighty doctor about>being glad tha> > t's all we have to worry about, and not tumors and hemmorrahges, I>say this:> > Again, it's an issue of whether or not it's your OWN child. That>doctor is> > not going to tell me that he wouldn't do the exact same thing if>it were his> > own child. And frankly, I think we parents have every right in>the world to> > worry about the shape of our children's heads, cosmetic or not.>When we> > brought these children into the world, and while we were pregnant>with them,> > we wanted the very best for them possible. That's why we popped>the huge> > horse pills every day and went to humiliating prenatal>appointments and ate> > the right things (sometimes). We wanted the very best for our>children from> > day one. And if it's for cosmetic reasons, I say, why not? We>all know> > that's not the only reason, but yeah, I want my kid to look like>everyone> > else. I was made fun of about my looks, crooked teeth, funny hair>cut, until> > I was in the 7th grade and finally got braces and took control of>my own> > hair. But the point is that I had a normal shaped head and kids>were still> > cruel to me. Plus, our society won't admit it, but people are>still judged> > by the color of their skin and whether they're a male or female.>When my son> > grows up, will there be a new discrimination for adults with>uncorrected> > plagio?> >> > I have had it with these doctors and their holier than thou>attitudes towards> > their patients and their parents. When did they lose sight of who>they were?> > One of my good friends is pregnant right now and had her>ultrasound> > yesterday. She's had one before so she knew common questions to>ask. She> > asked about the size of her baby and if the spine looked okay.>Her doctor> > just looked at her and chuckled and said, "Well, don't worry about>it.> > That's what you pay ME for." What kind of crap is that? Get off>your> > freaking pedestal and answer some questions for your patients.> >> > I am so irritated by the attitudes. I think I could just go on>and on. That> > article had many points that bothered me. The reporter needs some>lessons in> > cooth also. Comparing a baby's head to that of Gumby in this very>sensitive> > subject makes my head want to explode!> >> > Kellie, mom of > > Tacoma, WA>>>